My father had a massive stroke back in August, and has been in longterm care with a nursing facility up until Dec. 13th when he was released and sent home.
He requires 24 hour care, he is unable to walk, his left side is completely paralyzed. We have rehab people who show up 3 times a week, and an aid shows up and handles his personal hygene.
I do everything else, alone, without let up. I need relief. I need advice on who I can contact to see about getting compensated, because of the care he requires, I cannot work outside of the home.
I am completely overwhelmed.
Meanwhile, I get none. I could wait till I go completely nuts, and almost need to institutionalized than maybe someone will offer some assistance.
I'm living here, rent free, eating....and paying for it by caring for an aging man, whose slowly loosing it.
I don't feel right requiring him to pay me on top of it.
So I have a list of sitters, and when he's occupied today, I'm going to be looking for one that is compatible with us.
Blessings to you in all your endeavors Greyson. Rainbow Painter
It took everything in me to convince him to wear some depends. And he didn't have an accident, so now he wants to save them for the next time....I'm thinking that's not such a great idea.
We all still sweat.
I have felt so overwhelmed by this whole thing. It is so hard to see my Mom going away before our very eyes...
I will continue coming to this forum as reading others letters has been a big help. I guess just knowing that we might be going the right direction.
Again, thank you very much...
Carolann
If her medications are what is causing some of her symptoms and distress, then her doctor should be made aware of this fact as well and perhaps maybe that can be changed.
Communication, communication, communication and then asking a gazillion of questions to find the answers you are searching for in your case is to me the foundation of getting a situation under control, be it with your family members, her doctor or even the attorney can advise you on her legal rights and preparations. You are taking the right steps.
I have called my mother's doctor on a weekly basis as well as her insurance company to be sure I understood what benefits she has as well as making sure she was getting those benefits.
I welcome you to this forum and there are many who are in your same situation feeling desperate and lost in situations that turn your lives topsy-turvy. I wish you the best in your situation and pray your mother gets the help she is needing in her time of need.
Blessings to you and yours,
Rainbow Painter
She is now throwing herself on the floor and saying I just want to die. She has made comments about her medications so they have hidden them. She is also becoming paranoid and telling my brother he is keeping her prisoner.
I am traveling there on Friday in hopes of helping but none of us really know what to do now. We have an appointment with the doctor for her, but she hates the doctor. We also have an appointment with an attorney hoping to get some advice as to what we can do..
My brother and I are both sick at heart about this. We don't know where to go or where to turn and are scared to death of what is going to happen to our Mom.
Thanks for listening...
I'll bring some extra clothing incase of disaster. I will have to purchase some better spray. I have gloves and white masks, both I have to wear, or I get severely grossed out.
I have the wipes too, and I go through a bunch of them after an accident.
He's on medication that treats what your mom has, his late older sister had it bad.
Greyson, I also want to commend you for asking and responding here on such a delicate matter, but hopefully this post will not only ease your mind, but also those of others who just don't know quite how to ask or handle such matters and maybe they too will not feel so alone or helpless in such a sensitive situation.
I wish you and your dad a good day on your first outing. Keep in touch, Rainbow Painter
He can't really get to a drawer all that easily, I pretty much set out his under garments.
Tomorrow will be his first Wal-mart experience since the stroke....I PRAY for no accidents.
Then I took all of Mom's undies out her drawer and put them in a bag and hid them from her and explained the reason why I was removing her underwear and replaced them with the Depends.
This was done at night time, just as I got her ready for bed. She didn't even ask me where her undies were the next morning....she just put on the Depends.
My latest offer, was to wear them too...I really would, it doesn't bother me all that much.
*sigh* and i have to wake up and clean him and it up
its really very frustrating
It depends on what state you are in, but there may be help for you through your state agencies. I also wonder why he couldn't have stayed in the nursing facility since he requires such heavy care. Is he a veteran? If so, the VA may be able to help you as well.