My mother has lived with us for 3 years now. She has her own apartment downstairs with a private entrance. She has severe hearing loss and hearing aids do not help much. She has a curvature in her spine, but was fine until she fell over 3 years ago and now does not trust her legs to hold her up. She has all but completely withdrawn from any interaction with the outside world. She will go to the grocery store weekly, but not much of anywhere else. My husband and I ask her continuously to go places with us, but she refuses. She uses her hearing as an excuse. She is afraid of everyone who comes to our house, and will leave the room if anyone comes over. She sets in the dark most times and does not talk to anyone except the dog. I'm an only child. I don't know what to do to help her. Should I try to contact her doctor and talk with them about how she chooses complete isolation?
Lisa
Talk to husband calmly and tell him your truth. Tell him how the situation is making you feel. How you love him and want to help out but it is robbing your spirit and you can't go on. Some things need changing and reevaluating. How about hiring a caregiver from an agency or from some other means once or twice a week. This way you can have a day away from them. The second day you could go out with husband. If it is a CNA from an agency they could bathe father in law etc. Have the money paid by in laws from money they got from sale of home. Or, split the costs. Another option is senior day care. Have them put into senior day care maybe twice a week. They serve them meals there, there are activities etc. This way you can be home alone. Talk to mother in law and ask her to please do her laundry it would really help you out and you think it would be good for her to do a little activity. Also, ask her if she would fix lunch for Father in law from now on that would take a load off of you, say you feel a bit overwhelmed with everything. Schedule weekends away with husband and go away, hire care. Or, if someone can take parents for the weekend every so often. Everything else is the way it is...dr appts, Rx's..etc...only way to get out of that is to put them in an assisted living which is quite costly or in a nursing home. Another option is a private home. There are private homes that they can stay in for care. That is cheaper then an assisted living usually. The downstairs situation most likely will not change. They spread out and that's it. My Father watches tv in his bedroom and my mom in hers but they have separate bedrooms. She wants it that way. Maybe set up a tv in your room etc. I know what you mean about wanted time with your husband. I have never had time with mine. I had a son before I married him so it was an instant family. Our daughter hadn't even left for college when my dad moved in with us. My husband and I long for time together I hope someday we get it. We are going away to Lake Tahoe for 2 days and coming back the third day. My Mother is having a fit over it. Says that I can't take care of my father cause I am always going. I tell her well I am doing it. She says she doesn't have enough money to pay for the caregiver. But, she does. She has only paid for one overnight stay when we recently moved our daughter. My sister will not help out anymore. For awhile when husband and I went out of town he would take care of dad not anymore. She has alot of her own emotional/mental problems right now. My brother does my parents finances. He works 6 days a week so he has an excuse plus he still has two kids at home. You are lucky you can still leave them. I leave my dad with my mom to run errands..which are usually for her and sometimes for all of us. Good Luck. Tie a knot and hang on. Once you invite them in it is Pandora's box. They might not mean to be trouble but it comes along with the territory. Husband needs to be more empathetic to your plight otherwise he might find himself taking care of them by himself. Doubt if he would do what you have been doing.
Cindi..........Oh Donna...I am ready to go!!!!!!!!!
I had to laugh when I read your posting to Lisa. I had such a hard time explaining the contractor that is making my mom and dad's attachment that they needed two separate bedrooms. He looked at me like I was nuts. She wants it that way, if she had to stay in the same room with him she would die. I never met anyone with my same situation before besides you. I love it!
Love,
marylynne
Mom is giving the silent treatment today, don't know why, she does that once and a while.
Graduation was yesterday, it was super windy, they had to hold on to their hats.The lady sitting in front of me got pooped on by a bird.
It was at an amphitheatre at a local park, it started to pour when we were waiting for them to finish a group picture, so my brand new dress got soaked. Then on the way home all the traffic lights were out and alot of places had no power. Came home and changed and found a restaurant open to go to dinner. It sure will be memorable.
My husband saw my mom snooping around my Dad's room when he was sleeping, he likes to hide money so she was looking to see if she could find some, my Dad doesn't trust her.
I have already been expaining to him that he will have to pay for someone to come in and take care of his meds when I am gone on vacation. He told me this morning that he didn't want to be alone with my mom for a long time. I told him either we get someone to come to the house or he will have to go to respite care.
I told him nothing he says is going to stop me from going, I have my own family and I have only a few years with my boys home and we need that time together.
We go to the urologist tomorrow.
