Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
I can see all obstacles in my way
Gone are the dark clouds that had me blind
It’s gonna be a bright (bright), bright (bright)
Sun-Shiny day." A song by Johnny Nash
Sorry, this song came in my head, I know it isn't going to be a rainbow of days with my mother, but this has helped to see it with a different perspective by understanding her personality better. Thank you so much for making me think about how her personality works, I can't wait to share this with my sis, it will help her too. I will read the link you provided, I know I can get in that "fix it" mode, wanting to help everyone and fix what is going on. I tend to do that with my son and his financial problems but I am getting better with him on that issue.(((((((Hugs)))))))!!!
I had not caught up reading here.
Well, last week was lots of revelations! This is the best way I can sum it up.
So my cousin Dee and I went on our own to the family gathering to discuss the gathering of info., to make a family tree.
The first thing that happened was that we had directions to my cousin Lily's place, (where the gathering was held),
We had an incorrect street name that supposedly connected to Lily's address.
So Dee, was driving, and I was navigator. After we discovered we were lost, we began to flag people we'd see in the neighborhood. Good thing we left early! After asking about 5 people, we then discovered that Dee had left her cell phone at home. Oh no! My cell phone went down about a month and a half ago. I haven't bought a new one, but this was a lesson. Anyway......I was now suggesting to Dee we go back to the main street, to look for a phone booth. Remember those. She said, let's go down this street and ask one last time. We saw a man, asked him.
He directed us to his neighbor-Jenny, said she'd lived in that neighborhood for 40 yrs. I reluctantly went up to this house, while Dee sat in the car on the street.
I had to ring Jenny's door bell. A woman answered the door. I introduced myself and told her my problem. I heard someone say something to Jenny from inside the house. Somehow, hearing that woman's voice sounded familiar to me.
Suddenly that other woman in the house came to the door. I could not believe it!!
It was my half brother's ex-wife. This half brother is my dad's son from his previous marriage. The last time I saw her was at dad's funeral 10 yrs. ago!
She and my half brother had 3 sons together. Anyway, now we were flagging Dee to come inside the house, meanwhile Jenny (the lady who lives there), was busy pulling out a map of neighborhood. I did find out through my half brother's ex-wife, that my dad's first wife died last year. But of all the coincidences that could happen to anyone. Needless to say we got to Lily's house w/the help of Jenny's directions.
At the gathering, our cousin Lily thinks of herself as the matriarch, is really one "Queen Bee." Truth be told, I'm sure she is a narcissist. A niece of Lily's was there, and we were told that she would be filming this gathering. This niece was rather overbearing. I understand on the one hand why people would want to film something like this, however this was our first meeting and I knew we were going to have some challenges w/Lily, to begin with.
Well now everyone was there, including my sister and mother. They were all very happy to see mom, so I was glad about that. I still however feel it was a bit much the fact my sister decided to take her.
Anyway, Lily has major diabetes. She's the kind of personality who one can't have a factual conversation with. It's always deflecting back to her accomplishments, or something about herself. The cousins were having wine coolers, so some started to have their own chatter. Well w/this combination, I was having a difficult time writing down names and relationship. This is what I know I need if I'm going to do more research for a family tree. Then the side bar, was Lily's niece thought she was some kind of documentarian. She kept interrupting Lily to ask her own questions. This niece knows very little about the family. Her niece seemed to rub several of us the wrong way, as in over-bearing. Also, Lily started going off on a tangent about her father. No disrespect, but our family has to do w/Lily's mom.
The more interesting part of that gathering is the fact that Lily's sister provided a document-proof of birth's for the eldest children in dad's clan. This even had more names some of us were not aware of sharing our family name. Even if I didn't get some detailed info., of which I"m going to follow up on w/the cousin organizer,
I was able to come away w/DOB's, and other details for searches.
My sister did her suspect behavior w/both Dee and me. Bottom line, my sister is an extremely jealous woman, always has been. As I'd written before, she currently has some underlying jealousies and bogus ill feelings. honestly because Dee couldn't be of service to my sister (talk about that later). On account of this, she thought she was going to reel me into that stupidity. So both Dee and me got those familiar looks from my sister, as if she's sizing us up; that kind of thing.
