Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
I think medication would help my mother with her anxiety but getting to a doctor for that particular issue is difficult because 5 minutes after she accuses us, she denies she said it. In addition to that, when she is lucid, she knows what the medication is for and won't take it because she doesn't think she has a problem.
((((cat)))) scrambled brains - me too sometimes - the family stuff is not easy. Hope things will look up for you now, and you and your husband will do the things that have been put on the back burner, and that your dad continues to settle in well.
mother's latest is that she wants to knit to fill the time as she is less physically active than she was. This is a good idea, I think. This last session with the laxatives has made her milder, though no less critical, just less vehement about it. I suspect her energy will return, at least to a degree. So now I am hunting out knitting needles etc that I haven't used in years. She was an excellent seamstress and knitter years ago, and wants to make brightly coloured mittens! Nice to see something positive.
sharyn you were all "hepped up" about decluttering - have you made any more progress? It does help to chat about it I find.:)
love and hugs♥♥♥
I am not so sure I am calming accepting the idea of caring for my sister. I see her care as more challenging because of the distance between us. I did not take it that you were implying I didn't care or that you were criticizing me. Mother's recent episode got me thinking about how I feel. Time will tell and I will have to deal with when/if it does happen. On to the closet of clutter, thank you for listening♥!!
He asked about my mother. I told him about her recent episode of accusing my sis and me of plotting her murder. He said she definitely needs to see a psychiatrist for paranoia...she won't go.
I printed out the form form from DMV to report her as unsafe. Sending one copy to my sister, keeping one copy for myself just in case sis stalls on sending it in.
Sharyn: Thanks for updating me on your mom. Yes, that's a tough situation, but I think you handle as well as anyone can. You are sorry she suffers, but you are able to block out the cruelty of her words. On the other hand, maybe you dealt with it enough growing up to understand she just isn't right. If you will grieve anything, it might just be that you never had the kind of mom that you could have shared your heart with and maybe you've already done some of that. Take care of that thumb and good luck on the closet.
Emjo: How do you feel about moving closer to you mom? It's nice that you and G could make the move together and that he has normal parents. What area are you thinking of. It there enough activity to keep you happy? Good health care, etc. Talking good activity here, not drama?
Careful: Your new house sounds exciting and full of potential. Good for you!! How long have you and mom been there? Your sibs are terrible. Why should you have to appease them and care for mom too. Isn't fair. Glad you have mom on your side.
I had a great day today. It was all mine and I spent it doing yard work and helping my hubby mow (we have two riding mowers and it's a 5 hour job for one person). A day of simple pleasures that made my heart sing.
Love to all, Cattails
sharyn - sorry you bashed your thumb. I am sure that was painful. Thumbs are pretty important. I do think it will be challenging to care for 2 people. Re your mum, time will tell, and I agree you can only deal with it then. My cholesterol was borderline high a few years ago, and I found quickly that I couldn’t take statins, so I asked for Niacin (vet. B3), and 3 of those a day with a baby aspirin do the trick. My blood sugar has been creeping up and was worse for a few years after my son died. Exercise and diet help. I know I should get more exercise. Not sure I understand about the elevated CBC. Is it your WBCs or your RBC’s that are elevated? You got my prayers. It is so frustrating when you know a family member needs treatment, and they won’t go. Glad you have printed out the DMV form, and will send it in yourself if necessary. Hope the closet cleaning and rest of the weekend go well.
careful – sorry to hear about your sister. Dysfunctional families are tiring. I have an unspoken cry in my heart - “leave me alone”. My daughter cut the tip off a finger on a folding chair when she was about 4 – definitely no fun. A fixer upper – lots of work! Mine might almost have qualified for that before I renovated – not quite, but I did major renos. Blether away - that’s what we are here for.
Cat – you sound so happy – makes me happy too. Simple pleasures are often the best. Wonderful that you had a great day. Mother is in a big city - the provincial capital, and we are out in the boondocks at the oil sands plants where there are jobs, so anywhere has more activities. There are only a few small towns in between, though it is a 5 hr. drive, and a lot of bush and some farms. Health care etc. and pretty well everything except jobs, would be much better in Edmonton where mother is. Gary’s work is here so we will stay here until he is ready to semi retire. Then the plan is that we will move south to be between mother, and his parents who live in a small town a little while away. I have a property (was a summer place) and we may build a home to retire to there. He will then take short contracts which could be anywhere. My plan, before I met Gary, was to move to Edmonton, as I have a few friends there. It is a city I know, a good place, and in between my kids. Also it has a better climate than here. Moving closer to mother has its disadvantages, but should work as long as I keep my boundaries intact. Her requests are escalating, so I know she is starting to feel better. I have to tell her I can only handle one at a time – making a photo album of the birthday celebrations is enough for now. She has far greater choices of wools etc. for knitting than we have here. There isn`t much in town, and I have tons of things to do for myself, like taxes which are way overdue.
vhope – sounds like you had an excellent psychiatrist. Mother really listens to her doctor so he may be able to prescribe some appropriate drugs, and explain it so she would take them. Good idea!!!
