Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Bilmo I like your attitude You should be one of those home care managers or whatever they call them anyway You could probaly clean house with some of these darn siblings on here... I love your picture on here too sooo pretty is that of arizona?
tbailey, I agree and those people who think they know everything - aaaaargh!
1234, -there is lots of family strife for one reason or another reported by individuals here - whether someone is perceived as not helping enough or whatever, Sounds like you have a martyr who is also a control freak in your fam. - let me know if I am off base. Blaming someone else for your own burnout, when help has been offered, is not healthy, and doesn't solve anything. Sounds like that person has a lot of anger. Can you write out how you are willing/able to help ( I am assuming it is you who is trying to help), give it to the caregiver, and suggest that you both get together and discuss it sensibly, and develop some kind of a routine, for help/breaks for the caregiver?
brandy - hi -how are you doing? You have a heavy load with your mum and sis and also your husband.
(((((((marie)))))) every little triumph is a big one. That is great. I think many of us who grew up in dysf fams don't like confrontation. I am work on being assertive, stating my case, which is not necessarly confrontation, but uses "I" statements. Developing your own life, (even gerontology) apart from your mum is healthy - if only in very small steps. Good for your husband - I wish him great success in his "talk:" amd good for you for standing up to your bro. I have made some similar changes recently (never too old to learn) - just asserting myself and letting the sib know that I will not take cr*p any more. They think that you can't do without them, and take advantage of that. Well, wake up and smell the coffee! I am doing just fine without you in my life. As for any appreciation for taking the role of the caregiver - uh uh, nil, zilch, zippo - criticism instead. BTW being assertive is not energy sapping - rather the opposite.
All of you here deserve medals!
love hugs and prayers ♥♥♥
Joan
selfish sibs -now that is quite the situation you are in. I have a golden sib too - never any acknowledgement of wrong doing . Your idea of working off the anger energy is a good one - turn it to your benefit by walking, writing...
anyonee I have missed - not intentional =margeaus, sharyn,
I come from divorce parents and I am guilty myself from my past. In the process, I felt like I was the mom & dad raising my child. However, a few yrs later I did get remarried for the 3rd time and yes, I said 3 of them. I had jump from frying-pan right into the fire when I was in my teenage yrs trying to get out from an abusive-alcoholic parent life. Of course, I thought I was all grown-up and partly because, I had a lot of responsibilties while living with my mom and my little brother n sister. I am the middle age child of six of us kids and I am the shortest. We have even talked about that we could write a book on our lives and how we all came out somewhat normal. ; )
I cannot wait to see other people stories on this topic.
Furthermore, after I became a preteen my mother married a man primarily as an escape ticket from her hometown, plus he was an alcoholic just like her dad and later on she became an alcoholic. During high school and college it was not unusual to find her drunk on the sofa in what she had slept in the night before. Also, she mixed alcohol with the tranqulizers she had been taking since her early twenties. BTW, my dad never was and is not now an alcoholic. Part of what helped me survive my high school and college years was creating my own secondary family outside of my primary family via various friends and their parents none of whom did I ever tell exactly what my life at home was like. When I graduated from college, it was like my mother divorced my step-dad for she left him to live mainly at the beach house from then on until in her old age, her health sent her back home. This caused my step-dad to drink more when she was gone. I remember them fighting even when my wife and I would visit. They never were that close and mom never really accepted his three children, plus did not want me to get very close to them at all which was helped by only one of them actually living with us. As a teenager, I added article 13 to the bill of rights saying I had the right for people to knock before entering my room which I pinned on my door.
My wife came from a very abusive home with a very passive, dependent, but nurturing, co-dependent dad (who had been dominated by his mother) with an enslaving, narcissistic queen mommy-dearest who was much like the wicked witch of the west; tried her best to make my wife afraid of men and make her stay home to take care of her mother and father as they aged over the years. While my wife does have an identical twin sister, my wife's mother focused totally in on her and let her husband basically raise the other daughter. Part of this dynamic meant that my wife became like a substitute emotional spouse for her mother. This really worked havoc in our marriage when we had children. For years, I walked on eggshells around the impact of all of these issues until I just had had enough, wanted my own life back-which I did not even know how to define-wanted to protect my boys from the dramatic havoc of our lives due to both the issues of mommy dearest, but the conflict in my wife's soul between being a focused mother on her children and being under the control of her mom which she sought to increase with the birth of each child; and I was tired of fighting my wife's battles with her mother for her. So, I was the first to set boundaries which at first my wife did not understand, but she came around to stand up to her mother herself and set some healthy boundaries with her. Finally, I felt like I had my wife back and our two boys felt like they had their mother back, but for a while there we all lived through pure hell and I felt like a single parent with three children at home. Near the end of all that mess and when I started setting boundaries, I also got each boy into therapy, plus myself as well. It is needless to say, but my mother in law often makes me feel like I don't exist. Her husband was the most enslaved spouse that I've ever seen and my wife ended up trying to do that to me as well as treating the boys like her mother did to her both of which she later acknowledged to have done to us as her therapy and DBT group helped her gain more self insight.
