I am starting a new post because the previous one on "death hastened by hospice" has so many replies. Do people expect medical euthanasia when they accept hospice? Does hospice staff aim for 24/7 sleep using sedating meds? When did this become the standard of care? When we call hospice should we be prepared to have our loved one be medicated heavily and die soon? Why is the word "comfortable" left so open to interpretation? Why is "agitated" as minor as slight tossing and turning during sleep? What has happened to hospice?
It isn't a conspiracy theory. Yes, I have contacted the above to no avail and not because I want any money but because I don't want this happening to others. Many feel just like you naysayers that if she was in hospice than she must have been dying and just accept it was her time. You weren't there and you don't know what we were told etc... I'm not debating what you think etc... just trying to make sure the word gets out. If you feel your loved one is safe, then that's your call. If you are really interested in knowing instead of attacking others who have lost someone to the hands of hospice then do your research. Check out stealth euthanasia. Interesting that there are a lot of people out here now starting to see their situation isn't unique.
Why does everybody (at least on this forum) who's convinced that hospice murders just go around to online forums trying to convince random strangers this happened, instead of going to the police, where these alleged murders can be investigated and hospice can be put under better scrutiny?
I'm sorry to be blunt, but doing nothing more than posting randomly online greatly resembles the behaviour of conspiracy theorists. So that's how you appear to people like me. I'm sorry for your loss, but it's really hard to take your concerns seriously when you take zero real world action. It defies all logic.
Also, you know you can be charged with a misdemeanor for failing to report a crime, right? And you do know the police can trace your IP through this website and find you in real life, right?
Some people have good results from hospice and have stated that and I'm happy for those. Our situation was not the same. I don't attack others who have good things to say and don't believe I should be attacked for what I know.
People just need to know all sides of the stories before they experience what we did.
If interested read http://www.hospicepatients.org/this-thing-called-hospice.html
for many others who know what occurred.
Thanks again CountryMouse for your compassion
P.S. My Dad lives with me and feels guilty that he let them take her to that place where she died, but otherwise he is doing well.
Iknowthetruth, I have a good deal of sympathy for you. For my mother's end of life care we had excellent visiting nurses, first rate. But doing the rounds of hospital departments and outpatient clinics and rehab and so on, I heard other nurses, and some doctors, and all the dietitians we encountered (I'm sure others are great), and a PT or two, talk utter twaddle about health conditions and their management.
There were also at least two occasions when vigilant practitioners screeched to a halt on medications - spironolactone put my mother's potassium levels through the roof, it could have gone unobserved and stopped her heart; and oxycodone caused hallucinations because my mother's poor kidney function meant her body could not break it down as normal and she was, in effect, overdosing.
The key word is vigilant. These two people did not leave it 'til the next appointment - they checked, and acted.
Quite often that does not happen. Routines are followed properly, but those routines do not allow for close *enough* monitoring. Or, there isn't the necessary continuity of care. Or, there isn't the effective communication and co-ordination required to support someone with complex co-morbidities.
Care is not as good as it could be - if everybody involved performed at their best all the time with the support of an optimised care framework.
Incidentally, that's what the now infamous Liverpool Care Pathway was intended to be: an optimised framework, designed to ensure that terminal patients received complete comfort care without onerous, painful, futile interventions. Its aim was extremely desirable. Its execution, and now its reputation, were dire.
If I may take the liberty of summarising your assessment of events:
Your mother was (1) admitted to hospice in the third quarter of 2017. She was then living at home with your father, a ?retired hospice chaplain known to the facility and entitled to "professional courtesy", so to speak. Your mother's hip pain had been managed with (2) hydrocodone and your mother took a stoical point of view. Medicare was covering hospice costs; there is a cap on the cover; your mother had either reached or exceeded this cap. Waiting until her doctor wasn't looking, your mother's hospice team at the direct or indirect behest of Medicare removed your parents from their home and transferred them to a facility on the pretext of offering your father a respite break.(3) At the facility, they carried out planned euthanasia in order to finalise their costs. Throughout this process the hospice team ignored or overruled your parents' wishes regarding admission to the facility, emergency admission to hospital and drug therapy.
