I have been caring for Mom for the past 7 years. The 1st year was spent flying between my home and my parents to help when Dad became terminally ill. I am an only child, Mom is 77. While Dad was in hospitals and hospice I took care of planing for the inevitable with my Dad, Mom would not accept he was not coming home. Dad had done everthing-the bills, caring for the house,shopping and cooking. Mom has never ever driven and has always been fearfulof...well everything. Just before Dad passed as we were planing what to be done, he told me"Mom is not like she used to be." I asked what he meant by that- he was vague and said she is not social-don't make her leave her house, take care of her. I realzed later she likely has alzheimers- her sister,father both suffered with this disease. she absolutely will not go to be tested. But all the signs are there.The next year was spent flying back and forth to take care of the house and her ect. She was isolated, no friends , no interests,and constantly afraid. some younger neighbors would take her to the grocery store2x a month( which was a bit weird but they had been friendly for years) and that was it unless I flew down. It became clear she was not doing well and I had to do something. I searched for months and found a cute 2 bedroom 1 level house 2 blocks from me.Perfect! We Mortgaged my house which was paid for to buy this house spent endless hours remodeling for her all the while flying her up for awhile then back to Florida. The time to list her house for sale came and i had to gently nudge her along, spent 2 weeks packing and moving her to her new home- it is so cute and perfect! She took a long while to get moved in I tried to let her be in control- but clearly she needed help to decide where to put things ect, she would just sit and worry. So we got it done. Her house in fla sold and we were able to pay everything off. 5 years later she seemed settled. she has a sum of money in the bank good income from pension and ss with little to no bills. I take her everywhere and make sure she gets out for walks and socializing-she does nothing w/out me. i have accepted that and the sacrifices. my husband works out of state in the winter - I am not able to be with him 100% as I have to be here for her- the travel back and forth again is expensive and tiresome-but gotta do it. she still worries so much about everything it is hard to take. sorry so long but that is the condensed version of the past 7 years. So now the newest problem- My house still has my mom and Dads name on it- we just never did anything about it. The house is waterfront and valuable but needed and still needs some repairs and upkeep as part of it is a rental unit. I take care of all expenses and repairs on my home -of course. mom is set her house paid for and all refinished. so 2 years ago I told mom weneeded to change the deed on my house that we needed to borrow to take care of things. We are responsible adults. Nope no way she would not agree -the house was free and clear she wanted it to stay that way. She does not at all understand how things workthese days and is fearful as I said of everything. SO- as I have power of attorney and it is my house - I took out an equity line- wemoved forward and took care of what we needed to do, with the idea of refinancing in 3 years-all good. Well by the slip of a phone call she realized we have an equity line on the house...mind you we have not been late on 1 payment and take care of everything.Mom has gone into hysterics and depression and will have nothing to do w/ me other than to take her to the grocery store- where she asks me to not come in with her. she is being very hateful and hurtful to me. the things she is saying are shocking to me- all I have ever done good has been erased. I am trying to be loving and care for her - but she is making it next to impossible. I cry most days-call her everyday to see she is ok and she gives me one word answers and hangs up when I go over she barely allows me in and then asks me to leave. she has agreed now that we will change the deed.but that is it-she says she will never get over this. I can not live like this it has been 1 month and my heart is broken.She will not go to a counselor or our priest to talk -I have asked- so we can get past this. I do not know what to do. I can not continue this way it is killing my health-hers also. But what do i do? she has a brother in another state- but to sell this house and move her again would likely be too much. please any advice-this is killing me I can not live like this for months much less years.
My mom's new doctor (I moved her to a senior specialist) helped me out a lot. I got more out of that one visit than all of the other doctor visits. Anyway, they referred me to the Alzheimer's Association (they help with all sorts of memory problems) and the visit was a God send. The first thing they told me was that my mom had lost any capability to reason or make decisions, she can only act on feelings and beliefs. They can't remember what happened a few minutes ago but they have long term memory so that is what they remember and when we try to get them to do something all they remember is when they could do it themselves. We have to keep this in mind when speaking to them and say things like "lets get ready to go out to eat, I'll go take my bath and you can take yours" It is still hard to apply that to every situation but it helped me see another way.