Beautiful here today, the sun is shining and the temp about 75. Perfect for me.
thank you for prayers on the home front issues - I am feeling buoyed up and at peace. i am still learning and putting my learning into practice, and the chips will fall where they may!
have a great day
You sound as if you are definitely facing some challenges at this time given your mom's recent behavior. Many things you're writing about in that respect are echoes of a not too distant past, (last year) of what our aunt the narcissist put us all through. Since my controlling sister has been the one in charge, even living there w/mom, and our aunt (before her death) she too would tell me of some of the abuse, and lies. My aunt used to do this to the caregivers, my sister and of course me. But my sister was too enmeshed over there with her emotions. I tried to explain to sis, that even if one felt the way they did, as we did w/out aunt, for the horrible manipulation she knew so well. I did try to suggest for us to see whether our aunt could be evaluated by a psychiatrist. Now, I don't know how in China we would have done this, since aunt was pretty much in control of all of her own medical health decisions until the end. She also exhibited tons of paranoia, but since my mom is the one diagnosed with the ALZ, there seemed to be this prevailing attitude, by others that our aunt had it way more mentally together than my mom. Honestly, sometimes I think back, and feel that, had my aunt been evaluated, maybe she too could have been prescribed something for this. But, I don't know, w/her doctors also, they still had her taking up to 12 different pills per day, even when she was in hospice, and it was blatantly obvious she was at the very end.
Oh, and I completely understand when you wrote about not having feelings towards your mother. Heck, I pretty much did this with my mom, even before ALZ. I really feel that possibly we do this as a self preservation tactic. The last couple of years while her narc. sister was still alive, (also in our care), it was always a recurring theme for me at the way in which I viewed my mom, which was, "you've allowed your sister the total despot in the family to do whatever she wanted, w/o putting a stop to it." BOUNDARIES!!!!! So of course, this kind of thing did bumb me out, and does make me look at her w/a certain amount of resentment. But then I look at her, and see what she's lost also w/the ALZ, so then I feel sad, for her. I too have felt, the "not having feelings." Anyway,
I just want you to know, I'm w/ya Sharynmarie.
I was wondering about the driving issue also, am glad you've taken those steps.
Well take good care of that thumb, I wouldn't want to think your hitchhiking finger is out of commission! Big Hugs! Much Love!! Margeaux
How is your father doing?
I'm so glad to hear that you had a great day! Also, you're a woman after my own heart if you find joy in doing yard work. I do too! It makes me relax, and get in touch w/nature. Whoah! You must have a big place to mow.
Are you not up for some wedding plans soon with your grand daughter?
O.K., keep us posted. Hugs, Margeaux
Speaking of having no feelings towards someone, sharyn and margeaux, I would say I am closer to that with my sister. despite all the problems/abuse I have from my mother, once in a very long while a ray of light shines through, and I am grateful for those rays. I think I can remember 2, what I would call healthy, exchanges with my sister, in over 70 years - not much to go on, and many, many, times she has used mother to get at me. There is a visciousness in her, not present in the same way in my mother, though mother is a abusive.
How have we survived?
Margeaux even if you aunt had been evaluated do you think she would have taken what the docs prescribed? Mother is still in control of her own medical care, so it unless she declines to the point she can't, I don't think she would be take anything, though I think there likely are meds that could help her negativity, anger and anxiety.
Hope everyone is having a good day
Keep cool, it is heating up here over the next few days. I am off till Wednesday so I have time to declutter my closets and my mind, Yay!!
After much mismanagement by this brother, POA, got taken away, by our aunt, because she was the one in charge, since mom has ALZ. So now my sister is at the helm of everything. She on the one hand, is quite adept, and takes care of business. She is also very controlling. She does things also in a very caring way, actually the nurturing things, that many times I feel I'm incapable of doing for mom. But, here comes the but....I too realize w/my sister that she does some weird behavior in terms of back biting. It's interesting. She had a close relationship with our dad, much more so than I did. But knowing my sister all my life, also, I've figured it out. She has a need to be validated much more so, BY MEN, so this really figures into the equation about how my sister deals w/people, and especially in our nuclear family. She really was not close to mother, when we were younger. In fact, they clashed. I got along w/mom, but never felt super bonded with her, because of some being too absent issues. I find it interesting with my sister, that when our brother who had POA, tried to pull a strange maneuver on the rest of the three siblings and have us sign a very dodgy looking document, which was supposed to be a Quitclaim Deed, about 5 yrs., ago (we didn't sign). Since the death of our aunt, who was instrumental in all of the estate of mom, dad, & aunt's (it's all unfortunately intermingled), this brother, has been making a reappearance of sorts. Last 4 yrs., he only made occasional visits at mom's, but wasn't in too much contact w/my sister, other brother nor myself. He this last year had health problems, and recently marriage break up. Anyway, my sister seems to have taken a very feel sorry for him approach. It is very interesting when my sister decides to just overlook some of my brothers past behavior, especially when it comes to the family money. I honestly do not trust my brother, in this regard. But I many times do not trust my sister either. Well, in any case it is good that you are keeping track of all money,, receipts you're spending on your home. Besides, no matter the champagne tastes, as you've described your siblings having, this is still money you and your husband have put out of your pocket.
