She has dominated her childrens' lives with little concern for anyones' feeling but her own. She is now in a wonderful assisted living and her dementia (I think) has illuminated her personality into a person who I can no longer bear to be around. She has again managed to alienate everyone around her with her insults and insensitivity. She is nasty and uncooperative with the aids (who are wonderful) And complains, complains, complains about everyone, everything and blames my sister and myself for the air she breathes. I am sick of her and I don't want to visit her anymore and don't feel that my adult children need to be manipulated like I was and be around her negative attitude anymore. I hate feeling obligated to have her at my house as I have every holiday of our lives and force my children to "tolerate" her for my sake. The guilt is unbearable but I feel that now being 60 years old I would like to feel that this person does not dominate my whole life. I would like to have a happy holiday for a change and have my children WANT to come home (without Grandma always there)
There has never been any pleasing her before and now she sends me into bouts of depression that I have a hard time shaking. Am I alone? I feel like a selfish person but I don't like her now and never did before. The guilt is killing me.
Isn't it odd that a parent who gave so little can expect so much from their children? And it is even odder when they belittle the person who does it. But what do we do?
I allow you to stay away from your mother; I have to do the same with both my parents & I know that they are so miserable & would be better off joining my little sister whose passing is causing them way too much pain! Hugs, Hope
Now mom is so aphasic from Alzheimers she can barely finish a sentence and has become clingy and needy.
Not a scary bully anymore.
How did she not alienate you?
A person who has lived like your mom has all of her life is not going to change late in light. They are who they are and that is very sad.
To top the cake we now have my father GreedSer too; mean viscious and won´t give us a penny for his expenses, he also HATES me & even accuses me of having contributed to my youngest sister´s death (she had ca spread to liver)...he seems to be demented, but has pety normal behaviour when strangers are around...I want out, but yes, the killer guilt doesn´t just vanish! We do, however, have to stand up for our rights; I´m 58 (abused since childhood), and at this age one fooot is alreading entering old age; if these abusers last 5 more years, we´re done! We have a life to live! Neither of my parents ever had to care for their elders; it must skip a generation! Hugs to all
There are studies from 2009 that show the typical caregiver is female, unpaid, near 50, and has 20+ years of caregiving without pay ahead. The financial sacrifice is in the billions of dollars. Not only is it a social well being matter, a matter of conscience, but a huge economic problem for everyone concerned.
With typical being near 50, that means there are a lot of people well beyond that age doing unpaid caregiving, as well as below that age. People in their prime earning years who are not earning, not saving, and in no way prepared for their own old age.
Think also about the training factor. How many home careproviders have had any training whatsoever? Safety training? Medical training? Personal attendant training? Mandatory precaution training? My estimate is very few have. What risk does that put the caregiver and receiver at for contamination, illness, or injury?
I found on my journey through this that if you don't know what to do, it's very difficult to find out. I learned the most from this site and people on it. Who looks out for the home care providers who don't have the education, access, or ability to go do their own research?
My theory is that there are an awful lot of elders out there who are living in substandard conditions with an unprepared care provider. Think about the potential for abuse in both directions. Who will know if the elder never goes out to see a doctor or has anyone come into the house for care work? This is not a good situation for anyone.
Those may be considerations for other purposes. Determining treatment needs, like PT, OT, in-home help, care plans. But Medicaid doesn't do that assessment. Maybe somebody told you it was for Medicaid just to avoid the complicated explanation.
YOU need to STOP paying. You are only hurting yourself. It sounds like your mom needs to be in a dementia care facility, not a retirement home. It sounds like this is too much for you.
There is assistance to get her placed in care. The facility business office and the social worker are there to help. Next time she goes into the hospital, don't bring her home. You don't have to. There is no law in the land that requires you to do in-home care, especially when it's emotionally and physically too much. The hospital will find a place that can take her, and I strongly suggest you let them.
Your mother's funds pay for her care, and when she is out of funds and assets, Medicaid kicks in. I assume she also gets social security pay and Medicare health/drug coverage. Medicaid will pay for long term care for the indigent.
You have options. You have to take control though and make it happen.
Minimally, control your own TV. Maybe her contact with the news & talk-TV ought to be eliminated.
It sounds like your mom has dementia and needs to be in an environment structured for dementia patients. Get your house back again and enjoy life. You only get this one.