Oxoxo Judy
love, donna
Judy I am glad you are setting your boundaries. Our parents always want us to do what is easiest and most comfortable for them and most of the time we do it like obedient daughters. But it is all too much sometimes, and then we get resentful. Hope you have a great vacation, something to look forward to. Congratulations on your son's graduation! Too bad your pretty dress got soaked but it will wash and you probably looked lovely in it. It will be a memorable graduation, glad you got to go out to dinner. I guess it is like life you never know what you are gonna get and the weather is so unpredicatable anymore.
Donna, I know what you mean about regretting how you feel and what you have said when it does happen. But, in the meanwhile...guess we have rights to our feelings. They are just feelings.
Back has been hurting since last night. Hurting now. Just finished bathing Dad. Time to make lunch and I am just sitting here for a few minutes been nonstop all day. Been back to curves for a few weeks. Taking awhile to get back into it. Esp since I hate excercise! Stopped going when I was sick for those 3 weeks in May. My dad likes soup so gonna give him wonton soup for lunch. Made some wontons last week and kept some.
Wonder how Cathy is doing and her father.
Marylynne, I think our mothers are sisters!!!! Laughing.
Tomorrow is my day away, yeah!!! I like it when I get to get away twice in a week! Makes me feel like I am getting away with something..haha..
AFter lunch I have to go out again to get Birdseeds for my mother. This is the third time. Took her once she bought the wrong one. Took her twice they were closed. Took her again they ran out. Oh this is the fourth time actually...and now I am going again...made her call first. Already been out grocery shopping (ew)...spent lots of money. Don't you all just get so tired of planning, shopping, cooking...I want to quit my job!!!! Or Jobs that is...
Hugs
Cindi
Thanks for all the input. My husband is very appreciative of all I have been doing and is supportive - he just has a lot of problems talking to them about what is bothering us. I think the parent/child relationship gets complicated when the roles get reversed. He wants to respect them and honor them, and so it is hard for him to assume the role of telling them what to do. They have been with us a year and a half and he is now able to talk to his dad but not his mom. I guess he is afraid she will cry or something. It makes me feel that he is supporting his mom instead of me, but now I'm starting to think that maybe I should just talk to her. I have been waiting for him to do it, since it is his mom, but it isn't happening.
Can ya'll give me any input on bathing - do your parents resist, and how often do you do it? Both of mine don't want to bathe, and on top of that with the Depends, and not washing their clothes (my mil just hangs hers back up again at the end of the day and wears them over and over), the whole bedroom they are in stinks and the smell is drifting into the hall! These subjects are so delicate, and no wonder my poor husband doesn't want to talk to her!!
Glad to hear you are getting away - I can leave my fil and mil to run errands, but we don't want to leave them overnight. We have had a couple of weekends away, and those were pure heaven. We are taking a family vacation in August, and my sister-in-laws (three of them) are all coming to stay while we are gone.
Have a great rest of the day.
Lisa
yes, it is hardest to talk to those that are closest to us. But it is his job as your husband to do it. If you can talk to her that would help too, but seeing that he is her son he could play mediator and stuff between the two of you. Boundaries have to be set. It's not working well. Even when it does work it is very difficult at best. I bathe my father every other day. I figure that he doesn't do anything and this way the skin has some time to lubricate itself so it doesn't get so dry from overbathing. Plus it is easier on me. My mother bathes herself I think she showers every other day too. Once again bathing boundaries must be set. Like they need to bathe a certain amount of times a week. You are all living together and they may not be aware that their is odor etc...and it is unhygienic and bothers you all. If they need assistance with bathing..hire a caregiver to do it...if you don't feel comfortable doing it. I can't help wonder why none of their own daughters is taking care of them??? It seems if they have that many daughters one of them would do it over you and hubby. I mean you could help..but not take it over.
Glad you guys get to get out sometimes and that you will be relieved so you can take a vacation.
That is more then some of us have...
Cindi
Hope you all are doing okay. Weather here is gloomy. June gloom. Have stuff to do before the caregiver comes to relieve me for my day away. She doesn't come til 1:30 until 5 then husband comes home from works and takes over. He just has to serve my dad his dinner and give him his meds so not too bad. I do feel grateful to him. Have to cook before I leave. Feel gloomy even though I will get away today. Wish I didn't have to get away sometimes I just want to stay home or having another house I can get away to will be good. Just kinda feel it's the SSDD syndrome...(same sh*t different day)... Tomorrow opthalomogy appt for Mom who continues to have problems with her eye. Frankly, I think getting old is hell.