(1) I'm sure you're aware that a life expectancy of less than six months is a criterion of admission to hospice? So to make that recommendation, your mother's doctor cannot have been treating her heart failure as a manageable long-term chronic disease: it must have been an acute presentation at quite a late stage. Do you happen to have a record of what her measured heart function was? If there's an echocardiogram result, you want to look at the Ejection Fraction.
(2) You don't happen to know how long your mother had been taking the hydrocodone for her hip pain, do you? There can be all kinds of reasons for amending pain relief px's; and one that springs to mind is that codeine family members can cease to be effective. Fentanyl is extremely effective; and easy to administer. Also, there are strategic health policies in place to reduce the overall amount of codeine prescribed (I know that's not relevant from an individual's point of view, but it is an explanation of the presumption against px-ing codeine). On the issue of your mother's personal limit of an 8/10 pain level's being acceptable... It's so very subjective, isn't it? So hard to define. So hard to plan ahead, long before you know what it's like to be positioned and transferred in a hospital bed when your hip has no cartilage. And then again, there's the pain a person reports when he's lying still and being asked about it; and the pain that makes him cry out when nurses are moving him.
(3) When the hospice staff arrived at your parents' home to check on your mother, what did they find? Your elderly father was her primary caregiver; well, I've done that caregiving job and I was in my early fifties. I can't imagine how much more difficult it would be for an elderly gentleman. Your mother was very ill. You and your sister were not on the scene. What do the notes say about the situation in that particular moment?
I want to ask this delicately, without offending you: what explanations have you been given about the latter processes of congestive heart failure - specifically, its knock-on effects on kidney function, respiration and brain function? The thing is, for example: morphine in these circumstances is not given for pain relief, it is given to improve the quality of respiration in patients whose lungs are overloaded with fluid; it does this by slowing the rate of breathing, in order to allow each breath to be deeper and take in more oxygen.
I was fortunate that my mother was able to tell me whether or not she wanted her oral morphine, and except on two occasions she didn't need it. It sounds as though the facility may have been less anxious about giving it than I was (fair enough: I was a frightened amateur, they knew what they were doing), and certainly as though they made a complete hash of explaining how it worked and relying on your mother's informed consent. But that does not mean that their intentions were either callous or malicious. What they did does not show that they did not intend to act in their patient's best interests.
I'm going to stop at this point because I don't want to antagonise you, I am not against you. Have you had any discussions with your mother's hospice team about your fears of what took place?
How is your father doing?
Family members can step in to advocate for their loved ones at any time by speaking with the physicians.
Hospice admits folks with a terminal diagnosis. An order for hospice is a doctor’s order made in conjunction with the family after determining a poor soul is very ill, most likely at end of life & “about to go home” to their Maker & will not recover. This decision is not made easily or in a bubble.
It’s hard when one of our family members and our non family loved ones get very ill & will not recover.
Personally I would choose the hospice option (and did choose Hospice for my mother) to treat end of life & having a terminal illness & no quality of life remaining. These folks need to be provided comfort and care. It pains me to hear of negative experiences described above as this was not my experience.
Yes medication is prescribed for alleviation of pain and decreasing suffering that may occur at the time leading up to death.
I am not going to judge anyone’s opinions in their own personal situation as I don’t doubt they happened, & at a very vulnerable time as well for the family.
I don’t look at seeking hospice as playing God either. Reality is that people die and it’s a part of life. IMO Hospice was my choice for my mother & it turned out to be the right decision for us.
My mother wasn’t over medicated either. When she passed in the middle of the night she appeared comfortable.
Hospice did not kill my mother.
Every terminally ill person should continue to be able to review hospice as an option @ end of life.
For those caregivers who feel their loved ones were overmedicated, I am sorry.