My wife and I had such struggles getting much freedom from our past that I seriously believe it contributed to our dating for 5 years before getting married when we were each in our early 30ties with her two years older than me.
I could write a book as well, but people would find it hard to believe how my life really was at home because my mother like her mother had and maintained such a mask of perfection in public and I had learned to have a stiff upper lip early in life and to swallow my own feelings.
I could only imagine how much worse my life would have been had my mother not gotten married again, but it was bad enough as it was. I know enough psychology and sociology from college to know how I could have turned out but by a miracle from God, I did not, although I realize that I did act out from some of my scars. My wife and I are not totally well, but we both feel like we have broken the chains of our broken childhoods in which each of us had to be like little adults and were never really allowed to be a child. Our boys are both functioning much better in college than either of us did although I can see a few scars from the past in each of them which in time they will deal with and I hope in therapy.
Thanks for reading my lengthy autobiography which seems to get longer each time I write it. Part of the reason that I went into so much detail is that my therapist and I are going over my journal entries from those 'hellish years' to help me get past that pain.
I had this going on all of last week.My brother I wrote about who was yanked from the POA, for mom and her recently deceased sister has been making a re-entry into our family. Of course my sister, younger brother and me have been morally supporting him especially w/the recent Prostate surgery he had.
Well last week this brother, Golden Boy, called to say they were having a birthday party for his 7 yr. old grand daughter, of course at his home since grandchild lives there w/the unwed mom, a new baby & her boyfriend. Honestly, I didn't want to go to this, as I'm not really so bonded up w/any of his clan. But, after much thought, my husband and me decided to go. I convinced myself to take the high road and all of that. Truth be told...guilt.
So when we arrived at his place, as we entered escorting mom, as she at 92 yrs.,
isn't waling very steadily nowadays we were stopped by Golden Boy. He wanted to talk to sis and me. He asked that we not ask for his wife, as they had a huge fight the night before. Wife left, didn't sleep there and would not be at the party.
Then a niece who has been super disrespectful, a user and spent time in jail showed up w/fiance. Of course she stopped their w/mom (her grandma) to give her a kiss. Then she pecked my sister on the cheek, but in a forced way.
I got a nod of the head by her.WOW! That's fine by me, because I can't even see this girl in a picture! Anyway all this happened even before we arrived in the backyard.
Now we were confronted by many younger people, ages of my brother's kid's.... in their 20's. There was one guy there w/a tatoo coming up his neck onto his bald head. That didn't al all seem like a kids birthday party. I felt as if we were at Alpine Village attending a beer fest. This was the theme of this party.
The "B" day girl's parents never gathered the kids together to play any games, and there was a cute pinata there. The kids were being baby sat by this big infatable castle they were jumping in probably the three hours my husband and me spent there. Every now and then the castle was becoming deflated, and the kids were still jumping, and screaming becoming piled on top of one another. My husband and me would go over there, to tell the kids to climb out, as not to get hurt. Do you think any of the parents ever got up to do this, NO! They were too busy socializing and having their beer. After 3 hrs. there, my husband gave me the high sign, he'd had enough, so had I!
We left, and I felt a combination of drained, depressed and kicking myself for not going w/my instincts of not going down there. Isn't it interesting though how a death in a family, someone near the end, or even births... makes people come out of the wood work. Many times also, it's the very people we have issues with, and really don't want to see.
Sp Emjo, I know you have your mom's birthday party pending. I took my camera with me, and rather distracted myself taking photos. I also was sitting w/my sister in law, who I can relate to. Do some meditations before you go also, or prayers for the protective thing. I do hope you have some kind of fun there also. Wow, your mom is turning 100. That's something in and of itself. Well, Happy Birthday to her!
Take care of yourself, and I'll be thinking about you!
Bilmo, I know you have this Trust meeting pending. Yikes! That would scare me too, given the situation! You also, try some meditations, medications...ha, ha..I'm going w/your Excedrin thing. I'll also be thinking of you too! Deep breadths, Love & light to all,
Margeaux
How are you and your wife doing? I read your post about your visit to the NH.
Do you think maybe she was just having one of those sleepy tuned out days?
But you do mention confusion.
Well, my mom seems sometimes also getting things confused when one talks to her. My sister thinks she's more alert. So about a week ago, I relieved my sister.
