I have posted on here many times and answered questions every now and then. Dad passed away Oct 7th 2013 from Liver Cancer . He was in a hospice facility for 11 days until he died. The day before he was admitted he was in the hospital and was talking,eating and very clear headed but his ammonia levels were high and he had been very combative, not eating and wouldn't take his meds for 4 days at his nursing home. ( He was in for a Psych Evaluation.) The hospice worker talked to me about admitting him instead of returning to the nursing home. I agreed to this and arrangements were made. He was transferred later that day and was alert and in good spirits. The next morning he was unresponsive and stayed that way until he passed. They gave him morphine and ativan around the clock. He never got any water but they did cleanse his mouth and moisten it with swabs. It seemed like he could hear me the first few days because I would shake his shoulder and say "dad". His eyes seemed to be moving under his eyelids and his mouth would move slightly. I did ask about them lowering his dosages so he could wake up a little. The nurse said he was getting a very small dosage already. I just wonder if the drugs made him unresponsive and if less was used he could have ate and drank and lived longer. I know it was time for him to go but I'm kinda puzzled about his going from complete alertness and straight into unresponsiveness so quick. The nurses did a Great job. I myself don't know how they do it. They treated dad like he was their baby. So gentle and compassionate. I was just wondering if anyone else had the feeling that death felt a little rushed once their loved one was placed in Hospice.
I too was told that I could take him out of hospice care anytime, yet..read on..all too often the attempt to remove the loved one from hospice results in investigations by APS for accusations brought by hospice!!
I do not doubt that many people are glad for the hospice care. But, sitting on the edge of having that decision put before many people...they make decisions without real information, and they lose control when they put their loved one in hospice, then spend the rest of their loved ones life fight to get control back because of the standard of care that was not revealed to them up front.
For someone who is in a state of agony from which there is no recovering, I would opt for medical suicide. Perhaps, hospice fills that role...heavy painkillers and removal of lifesaving meds. But, if that is truly the state of affairs...then withdrawal of needed meds and administer of just painkillers and meds to calm is truly cruel. This is a slow motion medical suicide. I would find a way to take loved one to Beliguim. (Perhaps, here in Colorado that option will be available after next week). But, again..that option is not available once you give control to Hospice.
If I had it all to do again..I would have discussed all of this back when my Dad was still mentally able to understand. Back when he signed the DNR, I would have included directive on hospice and/or medical suicide. It only makes sense to be able to add that to all the other medical decision the law allows a person to make up front while they still can. Then, this topic would not even exist.
I can agree with that idea, but I'd qualify it further to say that we are handing over control to those who have far more experience with end of life than we do. That's a godsend for most families. I'm thankful my grandmother had hospice care. I made enough mistakes trying to do all the End-of-Life care myself, making bad decisions about forcing food, etc. Having them to give me guidelines was very welcome and made my grandmother's transition easier on her.
I'm very glad that you feel not going with hospice care, in your dad's case, was the right choice. That's all of any of us want - to feel we did what is in the best interest of our Loved One.
For me, I did not go the hospice route. I read everything I could put my hands on. I asked for every bit of literature I could get from every source, including hospice.
I concluded that giving up the control was not going to happen.
My Dad passed away. He was not in pain. He was not among strangers. He was on his usual mess to help control the many health issues he had, as well as pain meds. I am still convinced that it was right for him.
The question keeps coming back to control. Simply put, it is better to have control than to hand it over and wish you hadn't.
this was assisted living facility and so she passed alone. I still have issues with her care or lack thereof.
I learned many years ago how to keep house, plus keep up the lawn and house repairs, this means I have double the burdens to deal with. I am 71 years old with chronic back problems, yet I push on, why because I have too.
Now we are dealing with a parent that needs care 24/7 and the doctor doesn't seem to care, or they don't know the answers. It is very frustrating to ask a question and get a shoulder shrug for an answer.
I agree with Babalou above, your Dad's passing was from something else, not the morphine. It could have been an aneurysm.
In Hospice care the usual dosage is between 5-15mg to help keep the pain down. In order for morphine to take a life, the minimum dosage would need to be 200mg. I hope that will give you comfort knowing it wasn't the morphine.
Calling Hospice nurses "muderers" is beyond unacceptable.
I am sorry for the loss of your mother. It is a very painful thing to go through. It seems like you felt out of control in her passing, as most of us do. But we are all going to pass in our own individual way.
Your mother had nothing to do with why people are upset with you. That is NOT why people are angry. You claim to be sensitive to the dying and their families, so WHY do you write such horrible things? Maybe you don't realize WHAT you are saying and HOW it comes across to people. Maybe English isn't your first language and you have trouble navigating through the "rules of etiquette" of what to say and what not to say in this culture. Can't you see that many of us are outraged by what you write? Why do you think that we are angry? Because you have hurt and offended us by what you've said.
I will give you some tips on what NOT to say here.
1. Do NOT say anything negative about the people caring for a loved ones' family member. (The hospice isn't coming because they're just waiting for her to die anyway.) That is very OFFENSIVE and it just isn't said.
2. Try to be as comforting to the family of the dying person as possible, just like you wanted everyone (connected with your mom), to be with you. Do not just blurt out your opinion, check it first to see whether YOU'D be offended if someone said that to you. You told me once, on a different thread, that I wouldn't CARE when my mom dies because I said that we didn't have a great relationship throughout the years because she is narcissistic. How do you know what I'd feel? I might cry my eyes out in sorrow for the relationship that we never had. You need to always keep in mind if your words could hurt someone else.