But I was happy to see that all the cousins were glad mom came. Mom even had a wine cooler. In one instance, my sister asked my mom if dad ever told her what town he was born in. He had not. Then she asked mom, " why didn't you ask him?" Mom replied, "because I didn't care." She said it such a matter of fact manner. Of course everyone laughed, including myself. But I think this answer is somewhat revealing also. O.K., I'll be writing about my searches. This is going to get too long if I don't do that. Margeaux
After the drama of starting on getting my mum's and step-dad's past due taxes dealt with from 2004-2008 when I discovered this problem in 2009; her broken hip and going to the nursing home in 2009; some intense family of origin therapy issues in 2010; getting all of these taxes over with in 2010; I find things have come to the grind of her declining dementia; constantly wanting to go home and thinking that she can; the miss-perception that she's only been there a few months when it has been 3 1/2 years and staring to wonder with the US market being so unstable how long her securities will last her after finally getting the investments where the interest would pay for what her long term insurance does not. I must be going through another caregiving stage of some sort which I don't know what to name.
I wish everyone well in their own various challenges.
I have been trying to catch up reading, a lot went on last week for many people, I see. I read several of your posts. So you're mother is giving you and your sister a hard time! I completely understand you questioning the issue of remaining on, POA. Well, given that you've have been feeling quite stressed out about this, I know Emjo, Cattails and others have suggested for you to sleep on this decision, until you don't feel as stressed to finally decide. But honestly, it must this must be really difficult for you, on the one hand you are quite in the center of many of your mom's increasing need for help, of course I'm speaking minus her objections.
In my family I know I've mentioned that I was not selected as DPOA. I wasn't aware of the fact, especially where it concerns Medical Poweer of Attorney, apparently this only allows whoever is named as such to access personal information about an individual. I've been in the dark in this aspect of mom's ALZ, and medical info. Then to top things off, my sister who is the named person, doesn't communicate important things, as issues arise. I'm speaking of e.g., medications, or recent heartburn mom was having. I was trying to help in this scenario, and getting the road blocks from my controlling sister.
Well, do try to take an emotional breather from some of this. You have been and w/continue to be in my thoughts. Bear Hugs! Much Love, Margeaux
What is up w/this doctor that didn't sign the DMV form?
How interesting, when it behooves them, they want to enlist people, right?
Yet, this kind of behavior by medical people really annoys the heck out of me!
They sure know how to overmedicate people. They know when to hold back on signatures, which in the long run would benefit your mom and many other people, especially since it has to do w/driving.
Anyway, as I said, catching up. I'd meant to mention some of this in the other post. But have you considered, one of these, I think they're called "Medic Alerts?"
This may at least circumvent some of the stress you are feeling w/your mom at the moment. Your mom's neighbor who is balancing her check book, sounds like a wonderful person. Someone is looking out for you, in a big way!
Much Love, Margeaux
Well I'd posted about what my cousin and me talked re: my sister, and the jealousies she seems to engage, and try reeling us into. As I said before, Dee had been caregiver through a paid program in our state til the budget cuts started. This was over a year and a half ago, while the narcissistic aunt was still alive, and for mom. My cousin is very good and responsible in the caregiving department. Well current day, now it's only mom. Mom lives in a two story home. My sister who still works a 40 hr. job, sleeps upstairs. So she has a couple caregivers who sleep w/mom; my sister is afraid about when mom may need to use the bathroom at night time. Well for this setup, they're covered during the week by the main caregiver to do this. However, there's one caregiver that comes on weekends, who doesn't want to sleep w/mom; prefers to sleep in living room. Unfortunately, because of mom's needs, defeats the whole purpose of she being there, quite honestly. There is another caregiver my sister has for weekends also, but needs some other person as back up.
Anyway, this is where my cousin comes back into the picture. Remember on a recent post, I wrote about my sister trying to imply that after my cousin was no longer being paid by that state program, my sister still called for her assistance to come and spend the night w/mom? Sister in an email to me tried to imply that our cousin could not come a couple of times, and implied, "now that she wasn't being paid, she wasn't willing to help." But last week, of course I did not tell my cousin this fact. I found out though, that my cousin just couldn't make it for good reasons.
Well, I spoke to my cousin a day ago, and developments are that my sister gave her a call. She's asking my cousin to be the back up person, in case there is a need. My cousin told me, that she feels rather confused via my sister's behavior w/her, as they used to talk more. My sister is definitely sending out mixed signals. Anyway my cousin, told me that she feels weird w/my sister on the one hand. I know this comes from my sister's overbearing attitude, I guess because she thinks she holds all the cards in her hands. She becomes an employer w/my cousin. But my cousin also stated although she really doesn't like that, she could use the money.
