My mother has lived with us for 3 years now. She has her own apartment downstairs with a private entrance. She has severe hearing loss and hearing aids do not help much. She has a curvature in her spine, but was fine until she fell over 3 years ago and now does not trust her legs to hold her up. She has all but completely withdrawn from any interaction with the outside world. She will go to the grocery store weekly, but not much of anywhere else. My husband and I ask her continuously to go places with us, but she refuses. She uses her hearing as an excuse. She is afraid of everyone who comes to our house, and will leave the room if anyone comes over. She sets in the dark most times and does not talk to anyone except the dog. I'm an only child. I don't know what to do to help her. Should I try to contact her doctor and talk with them about how she chooses complete isolation?
Keep your chin up and take comfort in Valentine. She may be what you need, unconditional love, and we are all here for you. Take care and keep posting what happens. You are a true tower of strength. If either of my parents ever hit me, I would have to put them away. You are inspirational.
Love, Marylynne
My mother made me crazy this am I was a stressed wreck. Trying to get out the door with dad to his hematologist appt. Also, I am trying this new healthie way of eating. Had to go to store and buy all this food and it was just for today not sure if I can afford to eat like this. So was stressed trying to go to excercise, go to market, fix this unsual breakfast for myself, feed dad, bathe dad, and get to doctors by 10:45 all the while mom asking me a hundred questions! I was eating my breakfast in the car!...anyways....calmer pace right now thank god. I had to cancel Las Vegas room reservations cause mom decided not to go. Instead she wants to go to an Indian casino in Temula, CA.. So, made reservation for one night stay. Going to take her Friday. Having hubby take a vacation day to take care of dad. My Mother adores slot machines! She didn't get to go to Vegas last year. She use to go every 6 months. Husband is on phone now gotta go..have a nice day!
Hugs
Cindi
I have been where ya'll are since August. I feel like absolutely running away for good. No matter what I do, it will never be enough for the horrible woman. You know, I always knew she was selfish, but just didn't want to admit it, until she lived with me. I'm trying that agreeing with everything she says thing, but its not good for my soul. I feel like I'm giving up a part of me to please everyone. Cindi, you have such a way with words. Everything you write is exactly the way I feel. Every my mom gets out of my site, I wish her dead. I know God is going to punish me, but I can't help it. My father is a different story. He wants to live as long as possible, and I can understand that. No one wants to die. But, why would he want to live in the condition he is in. All he does is eats, sleeps and sh--ts. How can he wake up every morning and still want to go on, when I don't. I don't understand it.
The truth of the matter is, our parents are well satisfied being with us. It gives them a reason to live and go on, when all it does for us is makes us miserable. If we had someone who appreciated it, it would be much easier to handle. Cindi, where was your dad when your mom was in a home. Did he live with you? It seems our dad's, however more disabled, is easier to handle and take care of.
I love you all and hope tomorrow is a better day, although for me, got a feeling tomorrow will be evil. Everytime Mom feels even a little good, she gives me more trouble that day.
Love you,
Marylynne
Well, tomorrow is another day....Pray I will...I am trying to seek an answer.
Cindi
Love,
Cindi
I am 46 and my mother officially moved in with us May 2007. She has been living with us on and off after each of her hospital stays but changed her address officially in May.
She is 77 and has a heart condition, osteoporsis, diabetes, history of strokes and mini strokes, stage 4 kidney failure and internal bleeding. I am sure I missed a few other things.
I am home with her 24/7 and at times all I can do is cry. Since this past January she has fallen in our home many times and now has to use a walker ALL of the time. We had to give her our bedroom and my husband made a room for us in our basement. Since she is sick most of the time I always sleep on the couch upstairs so I can hear her if she needs help. I am sure that can not be good for any marriage! My mother does nothing all day long. She gets up goes on the recliner and sleeps-and that makes me so angry at her at times because you have to want to get better to get better and I just think she is giving up.
My kids ages 19 and 24 have been great with our situation and I have already told them that I would NEVER do this to them--they both know to put me in a home! I thank GOD for my husband everyday because he is my rock. He says if he would have to this again he would, I on the other hand have told him and my family that I would not. Like the rest of you I have no life beyond my home. She can not be left alone and my sisters(6 of them) and one brother are of no help. My brother takes her to church but brings her right back--how about keeping her for the day at least! My one sister will take her on a saturday for a few hours and thats it.
