I have posted on here many times and answered questions every now and then. Dad passed away Oct 7th 2013 from Liver Cancer . He was in a hospice facility for 11 days until he died. The day before he was admitted he was in the hospital and was talking,eating and very clear headed but his ammonia levels were high and he had been very combative, not eating and wouldn't take his meds for 4 days at his nursing home. ( He was in for a Psych Evaluation.) The hospice worker talked to me about admitting him instead of returning to the nursing home. I agreed to this and arrangements were made. He was transferred later that day and was alert and in good spirits. The next morning he was unresponsive and stayed that way until he passed. They gave him morphine and ativan around the clock. He never got any water but they did cleanse his mouth and moisten it with swabs. It seemed like he could hear me the first few days because I would shake his shoulder and say "dad". His eyes seemed to be moving under his eyelids and his mouth would move slightly. I did ask about them lowering his dosages so he could wake up a little. The nurse said he was getting a very small dosage already. I just wonder if the drugs made him unresponsive and if less was used he could have ate and drank and lived longer. I know it was time for him to go but I'm kinda puzzled about his going from complete alertness and straight into unresponsiveness so quick. The nurses did a Great job. I myself don't know how they do it. They treated dad like he was their baby. So gentle and compassionate. I was just wondering if anyone else had the feeling that death felt a little rushed once their loved one was placed in Hospice.
People are being robbed of the last years, months, weeks, days, hours of their lives. No person has a right to steal that from them!
As more proof that hospice is euthanasia, it would enlighten the public greatly to do some research on Florence Wald, the founder of the first hospice in the United states. She was a pro euthanasia advocate. Of course, if a hospice is founded by a nurse who believes in euthanasia, what do you they are going to be doing to relieve the patients' suffering? You guessed it! According to the death culture that has taken over the person is suffering from their life. End the life, end the suffering.
Also the word "euthanasia" comes from the Greek and means "good death". Its this one of hospice's favorite phrases.
For all of you pro euthanasia propionates. Most of you talk like it is the patients choice. Many of you are deceived. Most of the time the patient is not even told what is being done.
My grandma was killed by her doctor. Yes, it is happening outside of hospice as well. Doctor and hospitals are doing it. He suddenly stopped her fluid pill she had been on for years. I won't go into detail. But he killed her purposely by stopping a necessary treatment. This way to euthanasia and discussed on pro euthanasia websites, as well as, withholding food and water and sedated. Which is hospice's main way of killing. Also called the "Third Way".
Also look up the hospice in America timeline.
The "Euthanasia Society of America" was formed in 1938. Its purpose was to get euthanasia legalized in America.
The first American hospice was founded by PRO EUTHANASIA nurse, Florence Wald in 1974.
The "National Hospice Organization" was formed in 1978.
Down through the years, "Euthanasia Society of America" Merged with other "right to die" organizations and entities.
By 2004 "National Hospice Organization (Now called "National Hospice & Palliative Care Organization") merged with the "Euthanasia Society of America" (Then called "Last Acts Partnership"), and became the successor organization to it and all of its predecessors.
The "National Hospice & Palliative Care Organization" IS the "Euthanasia Society of America"!
Timeline:
http://www.hospicepatients.org/euthanasia-soc-of-america-to-natl-hosp-and-palliative-care-org.pdf
"Another Norvus employee told agents that in late 2013, Harris sent a text message asking the worker to “administer an overdose of medication to a hospice patient … by increasing the patient’s medication dosage to approximately four times the maximum allowed.”
The employee did not comply with the request because it would have killed the patient, the FBI said."
Surely the key point here is the last sentence. The employee REFUSED to overdose the patient. Refused, moreover, in spite of the pressure one can imagine coming from such a deranged director.
There are being cuts applied to hospice payments by Medicare/ Medicaid currently in progress.
The use of narcotics at the end of life to provide comfort and pain relief may have the effect of shortening life. This is an inevitable side effect. As others have said do you want your loved one to live longer in agony. Many medications some of which are life preserving have side effects that are unpleasant and unwanted such as chemotherapy - who wants that?