Be thankful that you have legal Power of Attorney.
First you not only have the ability to take out the equity loan, but you do not need her permission to deed your home over to you and your husband. Most POA's state " to convey property". It is my advice that you move forward with getting the deed and secure your home. The reason this is so important is because if indeed your Mother is suffering from Alzheimer's or the symptom of dementia, then there is a greater chance you may have to place her I. A long term facility. Most states have a 2-5 yr law regarding the transfer of property . Thus being said, if your not careful, the long term facility can and will trace back any property that has been in her name and take c control of it and see it for her care, on top of her monthly pension s.
Please look out for your interest. It sounds you have been so concerned with her care and making her happy that you have neglected your own security.
Also, sit your Mom down, tell her that you love her and that you have provided for and made sure her future needs have been placed before your own. Explain to her that you are her child and she is being very selfish by not wanting you cared for . Explain to her what can happen if she were to be placed in along term facility.
Ensure her that you intend to continue caring for her and looking out for her best interest. HOWEVER, enough of the childish selfish behavior . DO NOT invite her brother or anyone else in the family to discuss or have input on your POA. You were chosen when she and your father were in their right minds. I fear if the family gets involved that there will be trouble because greed will rear it's ugly head. You did mention that the property you have is quit valuable.
Consider hiring someone who in no way is connected to your family to assist with her care since she is having a "pouting". Bout. This is not uncommon when elderly people feel they have little to no dear vision making or control in their lives. This is not your fault. Had your Mother been more independent then she may have been living a full active life after your father's death.
Please don't think I'm being g mean, but I have been where your at and as long as you continue to allow her to treat you this way, she will.
You mentioned traveling with your husband. Once you find a dependable person you trust with her car, go visit your husband for a week. I bet this will bring things in t o prospective for her once she sees you are not going to allow her to live what is left of your life.
I hope it helps. But please dear don't allow her to make you miserable over choices she maddening ago by not being independent. If it is do to a. Illness( lack of dependence), the. By means dear, the ball is In your court.
Hang in there. It may not hurt for you to speak to your priest about recommendations for assistance with care givers. You seriously need a break if your feeling guilty and in tears.
I was looking for a therapist. I can't change how my MIL acts, so I have to change the way I react to her -- which is NOT easy. In trying to explain to people that her meaness and manipulation is NOT part of the aging process that she's always been that way they look at me like I have 3 heads because "she's just the sweetest old lady they've ever met". She's been a pathological liar her entire life, but aging has left her with a problem of not being able to keep up with her lies. At first I thought the best thing to do was confront her about what she tells other people, but have found she just lies to us that she never said those things. (Although the other people are left believing it's all true). . What I know is true is the mother has targeted everyone in her daughter's life, because she doesn't have the courage to target her own daugther. (who is adopted, but never told she was adopted -- which is a whole different story) She has manipulated everyone in her daughter's life, until they leave her daugther and then she wants to be their friend. It's really sick. Recently I told my spouse I can't do this anymore -- it's too painful Which what I really ended up doing was hurting my spouse -- leaving her to feel like she's all alone with this situation. She's an only child. She's upset because I get hurt in the process and logically I know it's "not about me", it's about her mother's behavior it's still very painful.
Sooooo.....after a few days of feeling like a lousy human being I decided I would TRY a different approach. We'll use the aging process as an excuse for her bad behavior and I'll try to deal with it as if it's a medical condition, instead of a personality problem.
The only thing it changes is how I look at the problem --- I just hope that's enough to deal with it better. :-(
You are a wonderful daughter and I understand your concerns about abandoning your mom at this time. See it through a while longer. Make sure she has a full evaluation for dementia by someone who knows how to treat it. Get a referral from her doc if needed.
I think you have a good heart and a good head for the problems you and your mom are facing. I'm sorry your sibs are no help, but sometimes it's just better to accept that and move on. Hanging onto any hope of them seeing things differently is probably a waste of your valuable time.