I know this is long and I am sorry for that. I just want to say thank you for sharing your stories with me and I am glad that I found all of you. Toni
Your friend,
Shari
My mother told me its the dr's. fault that she is crippled, first off she isn't crippled just stiff and I told her the doctor didn't make her. And if she didn't want the surgery she had to clean out her artery then she should have said NO. She would blame Jesus if she could. She should look at those that are worse off then her and think how much better she has it.
Dad is good complains his back hurts have an appt on Tuesday for the therapy doctor. Got grocery shopping to do. OXOXOX judy
Love to all you girls and Toni you and I are the same age. When will this end.
Marylynne
you definitely stepped on my toes with the above letter. you have no earthly idea what we go thru with day after day with these ungrateful old people. you have a job, you are being paid. i had a job too, and raised 4 boys on my own, so dont beat your drum too loudly. oh and by the way----i was a home health aide and worked some for hospice as well, but, let me tell you lady, it is not the same as having it 24./7. sorry, but you did make me a little angry with your holier than thou attitude, and i dont need it.
As for GRNEYEDSHEWOLF--as stated above--if you haven't walked in our shoes then you have no right to make such comments. I would have never in my dreams guessed that I would have to take care of my mother 24/7 let alone have her live with me. I can not even work outside the home because my mother can not be left alone!
Cindi
Marylynne
Guess I feel really passionate about this, huh girls?
Love and Hugs to all...even our parents who have no understanding or compassion for our plight...
Cindi
I will be proud one day to say I took care of my Dad, my mother on the other hand dissappoints me. Like everyone's Mother here. When you have to quit your job and you can't do things with you child you will think differently. Judy
Another wonderful day for me. was going to get my nails done this morning with a friend, when i told her that i was going with friend, she had a fit. Said, i want to go too. I called my friend back and told her that i could not go today. I could not take her with me, because, she would have a ringtailed hissy about me spending money to have my nails done. Sooooo, i took her out to the mall, to big lots, to petsmart to get crap for her aquarium.Then to my favorite of all, wally world. She says that i walk too fast, i feel like i am moving at a snails pace. Just more of my impatience, i guess. She started telling me a story in the car on the way back, and it didnt make any sense at all. I said, I dont know what you are talking about, and she said, you are trying to make me think i am losing my mind, and i know what i am talking about. I said, no, probably me losing my mind cause i sure as heck dont know what you are talking about. then she sulled up and wouldnt talk to me the rest of the trip. been home for about 30 minutes and i am enjoying the silence. Judy, i am so sorry that you are missing out on so much of your sons, the same with marylynne and cindi. i know cindi must live in california, marylynne in louisiana, i am in oklahoma, where are the rest of u? love you all, and very much appreciate the input from you all. Donna
I think we should all meet up somewhere and have a meeting...caregivers unite!
Anyways, donna giving your mom her ways when she acts up is only gonna reinforce her to continue doing it. I say go out with the gf and get nails done next time! She will be okay...hire someone if you need to...
Took Mom to her dentist today. She had her bottom denture aligned (?)...and she has a sore on her gum now so they squeezed her in. This makes the 11th medical/dr/pt appt this month! Anyone else gone more this month? Laughing..what else can I do!
Hugs
Cindi...and yes, I am in CA
Hey, I counted my doctor appoints for the year, so far, I have 25. Cindi, I think you got me beat for this month.
Love you girls,
Marylynne
Today, my mom had stomach trouble, she took imodium, a bentyl, which is a cramp reliever, an equagesic, which is a nerve pill, her regular nerve pills, and wanted to take more. So wonder she can hardly get around. I don't know how she makes it.
I look at it like this, if we are all giving up our lives and ourselves to do this, not matter how much complaining we do, to be able to accomplish our goals, it shows that we love and care for our parents. shame on anyone who thinks anything different. so what if we have to vent in order to do it. thank god for you girls and this website. i would have already went over the deep end.
Love to you Donna, Cindi, Judy, and all the new friends. Marylynne
A little sad tonight as I think about my family...husband, daughter, and son whose birthday will be the 30th. I miss him greatly and wonder where it all went wrong and how. It is going to be a hard next few days.
Marylynne, tomorrow I take my dad to get his blood drawn. So combined mom and dad it will be 13 times to medical appts this month.