Do Drs deliberately or by neglect kill patients? No one can answer that it is between the Dr and his conscience. The hospice owner was not a Dr so his instructions to the nurses were definitely illegal and the relatives whose loved ones died because of his orders will be glad when he receives his punishment in a court of law. Little comfort to them but at least he can never do it again.
There was a study published in the journal of Pain and Symptom Management that hospice patients live on average 29 days longer than those with similar symptoms that were not receiving hospice care.
There are numerous postings on the internet from professional organizations and private individuals for and against hospice care.
As I have said before caregivers must educate themselves before their loved ones reach the stage where hospice may be appropriate.
When someone says the nurse gave it anyway the option is to call the police if that is the only way to stop it. If you don't agree with a Dr find another one but don't be surprised if you get the same advice and recommendations.
End of life care is not a game of Russian roulette it, is the use of carefully considered options which at times will be wrong - there is no doubt about that. I once took a phone call from young woman who had just visited her dying sister who had just given birth to a baby. She was dying from kidney failure and there was no dialysis fifty years ago. She begged me to give whatever I was allowed to keep her sister unaware. She was greatly relieved when I told her that I had the syringe of heroin in my hand and was about to give it. Yes we used heroin in the UK in those days for severe pain.
I have seen many comments stating that the hospice wouldn't rush death, because they would lose money. Someone even stated they get paid by Medicare on a daily basis. Not true.
There is a cap on the Medicare hospice benifit. It's right in the Medicare guidelines. You can look it up. It's around $27,000 and some. You think, "oh that would go a long way". No, they can drain that in anywhere from two weeks to two days, by fraudulently billing Medicare for services they have not provided.
Look up the recent story about the Texas hospice boss who was texting execution orders to nurses. It talks about the cap. Also you can see by that story how hospice works. I hate to say all, but I believe the majority of them kill. I would not trust one.
People will die on the same time table whether they use Hospice or not.
Without Hospice that patient is in terrible pain as it is not pleasant when the body starts to shut down. With Hospice, again note same time table, the patient is more relax, more comfortable, etc. If it were me, please let me have Hospice.
No Way, I know, I've been there, day after day, watching my own Dear Mother suffer, she needed those drugs to help her with the Severe Pain, and if it took snowing her into Oblivion, I choose Oblivion! Just as she Chose Oblivion! I Loved her with all of my heart, just as my 5 Siblings also did, and Thank God, we were all on the same page, as we did not want to see her Suffer. Bring on those Narcotics, say your Goodbyes and even everything else you wish to say, because sadly, there are only a few states in the country that honor Death With Dignity, and until more states enact these sorts of laws, Hospice, and the Angels that run those organizations, are the only hope we have in giving our Loved ones the pain relief and a dignified death, to the best of their abilities!
Did I want to lose my Mom? NO, did I want to see her suffer? H*LL NO!
Unfortunately, there is only one course of action, and if you are proactive, speak with the Hospice Dr's, Coordinators, and the Nurses, find out exactly what the prognosis is, and what the best options are, to give your LO the best and most peaceful and most comfortable death. I choose Hospice, but you do not have to choose this route either.
It's Sad, It is Sad, all of it, losing someone who you are not ready to lose, horrible, but as adults, you have to let them go, end of, Period, as it's not fair to prolong a life, only for your own selfish longings.
I miss my Mom, everyday, every minute, and now my family is currently faced with another family member on Hospice, and he's only in his 40's, has 3 daughter's, 21, 13, and 12, who are facing the loss of their father, his wife, has been grieving his passing for over 2 years now, as he's been through clinical trial, after clinical trial. It is near the end for him, the family is a wreck, my poor Niece, my heart breaks for her right now, her trying to hold it all together for her children.
Thankfully in the state of Washington, they have passed the Death With Dignity laws, and he has chosen this route, to end the suffering, his own, and that of his family. Hospice is struggling to manage his pain and the other dreadful side affects of the 2 types of Cancer that is killing him, ever so slowly. His decision is his own, a very personal decision, and a dificult one, but his time left, dealing with his own pain, and then having to watch his children suffer emotionally right along side is Too, Too much!
