I am starting a new post because the previous one on "death hastened by hospice" has so many replies. Do people expect medical euthanasia when they accept hospice? Does hospice staff aim for 24/7 sleep using sedating meds? When did this become the standard of care? When we call hospice should we be prepared to have our loved one be medicated heavily and die soon? Why is the word "comfortable" left so open to interpretation? Why is "agitated" as minor as slight tossing and turning during sleep? What has happened to hospice?
All of this billing information is sent to the patient on a regular basis at least by Blue Cross. The patient or caregiver will have all the information to question bill and use it to file at tax time if they are able to take a tax deduction. Hospital bills are rarely itemized but you can request that if you feel you have been over billed and challenge ridiculous amounts like $50 for a band aid.
By the way to be able to take a tax deduction for 2016 you must be over 65 and the expenses must be at least 7.5% of your total income. Next year the threshold is set to rise to 10% but of course that can easily change.
Being that your Mom was on life support, that tells me she didn't have a legal Medical directive which would have given you and the hospital her wishes in such an event. Thus the hospital needed to do everything they could to keep your Mom alive. This doesn't sound like Hospice was even used at all.
Again, I'm sorry for the loss of your mom.
Perhaps he comes from a country where all is provided if you need it. For better or worse, the U.S is a capitalist democracy without universal healthcare.
It can be an enormous challenge to adjust to a new economic system. I hope he comes back to gain some more understanding.
My daughter works in a nice assisted living facility. One long-term resident was very personable and well-liked by staff and other residents. At the end of his life it was evident to staff that he was suffering greatly. My daughter was very upset when she talked about this. The man's out-of-state son, who hadn't spent a lot of time with his father in this condition, was hesitant about using hospice services. My daughter was so relieved when he finally signed off on hospice. The old gentleman had some comfort in his final days.
zythrr, I solemnly swear to you, for my daughter was NOT about money. She was paid the same whether the man went on hospice or not. The same was true of other staff members who were really hoping to see this man on hospice.
You cannot assume and accuse that every medical person who suggests hospice or removing life support is doing it for reasons of money. And that doesn't even make sense. Wouldn't the institution make MORE money if they kept the patient around as long as possible?
Please don't claim more than you do, or generalize from a single experience you don't even seem to understand.
As for hospice, like actual hospice, which we do not have where we live for some odd reason. Yes, in some cases it is close to euthanasia. BUT, they alleviate suffering. Hospice is not about treatment, hospice is to give a dieing patient the best quality of life they can have in their last days, weeks and months.
I have watched 3 family members die in hospice care. They go above and beyond, and in many cases (for in home hospice care) family members are in charge of the medications while the nurses are away. Actually when my Grandfather was dying of lung cancer, it was my Grandma who was far to liberal with the morphine, after 3 years in agony she could not take it anymore and did not want him to be in pain. Every time he so much as moaned she gave him morphine, I would do the exact same thing if it were my husband, I should also add that she was a Registered Nurse.
I support Death with Dignity (and all fo its other names, changes by state) and feel that terminal patients should have a choice.
I know mine has discussed it with me in terms of whether or not I wish to continue with the many Dr visits and procedures I have been subjected to in the past year. my decision was that as I continue to improve I wished to continue and decide on a case by case decision. i was also asked by the health care care nurse who wanted to have a conversation with their palliative care team. I told her that I had no need to see them because I had worked in that discipline for ten years. so just from my experience it seems to have become usual practice to offer this option.
I am not terminal and completely understand the reasoning. I also think that other people if they are capable of understanding the benefits should be given the choice but unfortunately with the deliberate spreading of false information patients may be afraid of hospice. Our local, very good hospice, is very underutilize
FAQ: How is Hospice Care Paid For?
Patients with a terminal illness do not usually have to pay for hospice care.
Hospice care costs are covered by Medicare (through the Medicare Hospice Benefit), Medicaid (in most states), and The Veteran’s Health Administration.
Medicare and Medicaid:
Currently, most hospice patients have their costs covered by Medicare, through the Medicare Hospice Benefit. Learn more about the Medicare Hospice Benefit.
Medicaid also pays for hospice care in most states. People become eligible for Medicaid when their income and assets are low.
Medicaid provides benefits that are very similar to the Medicare Hospice Benefits.
Veterans’ Benefits:
The Veteran’s Health Administration also covers hospice care. If you think you may be eligible, you can read further information for veteran’s benefits.