Please keep us posted. Hugs, Cattails
As we are wont to say here in the South,"Bless your heart!" I can so identify with your plight, because I am taking care of my difficult (albeit clear-minded) 84-yr-old mother in my home. What I've learned over the eight years that I've been at this is that she becomes the most mean when she's feeling the most scared and vulnerable. She's always been acid-tongued and selfish, pretty much toward everybody, but this has become exacerbated and been really leveled at me as she has declined physically.
I try to keep that fact at the front of my head when she aims at me, and I stare at her without reply. It's worked a lot of the time!
God Bless you!
I could tell you so many stories of people (my husband's family...his mom) who stayed tied to parents who were abusive. Eventually there was nothing to show for it.
I am constantly amazed at how some people can be so sick. I think calling them sick is a kindness. The harm they do to their children is beyond belief and that they can cause it, watch all of it going on, and continue to orchestrate it is something no one it their sensible or loving mind can understand.
Live you life and embrace your sister. Thank God you have each other. Leave the rest to God and wash your hands of it. Blessings to you and your sis. I hope you have years of happiness ahead of you. You will be wonderful Grandparents someday. Hugs, Cattails
Would it be possible for you to eliminate contact with your parents? I would assume that the 2 youngest would step in. Sometimes people stay tied to the abuse due to the possibility of inheritance or because they just want that parent to give them the love that has always been missing. Sometimes it's both and other reasons too that are hard to explain.
It sounds like you and your sister have married wonderful men and had wonderful children. I commend you on making a good life for yourselves. Maybe some counseling would help you detach from your mom.
Love and best wishes, Cattails
Hope you kind of get what I am talking about now!
me what you meant by your siblings egg your mom on? Also, when U say that your mom treats U good to your face and then U get the crappy feedback latter -can U explain? Does the crappy fb come from your mom or your siblings latter.
Thanks again for your response to my post.
And yes I was thrown out by the police that I myself called for help. The policeman and police woman that came to my call told me to leave and not come back because the house belonged to my mother and she no longer wanted me to live there. The police persons estimation was that mom did not have dementia and was very much a rational person. They decided that during a 5 minute interview and would not listen to me at all. I felt that the officers were pressuring me to get angry so that they would have a reason to arrest me. But I stayed calm and just went along with their orders to leave mine and my moms residence. I lived in my car for a few days until I found a new home.
Thank you for your concern! My service in the Marine Corps certainly gave me the strength I needed to get through tough times. Although, I do admit that I did shed quite a few tears and sometime I still get worried about the family situation. I just manage to stay focused on positive things and keep faith in the Lord's gooodness and unfailing love.
Am I understanding this correctly: You were living in a house that was free and clear and then purchased a 2 bedroom close by for your mom? Which house is your mom and brother in now? It sounds like you were thrown out of the house you were originally living in. Where are you living now?
My heart goes out to you. I hope you can get some help in coming to some acceptance of this unfair situation.
When I was able to get the Psy Eval on moms condition I was able to read what my brother had told the hopsital evaluators about me (that I was only putting mom in the nut house in order to take over her home because I am a spiteful person out to harm mom). My brother promised that he and his wife (not a wife but his girlfriend, he lied to them) could take care of mom and that he intended to get me out of the house and out of the way. Since the two of them plus brothers children (girl age 17 and boy age 14) moved in, they have been living off mom's social security, drinking (alcoholism DUI problems, fighting, making the kids fearful, and threatening to move out and leave mom alone because they can't take it anymore. But they can't afford to move! And moms rage and health issues have not got any better. She keeps insisting that she is getting over the health stuff and going back to work. That she can feel the stuff leaving her body and that she's not going to keep going to doctors that are only out to kill her with all that dope that they are giving her to take. It's a long story and I feel that I did all I could possibly do and put myself in harms way also in order to make my moms life better but I was up against too many obstacles to try to manage things further.
The house is mortgaged in mothers name and the value of propertys is probably at a break even point if it were to be sold (because of the refinancing that was done on the loan at two differents times) and she has only $1,035.00 per month to live on (SSI) and the house payment is $790.00 per month.