I ask mom very simple questions now, it's just easier for her. But she'd just been to my brother's for a visit. So I asked her if she had a good time there. She said yes, and started to tell me how cute the great grandchild is, etc. This was followed by, "Oh and then I went to see Lila." So I asked her, Lila, my neice's aunt?
She responded, "No Lila, your sister.:" Well, mom lives w/Lila, my sister. She told it to me in such a way, like she thought it an odd question. But I became aware of how the ALZ, is affecting her too. It is really difficult to gage what is going on w/them at times, isn't it? But this makes me aware, that possibly the ALZ could be progressing. I don't know how mom has processed the recent passing of her sister who lived w/her for many years.
Well Cmagnum, we can't tell what causes the confusion, but my mom was being so sleepy after taking I think Namenda. I know my sister just went to an appointment w/her Mon., and hasn't given me an update, because other dysfunction is taking precedence right now, w/our Golden Boy brother.
Possibly you might want to see what medications they are giving her, but if you sense too that your step dad may be saying certain things to her, this could cause someone in her condition confusion.
I'm happy for you and your wife that your son w/be visiting and helping you out,.
Meanwhile, take care of yourself, we missed you! Love & light! Margeaux
My wife remains in a lot of pain and the doctors have not been able to do much for her pain. I hope the physical therapist that she sees at the end of this month will help her.
I'm doing better than I was when I went through that overwhelmed phase.
I think mom's condition is mainly her worsening dementia. My step-dad and his helper created confusion when they told her that I could over ride the nursing home doctor and get her home. That is not something that I view as a wise action to take. I know that my mother is on some strong anti-seizure meds, but she's been on those for years. Speaking of years, this is the start of her fourth year in the nursing home. I'm so glad that she has long term care insurance!
Changing the subject, I learned last night from my dad, that his wife has been given 6 months to live given how bad her pulmonary fibrosis has become. My dad has been very realistic about her increased decline, but my step-mother's daughter who lives in the same city and comes over a lot has been in denial about how bad off her mom is. Given how super close she and her brother are with their mother, the death of my step-mother will hit them hard. My dad has a very good long term care insurance policy and has wanted to go to assisted living for some time, but my step-mother did not, but now I think he will after she dies. Out of the guilt of his first marriage ending in divorce, he has bent over backwards trying to make that marriage work by trying to keep my rather narcissistic step-mother happy. He is so co-dependent on her that he's going to be lost without her. So, it looks like among my three elderly relatives and one elderly inlaw, that her's will be the first funeral. Sorry to be so matter of fact, but that is how I feel today.
On a more morbid note and I don't know why my mind keeps wondering about this, but in light of what I know now, there is a high probability that with the next 6 months my step-mother will die from her pulmonary fibrosis; some time within the next year I think my MIL will die from her heart problems followed by very likely my dad dying within the next two years given how weak he is and how lost he will be without my step-mother and somewhere parallel to that time frame my step-dad might pass away given he is the same age as my dad and not in good health, as well as my mother might last another 3 or so years in the nursing home.
Margeaux~Alz affects them differently at different stages. As I told cmag, my mother confuses me and my sis all the time now. She continues to disregard anything we tell her and I don't expect that to change...it's what I see as her not recognizing us as adults or as separate beings from herself (personality disorder). It's a shame family get to together's are so uncomfortable. With my family I am comfortable because they accept me. My husband's family is a different story. They want me to follow their traditions,etc. and disregard anything that is about my family and I refuse to do that. Maybe I am wrong, but I do not believe I should clone myself after my mother-in-law to be accepted by them.
Pineapple~I am happy you have a great attorney working in your behalf. It will make things easier in the long run.
Bilmo~I love your sense of humor and totally get it.
