Mom has been ill she looked so bad thought she was going to die, she had a bad cold and refused to go to the hopital. She doesn't understand things when I tell her anything much anymore.
She is going to need more care and refuses also a nursing home which can understand. I can come only after work I can't just quit my job she needs care during the day too.
I've been coming over everyday after work to care for her. To clean up and make something for her to eat if she well.
She was fine over 2 months ago and now she isn't she is 86 yrs old.
She just wants to die. This is very hard to watch her I also call her from work so we are trying to find someone to come there during the day to feed her help her to the bathroom etc. She is very stubborn woman even when ill..
If anyone has any other options for home care please I would appreciate this.
Thank you,
My mom also was on a roller coaster. There were times when I was sure she would not make it, but she recovered ... with a lot of oversight. Sadly, years later, when she seemed to be doing well, one day she didn't wake up and passed away comfortably in her sleep.
Based on that experience, and reading your summary... I'm suggesting that you contact Hospice, because they can be sure you get the resources she needs for good care. She may have many, many ups and downs.
In my mom's case, I just wanted her to be comfortable and to find happiness in her years. I hope you are able to find the help you and she need for the roller coaster and am hopeful her next up period is just around the corner for you both. All best wishes to you.
You need to prepare for a bumpy road. You are entering a world of emotional turmoil...not knowing what to do...needs vs finances...what's best for her vs what she wants...making decisions you don't want to make etc. It's tough. Prepare yourself.
If my mother had been aware ( she had growing dementia), she would have wanted to die rather than to journey 11 more years into dementia...it would have been very hard but I would have been honor bound to respect that wish. You are a good daughter to show up and to keep showing up. Ask your mother, to tell you more about her wishes. Start talking to her about what is going on. It is the best effort, in an unfamiliar sea.
I know most of us do not want to go into a nursing home environment. Next to that would be assisted living and foremost, I think, most of us prefer for ourselves and our loved ones to be in their homes until the day we or they die. But in many cases, it really does 'take a village' to assure that a person can live - healthily and well - at home for good.
My in-laws prepared well financially and had a home that mostly was suitable for them to remain in forever. However, both of them lived/are still living to very old ages. And both, with health concerns such as falling, managing their nutrition and meds, and staying clean, that caused intervention that they really did not want. When my father in law passed away at 88 five years ago, his year and a half long demise took a huge toll on his 87 year old wife. She is fiercely independent and guarded her 'secrets' at times, such as her falls and the fact that she cut pills in half to 'economize', thinking all of that was costing her way too much money. Her stubbornness and the lack of suitable resources to help her at home were (no pun intended) her downfall. Had she a) lived in a bigger city with more resources to tap and b) been more open and agreeable about how things got managed and listened to her doctors, she had substantial financial resources to stay put.
The other element was that once she lost her husband, she suffered from loneliness too and being sequestered at home didn't help that as she increasingly was homebound.
The assisted living situation would have possibly been ok, but once there she would do things like not ask for help to the bathroom, or not tell when she felt as if a UTI was coming on. And they would help with meds, but not totally manage them. After her second fall and hip break, she no longer could walk and couldn't go to the bathroom alone, so she had to be in a nursing home. It is one of two in town and a - in our opinion - terrible, smelly place. She is now 92 and close to the end. She saw her sisters and husband end up in this same place and she doesn't feel as if she deserves any better. She's been there 5 years now, and never much eats out of her room. I wouldn't either. No body there seems to know who and where they are and the surroundings are depressing. She is mentally vital and has nothing in common with these folks except that they are all old and either mentally and/or physically unable to care for themselves.
My own lovely grandmother passed away twenty years ago and did stay in her home till the very end. She had also fallen two years prior and broken her hip, but she seemed to rehab very well. Clearly she went physically down hill in general after that trauma, but she had a lot of great support, enough money, was cooperative about her care plan and meds, tons of family and friends who checked in on her and helped her around the house and she was in a large enough city where options abounded. She died of a bowel obstruction, which due to her living will, we her loving family, all agreed to not consent on her behalf to operate on. She passed within 48 hours.
Here is my two cents. None of us will live forever. Perhaps your mother knows it is 'her time' or soon will be. Perhaps she is 'ready'. Being as you say stubborn, her last bastion of any control is deciding when she feels ready to let go. You can only do so much, too.
