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HOPE, NEURONTIN / Gabapentin is not a new medication. Was first used for epilepsy.
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blondemedic...I am so sorry for your loss. seeing your most recent post I do believe as you, that they are now reunited. My Daddy has passed but I am blessed to have Mama with me right now...she is very very frail and has begun talking to people who aren't there. It frightens me somewhat because I have lost a lot of aunts, uncles and grandparents and all of them began to see others "on the other side" and talk to them shortly before their passing. It is frightening and yet it is comforting because I know when she leaves me here, someone is waiting to welcome her home...and she will be well. Last night, I had taken a nap next to her and I woke up to hear her talking to someone. I just stayed quiet and listened. She was talking to one of her beloved cats, who passed about two years ago...I finally asked her was she dreaming and she said, "No, he's right there" and pointed beside her on the bed. I have always believed our beloved pets go to heaven too..and that just confirms it for me. Mama is happy...She seems calm and at peace. As hard as it is, I am trying to remember it is as it is in life.and we are all going to go down that path...Again, I am sorry for your loss...but we have a bright future in God's promise....
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I want to thank those who have sent their sympathy to me. I have contacted a local TV news station where I live to see if they would do a story and I got a call this morning they might be interested and am waiting to hear back. My dad thank the Lord never suffered and went very very peacefully but the absence of the physical is heartwrenching. I do know however that he is now with my mom and stepdad and my dogs and his folks and all his friends having a ball. It is we who are left behind that suffer the loss. BUT we are all fatal and one day we will meet up with everyone again. So the way I see it now is loss is devastating but the future is bright like the love of GOD who allows us to be reunited again. Thanks to you all again. LL
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blondmedicdoglv, I am so sorry for your loss. No matter what age our parents reach, it is too soon for them to go.

Your father was doing fairly well within a few days of his death. I think it is a blessing to go so quickly, rather than a long lingering period of the body shutting down. My husband ate scrambled eggs with cheese and salsa the morning he died. He was alert that day. He died while I was reading to him. I was very grateful that when it came, death came quickly.

Again, my condolences. I hope that looking at the medical records will provide the answers you need.
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horselady21, My husband died after 5 weeks of hospice in our home. I controlled what and how much medication he got. There was no issue with that at all. He had no morphine at all because he had no pain. I did give him the anxiety med a few times. There were a couple of meds we had stopped that I had put back into his intake. If you are using in-home hospice, you are completely in charge of the meds.
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I just started proceedings to get in home hospice for my mom. I live with her. The first thing I told them is I contrl what and how much medication she gets. Right now, she is taking no pain meds at all, and sleeps most of the day. And I will get it in writing or no deal.
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blondmedicdoglv I am so sorry for your father. That really upsets me how this can even be allowed to happen. I would start off with having the coroner do an investigation and autopsy. If everyone did an investigation that lost their loved one in a suspicious way then maybe we could stop this from happening or slow it down. You can talk to the department of heath and put in a complaint . The medical board, the nursing board, joint commissions http://www.jointcommission.org/report_a_complaint.aspx and there are others also that you can complain about it.
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Blond, I'm so sorry for your loss. Certainly you are right to look at the medical records; it may give you answers as to why your dad was on Hospice. Years ago, Hospice was for cancer patients. These days, a patient can get hospice care if their doctor certifies that they have six months to live. Who signed for your father to get Hospice care?
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Ok here goes my story now. I just lost my 101 year old dad last night. I was destroyed. I am an RN and Paramedic and questioned why they were giving my dad 2 mg. of adivan. They told me he was agitated but 3 days before that he was doing fine. Not eating alo but soup, ensure, chocolate milk. When I came to see him as usual on Wednesday he was totally out of it. Did not know I was there slept for the whole 9 hours I stayed and the hospice nurse said oh its the adivan and he will be OK tomorrow. Well guess what???????? He was NOT OK tomorrow and the nurse that took over wanted to give him low dose of morphine. I flipped out and said that will decrease his respiratory system. I was so pissed I left at 9:30pm. At 9:50 pm I got a call he had passed. I am now in the process of getting his medical records. And I do not give a dam if they like me or not. This was my dad not theirs. Perhaps it was his age but he did NOT have cancer!
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debbie glad you are feeling better there are good hoslice and bad hospice- you have no reason to feel guilty- but in nine years I have had quite a few hospice workers.- they all sound alike- as long as you do what they say they are fine but dont cross them- they use my bathroom without permission and think they own your house because they take care of your aging person and are very lazy- just sit talk and smile at you and make money- si I have a different experience then you and am glad they treated her right
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My sister didn't know she was dying. She didn't even know who we were. Her entire brain was swelling bc of the cancer. She was having seizures. Glioblatstoma is terminal. We lost my sister pretty much after her second surgery. I don't think hospice hastened it, I think they kept her pain free. It was her time. It has taken me from the time she died until now to get over the guilt and blaming hospice.
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Dont agree with any of the above. You have to much guilt- it is not our choice when someone should go- they go much quicker and sooner when someone tells them they are dying- we were told my husband had two months to live and decided not to tell him with bone cancer this is nine years later. Morphine and methadone etc are awful- we went natural cranberry juice for infection cannabis for pain- cannabis is not marijuana- and he is free of horrible pain. Everyone wants to live no matter how sick they are - hospice just as soon shove bad meds on sick people and make them worse- chemo and radiation are horrible- people need to wake up- other countries dont even allow chemo- its a money maker. My husband is still sick but happy for family
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My sister died in January of this year from glioblatstoma (brain cancer). She was in a hospice facility. When she died I felt like hospice hastened her death. She went there on a Sunday night, fully conscious, but very confused. The doctors told us the only thing keeping her alive were the steroids. They also said she had two weeks at the most. They started her on morphine and Ativan and that was the last time she was responsive. After much research and going over her medical reports I feel hospice did what was right to keep her comfortable and free of pain. I think without hospice she would have died a very painful death.
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I think as a family member we're in denial that its there time and they have accepted it, what you don't understand is they need he was in extreme pain and without that medication he would have been suffering so just Thank God that you had compassionate people in his midst in the end!
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My mil was just placed on hospice and the first thing they did was start giving her morphine. She has no pain. She has interstitial lung disease, its aggressive, no cure and she has lost most of her lung function. Do I believe they are trying to kill her? Of course not. But she is dying and I know the morphine will hasten her death by giving her a little push over the edge. Its the humane thing to do imo. She's dying and it would be a much longer, drawn out, difficult process without the help of the morphine.
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While researching what I now believe is my mother's adverse reaction to the doubling of her heart med, Diltiazem while she was in the snf, I found this, which I thought belonged here, espcially the last line:


Beers Criteria

Developed by an expert consensus panel, the Beers criteria is a list of potentially inappropriate medications for the elderly. The criteria have been revised several times to remain current. Using the Beers criteria, the 1996 Medical Expenditure Panel Survey found that 20% of 2,455 community-dwelling elderly persons in the United States were using at least one inappropriate drug. The survey data found even higher risks of hospitalization and death from inappropriately prescribed drugs among nursing home patients.
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Key words there are "titrated up" - not just started at that kind of dosage - and honestly, even for a good-sized adult, I start thinking about trying to get Lyrica (pregabalin) or switching to Cymbalta before getting to 2500-3000 mg a day if it is not really keeping that fire put out. SO many people respond really well with under a gram a day - some even to 100 and 200 mg doses that it just seems bad to start that high.
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Vstefans, gabapentin is used in larger doses (titrated up) for pain. IAs previously stated, after major back surgery, I was on 2700 a day. Plus Percocet. Plus a muscle relaxer. I was a mess!
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Veronica, thank you for your input! I used gabapentin (2700 mg a day!) after my spinal fusion, and it works great but yeah, drowsiness and weight gain. Also, I currently use lidocaine patches for my back so asked the Dr about those as well. She seems better in the past 2 days, pain wise anyways. During my morning and evening massage of her neck and shoulders, I watch her to see if there is any reaction when I get near that scapula area and there has been none. We have started reducing the gaba. and this morning, she is more clear-headed.

I don't know yet about calling in hospice. I personally don't think she "qualifies", though I have no doubt I could convince the Dr.. We are thinking more of a visiting nurse. My daughter, who is in pre-med and just finished employment at a local nursing home, is starting to come over this week, since I will be laid up with foot surgery. She will be a huge help, especially since she is Mom's favorite!

And lasyly, thank you for clearing up my question about the financial aspect. Yes, if the patient dies so soon, I'm pretty sure they wouldn't get paid after that! Even after reading all 420 comments, it is clear that there are good and bad hospice experiences; it is up to us as caretakers to advocate for our loved ones, to learn about their reactions to medications and communicate with the staff to do what we feel our loved ones would want, and to make their passing peaceful as possible, when the time comes. That being said, seeing MY mother's reaction to such mild drugs, I absolutely know that she would never survive anything stronger.
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I have posted many times. Dad died three months ago, and had a TIA On March 17, about a month before he died. That lead to his weakness. The hospice nurse felt his heart stopped. Thats it. We miss him, but he is with mom, and we are blessed to have had him for over 92 years.
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pamstegma It is true that this kind of grief is extremely overwhelming. It is a kind of grief that you just never think could actually happen. It does not seem real still just shocking when medical staff take a life like the way they took my mom.

An addict??? I never said that.The staff were drug addicts. They were the ones who were forcing her to take drugs putting them in ivs and injections. Forcing her against her will. She told them she could not take sedatives but they forced them on her anyway.Its funny for a woman who was so against drugs dies from too many overdoses.