I returned yesterday from visiting my son and daughter in law. There are some issues there that I have not shared. Back in February my sons MIL sent me, my husband, my daughter a message about how their family comes together in a time of need. It went on about how my DIL's brother gave my son and DIL a down payment on a car, and how brothers and sisters should help each other during times of need. All three of us were very offended with this message. If she had just posted it on F/B we would not have taken personal. My son and DIL lived with us until January 1st of this year. They were suppose to pay us $200 a month. Not because we need it, because we wanted them to know it wasn't a free ride. When they got married in 2009 they both brought debut into the marriage. My son wasn't raised that way but he doesn't seem to be able to handle money well. They lived with us without paying anything. We continued to give them money to help them out just as we did before they moved in with us.Apparently they were also getting money from DIL parents. When my son left here in NorCal to go to SoCal (San Clemente is about 375 miles south of us), he blew the engine in his car because he wasn't getting regular oil changes, etc. He then drove his wife's car for about 3 weeks when it went dead too. MIL blames my son for DIL's car biting the dust which I dont think is deserved in that short of time. Because of the message MIL sent us, my daughter (I told her not to respond) who is very assertive and does not put up with other people's garbage told MIL that she is way off base and that we as a family have helped them as much as we can without going into debut which we are not willing to do. She also told her that she was not aware that both cars had died and that she and her husband could not have helped them anyway. MIL responded that me and my husband favor her over our son. This is because when my daughter moved to Idaho, she was living with her fiance and his parents and they(daughter and son-in-to be were saving money ) While I was planning their wedding here in Norcal, my daughter surprised us by telling us they bought a house in Idaho. Her fiance did not want a formal wedding so my daughter was torn on what she wanted to do. We could not afford a big formal wedding and were planning a simple formal wedding that was going to cost us around $3,500.00. Because she was torn on what she wanted to do, we offered to give her $3,000 as a gift for her house and have an informal wedding. They went for that instead. My son and DIL had a formal wedding that cost around $10,000. We paid $500 for flowers, the tux rental for our son and my husband, 2 nights stay in a luxury hotel because his MIL want nothing but the best. We ended up spending close to $2,000. Plus we were giving them money to help them out when the wedding was over because they were and still are financially strapped. MIL stated that we should have offered my son and DIL money to get a house like we did for our daughter. I told her it was none of her business and that she is trying to place a wedge between us and our son. Please be honest, are we wrong in not giving them money for a downpayment on a house when I received a call as recently as today from a company down south that they are behind in a payment??? I just returned from a visit with my son and DIL. I offered the olive branch to MIL. She took over the conversation (she is very assertive and describes herself as having a "BIG" personality"). I took control back and told her I was not going to split hairs over our differences and that I apologize for "misunderstanding" the message she sent to us. I did this only because we will be seeing each other from time to time and yes, I am being selfish because I will demand my rights to my grandchildren regardless of what MIL may say. When my son and DIL can get out of debut, save the money for a downpayment on a house, and qualify for loan...all on their own, we will give them a monetary gift as well. Is this fair or are we showing favoritism toward our daughter??
knew my husband & I had plans to go see some of his family in tenn. that summer so they just gave me a small amount before vacation then rest when I got back Which I told my mom to do because I didnt need all they were giving us to blow on a trip. Its your business who cares what they think...I just hope your son isnt influenced by them he probaly knows how they are. He is around them more than you. GOOD luck...
How is your friend? Was she trying to decide to quit caregiving with no regrets was that it? just wondering...
Well I'm glad to hear that you're not feeling as overwhelmed as you felt I guess it was a couple of weeks ago, now? What you said about your dad and the caregiver's input, with your mom and stirring things up when they've been maybe giving her ideas that she'd leave the nursing home, I'm sure that made it extra difficult for you. So yes, this must make her feel more confused.
I know as time goes on, since I'm really learning what the effects of ALZ can do to a loved one, I'm having to realize that there could be some decline going on with mom. On account of this, I totally understand how you feel when you've written about your mom's situation. Yes, I've had my sad moments. Last year I had a grieving of sorts, realizing mom would never be the same. But now I have tried to adjust my attitude to the now. What I do is try to work with it, and try to be on the look out for changes, clues....then maybe I can put my little grain of sand to make things a bit more comfortable for her.
Well, that is good, Cmagnum, that you do have the long term insurance, and she is in the NH. So at this level, this is a very good thing. You're a good man, I know from reading here you take care of a lot of people and business. Stay strong!
Love & light! Margeaux
bikmo - I am on the road to the family drama in a couple of hours -wishing you well with yours on Saturday. And, from another post, you can have a romantic relationship in your 60s and 70s, The important thing is not to repeat past mistakes. I think I finally have it right. I have been done wrong too.
Margeaux, it is sad to see them go down hill, as difficult as they can be, it is still sad.
cmag -glad you are feeling better You have a lot of senior family members nearing the edge. Keep looking after you
austin, I do enjoy your encouraging posts
tbailey, sounds like you have dealt very well with quite a lot - and yes, who cares what they think
brandy - glad your mum liked your mother's day gifts, sounds like sis is a real big controller. How is your husband?
thinking of you all - if I have forgotten anyone it is not intentional - I love hearing about how everyone is doing
take care - I will check in when I am settled in the hotel.
Joan
That goes for everyone - look after you.
We all want to help our kids, but each child is different. Where could they possibly afford a house in San Clemente anyway?
Hugs, Cattails
Cattails how right you are about buying a house in San Clements. Being a resort area ot is very expensive. All the homes in the city proper have been converted to appartments.