I have been caring for Mom for the past 7 years. The 1st year was spent flying between my home and my parents to help when Dad became terminally ill. I am an only child, Mom is 77. While Dad was in hospitals and hospice I took care of planing for the inevitable with my Dad, Mom would not accept he was not coming home. Dad had done everthing-the bills, caring for the house,shopping and cooking. Mom has never ever driven and has always been fearfulof...well everything. Just before Dad passed as we were planing what to be done, he told me"Mom is not like she used to be." I asked what he meant by that- he was vague and said she is not social-don't make her leave her house, take care of her. I realzed later she likely has alzheimers- her sister,father both suffered with this disease. she absolutely will not go to be tested. But all the signs are there.The next year was spent flying back and forth to take care of the house and her ect. She was isolated, no friends , no interests,and constantly afraid. some younger neighbors would take her to the grocery store2x a month( which was a bit weird but they had been friendly for years) and that was it unless I flew down. It became clear she was not doing well and I had to do something. I searched for months and found a cute 2 bedroom 1 level house 2 blocks from me.Perfect! We Mortgaged my house which was paid for to buy this house spent endless hours remodeling for her all the while flying her up for awhile then back to Florida. The time to list her house for sale came and i had to gently nudge her along, spent 2 weeks packing and moving her to her new home- it is so cute and perfect! She took a long while to get moved in I tried to let her be in control- but clearly she needed help to decide where to put things ect, she would just sit and worry. So we got it done. Her house in fla sold and we were able to pay everything off. 5 years later she seemed settled. she has a sum of money in the bank good income from pension and ss with little to no bills. I take her everywhere and make sure she gets out for walks and socializing-she does nothing w/out me. i have accepted that and the sacrifices. my husband works out of state in the winter - I am not able to be with him 100% as I have to be here for her- the travel back and forth again is expensive and tiresome-but gotta do it. she still worries so much about everything it is hard to take. sorry so long but that is the condensed version of the past 7 years. So now the newest problem- My house still has my mom and Dads name on it- we just never did anything about it. The house is waterfront and valuable but needed and still needs some repairs and upkeep as part of it is a rental unit. I take care of all expenses and repairs on my home -of course. mom is set her house paid for and all refinished. so 2 years ago I told mom weneeded to change the deed on my house that we needed to borrow to take care of things. We are responsible adults. Nope no way she would not agree -the house was free and clear she wanted it to stay that way. She does not at all understand how things workthese days and is fearful as I said of everything. SO- as I have power of attorney and it is my house - I took out an equity line- wemoved forward and took care of what we needed to do, with the idea of refinancing in 3 years-all good. Well by the slip of a phone call she realized we have an equity line on the house...mind you we have not been late on 1 payment and take care of everything.Mom has gone into hysterics and depression and will have nothing to do w/ me other than to take her to the grocery store- where she asks me to not come in with her. she is being very hateful and hurtful to me. the things she is saying are shocking to me- all I have ever done good has been erased. I am trying to be loving and care for her - but she is making it next to impossible. I cry most days-call her everyday to see she is ok and she gives me one word answers and hangs up when I go over she barely allows me in and then asks me to leave. she has agreed now that we will change the deed.but that is it-she says she will never get over this. I can not live like this it has been 1 month and my heart is broken.She will not go to a counselor or our priest to talk -I have asked- so we can get past this. I do not know what to do. I can not continue this way it is killing my health-hers also. But what do i do? she has a brother in another state- but to sell this house and move her again would likely be too much. please any advice-this is killing me I can not live like this for months much less years.
Don't wait for your mother to go see a therapist, you go see one for yourself because you are the one at a crisis point and need a lot of support.
IMHO your mother having always been fearful of everything and doing basically everything as you described above does sound like she's had problems for years that he sought to compensate for. Now it sounds like you are trying to compensate for those issues and it's about to kill you (excuse my bluntness) as it killed him. Her fearfulness ate him up and it is obviously destroying you.
Have you talked with her brother about this. Is he like her or is he healthier? Asking for his input and help does not have to mean moving her.
All in all, please go find a counselor to get some support and a neutral third party to equip you to help yourself and your mother.
Your mother sounds like she's totally out of control. If I were you, I would call her brother, but not tell her you did. I wonder what makes calling him so fearful? Make the call to your uncle and to your mother's doctor from your own house, not hers. You are right to get her name off of your deed for it's your house. Is your name on her deed for the house that you got her?