3. Maybe you should read your responses to someone at home first before you post them, until you get a better "feel" for what is insulting and what isn't.
4. Maybe you could write a "disclaimer", I don't mean to offend anyone but could it be that........
5. Most of all be positive! Try to give people comfort and hope. Do NOT dwell on the negative aspects of the situation.
Most of us don't want to be around someone when we feel they are attacking us.
I am trying to understand your thinking process and get over the anger I have built against you. Please make yourself "lovable' and no one will have bad feeling toward you.
One of my brothers passed April 12 at 12:34am at the hospital from a heart attack. Mom did not know about his death while she was alive.
Ironically police who came to the house when the hospital wanted her body out of there were nicer than Firemen who came along with the EMTs. She did live to 20 years since her retirement but passed before her 85th birthday which is in Aug.
Why I don't too much care for doctors, The NH doctor who "treated"
signed the papers to get paid July 4. Never heard from his staff or he again,and don't expect to. No call, card or condolences.
My mom went to the hospital Jan 20 of this year on the diagnosis of low blood sugar. While there, the hospital PT thought it would help if she went to skilled nursing for PT. She was released from the hospital Jan 26 going straight to skilled nursing. She did the program, passed and even graduated on Mar 5. Her joy of going home was short lived, because of a claim of C-diff. A side effect of the new medicine she was taking could be diarrhea. While thinking she had C-diff she was treated like a leper. She was released to the hospital from skilled nursing, on April 13,because of their concern about her weight (she lost 62 pounds). She was in the hospital a few more days, but was weak again. She lost almost all the strength training she had done. She went to another skilled nursing near the hospital for PT again. She rightfully felt she had done the work, so she did not do it. Instead of the PT being understanding and working with her,they got irritated with her and released her from the program. In the meantime she still was not eating and shared a room with 2 other women, one who made sure to block the lone bathroom in the room, so you would have to go past her to get to it. Back to the hospital again, She was asked why she was not participating. She said she had done the work. The woman made the comment,that was the old place this was the new one. I made the comment her primary care doctor did not want to be involved with her care, and yes it was getting heated. The woman mentioned she could understand my frustration, but the primary care doctor is not involved with the NH physician. She stated some rule or and other nonsense. So, mom was moved to an upstairs room at the hospital. She was still not eating and was now talking about suicide.
PT came to her room, tried to get her to do PT,which she did very little, She was literally staying in bed all day. He said she could probably go home, but she would still be too weak, so another suggestion to go to skilled nursing for PT. This is the decision I regret and will for the rest of my life
Agreed to PT. Picked out 3 places, 2 5 star, one 3 star near home. 5 star, no opening,3 star space. Went there, still not eating, talking of suicide She went there the beginning of May. Social worker fills out paper asking about family and sex life which was kind of inappropriate but mom said "She had a wonderful man, (which he was) and she did not want another one" Mom stayed there 10 days, back to hospital, back to skilled nursing, final time to go to hospital was June 12, a Sunday
Nurse at NH called 3 am Sun morning said mom had temp of 105 had diarrhea for a few days. Scared as heck, Went to hospital, mom in ICU, with diarrhea due to C-diff. C-diff turned to Sepsis, then Septic Shock. Of course in room,had to wear gown and gloves not to infect others. Visit Sun, Tues of that week. She was moved to another room. Visit Father's Day. Watched "Alaskan Bush People" Mom was funny and cognizant. Monday, woman from NH doctor called to state mom would be better at LTACH. Mom went to LTACH upstairs same hospital. She was moved Mon. Went Tues she would open her eyes, yell and close them. I did not know then, she was near death, since her hands were cold. Wed morning call message from nurse 1am in morning. Returned call, nurse said mom was back at ICU. Mom squeezed the nurses hand, opened her eyes, then closed them. That was it. After 5 days, doctors felt she was gone. There was no time to contact her dear friends or my brother who lives across country in Seattle to say Goodbye. Went to say see her on Jun 29. She was hooked up to all these machines, including one for breathing. Made the heartbreaking decision to disconnect life support, This is very hard, made decision after seeing blood in her fingers and back of her head had turned blue due to lack of oxygen. Hospice had been called a few days before. Hospice doctor came to offer support condolences, Priest came and a really nice spiritual lady as well. All 4 (Hospice doctor had trainee) were nice. I told the nice nurse on duty that it would be too hard to see her be disconnected from life support. She was very nice and offered her condolences as well. I left. they disconnected life support at 5 PM, she passed at 5:07 PM. That's her story
I KNOW what most of you are feeling when you lose someone you love. Mom was a lot of fun to be around and smart as well. Her stories, some were hilarious, some serious, With her gone, things aren't and will never be the same. I miss her everyday.
Z. Go away, everywhere you go you cause turmoil to so many caregivers that are doing the best they possibly can.
SueC1957, Too Right! This Zytrhr person has been a menace since she/he began posting on this site! I have no idea where she gets her rediculous information, but it Always Wrong, and Always Insensitive! I am inclined to think she is a TROLL, just hanging around to get her Jolly's! I too will make a Complaint to the AC Administration! I've ad it with that poster!