The Veteran’s Health Administration provides benefits that are very similar to the Medicare Hospice Benefits.
Health Insurance.
Many private insurance companies provide some coverage for hospice care. Check with your insurer to determine whether hospice care is covered and under what circumstances. Among private insurers, there are variations in qualifications and covered benefits.
Individuals who do not have insurance.
If you do not have insurance coverage and cannot otherwise afford the service, a hospice may provide care free of charge or on a sliding scale basis.
This financial assistance is provided through donations, gifts, grants or other community sources. Call your local hospices to learn if they are able and willing to offer care for free or reduced cost in your case. View our contact information for hospices in your area.
Whether a patient is eligible for hospice benefits may vary depending on who is covering the cost of care. Currently, most hospice care in the US is covered by the Medicare Hospice Benefit, which requires:
patients to be diagnosed with a terminal illness, and
be 65 years or older, and
have the patient’s doctor and a hospice medical director certify that the patient has six months or less to live.
Many other hospice benefit programs follow these same guidelines set by Medicare.
Thank you for your comments. If you get a chance, do a google search of Dr Laura K Shoemaker. She is listed on one of the bills submitted to one of the insurance companies.
Sure, hospice is different depending on the individual and maybe it's not about the money in some instances. In this case, that was definitely not the case, since there was no chance of survival. Hospice was really a waste, since my mom never regained consciousness after 5 days of treatment.
I know these people need to make a living. I'm not upset about that, just be honest with people, that's it.
To answer more about your post. ICU head said she was "dead" when she was brought back to ICU, which was the 23 ( she passed 29). She was on life support, because of the effects of the Sepsis. Here is what Sepsis had done
She had congestive heart failure, tacychardia, atrial fibrulation, unspecified intestinal obstruction, sepsis, shortness of breath, chronic pulmonary edema, hypotension, malig neoplasm of liver, acute kidney failure, acidosis, acute respiratory failure with hypercapnia, enterocolitus due to clostridium difficlie. This was just too much for her body to fight.
Since she was going to die, anyway, there was no need for Hospice which was used for only 3 days.
You know what was done to you're mom. You saw it with your own eyes and your natural instincts warned you. Don't let anyone make you feel bad for talking about it. You are not wrong. Your experiences are real. What happened to your mom is real. Don't ever let anyone make you feel like it is insignificant.
Hospice is murdering people. I have seen it too. There are people here commenting that they don't sedate 24/7.... That is a lie! I have seen it. They did this to a relative. She was walking, talking, eating, drinking,going to the bathroom. Hospice came in and sedated her with morphine the first day. They kept her like that for seven days. She died on the seventh day of dehydration not a disease. If you go without good and water for seven days, you died of dehydration! Period !
There's a lot of trolls from the hospice industry commenting here. They are doing damage control for hospice. Trying to keep the cat in the bag. Trying to keep people's perception of hospice a good one full of compassion and angelic nurses... This couldn't be any further from the truth. They are angels of death.
There are comments here stating hospice doesn't use drug cocktails, such as morphine+Ativan... Also a lie. Why don't you hospice angels talk about how deadly Ativan (alone) is to the elderly? Or anyone with dementia? You can google it. It's a medical fact.
Why don't you talk about how deadly morphine is to someone with respiratory troubles? Morphine does not help the breathing. It shuts it down. And hospice knows this. All medical professionals do. Google "morphine respiration".
Why don't you talk about your death squads? Or the closers? Yeah I have inside information. I know the sick things you do.
Keep talking Kathy.
It all depends on if you want your love ones to pass while in terrible pain, or to pass peacefully.... again it is the same time table.
By the way, Prolife, when one is seriously ill, the patient can still be walking, talking, eating, etc. because there is that spurt of energy just before death happens. Then when the organs are shutting down it becomes very painful. Every patient would want something to take away that pain.
No, I do not work for the Hospice Care groups.
Hospice is keeping my mom out of horrendous pain due to spinal compression fractures. Her bones are crumbling. She is lucid and engaging with friends and family. She eats what she can when SHE wants to and drinks liquids. No one is witholding food or water. No one is trying to accelerate her death. Her morphine dose is tiny but it does the trick to keep her pretty much pain free.
My father died of a glioblastoma (aggressive brain tumor) six years ago and I don't know how he and my family would've managed without hospice care.
The fact that you are calling people 'hospice trolls' paints you in a not so great light. We're just regular people that appreciate the care hospice gave our loved ones and also us.