My sister moved into mothers quite large house, with two daughters, and one of their boyfriends. My sister on this end isn't paying rent there, and she works full-time. Her daughters don't either, and they are/have been of rent paying age also. So my sister is going to come out financially speaking quite O.K., at some point.
The reason I bring this up, is because I feel that many times these kinds of siblings will really push to position themselves, especially for their own gain.
Well, it's good you are aware of this!
O.K., take care, Love & Light! Margeaux
Emjo: My finger didn't lose bone either and the nail is curved. What a coincidence!
Of course there is always one in every family and in this case it's Amanda's mom. She's prone to angry outbursts and is difficult to say the least. Borderline Personality Disorder. Amanda, with court approval, moved to ND when she was 12 to live with her dad. She has had some contact with her mom, but it's always strained. Kim, Amanda's mom did come to ND when Amanda graduated from high school. We were all there for that occasion and managed to get through those few days together ok. Of course, we are all on some pins and needles with Kim. She's very high maintenance and it can be exhausting to keep her feeling included and happy. So we all have our jobs to do to keep things running smooth. We can do it.
Thanks for asking. You all have a good day. Love and Hugs, Cattails
I visited my mother yesterday because she keeps saying her toe is black. It looks to me like she may have a fungus infection under the toenail that has spread to the outside area around the toenail. She has an appointment tomorrow with a podiatrist at 4pm. She called me early evening last night telling me she went to her dr. appt. but no one was there. I reminded her it was Saturday (poor mom). While I was at her house, she had a binder out on the kitchen table that holds financial portfolio statements,etc. She is obsessed with these letters she received about the privacy act notice. She spends large amounts of time pouring over these documents trying to understand what everything means. I know she has a lot of anxiety but she won't take anything for it. It makes me sad knowing she must be so tied up in knots inside and the Alzheimer's has made it worse. If it isn't privacy act notices, it is something else that comes in the mail, usually from her insurance companies offering additional insurance. She holds on to all this mail that a year ago she would have thrown away but now she doesn't know what to do with it thinking she needs to contact them about the information in the advertisements. I wish there was a way to get these companies to stop sending her stuff but good luck with that!
Hello Cattails I cant wait till Amandas wedding I hate to hear how her mom is always one in every family ... Sounds like she has a great head on her shoulders & My husband has taught me dont matter where someone comes from they will be how they want to be... My cousin has always been sooo onery she will arrive & have ur kids jumping off walls and pets running she is just fun great girl to be around but hated school and got in mishchief and still a big kid at heart at 42 her 17 year old daughter has a 3.97 gpa and tells her mom to act right all the time I told her That it must not b true that god pays you back with meaner kids than you were because she would have BRAT!!!! Good luck I know you YOU will use that 2 x 4 on anyone trys to mess up your grandaughters Wedding.... Ask her if she has been on pinterest for wedding ideas such cute ones on there....
margeaux - sounds like your sister is doing quite well for herself and her family - It does not seem right to me that her kids, one boyfriend and the baby live there for nothing, considering that they don't contribute at all to your mum's care
- as you say - definitely positioned for their own gain
careful - quite a coincidence - you are a peach definitely. Sorry your mum is trying to cause trouble between you and your hub - obviously it is not going to work
cat - great to have a wedding to look forward to. I know all about BPD mums and wish you all luck with Kim. It is exhausting and you can do it
Love and hugs and have a great day ♥ Joan
yes, one in every family and sometimes, as in mine, two. Your niece is a smart cookie! that is some GPA!
My mom has done many things, in and out of the dementia. The verbal abuse is still there and I suppose will always be. It's just not as severe as it was prior to the dementia setting in. The physical violence isn't frequent, but I'd say she's more likely to lash out that way than she did before the dementia. Before the disease it took her getting extremely angry and/or extremely drunk to bring that out. There are many times I have to behave like a military sergeant, because that seems to be the only language she understands and doesn't rebel against. Make no mistake, there's plenty of affection in this house, just not when I'm giving her orders, i.e. "Time to go to the bathroom". I do that and she sees it as weakness and that's when she tends to "get down with her bad-self ". She's still very much a independent woman and does NOT like to be told what to do.
Anyway, that's my story on dysfunction. Not as mild as some, not nearly as terrible as others. But my motto these days seems to be, "It is what it is." At least, that's what I find myself saying most often anymore.
Bless you, Victoria. Sending you love and blessings. Cattails