Hi AC Forum,
I feel like I run the gamut of emotions on a weekly basis. I think that is a difficult side of this caregiving. Not being able to fully satisfy - or not being able to satisfy for what should be a normnal period of time. And on the same token know that each day you go down this path you just running to the finish line.
It's the craziest and horrible life as I am not able to live my life, yet I have a hard time thinking of my mom living with less. Also not being the face of which she says to at first seeing her and asking her how she is, "Better now that I see you!" Knowing that you are the comfort in their sight. Yet what it takes from one feels enormous - emotionally, monetarily, physically.
How are you doing?
LastOne
I have read each one's post and can relate in so many, many ways. I really got on here tonight because I am depressed and am fighting hard not to let it overtake me like it did in my childhood and up because of my family life with Mom and Dad. You can look up my story if you like.
Right now, I despise my Mother (my father died in 09 as well as my husband). She has ruled my life since I was 10 (when my baby brother was born with special needs). I was the new helper person now. And thus, it continues.
Mom, is the Boss of the home and her Alz is adding to her meanness. I have no friends, my 2 siblings other than baby bro (he lives with us) does not visit. They do not call. I have tried all the suggestions on AG and so far Bro and Sis does not care or respond.
I am ready to run away truly. The only thing keeps me from not is by only child/daughter announced she is pregnant and due in March 2016. I raised her alone. She and I are still so close. If she knew exactly how bad it is here, she would fuss to hog heaven to get me out. As other's mentioned, I can't with Mom still pretty much at herself move her to a NH and she doesn't qualify for Medicaid and no funds to pay for it.YeS! that another story.
So, I am stuck. I went from happy go lucky, kind, appreciative, helping, caring, loving and the lot to just the opposite. I wasn't showing feelings at all for the last 6 months. Now, I am sick at my stomach just to hear her voice, and more. I am angry, "I don't care attitude", resentful, and wanting to live my life now because I will be 57 in Dec. Gotta go.
I don't know about you, but we go through temperature "games" here that are like being jerked around. She says she's cold and the house is warm enough. I close her vents to keep the air condition out. A bit later she says she's hot and suffocating, so I open the vents. A bit later she's cold. ACK! I spend so much time trying to keep her comfortable. Actually, I don't think it is the temperature as much as the air movement that she is sensing.
My mother is the same way of thinking that she can stay alone. It is the hardest part of me taking a long respite. She doesn't need to go anywhere or have someone come in, according to her. I can just write down what pills to take and when. She will be fine. Yeah, right. I know better than that.
Most of the time it seems to me that old folks and young are not made to live together. What is good for one slowly kills the other. We have to compromise to keep it as healthy as we can for both old and young.
I just finished a four day stay in the hospital after an ambulance ride from the doctor's office to the er with possible heart issues. Heart checks out fine, strong. Now we have to eliminate other reasons, but I have to admit that was the the most relaxing, and in a weird way, enjoyable four days I've had in years. So maybe the food wasn't the greatest, but someone else fixed it and put the plate in front of me - wow, that was nice. I took care of no one, and everyone took care of me, regularly reminding me that they were there just for me - me! It made me realize how little time and energy I have for myself, and that it's okay for other people to be concerned about me. Only one day passed after I got home and my husband forgot I was had been in the hospital and was back in his routine of focus only on his issues and pain. I've already taken him to the doctor once and haven't even gotten my appointment set to go back to see my doctor to sort out my physical situation.
You all know how these "selfish" feelings wear us out and down. I long for a "normal" life, having coffee with a friend, taking walks, trying new recipes, shopping, (what is that? shopping? its been so long) all those things that I took for granted before. I know you are all feeling the same. I pray for you and for me to find comfort through others and just do the best we can - while we can.
I dread the holidays, since the stress brings out the worst behavior. She is sick and dying almost every day, often needing to go to the doctor or hospital. Anytime I say I don't think it's needed, she gets angry and starts yelling that I don't care if she dies. I've been through it so many times before, but it rattles me anytime she does it.
I'm going to talk with family this week and see what is best to do. I know they'll say whatever I feel is best. I'm watching these next few days. It may be time for her to go into the hospital and then to rehab, so we can take things from there. It's scary reading about heart attacks and other problems of caregivers on here and know that I need to get the stress off of me. I'm too old myself to be dealing with this type of stress by myself daily.
Finally she moved into assisted living but that is also bad. I still have to take her to all her appointments and follow up with the facility. The plan of care is a pain in the neck...she can't have any OTC items unless they are on the plan. Then the long term care pharmacy wants to send them. It's all about money I think.
She hates the foot there. I feel guilty and wonder if I should bring her home? But then I am not financially able to retire and so would have to find home health aides and I worry about that. I have elderly dogs. I'm single, no siblings. There is no one else to help very much.
I feel guilty and awful all of the time. I am stressed and burned out. I feel terrible.
Jessebelle, I have a finger pistol too!! It fires up all the time. Oh, and you're so right about all the preparations...... just to get a bit of respite. Sigh
Reverseroles - yes I'm sick of all the people coming and going in my house too.
I agree with comments about our change in "status". It's true, we have been demoted to caregiver - yes they call us "saints" but we are now...........less than.
To give some credibility to my comments:
I am a widow caring for my MIL (bedbound w/dementia) for 2 1/2 years in my house. It's the disease - I know I know - but she swears at me all day long. The one good thing about her is that she stays put.
My own mother moved in with me 5 months ago. She is bipolar with early dementia but she never stops moving. She is up at 7 am and goes till 9 pm. She "roots through" my refrigerator, cupboards, closets etc. She leaves water running and turns on every light in the house.
So I have a 90 year old who swears from her bed - but stays put...........
and I have a 90 year old who never stops moving and disturbing "my stuff"
I work full time from my basement office and that is my only sanctuary. Respite for me used to be a short run to the grocery store or meeting a friend for a quick lunch. - that is - at the only restaurant close to my house. (I am so sick of that restaurant now). But now with my mother running around, I have to bring her with me!!!
It feels like I drag around 2 anchors all the time. Lots of negative feelings arise and I am grateful that you all are willing to admit that you have those feelings too! It helps so much. Thank you all.
I visit her 3-4 times a week (not enough IHO), I'm managing to do some work again and I've even very slowly begun to get a social life back. It was the best thing I ever did.
I admire you all who stay the course til the end, but I just couldn't do it and if I had my time again, I wouldn't even attempt it.