Frankly, from the evidence you have shared your mother has some long term issues which you did not create; you cannot fix; and you cannot control. All you really can do is select a healthy path for yourself along with telling her what you are and are not wiling to do in order to help her, but that she's going to loose that if she breaks various boundaries which you are going to have to select, set, and have some consequences for. I feel very sorry for you and could only imagine what it must have been like growing up with her as a only child. Was your mother this controlling, fearful and dependent back then? Is your mother's brother older or younger than her.
I hope I am not interfering in this discussion but there are a few legal steps you can and should take to keep your home. Contact an elderlaw attorney in your area to find out what can be done - most states have laws that will allow caretakers to retain possession of real estate in situations such as yours. It's probably too late to assume durable Power of Attorney for your mom, since she is apparently not well enough nor willing to assign that responsibility to you, but seeking guardianship may be an option, albeit expensive. You are correct to worry about having to give up your property in the event she needs nursing home care, so don't delay seeking legal advice. Once you apply for Medicaid, you no longer can take steps to protect your assets.
Now, I hope you don't mind if I comment on the emotional turmoil you must be going through. I went through exactly the same thing with my mother. She always had a few problems coping with her life, but nothing extreme, in my estimation, and she and I would always talk intimately about life. However, when she developed cancer (over 1 year ago) and needed full time care while undergoing chemotherapy, she came to live with me and within only a short time became very hateful and unreasonable to me, the only one of her 4 kids who bent over backwards to care for every single one of her extensive medical needs. She is now in an assisted living facility and it is apparent she is declining cognitively, and very rapidly, but I suspected her personality change a year and a half ago may have been due to very early Alzheimer's changes or another form of dementia. I still tend to all of her needs outside of direct care for her, but in spite of this, she has remained emotionally remote from me. There is little I can do to win her back - I've finally accepted this.
I have had no support from siblings at all, and let me tell you, this has been the most trying experience of my life. I am 55, and it is so easy yet to retreat into my role as "daughter" and fear Mom's disapproval, but in fact I need to assume the parental position now.
Your mom can't help the way she is behaving, nor is it your fault. Crowmagnum has given you some pretty sound suggestions when he said there may have been some long term issues that you did not create and cannot fix - these are the very "issues" that become magnified when a loved one begins a cognitive decline. The texts don't tell you this, perhaps because subtle personality change is a difficult thing to measure, but I have heard many family members of Alzheimer's patients report this as an early symptom.
At any rate, the mixed bag of feelings can be better sorted out by realizing that it is illness which is causing your mom to behave this way toward you, and even to fear intervention by her brother. Unfortunately her immediate needs must be dealt with before you can take the time to even grieve, and that is what is so hard. I hope I've helped you somewhat. Reading your story here has certainly put my own situation in perspective, so please accept my thanks. I does help to know when we have company.
When I first moved my Mom here, I did everything for her...I finally figured out that this was not in either of our best interests.
Others above have given you great advice about your Mom and her current state of mind. So, I want to offer you some advice that helped save my sanity:
1) your Mom does not have the capacity now to think rationally, so do not let her hurt your feelings when you are in her presence. Think of her as a neighbor or stranger that you are helping and be firm, calm, and consistent.
2) always make decisions based on what is best for BOTH of you. You cannot put your marriage or your finances in jeopardy.
3) do not move your Mom again. Give her as much time alone as is safe. Hire caregivers who can come to her home and help with errands, housecleaning, and personal care. It will give her a chance to interact with another person and you a breather.
4) at some point, and especially if she becomes a threat to herself, you may have to consider another placement for her either in assisted living centers (many specialize in Alz. care) or nursing home.
5) and last but most importantly: you are an exceptionally devoted daughter who went well above and beyond the call of duty for both your parents. Say that to yourself everyday.
The hardest thing for me has been accepting the fact that I MUST make some decisions for my mom. If your mother will not see a doctor then she is endangering herself and needs evaluation. Get the help and support that you need (like the oxygen on an airlplane - you first - then the dependent) and TALK TO HER DOCTOR NOW. It seems to me that you are expecting way too much from her - its your time to step up and start helping her..even if that means 'disobeying' her. You must let the role reversal happen - it is in her best interest. Ask her doctor if he/she knows of any eldercare support groups. Start with the doctor as a resource of information.
My mother has been my dependent for 3 years now and the learning curve has been huge. Just two nights ago she vented some anger on me - not like her- and its hard to take. I try to remember that she is frightened because she is losing control of her life. BUT it has taken 3 years for me to have a healthy perspective on our relationship - its not easy AT ALL. You are not alone. Seek support - there is plenty of it out there (Many of my friends are dealing with the same issues.)