The hospice “cocktail “ doses are individualized & monitored for effectness frequently to maintain the person’s comfort. Often doses are titrated up to provide symptom relief.
Yes the meds offered by hospice are to provide sedation. Sedation & pain relief is often desired due to the adverse effects of the terminal disease.
Please don’t rule out Hospice for your terminally ill loved one. Keep your options open.
Of course, nothing is perfect, hospice included. Families have a say throughout hospice as well. It’s good to know Hospice is available for consideration.
No one. Ever. Goes. To the police.
Weird.
Murdering people actually stops hospice receiving money. Dead patient = no more Medicare payments. The higher the patient load the more money a non profit hospice receives. The mother's pain was being managed properly if she was comfortable enough not to want to take the morphine. However to remain pain free it is important to keep dosing so the pain does not return.
Any drug has to be prescribed by the MD. Hospice workers can't just show up and start using anything.
If the mother was being cared for by an elderly husband it was probably seen to be too much and unsafe for him to manage alone.
Indeed people can live 10 years with CHF - I hope I get that lucky! I remember being in acute heart failure and lying on the floor coughing and gasping for breath with fluid running out of my mouth and nose. I was able to return to the hospital and was properly treated and recovered but it is something that gets worse and eventually is a killer. Fluid is the worse thing you can give to someone in heart failure they are already overloaded.
You are entitled to your opinion and in your grief it is very easy to find someone to blame for Mom's death which you clearly were not expecting. As you firmly feel Mom's death was due to the actions of Hospice personnel then proceed and take action either by sueing or reporting the hospice to the police, filing a law suite or reporting to your State's Health Board
Gershun don't worry about being attacked I think Prolife has gone back into his cave. That is unless the Admins have seen him off.
This conversation only serves to make people who had no choice but to follow the Doctor's wishes and allow morphine to be administered feel guilty about their decision. I was told the same thing that you just stated, that my Mom would basically drown in her own fluids. That she would be like a hot water bottle. Thank-you so much for reminding me of this and making me feel bad all over again.
My Mom did not have cancer and was NOT dying. Her doctor suggested she go under hospice since she had been diagnosed with congestive heart failure which people live up to 10 years being treated with medication. She had a bad hip with no cartilage and did have pain which was being managed with hydrocodone. My Dad had been the hospice chaplain at that facility for 15 years earlier so we thought she was safe when we enroller her into hospice in the fall of 2017. After her doctor left to go out of country for 3 weeks, hospice staff showed up at my parent’s home and stated they were taking them to the hospice facility for my dad, the caregiver to receive respite and they would "take care of her". Hospice showed up at the home and said an ambulance is on the way and told my parents they were taking them to the hospice facility – they did not ask. My Mom always said she wanted to die at home. My Mom always said a pain level of 8 out of 10 was acceptable to her and it was HER choice. They were to keep them 3 to 4 days while my sister and I, who live in different states could come and make other arrangements for care. They admitted them both and the next day they started giving my Mom morphine and ativan without their approval. Mom became sad and stated she was afraid of morphine and didn't want to take it. They told her they switched to morphine because her pain med was making her constipated. Later once we knew this and received medical records we found out ALL opiods cause constipation! The following day eventhough she stated she was NOT in pain they gave her 100 mcg Fentanyl plus Morphine and Ativan and changed her from respite care to end of life. Within 2 hours she started showing overdose symptoms of fentanyl. Long story – short My sister and I arrived and she was in a coma state. We had them stop morphine and Ativan believing this to be what had rendered that state but eventhough we were able to get a few drops of water in her by coaxing her and rubbing her throat she did not become coherent. Eleven days after being “taken” there she stopped breathing.