Wishing you all a smooth day
Cindi
He can't get in and out of a tub anymore. So he ususally gives himself a good washing before an appt., He wears the same clothes for 3 days then I lay clean ones out for him to change into. My mom usually wears the same clothes everyday except if we go to the dr. I wash Dad's clothes, she washes her own.
She cleans her own room and showers once a week. I clean my Dad's room and his bathroom, and the rest of the house.
He doesn't need depends yet but he usually doesn't wear underwear. This morning he walked with the walker to his bathroom with no pants on. He was going to wash then put some boxers on. His shirt was long enough to hide the privates and noone else was up yet.OMG!!! He came out without his boxers on and said I hate washing.
Took him to the urologist today and have to go get a ct scan tomorrow to locate the kidney stones. Yeah more appts.
Lisa, its hard to change a habit that didn't have boundries in the first place, I hope there is a kind way of telling someone that they need to change their bathing habits. Maybe having an aid come in would be the better person to do that, and I would throw their clothes in the wash, maybe say you haven't worn this outfit in awhile, let me wash that one and you wear this one, help pick out something else to wear.
Donna i don't think we will regret the words we say to them, besides we are spending alot of time with them probably more then our own kids, I know my parents moved wherever I did, they are always with me. I was their focus in life as an only child.
Have fun thinking of all of you, Judy
every day each one of us have challenges, and i think that burning them is a great idea. only thing, as many complaints as i have, would cause a forest fire. lol. my heart goes out to u for the injustices that you have and still do suffer. Just like the majority of our parents, he is ungrateful and mean. You will have to learn to stand your ground, regardless of how nasty he is with you.....love you girls, Donna
I find that so many a times in the day I say to myself that I want to be free. Would I be happy? Do I even know how to be happy? Maybe, I was meant to be an unhappy person. I don't even know if I would know how to act without having to care for people and worry about what was happening. I don't even know what I would do with my day without having to go to the doctor or pharmacy.
When my husband had his angiogram the other day, my mother fussed at me for not calling between 9:00 and 12:00. I made up an excuse that I couldn't use the cell phone in the hospital and didn't know my way around enough to go outside to use it. I thought to myself after I told her this, Why did I say that? I am an adult, I should just be able to say because I didn't feel like it. But, that little thing about me comes out that doesn't want to hurt anyone's feelings. But they don't mind hurting mine.
I decided today, that if I died before them, I guess that would take my pain away. I don't really want to die, but when will I get peace. I thought another horrible thought too...What if my father did die, would my Mom be worse or better. They do have a love-hate relationship. Would my Mom be afraid to be by herself, if I had to leave for a couple of hours. Would she start asking to go with my husband and I? There IS NO WAY OUT OF THIS!!! I Really don't see anyway out of this. I am getting more depressed and very afraid of the future. I know they tell you don't think about the future, but I can't help but thinking about being in this same position 20 years from now. OH MY GOD....
Mia, I can tell you one thing sweetie, you are a good girl, especially for being an adopted child that didn't have parents that were very supportive. I don't know if I could have given up my house to live with him. You must be a very unselfish person, like Donna who gave up her home.
Love to all you girls, and by the way angiogram came out O.K. and a day out at the hospital was better than being home. Isn't that horrible?
Marylynne
I know what kind of person i am and I can hold my head up high for taking on a responsibility that is a real big one, we all can. So Mia you are right along with the rest of us don't feel guilty about anything you do for your father, just do the best you can.
MLV, I get to go to the hospital too, Dad needs a ct scan. At least I can go to the coffee stand and get a capacinno. Glad your hubby is alright.
Real tired today, last day of school for the kids here.
Hope Cathy is ok. oxoxo Judy
Had a big fight with my Mom today. Went to the urologist with her, waited an hour and half and then had to go to Walmart to get prescriptions. While in there decided to get a few groceries and told her to go look at the housewares while I got the groceries. She asked me to hold her purse so that her back would not bother her. I was 15 minutes in all even with checkout. When I got back to her she balled me out for getting more than a few things and I had her purse with her glasses in it and she could not look at anything. I told her how was I supposed to know she needed her glasses. She said she does not want to be with me when I do groceries. We have had this fight before. I told her As much as I do for her and my Dad, the least she can do is wait for me to get a few groceries, so I don't have to make a trip back. She said she was not wrong and would not apologize.
Here I am again feeling unappreciated and used. I go through the store making myself a nervous wreck to make sure I do not leave her for too long. She sometimes loses her way or gets tired. I'm never more than 15 minutes. When I do big groceries, my husband goes with me. I thought it was terribly mean and selfish of her to treat me that way and told her so.