My brother/moms son (current resident) is only working when he has a job come his way (fence building), girlfriend is unemployed, his daughter 17yr old quit her job to keep an eye on the 14 yr old boy/son since he got in trouble for theft at a CVS store (shoplifted condoms) and police also fould a marajuana pipe on him and his shoplifting friend.
My mom needs real help and all she has is more worries and more burdens. But in her frame of mind I do not believe that she would be able to recognize real help even if there is such a thing out there. It's definitely not CPS or APS!
That service is just a joke but I can understand that the system is so backed up with similar problems or maybe even worse problems and that theres no real hope for hurting families. My brothers (moms son and live-in care giver) children have been in foster care due to their mothers meth addiction and the state put the children into grandmothers care after a year or so and then meth mom s mother (grandmother) signed the kid back over to real dad (my brother, abusive alcoholic, DUI problems) and now all that senario is living in my mothers disfunctional/sick house. I feel the most remorse for the teenage children and all they have been through and still going through but the system is flawed so what can anyone do about that mess.
My POA was not worth the paper it was written. And guardianship court (moms atty ad lidem from the mental health warrant) decided that mom was not in need of a guardian because she was not bed ridden and still too ambulatory and could care for herself. The whole system drama was very contradictory and a huge waste of my time and energy. DADS is a hopeless cause too!
When my mother dies it will probably be because of the faulty system and the proverbial falling-thru-the-crack reason. And alot because of her own mental dysfunction and lack of proper care.
I've done my utmost best and I feel no guilt....for whatever happens. Because a person can only do so much and then it time to give up!
I've no doubt that you have been a good and faithful daughter, but it would help me to better understand your situation if you could answer the questions I've put forward. Of course, you don't have to do that. I'm just trying to understand. My heart goes out to you and I wish you the best.
Countless hours are spent on numerous tasks that are involved in being a caregiver and even though the reward of caring for a loved one is priceless the flip side of the reward can have a devastating effect on the care givers health and mental state if the care giver does not get enough respite care for him/herself.
I have recently been in this position with my elderly mom following her stroke last year. Prior to the stroke she was hard to reason with and very angry most of the time. Having had a life of more downs than ups made her very fearful and resentful. Hardly having a kind word to say about anyone and blamed most everyone for the problems in her life and her main attitude being that she was always right and everyone else was stupid and on their way to hell.
When she started refusing to go to her doctor or take the necessary life saving medicines for her diabetes (insulin,etc...), which she could not remember to do or learn to do on her own because of the dementia, I had the responsibility to try to make sure that her health matters were looked after. She raged at her primary doctor on one visit which caused the doctor to order a risk assessment to which my mother refused to go through. I learned about getting a mental health warrant from the court system and pursued that option to my own detriment because when the other family members learned that mom was being evaluated in a psychiatric hospital then I automatically became the ugly monster of the family when there was no one else helping me with her needs. (Since it was I that shared the residence with mom then I suppose the other family members thought it was all my responsibility and were in complete denial about mom's mental and physical condition). No matter how much I shared with others about the situation it seemed to fall on deaf ears. APS was no help at all and in-home health would not help after my mother angrily ordered them to not come back again.
Needless to say, it got very traumatic and my alcoholic brother threatened me so much that it made me flee my home of fifteen years and he and his girlfriend moved right in and took over the caregiving. It wasn't a month later that I was getting a call from them begging me back! No, I didn't fall for it! The relief I got from being out from under the craziness was so great that wild horses couldn't drag me back into the insane asylum. The caught between a rock and a hard place in no fun place to be and it can definitely take its toll.
My brother and his girlfriend and his two children are still caregiving for mom in moms house and the report I get is that it gets very volitile on a regular basis. I refuse to call APS any more because that process was futile in the first place. And besides that I really can't think of any nursing home that could manage my mothers mental condition even if she would agree to be placed in one. Mom is still ambulatory enough to leave a nursing home at will and has threatened to come back and haunt us kids if we were ever to put her in one.
Love sometimes has its limits and I certainly found mine.
God bless to all that find their self in an unhealthy caregiving environment and good luck finding proper help for the mentally unstable and hard to love loved ones!!!