I received the medical records and the amount and timing of the drugs with the comments entered, it is totally clear that they murdered her. In December of 2017 after doing a lot of research I found out this is happening around the country and I am NOT delusional. Google Stealth Euthanasia and see where it IS happening and if we don’t wake up and accept this, it is going to happen to many more of our elderly and those that cannot fend for themselves. I can’t bring my sweet Momma back but I promise to let others know so they don’t suffer the same fate under medical predators! My Dad, sister and I will have to live with knowing they killed her while we stood by asking what was wrong and they lied to us every turn. We tried to move her to the hospital and were convinced that they would give her fluids and she would drown and that is a horrible way to die… there are so many instances of their manipulations that it makes me sick.
Fentanyl was developed for cancer patient’s pain. My Mother did not have cancer but fentanyl is being used for so much more than that today. I have no doubt to coin a phrase “big pharma” has it’s hands is these stories. Profit! And this was a non-profit hospice and when I did the math on how much medicare had already paid, my Mom was close if not over the hospice cap of lifetime limit of $28,404.99. Additionally she had spoken out about not being happy with the staff changing all the time so they no longer received positive reports and were running out of funds so they had to hasten her death and get their money. Again, I have the medical records and it is clear.
Bottom line to all you naysayers – I’m happy for you that your loved one wasn’t murdered this way, but don’t attack those who have seen it first hand and know what the truth is! Walk in my shoes before you try to tell me what it was like because YOU do not know.
Hospice was a godsend for us with daddy's passing.
2. Many people who are dying cannot swallow (dysphagia). They are given ice chips or wet sponges for comfort purposes.
3. Most people who are dying lose their appetite, in addition to having dysphagia.
4. Most people's bodies cannot process food or water as their organs shut down in the dying process.
5. Intravenous water (saline) and feeding tubes are artificial means of keeping someone alive. If a family wants their loved one to be kept alive through artificial means, then they need to remove them from hospice and put them in a hospital or care facility.
6. Keeping someone alive through painful, artificial methods is cruel, and goes directly against the religious screed that says "only god decides" when it's time for someone to die. It also goes against the principles of hospice.
7. Prolife, STOP LYING TO PEOPLE. You are the gaslighter here.
Death is not an easy thing to witness most of the time. I'm sorry people have been made uncomfortable by witnessing the natural process of death, and it's understandable to want to lash out at SOMEBODY in your grief. But come on, people. This is what death is like. Anybody who's even watched an elderly cat die at home knows this. We are incredibly lucky, in our western nations of wealth and luxury, to have health care providers easing the discomfort of death. Be grateful your loved ones have access to sedation and painkillers and a reasonably comfortable place to be as they leave this world. People are suffering everywhere, all the time.
(P.S. - saying "only god decides" is pretty convenient rhetoric to fall back on, when it suits one's purposes. But I don't see any religiously principled people trying to shut down the entire health care system, which circumvents natural death on a daily basis.)
Hospice was able to keep him comfortable through his pain, delirium and agitation, that so often comes at the end of life, and they were always but a phone call away to answer any questions and guide us through the process.
My FIL truly loved his "Hospice girls", especially his bath aide, who always gave him a good massage at the end of every bath, and whose good sense of humour and kindness he looked forward to twice a week.
Please Dear God, should it be necessary, let there be Hospice when its my time to go, as losing a loved one is hard enough, families truly need all the help they can get. People who've been through this know how very difficult it Really is!!! This was my 2nd time needing Hospice with a dying Parent, so I know!!! Cancer Sucks!!!!!
Are there bad actors in the Hospice industry? Are there bad doctors, lawyers, teachers, priests, rabbis, psychologists, nurses, social workers, IT professionals? Sure. Every industry has bad actors.
If you've ever had a loved one dying of cancer in the era before hospice, when morphine was not given because the patient might get addicted (been there, not doing it again, not to anyone I love), you know the value of hospice and the comfort that morphine and other painkillers bring to the table. I'm not giving up on this benefit.
Take your message elsewhere, please.
In fact, the first hospice in America was started by a pro-Euthanasia activist named Florence Wald.
On the Hospice Patients Alliance website, you can find a timeline of the merging of the Euthanasia Society of America with the National Hospice and Palliative Care Organization. The two are one in the same.
