My mom wont accept or even talk about getting help from someone on the outside. Im the only daughter, and I get all her anger frustration...she wont respect my boundries,,,I got so frustrated tonight she plugged her ears and didnt want to listen to me when I told her I need to get someone else to help me with he needs. I work full time and do not live close...I grabbed her hand and squeezed it as hard as I could so she would listen, Ive never done that before, Im at my wits end...
As the social worker said, we are not made to handle all this all alone. 5-day respite did me a world of good. And I even put my Dad in a place over Christmas (not that he realized fully that it was the holiday). It's so hard not to feel we are supposed to be there continually for our parents. But think about it, didn't our parents send us (as young children) to sitters or grandparents when they went somewhere or even just for a break? Also, I kept thinking that my kids (even though they are adults) and grandchild need me to be whole, happy, and healthy for them too.
Accept what you can change, what you cannot, and . . . be well.
I picked this one up in a stress management class about 24 years ago and have found it helpful. It's like an emergency brake - just stops things getting out of hand.
You'll be ok - I can say that because you've already realised what's happening. Try not to worry. And the other important thing is to recognise what kinds of conversations are going inevitably to wind you up. With me they're about using her call button (she won't, ever) and sorting out clutter - these are conversations that I've learned not to begin.
Don't talk to her about the support services you need. Make the plans, get the arrangements in place, and then bring the key personnel with you to talk to her about actioning them. It'll be harder for her to refuse to listen to a professional. Good luck.
my 87 year old not either, left to her own devices,
she would neither get out of bed on her own,
nor would she eat and help herself to a glass of water.
It is 2 pm. here and we both finished breakfast,
she is still eating my computer is 6 ft. from the kitchen table,
I am playing German music from Youtube for her,
she is originally from Austria and immigrated to the US
in 1956. We will have an abbreviated day.
Breakfast was oatmeal, where I have hidden an egg in its contents
After you make oatmeal with water, butter one teaspoon brown sugar one teaspoon, I add in egg with milk at the end and stir it fast so it mixes in.
That way she ate more than she thought she did.
She has what I term, senior anorexia, left on her own she commits to eating half of what ever you serve, if you try to put on twice as much thinking she would eat half and thereby eating what you wanted her to eat in the first place, it wont work, then you do not get her to eat at all.
So you yourself have to become creative too...to outwit the fox as it were...
I know that without the level of caregiving I am giving her, she would have lost to Alzheimer's disease long ago, which is...
...laying in the bed or sitting in a chair with the eyes closed almost brain dead...
They can stay that way for years, if they eat a little or drink little,
it is a dreadful picture, that is why, she has a routine (except for today)
and I make sure she has her calorie count.
Back 1 and a half years ago, when we rescued her from the 13 week stay she had in the nursing home and went to 98 lbs. I had to feed her smoothies
and still do, if I think she did not eat enough, the smoothies do not have to be ice but they could be yogurt, milk, honey, some orange juice strawberries, you can put in those freckled bananas you do not know what to do with, as long as it equals a glass and they can sip it with a straw, so many medicines that people take, have a weight and since her body weight was always around 115-118, the medicines produce different side effects, depending if their weight fluctuations. The Exelon (for dementia) cannot be given if the person weighs under 110.
I am happy to say with the caregiving she receives from me with verbal cues,
she can still make Christmas cookies, pork schnitzel's, and to visit with her lifelong friends.
It is 400 pm now, she has eaten, dressed (we skipped the bath) and knitting in the living room, we have talked about many things and am now starting dinner.
I am happy at her progress and adjustments,but I just graduated from a university, last spring and I have college loan debt and the family does not want to pay me,
and it looks like the court does not want to pay, for the excellent care she is receiving and because they sold her home, does not now qualify for the "cash and counseling" program, that would have paid me, her estate is there to pay only for her needs and no one is to benefit by(getting paid) but if I were a stranger, they would pay them...it gets complicated, so I still negotiating with them, but I would hate to see her deteriorate, which is what happened when they put her in an assisted living 2 years ago.
She doesn't deserve that, nor did she deserve to lose her house that she scrimped for, while raising the 5 children she and her husband brought from their native Austria, 57 years ago. I am her baby(61) child's friend.
I too wonder, how long I will be able to do it, before I have to make a dreaded decision. It depends on...
Anyway, the transition, takes a while it doesn't come overnight, it takes a little bit of time, the worst thing is to put too much pressure on yourself...
you will see what I go through and that's nothing there's more!
God bless you. It will be hard. Keep us posted and ask specific questions. We're on your side.
What I am trying to say is unwrap some of those layers of guilt about telling mom certain things have to be, that she just can't have everything they way she wants because it is just not possible or at least not reasonable and not working out. She doesn't want to face the changes, the reduction of her autonomy, the inability to pull all the strings and put all the blame on YOU, she's only human...and its not easy for you to change your role and the balance of power either.
Let us know what might be wrong with your mother. Can she still live independently, or do she need assisted living or a nursing facility?
One thing you might try to do in bringing in outside help is not to ask your mother. Instead give her a choice between two things, depending on what her needs are. Does she want Company A or Company B, etc. If she says neither, tell her it isn't an option. We can all understand why your mother wants to hold on to her independence, but sometimes it's just not an option anymore. The good thing is that a lot of the time the changes made are enjoyable. She may like the people coming in.
Good luck. I like your honesty so much. The frustration can be terrible at times.
Either way, there has got to be help available and you can't really await Mom's permission to access it. Mom would like to avoid reality, but that is not going to work as a real strategy. Recognizing that you are on the edge with fear and worry is a first step. I hope you feel empowered to take the next steps, however hard they may be!
Please give us a little more information about your situation. Do you live with Mom? Her house or yours? What is her impairment? Does she have dementia? How long have you been caring for her? How old is she?
We pretty much all know what it feels like to get so frustrated we do things we wish we hadn't. Give us a little more background so our responses can be more specific.