Good luck and God Bless both of you! Leslee
Sad when HUD denies losing people, tho' they definitely do! I talked to Disability Advocates about helping me get back ON the list from the first time several years earlier; all they said they could do was "help fill out another application." Uh ... not needed ... need "ADVOCACY" about being lost from the list! I'm capable of filling out my own application, thank you ~~ and then had to wait another few years after that for it to open so I could apply again! Seems, suggesting they could "help fill out an application," that Disability Advocates are more used to advocating for people with mental impairment than physical, since otherwise they'd realize that needing help with "filling it out" was not the problem. Seems to have a "standard" answer, suggesting help w/application.
Anyway, it's help living here ... not just bad attitude, but constant name-calling, screaming, tantrums ........................ kept track for over a year to be able to tell HUD how much I'm in need to get AWAY from it all. They ignore it, trying to tell me I'm living normal, "just like everyone else on the list." NO! I'm going absolutely crazy here in this hellish environment. That keeping track showed that these blow-ups happen no less than between 4-5 times each DAY! Some days it might be just 2-3, that's because on other days the "mad" episodes might be 7-8!
As for doctor ... seems the doctor, when I wrote to her, blew it off re demented behavior, things said, etc. She'd just ask questions like, "What day of the week is it?" "Who's the president," and tell her she's "fine." No! She'll even have a tantrum in public, saying things to people she doesn't know that ~~ had we dared say such things when kids ~~ would've made our heads "roll."
Sad, but true.
That really does add to the hell ... a counselor said, "Your mother is killing you." But does HUD care? (especially after losing me the first time around, or I'd have had a place a couple years ago! widowed, myself) No.
Saw somewhere about someone suggesting they had become a "whipping post." Exactly! They want to lash out @ someone, so the most convenient person is the one most available ................. you! [heard AFTER getting back here that it had been the dog who got beat up before I got here ... poor dog, but had I known that, I'd have known I'd be the next VICTIM, and tho't twice about it ........]
The problem is, my brother has ditched her and moved to another state, now that her money is gone, and she is so verbally abusive to me that I have had to drop out of school in the past due to trying to care for her previously. I cannot even be around her. She always lobs serious insults and anger, as well as blames me for showing her my brother has taken her money.
I have called adult protective services in that state, and intend to just let things fall apart, but I feel horribly guilty for doing so.
Countless hours are spent on numerous tasks that are involved in being a caregiver and even though the reward of caring for a loved one is priceless the flip side of the reward can have a devastating effect on the care givers health and mental state if the care giver does not get enough respite care for him/herself.
I have recently been in this position with my elderly mom following her stroke last year. Prior to the stroke she was hard to reason with and very angry most of the time. Having had a life of more downs than ups made her very fearful and resentful. Hardly having a kind word to say about anyone and blamed most everyone for the problems in her life and her main attitude being that she was always right and everyone else was stupid and on their way to hell.
When she started refusing to go to her doctor or take the necessary life saving medicines for her diabetes (insulin,etc...), which she could not remember to do or learn to do on her own because of the dementia, I had the responsibility to try to make sure that her health matters were looked after. She raged at her primary doctor on one visit which caused the doctor to order a risk assessment to which my mother refused to go through. I learned about getting a mental health warrant from the court system and pursued that option to my own detriment because when the other family members learned that mom was being evaluated in a psychiatric hospital then I automatically became the ugly monster of the family when there was no one else helping me with her needs. (Since it was I that shared the residence with mom then I suppose the other family members thought it was all my responsibility and were in complete denial about mom's mental and physical condition). No matter how much I shared with others about the situation it seemed to fall on deaf ears. APS was no help at all and in-home health would not help after my mother angrily ordered them to not come back again.
Needless to say, it got very traumatic and my alcoholic brother threatened me so much that it made me flee my home of fifteen years and he and his girlfriend moved right in and took over the caregiving. It wasn't a month later that I was getting a call from them begging me back! No, I didn't fall for it! The relief I got from being out from under the craziness was so great that wild horses couldn't drag me back into the insane asylum. The caught between a rock and a hard place in no fun place to be and it can definitely take its toll.
My brother and his girlfriend and his two children are still caregiving for mom in moms house and the report I get is that it gets very volitile on a regular basis. I refuse to call APS any more because that process was futile in the first place. And besides that I really can't think of any nursing home that could manage my mothers mental condition even if she would agree to be placed in one. Mom is still ambulatory enough to leave a nursing home at will and has threatened to come back and haunt us kids if we were ever to put her in one.
Love sometimes has its limits and I certainly found mine.
God bless to all that find their self in an unhealthy caregiving environment and good luck finding proper help for the mentally unstable and hard to love loved ones!!!