Hospice does Euthanasia by what's called "the third way". Such as by denying food and water. They sedate the patient. The patient has no access to food and water and therefore dehydrates to death. Sometimes the patient is outright overdosed with lethal drug cocktails. In other instances their breathing is shut down by drugs, such as morphine. It's stealth euthanasia.
There is a growing movement to expose these murders. Many of us are speaking out to inform the public. Speaking out saves lives. Please join our movement. Look for our groups on Facebook, such as "Murdered by Hospice".
Don't pay attention to the attacks you are receiving on this forum. Ignore the gas lighting. Many of these people are trolls from the hospice Industry doing damage control. Tell your story.
I wish you the best in your treatment and continued years in good health. I can tell by your words that you are a kind and good person. Thank you for all the great info you provide for the rest of us on this journey.
Many ((hugs)) to you!
Bad things happen in the best of organizations.
In the midst of dying and grief which are huge life changing experiences it is not uncommon for those left behind to try and find someone to blame.
People need to remember that the patient and or their caregiver always have the final say regarding any and all treatment.
Ask questions, express your concerns and if you can't live with your decisions change your mind and let the professionals do their job which is to provide pain relief and comfort at the end of life.
Whenever this subject is revived I say to myself I will never reply again but it always gets me riled up so I do.
I am still receiving treatment for many possibly life threatening illnesses but when the time comes and my body wants to be at peace for whatever time I have left the first call I will make is to my friends at hospice in the sure knowledge they will provide me with tender loving care
Hospice is keeping my mom out of horrendous pain due to spinal compression fractures. Her bones are crumbling. She is lucid and engaging with friends and family. She eats what she can when SHE wants to and drinks liquids. No one is witholding food or water. No one is trying to accelerate her death. Her morphine dose is tiny but it does the trick to keep her pretty much pain free.
My father died of a glioblastoma (aggressive brain tumor) six years ago and I don't know how he and my family would've managed without hospice care.
The fact that you are calling people 'hospice trolls' paints you in a not so great light. We're just regular people that appreciate the care hospice gave our loved ones and also us.
I'm also not employed in any way in the medical profession. I'm just a loving daughter that cared for my father and continues to care for my mother with the help of hospice.
It all depends on if you want your love ones to pass while in terrible pain, or to pass peacefully.... again it is the same time table.
By the way, Prolife, when one is seriously ill, the patient can still be walking, talking, eating, etc. because there is that spurt of energy just before death happens. Then when the organs are shutting down it becomes very painful. Every patient would want something to take away that pain.
No, I do not work for the Hospice Care groups.
You know what was done to you're mom. You saw it with your own eyes and your natural instincts warned you. Don't let anyone make you feel bad for talking about it. You are not wrong. Your experiences are real. What happened to your mom is real. Don't ever let anyone make you feel like it is insignificant.
Hospice is murdering people. I have seen it too. There are people here commenting that they don't sedate 24/7.... That is a lie! I have seen it. They did this to a relative. She was walking, talking, eating, drinking,going to the bathroom. Hospice came in and sedated her with morphine the first day. They kept her like that for seven days. She died on the seventh day of dehydration not a disease. If you go without good and water for seven days, you died of dehydration! Period !
There's a lot of trolls from the hospice industry commenting here. They are doing damage control for hospice. Trying to keep the cat in the bag. Trying to keep people's perception of hospice a good one full of compassion and angelic nurses... This couldn't be any further from the truth. They are angels of death.
There are comments here stating hospice doesn't use drug cocktails, such as morphine+Ativan... Also a lie. Why don't you hospice angels talk about how deadly Ativan (alone) is to the elderly? Or anyone with dementia? You can google it. It's a medical fact.
Why don't you talk about how deadly morphine is to someone with respiratory troubles? Morphine does not help the breathing. It shuts it down. And hospice knows this. All medical professionals do. Google "morphine respiration".
Why don't you talk about your death squads? Or the closers? Yeah I have inside information. I know the sick things you do.
Keep talking Kathy.