If she would do better, socially, in assisted living or if what she is dealing with is depression that you see would improve if you got her out of her home, perhaps that is the answer. I guess I think now that we lose the point when we want to feed and prompt very elderly folks in ways they don't want to be pushed. After all, advanced age really is 'terminal' and part of the dying process. Maybe she is just slowing down and is ready. That may be hard to admit or hear, but if she has her own way and is allowed to let go without being in any way cruel or neglectful, it might be what she wants. I would have her evaluated by a doctor and perhaps Hospice. You might be surprised to find that she is a candidate, which would be a help for her and for you. God bless. I know this is very hard.
ideas for the present also if she is not ready for their services.
My mother needs antidepressants now with her demetia; and as a personality
that was always upbeat and happy , it is difficult to first accept that diagnosis
of depression. Many of the elderly parents of friends get to that point, and a simple antidepressant can do wonders. Also, her Aricept prolongs the good activity of the mind I have learned from Mom';s experience and it has made a positive difference.
As a former social worker, don't forget that your senior activity centers have
daytime programs,,so that our elders don't have to be alone at home which
seems to promote the decline with many. Aging and Adult Services are the
state agencies that also can give advice on what is available in your area. It sounds like you are reaching the point where you absolutely need to reach out.
Her doctor should make some evaluations on her ability to make decisions and
continue to be alone for care during the day. Certainly while sick, you could talk to
them about home health care, and compliance and agreeablity of the elder is
much changed when depression is there. My mother is very stubborn, but she
is agreeable and willing to try with the help of the antidepressant Celexa.
Best wishes for her strength and happiness and yours, too.
I suggest a hospice evaluation. If she is not ready for hospice at this time there is no harm in an evaluation and the conclusion will be useful information in any case.
Hospice is a wonderful place to begin.
As most of us already know refusing to eat is a sign of depression.
The process of aging is no easy part of life.
In my area there are "senior day care" facilities. A little bus will come and the senior is transported to the day care for the hours the adult child is working. Some of these day care facilities are social and some have a medical component with nurses and health aides to assist the elderly with mobility and toileting if that is at issue.
I would also ask the doctor if this current condition will improve a bit or if she is depressed from her recent health problems. I would try to get some home Pt and nursing services.
I'm sorry this is happening to our loved ones but you are doing a wonderful thing by keeping her safe. Good luck and God Bless.
Withering away due to lack of nourishment is NOT painless. Without sustained substantial nourishment the body's organs start to shut down. Kidneys, liver, lungs, heart...one by one they collapse like dominoes. That is excruciatingly painful!!! If anyone finds themselves watching a loved one die of starvation, a strong pain med, should be ordered, which is usually standard procedure when in a nursing home or medical facility where death is imminent.
As others have pointed out here, there can be a variety of reasons why DMS's mother is not eating. She needs to find out the reason. My mother's food consumption declined drastically, with drastic weight loss. An Endoscopy found she had a benign tumor in her intestine, which the doc said could be affecting her appetite. The tumor was disolveable by meds. DMS's mother may have teeth, mouth or throat issues, among other possibilities. The cause and/or her mother's thoughts about her lack of eating, needs to be explored. There are various meds, foods, methods to respond. A pill used with Anorexia patients has seen success with senior citizens with eating issues too. And a more drastic measure is a feeding tube. Options to consider.
I think DMS's mother deserves a chance at recovery. I think DMS could regret it later if she doesn't offer that chance to her mother. If her mother doesn't survive attempts at helping her, one could say, it was God's will or fate. But, IMO she deserves the chance...
My grandmother was depressed for years and also stopped eating at one point due to being upset. She would also say verbally that she just wanted to die, already. My grandmother did have in-home caregivers, and IF they were friendly and nice, that benefitted my grandmother greatly. Unfortunately, the home health care industry is a bit of a crap shoot: you might get someone who is an angel, and you might get someone that couldn't care less.
The other thing that helped my grandmother was her friends - from church, from the neighborhood - stopping in on her once in awhile. Also, when she was still able to walk, I'd get out and walk the neighborhood with her and just help her interact with others socially.
Being old and alone IS depressing, and we can all use a little help from our friends. : ) Good luck!
My husband under went major surgery and was on a ventalator also. He said his throat felt rough and had a sore spot when he swallowed or ate. He liked soft, soothing foods for awhile until his throat "healed". Sometimes medical professionals overlook telling caregivers about these small issues (sore throat) because a major health crisis has been the main focus and that is
My husband under went major surgery and was on a ventilator also. He said his throat felt rough and had a sore spot when he swallowed or ate in the hospital and after he came home. He liked soft, soothing foods for awhile until his throat "healed". Sometimes medical professionals overlook telling caregivers about these small issues (sore throat causing a lack of appetite/ difficulty eating) because a major health crisis has been the main focus and that is where the thought about healing is. Sometimes the small things affect the healing process too.