I respect his decision, and pray that this families suffering ends soon, so that they can all get on to the healing and processing of the grief and loss. He's ready, he wants this all to end, it's a huge sacrifice he's making, but he is close to death either way, but this way, he is in control of his own destiny, and I believe it's the right thing to do In This Case. As every case is different. We as a family, are all supporting his decision. Still, it's very sad. Please pray for my family in this difficult time? Thank you.
I have visited your Hospice Patient Alliance Website and am very impressed by the information that is shared there. It must have taken many hours of research for dedicated volunteers to assemble.
The opening statement on the purpose of hospice and the aims of care are totally in alliance with my own strongly held views.
However there is so much information that I do not have the many hours required to read it that I was only able to skim some of the articles.
As I have previously written there is a great deal of difference between hospices that are not for profit who must abide by Medicare/ Medicaid rules if they are to receive funding from those entities and for profit hospices who rely on private pay so a bed is better not occupied by a Medicare/Medicaid patient. Medicare /medicaid pays a hospice a daily amount which is often not sufficient to pay for the patient's needs. Not for profits have to raise money and often receive grants from such organizations as The United Way to continue to operate. Their rates of pay for all staff is way below what those individuals could earn in a hospital setting. There is mythe that RNs go to work for for Hospice when they are not good for anything else. An absolute untruth. The nurses I worked with were highly trained individuals following a specific calling where they felt they could do the most good. Many nurses in hospitals these days have to work 12 hour shifts and end up totally exhausted not able to give of their best and prone to mistakes.
Cutting costs is not just something Medicare tries to do it is a rampant practice throughout the health care industry and it not driven by greedy Drs who are mostly employees and receive a salary like everyone else and don't get to charge the fees seen on hospital bills.
Hospitals cut corners just like every other large organization these days by reducing quality which means nurses have too many patients to care for, and the kitchen uses a lot of processed food such as dried eggs and potato powder.
The healthcare industy is run by accountants whose only interest is making the greatest profit and many patients especially the elderly suffer by this practice.
It is not hospices that are promoting the early demise of our elderly loved ones it is the whole system that denies proper care and maintenance to our vulnerable people long before they become hospice eligeable.
Yes I agree the welfare system is full of abusers but on the other hand many people who are severly disabled have to wait many years to obtain disability and face many years on waiting lists for affordable houseing or even in my area waiting lists before they can get on a waiting list.
The purpose behind your organization seems to be to protect unsuspecting people mosty the elderly as they have the highest death rate is extremely laudable but the problems go deeper than hospice abuse which I don't deny does exist. However on this forum we most frequently hear of relative abuse not usually by the caretaker but by circling vulture relatives.
On the subject of assisted suicide I have an open mind as there is such potential for abuse however if my life became unbearable I would like to have that choice. I do not feel we have the right to judge others that is only up to God.
Please continue with the work you are doing it is very valuable but I also think it is very important not to frighten people away from the benefits of good hospice care. No is a very powerful word and patients and family must be encouraged to use it when they feel uncomfortable with anything medical that is being done however persuasive the healthcare provider can be.
I'm so sorry for your loss.
You do want a humane end, like animals get? You don't want a humane end, you want your loved one dying without benefit of pain relief or anxiolytics? It's so hard to know what you do want!
You feel that strongly that the medical pharmaceutical and palliative care sectors are evil leeches, here's another idea. Do without them, then. Good luck.
Unfortunately, animals have much louder Advocates for inhumane treatment against them (although they’re not human). Why is the abuse of animals a much more sensitive issue in America, and more important then inhuman, treatment of real human beings. Specifically the Terminal, the Sick and the Elderly?
These groups of people are targeted and funneled into Hospice (the silent killer) to cut Medicare cost.
The public has a right to know the truth about the (silent) practices used by the Hospice Organizations working in and through, our Hospitals, and Nursing Homes working in conjunction with Medicare.
Medicare’s sole agenda is to cut cost by any means necessary. Medicare’s idea of cutting cost is referring your love ones (the elderly, the terminal, and sick) to Hospice. Where the patient supply of medication is cut off. All except the morphine/methadone used to administer a quiet, rapid exit into eternity (someone is saving on their water bill as well because they are dehydrating their patients and not turning to the I.V drip).