I am not talking to anyone in my house. My husband has blamed for things this week, my 20 year old, and my little one too. I'm tired of it and am going to leave next time anyone aggravates me.
I HATE MY MOM TODAY.
Marylynne
Judy, I use a transfer bench in the tub for my father. He had a knee replacement a few years ago and we bought one then. One can sit down on it from the side then swing your legs up and over into the bathtub. Any shower bench will do most likely. Then I bought a shower nozzle with a hand held attachment. He sits in bench and I bathe him with a shower/bath. I lay out his clothes and a fresh depends everyday otherwise he would not change his clothes.
Donna, funny how they can treat others better then us huh? Taking a loan out of the house for daughter in law...lucky girl.
Mia, I feel for you. If adopted father has money good time to put him in an assisted living residence. No reason for him to treat you like dirt and for you to accept that behavior. If I were in your situation with the history you stated I would not take care of him. No way, no how. Let his 37 year old gf take care of him...or pay to get taken care of. You can visit him and do some of his bidding if he treats you with respect otherwise...he is on his own..that is how I would handle it.
Cathy, sending positive energy to you and dad....hope things are going okay.
Love to you all....
Cindi
They act like they are the only patient the doctor has, that there are no other sick ppl.
Even for an office visit he doesn't think he needs an appt. and he gets very impatient when you have to wait. I wish I had a doctor in the family that I could call on 247.
Marylynne take a day off, your mom sounds stubborn enough to handle things for a day and then maybe she will realize for a short time how much you do, going on strike doesn't last long. Oxoxo Judy
That is the way my Mother is also. It gets embarassing sometimes because she will try and get me to keep bugging the doctor and or nurse for her. When my mother was in the ER a few weeks ago she told me to grab the doctor after he had already seen her and was waiting for results. She was impatient. I told her no, I wouldn't get him. She was angry! She said I kept challenging what she said. Actually, it was just I didn't want to do what she wanted me to do when I knew it was unreasonable. Poor you. Hate when they are that way. If you had a doctor in the family it would be even worse, I think. It's just them, the way they are. I think when people get old they just don't care anymore about social etiquette etc. They want it and want it now and they just don't care. But, it doesn't work that way sometimes...Meanwhile we are caught in the middle as usual.
Marylynne, I agree with Judy...Take time off hun.
Cathy...how are you and Dad doing..family? Where are you hun?
Donna, how is your family doing? Son and boyfriend, grandkids? Most importantly how are you doing? Is Mother being better?
Got a ton of things to do...
Hugs to all
Cindi
Thank you all for all the good wishes and prayers. Dad has finally moved into a great re-hab center. His insurance approved it . We were surprised. Dad has had some crazy stuff going on the past few days. It turns out the cyst he had on his chest almost killed him, if the nurse had not looked at his incission at that time it would have seeped into his heart cavity.
Dad is stable. they are trying to lower some doses on his meds. We will see. Dad is refussing therapy. He is going to make me nuts. He wants to come home, but doesn't want to do the work.
I can not take care of him the way he is. Brother wants to know WHY? He says take him home and have home health care help. Brother doesn't understand that home health care only comes for about an hour a day! I can't do it for the other 23 hours of the day. I told brother if HE WANTS TO HE WANTS TO TAKE HIM HOME HE COULD. Brother has not lived with dad in 27 years. Would like to be a fly on the wall for the first fews weeks if that happened. (haha like it would)
I am so tired. I need a break too. Would love to run away with all of you ladies. Let someone else be incharge. Like anyone else would know what to do.
My friends keep asking if I am coming to N.J. this summer. Sorry no. First time in 4 years that I have not gone. We moved to Florida 4 yrs. ago. I miss my friends. I have been friends with them since we were born. We grew up on the same street. There are 5 of us. All with in a year of each other. We are all very different people but we are always there for each other. We have girls night out when I go up. Dinner, movie, or anything else we can think of. I could use a girls night out.
I'm sorry for rambling. Just thoughts in my head.
I hope you all found something to make you smile today.
Hugs to all,
Cathy
Rehab is wonderful and tell brother to shove it up his a**. If my brothers, either one of them would take my mom or dad for just a few days they would know what I go through and every other lady here goes through. And you are right about us being the only ones to know what to do. I went off for a few hours one day and my brother forgot to bring my parents something to eat.