I've no doubt that you have been a good and faithful daughter, but it would help me to better understand your situation if you could answer the questions I've put forward. Of course, you don't have to do that. I'm just trying to understand. My heart goes out to you and I wish you the best.
When I was able to get the Psy Eval on moms condition I was able to read what my brother had told the hopsital evaluators about me (that I was only putting mom in the nut house in order to take over her home because I am a spiteful person out to harm mom). My brother promised that he and his wife (not a wife but his girlfriend, he lied to them) could take care of mom and that he intended to get me out of the house and out of the way. Since the two of them plus brothers children (girl age 17 and boy age 14) moved in, they have been living off mom's social security, drinking (alcoholism DUI problems, fighting, making the kids fearful, and threatening to move out and leave mom alone because they can't take it anymore. But they can't afford to move! And moms rage and health issues have not got any better. She keeps insisting that she is getting over the health stuff and going back to work. That she can feel the stuff leaving her body and that she's not going to keep going to doctors that are only out to kill her with all that dope that they are giving her to take. It's a long story and I feel that I did all I could possibly do and put myself in harms way also in order to make my moms life better but I was up against too many obstacles to try to manage things further.
The house is mortgaged in mothers name and the value of propertys is probably at a break even point if it were to be sold (because of the refinancing that was done on the loan at two differents times) and she has only $1,035.00 per month to live on (SSI) and the house payment is $790.00 per month.
My brother/moms son (current resident) is only working when he has a job come his way (fence building), girlfriend is unemployed, his daughter 17yr old quit her job to keep an eye on the 14 yr old boy/son since he got in trouble for theft at a CVS store (shoplifted condoms) and police also fould a marajuana pipe on him and his shoplifting friend.
My mom needs real help and all she has is more worries and more burdens. But in her frame of mind I do not believe that she would be able to recognize real help even if there is such a thing out there. It's definitely not CPS or APS!
That service is just a joke but I can understand that the system is so backed up with similar problems or maybe even worse problems and that theres no real hope for hurting families. My brothers (moms son and live-in care giver) children have been in foster care due to their mothers meth addiction and the state put the children into grandmothers care after a year or so and then meth mom s mother (grandmother) signed the kid back over to real dad (my brother, abusive alcoholic, DUI problems) and now all that senario is living in my mothers disfunctional/sick house. I feel the most remorse for the teenage children and all they have been through and still going through but the system is flawed so what can anyone do about that mess.
My POA was not worth the paper it was written. And guardianship court (moms atty ad lidem from the mental health warrant) decided that mom was not in need of a guardian because she was not bed ridden and still too ambulatory and could care for herself. The whole system drama was very contradictory and a huge waste of my time and energy. DADS is a hopeless cause too!
When my mother dies it will probably be because of the faulty system and the proverbial falling-thru-the-crack reason. And alot because of her own mental dysfunction and lack of proper care.
I've done my utmost best and I feel no guilt....for whatever happens. Because a person can only do so much and then it time to give up!
Am I understanding this correctly: You were living in a house that was free and clear and then purchased a 2 bedroom close by for your mom? Which house is your mom and brother in now? It sounds like you were thrown out of the house you were originally living in. Where are you living now?
My heart goes out to you. I hope you can get some help in coming to some acceptance of this unfair situation.
And yes I was thrown out by the police that I myself called for help. The policeman and police woman that came to my call told me to leave and not come back because the house belonged to my mother and she no longer wanted me to live there. The police persons estimation was that mom did not have dementia and was very much a rational person. They decided that during a 5 minute interview and would not listen to me at all. I felt that the officers were pressuring me to get angry so that they would have a reason to arrest me. But I stayed calm and just went along with their orders to leave mine and my moms residence. I lived in my car for a few days until I found a new home.
Thank you for your concern! My service in the Marine Corps certainly gave me the strength I needed to get through tough times. Although, I do admit that I did shed quite a few tears and sometime I still get worried about the family situation. I just manage to stay focused on positive things and keep faith in the Lord's gooodness and unfailing love.
me what you meant by your siblings egg your mom on? Also, when U say that your mom treats U good to your face and then U get the crappy feedback latter -can U explain? Does the crappy fb come from your mom or your siblings latter.
Thanks again for your response to my post.
Hope you kind of get what I am talking about now!
Would it be possible for you to eliminate contact with your parents? I would assume that the 2 youngest would step in. Sometimes people stay tied to the abuse due to the possibility of inheritance or because they just want that parent to give them the love that has always been missing. Sometimes it's both and other reasons too that are hard to explain.
It sounds like you and your sister have married wonderful men and had wonderful children. I commend you on making a good life for yourselves. Maybe some counseling would help you detach from your mom.
Love and best wishes, Cattails