Medicare’s idea of cutting cost is to withhold administering medication to the feeble (including blood thinners which prevent blood clotting for non mobile patients), diabetes medication is withheld, cholesterol, and high blood pressure meds are withheld too.
This is Medicare’s idea of cutting cost – writing addictive prescriptions, over medicate you, and then abruptly drop you from the excessive synthetic drugs; they hooked your body on. Then down the line tell you, they can not longer do anything else for you. By now your visits to the emergency room and hospital are so frequent (from the side effects of lifetime synthetic drugs) you know the staff including security. Occasionally you may get a nurse who will actually sympathize with you.
Written by-
Ron Panzer (President of Hospice Patient Alliance)
I have a lot to deal with and I am sure that eventually get past all of the emotions.
I'm finally to the point that I remember mostly the happier times, and not those last couple of the difficult years, when they both were so I'll, and everything was about their failing health.
Remember, she wouldn't want you to be hurting so! You take care now!
Thank you so much again. I'm glad to have connected with you as well. A year ago on this date, 26th, mom was transferred from the hospital to the first of 3 NHs for rehab after a hospital stay. I'm glad you had the support system in place to help you. Take care of yourself.
I have long felt that the large hospice "businesses" do not uphold the hospice spirit when money making is the main goal.
I have been retired now for 9 years and before that had the job of full time on-call for 10 years.
In the late 50s I worked in London at the time Dr Cecily Saunders was starting the modern movement. I once escorted a patient to a hospice facility and at that time it was very similar to long term geriatric wards, not at all like modern hospice houses.
Naturally I don't agree with many of the posters on this particular thread but I do feel every one should do their due diligence before signing up their loved one.
(Not all hospices offer this service.) Once the patient has leveled out, they go back to weekly (or more often) visits.
I had to go into the (hospice) office yesterday to complete mandatory annual training and review. While I'm not able to disclose the name of the hospice I work for, I'm finding out that all hospices are not created equal. They do not have the same stringent rules and regulations that we abide by. Some of the computer classes that I watched gave examples of how other (unnamed) hospices functioned. I was really surprised at the breaking of known rules and regulations. (This is the only hospice I've ever worked for and I assumed that we all operated the same.)
I should have known when the largest hospice (1000+ patients) in San Diego county had their doors (forcibly) closed due to many different infractions. Everyone was shocked. It never dawned on me that someone would forge a signature, not show up for a shift (and chart that they did!!!), or any of a number of infractions. The leaders at my hospice use these examples as how NOT to function. We are expected to know what is right and wrong and we are tested at least annually, checked and reviewed by our supervisors, peers and patients/families. We have a zero tolerance policy for any infraction. It's too bad that other dishonest companies exist but we learn from their mistakes so we don't commit any with our patients.
I see now why some of the families have written about their bad experiences.
Please check with the Better Business Bureau, Google Medicare-hospice, Yelp, hospice regulatory board, etc.
I'm sure there is a site that would list ratings of hospices or infractions committed by them in your area. (I'd look it up myself but, when I leave this page, it deletes everything I've written!) Do not sign up with a hospice that offers you "gifts" (TV's, trips, etc) to sign up your family member. ( That should be a red flag!), or that didn't thoroughly explain every facet of hospice to you. Medicare has VERY strict guidelines for how hospices operate. They would be a good site to visit. "Medicare/hospice coverage" probably would get you some good information. Beware of any who forces you to do something you don't want to do. You are the expert on your family member and we take our cues from you.
Investigate, don't just take the hospitals' word, or a social worker's word. Hopefully you will wind up with a high quality hospice that will meet your and your departing family members ' needs.
Respectfully,
Sue
That is the most important thing to keep in the forefront of one's mind.
What did he/she want or would have wanted?
It is about the person who is about to leave this world not those who must stay behind and grieve.
May I ask you, what your Mom's ailments were, that required her to be on Hospice? It's such a shame, you losing your Son, while your own Mom was so sick, nobody should ever be faced with such a loss, I am so sorry!