Take a rest while dad is in rehab. I made the biggest mistake of my life 8 years ago when my dad broke his pelvis and had a stroke. They told me he needed to be in a nursing home and my mother cried. I told her we would take him home and deal with it the best way we knew how. Over the years he has gotten stronger, but the uphill battle was there. I should have put him in then and let it come what may. It was too hard... So tell Dad you can't come home till you can do what you were doing before. That will give him every initiative to do his rehab work. He'll be flipping cartwheels in no time.
Love,
Marylynne
Thank you so much. You made me laugh out loud for the first time in I don't know how long!
Our brothers don't have a clue.
Most people don't have a clue when it comes down to it.
I love coming here. Even if I don't write, I read. It makes me feel better.
We were supposed to go to Ireland next summer. We had found a cottage we wanted to rent in galway. Now who knows if we will even be able to go!
I don't know if I would be able to go that far away. Even if I could find someone to stay with dad for that long.
Help!
Cathy
Vacation is so rare around here that my 12 year old went to DisneyWorld last when she was 3. We did go to Destin last year. My brother promised me to keep my mom and dad for 3 days. He was putting his house together from Hurricane Katrina, but it was pretty much complete. On the last day, he made excuses that he didn't have a bed that my dad could get into and my mom would have no where to sleep. Of course, he was telling this to my mother, who got very upset and said he doesn't want us there. I called an aunt of mine, and she took pity on me and came.
Of course, my mother still talks to this brother and says when she is talking to him, hon, call me sometimes, I miss hearing your voice. VOMIT!!!
Hire someone in so you can go to Ireland. You're 37, don't let another 10 years go by and feel like I'm feeling now.
Girls, this morning I woke up and started crying. My mother asked what was wrong with me and I said, I HATE MY LIFE. Now if I was told tomorrow that I was dying, I probably would wish for any kind of life. But, complain as I will, I told her I want to be normal. What is normal, she said. I said THIS IS NOT NORMAL.
She avoided me the rest of the day, which was fine with me. I think getting towards 50 is changing me. Maybe menopause hormones are kicking in. Menopause may be a blessing. Maybe I will tell everyone off and leave for good. Meet ya'll at the border.
Cathy, I do want to go to New York before I die. That's on my bucket list.
Love,
Marylynne
Marylynne, you must have seen the bucket list. Yes, New York is on my list too! You probably are peri-menopausal because sounds like your moods are swinging. I know that I am. Good luck to my mother having me take care of her when I am menopausal! Ha.Ha...Maybe I will be able to give as good as I can take (wink).
Cathy, good to hear from you. Glad your Father is in rehab. He belongs there. I agree with Marylynne it will be incentive for him to do well in rehab if he knows you are serious that she isn't coming home til doctor sees it fit. As far as you brother...well it is easy to talk when you aren't taking care of the patient. Too bad you can't see your girlfriends this year. I know what it means to give up things in order to take care of your family and your father. Last night I was going over some papers that were given to me by my son's high school. I was involved in one of the organizations and was given some certificates of appreciation and recognition. I use to like to organize events. Not anymore I've given up on many things. Not enough time or energy. Now, I organize a senior facility...laughing. Gonna hang a sign out my front door. Senior living inquire within/geriatric center.
My whole life is about my Mother and Father and I'm not kidding. But, I know that for you all it is about the same especially those of you without kids at home like me. Anyways...Have a real nice weekend. God Bless You All....and your beloved parents.
Cindi
Today seems to be quiet that means things are brewing for tomorrow, lucky me.
Take care girls, Judy
I had to laugh reading the end of your posting. Isn't that the truth. Just when things are calmer and quieter you wonder..okay, what is next and when?!
Forgot to get my own bloodwork done for my physical today! I couldn't believe it! So busy taking care of everyone else forgot about me. I apologized to the doctor. Talked to him about gastric procedures for weight loss he is going to put the papers through. I don't really want to do anything but haven't be able to do it on my own.
Take care everyone!
Cindi
sorry for the poop details but thats whats happening today :)
Did some gardening and outside work today was really nice out for a change, sat on the patio and almost dozed off. Still pretty quiet on the mom front I tell you something big is brewing.
Donna hope mom feels better, like they say silence is golden.
oxoxo Judy
Donna, I hope your Mother is feeling better and that you didn't have to go to the ER. Thank you for the kind words you are nice. Don't think I'm such a great leader trying to please Everyone...(laughing).
You are all a special women very loving and giving,devoted to your families. We are Awesome! Some of us are lucky to still have our Dad's give them an extra kiss and hug.
Have a Great Sunday!
Love and Hugs
Cindi