I'm also not employed in any way in the medical profession. I'm just a loving daughter that cared for my father and continues to care for my mother with the help of hospice.
Bad things happen in the best of organizations.
In the midst of dying and grief which are huge life changing experiences it is not uncommon for those left behind to try and find someone to blame.
People need to remember that the patient and or their caregiver always have the final say regarding any and all treatment.
Ask questions, express your concerns and if you can't live with your decisions change your mind and let the professionals do their job which is to provide pain relief and comfort at the end of life.
Whenever this subject is revived I say to myself I will never reply again but it always gets me riled up so I do.
I am still receiving treatment for many possibly life threatening illnesses but when the time comes and my body wants to be at peace for whatever time I have left the first call I will make is to my friends at hospice in the sure knowledge they will provide me with tender loving care
I wish you the best in your treatment and continued years in good health. I can tell by your words that you are a kind and good person. Thank you for all the great info you provide for the rest of us on this journey.
Many ((hugs)) to you!
In fact, the first hospice in America was started by a pro-Euthanasia activist named Florence Wald.
On the Hospice Patients Alliance website, you can find a timeline of the merging of the Euthanasia Society of America with the National Hospice and Palliative Care Organization. The two are one in the same.
Hospice does Euthanasia by what's called "the third way". Such as by denying food and water. They sedate the patient. The patient has no access to food and water and therefore dehydrates to death. Sometimes the patient is outright overdosed with lethal drug cocktails. In other instances their breathing is shut down by drugs, such as morphine. It's stealth euthanasia.
There is a growing movement to expose these murders. Many of us are speaking out to inform the public. Speaking out saves lives. Please join our movement. Look for our groups on Facebook, such as "Murdered by Hospice".
Don't pay attention to the attacks you are receiving on this forum. Ignore the gas lighting. Many of these people are trolls from the hospice Industry doing damage control. Tell your story.
Are there bad actors in the Hospice industry? Are there bad doctors, lawyers, teachers, priests, rabbis, psychologists, nurses, social workers, IT professionals? Sure. Every industry has bad actors.
If you've ever had a loved one dying of cancer in the era before hospice, when morphine was not given because the patient might get addicted (been there, not doing it again, not to anyone I love), you know the value of hospice and the comfort that morphine and other painkillers bring to the table. I'm not giving up on this benefit.
Take your message elsewhere, please.
Hospice was able to keep him comfortable through his pain, delirium and agitation, that so often comes at the end of life, and they were always but a phone call away to answer any questions and guide us through the process.
My FIL truly loved his "Hospice girls", especially his bath aide, who always gave him a good massage at the end of every bath, and whose good sense of humour and kindness he looked forward to twice a week.
Please Dear God, should it be necessary, let there be Hospice when its my time to go, as losing a loved one is hard enough, families truly need all the help they can get. People who've been through this know how very difficult it Really is!!! This was my 2nd time needing Hospice with a dying Parent, so I know!!! Cancer Sucks!!!!!
2. Many people who are dying cannot swallow (dysphagia). They are given ice chips or wet sponges for comfort purposes.
3. Most people who are dying lose their appetite, in addition to having dysphagia.
4. Most people's bodies cannot process food or water as their organs shut down in the dying process.
5. Intravenous water (saline) and feeding tubes are artificial means of keeping someone alive. If a family wants their loved one to be kept alive through artificial means, then they need to remove them from hospice and put them in a hospital or care facility.
6. Keeping someone alive through painful, artificial methods is cruel, and goes directly against the religious screed that says "only god decides" when it's time for someone to die. It also goes against the principles of hospice.
7. Prolife, STOP LYING TO PEOPLE. You are the gaslighter here.
Death is not an easy thing to witness most of the time. I'm sorry people have been made uncomfortable by witnessing the natural process of death, and it's understandable to want to lash out at SOMEBODY in your grief. But come on, people. This is what death is like. Anybody who's even watched an elderly cat die at home knows this. We are incredibly lucky, in our western nations of wealth and luxury, to have health care providers easing the discomfort of death. Be grateful your loved ones have access to sedation and painkillers and a reasonably comfortable place to be as they leave this world. People are suffering everywhere, all the time.
(P.S. - saying "only god decides" is pretty convenient rhetoric to fall back on, when it suits one's purposes. But I don't see any religiously principled people trying to shut down the entire health care system, which circumvents natural death on a daily basis.)