What you do have to do is quite blaming yourself. Your Mom met the Hospice criteria, or she would not have been admitted to their care. That you feel to blame for her untimely passing could not be further from the truth. Your Mom had a very bad illness, that required her to take potent medications, perhaps for pain, and of course you wished to keep her as pain free as possible, right?
You could never have given her a dosage, that would have brought her death on any sooner, than her illness would have taken her in the first place, and what you did do, was treat her ailments, in the manner in which the Hospice Dr's recommended. God takes people in his own time, not on anyone else's timetable. Please, never think that!
We all go through the different stages of grief in our own way, and the Woulda, Coulda, Shoulda's, often come into play in those stages, and in no particular order. So at this point, the very best thing you Should do for yourself (besides joining us here), would be to join some grief counseling. It will help you to understand how to address your different stages of grief, and how to go on in life, without your Mom, Your best friend in it. It takes time.
God bless, and I hope you come back, and share your experience and your healing process. We all learn from one another.
I know that I am one of the lucky ones. Both of my parents were dying for a long enough time, that we (my 5 close siblings), had a chance to come to grips with it. There was nothing we could do, to prevent the outcome, no matter how we tried.
I believe knowing that, and having the support system that I had, made all the difference.
I wish more people had that.
It doesn't mean that it wasn't a very rough journey at times, but we always had each other.
Take care, and I'm glad to have had the chance to connect with you, over some very unfortunate circumstances, but we all are HERE, for each other!
Thank you so much for your post. It has really helped, Bless you. I'm sorry for the loss of your mom as well. You're exactly right, it is very hard.
I'm not as angry as much as very disappointed. There were 3 nurse "angels" who were really sweet and caring. The doctors and his staff were the "cold" ones. I understand, not getting emotionally involved, because of the risk of burn out. Still..
I know the survival rate from Sepsis, especially for older people, is not that good, but the "pressure" to move her to a facility where he visited was too much. One of his staff was actually "pissed" that one, she could not make the choice for her, and second, the choice that was made, even though he could still visit was for only 30 days after which she could choose again where she wanted to go.
Like I posted on cdnreader's thread , being angry you're only hurting yourself, not the person you're angry with. The best antidote for anger is to forgive, which is what I am doing in this case. Needless to say, trust in healthcare is gone
Thank you so much again. You've helped more than you'll ever know.
Take care as well.
From the sounds of it, your Mom was on life support, and that's never a good thing. It sounds as if the intention was there, that if your Mom survived being taken off life support, then Hospice would be brought in to help her through to the end of her life, but she unfortunately did not make it after it was stopped. A decision that You didn't necessarily agree with or completely understood yourself.
It is so Painful, to lose our Mom's. It's been 13 years for me and at times, the pain of not having her here overwhelms me to this day. My Mom was so young, only 74, and she didn't deserve to get such a wicked Cancer, such a painful disease, that cut her life short. I'm sure you feel the same.
I'm so sorry for your loss! Not everything makes sense, when it comes to death and dying. It is often so completely out of our hands. Like you, I wish I still had my Mom by my side. Life just doesn't always make sense.
You take care.
Do you think I am rude or dismissive of your grief???.....No....I absolutely feel your grief and sorrow.....I have felt it many, many times myself.....BUT GET REAL....older, very sick people die....as do we all, eventually....
How YOU deal with it reflects only on you....READ: Dr. Atul Gawande's excellent book: "Being Mortal"
And, I speak as someone whose lovely, very elderly Mom has just passed, very peacefully, after 6 months on hospice.....no big rush to "kill her", there....
I also speak as someone who was widowed very young, very suddenly, in a country half way across the world. My husband was granted a very great honor....a Hindu cremation.....I am not going to share 1 second of that with you. Those are my very personal memories. But....I will say this.....
As my husband's service concluded, a little donkey wagon approached....it was decorated in ribbons and feathers and bore the next recipient's of this priest's good intentions: it was a wedding ceremony, and quite lovely, and it, still to this day, makes me feel hopeful......about the circle of life....