She signed for a dnr a very long time ago when she was very young.She did not want to linger on if she had something where she needed to be kept alive by a ventilator and she had no hope of recovery. She did not want to be forced to die by use of a dnr. That is definitely not what she wanted.She did not deserve to be killed in this way.
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Oh! And I'm not large. .I'm tall and I have always done a lot of physical lifting and climbing but not sure why that crazy dosing. ..
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Vstefans...i couldn't tolerate either of them. ..i had a follow up with him in two weeks aft that and i told him i had to back off both of them and could not tolerate the ibuprofen at all. He told me take it on an as needed basis? ? I don't feel that great at times but i haven't taken either of those since. ...makes me think i need a new doctor
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hope22, that's one heck of a dose of Neurontin! We usually start 100-200 mg a few times a day, and its rare to need to even work up to a gram or two a day, but they STARTED on 2.4 grams (2400 mg) for you! That's a fairly big bunch of ibuprofen too, unless you are large size and all muscle. Hope your stomach is OK with that. Honestly, you may have just been given too much of two good things by someone who thinks docs like me are wimps for doing the start low go slow thing :-)
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flowgo, your grief has overwhelmed you. Your mom was an addict for a long time you said. That's what killed her, try to accept that. She signed for that DNR, she knew she was out of time. Accept her decision.
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That is exactly how they do it. My mom's only problem was the staff did not like her age. She was not that old but old enough to cause the staff problems. They used her dnr to help kill her.The staff had to make up some diseases that she had to get her into hospice, by the time she got in to hospice she had been in a haldol ativan and other deadly sedative coma for 2 weeks. Prior to that they tried to take her life with other sedative overdoses. She was difficult to get to die but they finally managed. Others they can get to die faster if they are not strong.When she was in the coma they were saying that it was her normal state. That is how they get by. There are some real disgusting scums of the earth out there that practice medicine.Something needs to be done about elders civil rights such as being allowed to live and not be tortured while they are alive.If I was a lawyer I would be doing something about it.
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My mother in law had dementia. My father in law was too cheap to put her in a impaired memory home. He finally got hold of a home hospice doctor and got help coming in a few times a week. He told my wife that he needed to start planning her funeral. What? She was in great health. Her doctor of 22 years said she would probably pout live her husband. They started her on multiple doses of larazapam and morphine. That didn't make sense to me. Morphine? She didn't have cancer she had no pain. We researched on the internet and found these 2 drugs were used together in help induce death faster. It dunbed down her activity so she became a slow walking zombie. Mother's day, she ate nothing because she was so drugged up. Out at the car, my father in law said it was time to give her another dose. What?? She was already so out of it. She fell down the stairs. No one called for an ambulance. The hosice nurse came came over and said she was fine. My wife made a stink so they brought over portable x-Ray machine. The results, she had a concussion. They now put her on more lorazapam and another addicivet pain killer. She was so drugged up she didn't walk up to eat or drink. Mmm. Just what they wanted. 4 days later she was dead. That's how they do it. Drug them so they don't drink fluids and the organs start shutting down and death occurs. According to the rules of hospice care, you can only get hospice of they have 6 moths or less to live. They were coming close to that time period. The hospice doctor told my father in law he could cause death with in weeks. It took months. That's why he talked about planning a funeral the week she started care. Such BS!!! W have a state investigator looking into it. I'm sure the doctor will cover his bases and avoid charges.

Doc
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Regarding the gabapentin...is had never heard of this med before...but was promptly put on it last fall for neuropathy...800 mg 3 x daily...I made sure I took it as directed...he also put me on ibuprophen 800 mg 3 x day plus my depression meds...at first I thought..hey this is the ticket...and then by day three I felt like I was floating and didn't seem to have control of my limbs anymore...I had to call and talk to his nurse and she talked to him and he told me take it as needed...weird...oddly enough..soon after...a lot of my family members I discovered had suddenly been put on that as well...so I guess I'm asking is that a new med??

I am thankful every day for our Hospice folks...Wasn't too happy with the first one but finally just decided I might be able to change...called the one I had heard a LOT of good things about and they handled everything immediately....so even the changeover was not a problem...
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Korse lady i am not going to advocate for hospice or otherwise but with hospice you will get visits from an RN on a regular basis who can evaluate mom's conditions and communicate directly with her Dr. Also many other services which may be helpful for you both.
You mentioned the surgery for the broken ankle. general anesthesia can adversely affect the elderly and often leads to decline and death. Again not to say it should be avoided if the patient needs it and I stress NEEDs it
Gabapentin's main use is to control seizures but often given for the relief of neuropathic pain. A side effect is often drowiness
A stroke is often preceded by a seizure which could have been missed or confused within the ankle break.
Finally at the end of life drowsiness and sleeping along with less desire to eat or drink are very common.
With hospice you are perfectly free to bring them in and if you don't like them or their services you can have Mom discharged or find another hospice.

For the person who commented about funding for hospice, it is in the interest of the organization to keep the patient alive. Once they die the money stops.
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You might think about and suggest lidocaine patches for the localized scapula pain. They can be a great addition or substitute for sustemic pain meds.
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