My cousin is a wonderful person, and my mom still remembers her and trusts her. I'm wondering, how do any of you feel about whether someone as my cousin should be paid for this service. I think she should be; I see nothing wrong with it. It makes me annoyed, that my sister should start using this arrogant attitude about money! Besides, she lives there w/a daughter who's just leaching off of her, (IMO) could be doing some of this!!!!! My sister won't dare ask her daughter to participate, so now my sister is having an issue with this. I'm more about sharing the money, especially if it's for the care of our mom.
I relieve every now and again, but I don't live that close, and because of my work situation, cannot commit to a steady (needed on weekend) relief schedule. Besides, unlike my sister, I pay rent.
There's a big part of me that doesn't want to enter into the clutches of my sister in that manner. I never ever hear her do these kind of judgments, nor do I know of her enlisting my brothers in this manner.
I think it is just awful, that somehow my sister thinks she's above people because she's in charge! She does have this very arrogant attitude w/respect to money.
Anyway, I'm going for my 2'd cup of Joe!
Margeaux
My mother is trying to study for the written test but has too much anxiety and can't concentrate, obsessing over everything including DMV possibly taking her house from her. I so wish she would take an antidepressant. I spent some time with her yesterday going over mail which consisted of booklets regarding changes on her retiree benefits and changes on her investments. She thinks she has to read these booklets cover to cover, I keep telling her file them.
So much mess going at work, and the old 'scapegoat' role has been triggered.... I was in thereapy for many many years to get a handle on this and learn new behaviours, but funny how being too tired can trigger it all like it was today....
I will try to keep this simple, two of my coworkers are just full of drama, their priorites amaze me, yet it's none of my business as long as M and S are taken care of... and well taken care of ..... all this personality crap is insignificant in the bigger picture of things.... but I am being shown as the 'bad guy' here... some of ya'll know me from other threads. You have a general idea of what my personality is like, yes, I am outspoken, yes I get silly, but ya'll also know how much M and S mean to me... that this is more than a "job' to me.....
This is where it is 'crazymaking" and I know ya'll will understand this part... they are bound and determined to make me out to be this person that has nothing to do with what is going on.... does that make sense????? I can feel myself getting frustrated and wanting to delete this... but I am moving forward because I have to share this or it is going to affect me in my work......
M and S are requiring round the clock care now... so 4 others have been hired to cover it.... but these two young ones, and don't get upset here, there are young folks on here doing an awesome job, things I could have never done at their age....but these two are trouble makers and not really making the quality of care for M and S priorty..... it is more about personalities that caregiving....
I know that our healing is ongoing, and I also know there is a lesson in all this for me... but I totally resent what these two are doing, the things they are saying to M and to the daugher, and I also know M and the daughter know better, so why am I being so reactionay with all this?... am I just too tired to ? I hate these feelings, I have grown way past defending or explaining myself, so that is why I am putting it out here.... the feelings are real, tho not as intense or as paralyzing as when I was younger....why am I letting these two push my buttons, why am I giving them the power to drag this crap to the surface.... ? More healing?
All I know right now is that I resent the hell out of it... but it is what it is... so if any of you have any suggestions I am more than willing to hear them.... I think more than anything I need validation that it is just another stage of healing and that I am not really this bad person they are making me out to be.... and in my heart I know I'm not, this is what is so damned crazy making for me.....
Thanks for letting me share.... I know some of you will get what I am trying to say here, but Iearned a long long time ago, a problem shared is cut in half.... so if nothing else, thanks for listening.... hugs across the miles to you all ...
But I truly appreciate your feedback.... but I have no problems with the way they care for M and S, tho M has made it very clear she does not like the overnight girl...... but I do not engage in conversation about them with her... I let her talk, and keep my personal issues with them to myself....I don't even tell the daughter about this mess, it has nothing to do with the care of M and S....
No doubt there is a lesson for me here... so I'll try to focus on that... thanks for the reply... hugs to you....
My conclusion based on my siblings: as long as you are a hardworker, it will reflect badly on the slackers. Therefore, the slackers will do their best to make you look bad, and make themselves look good. (And from both sisters - theh have lost some very good hard working coworkers due to these troublemakers.)
Solution? Sorry...my siblings are still trying to find one (and are still stressing a lot!) I hope that the daughter/son continues to believe in you and not the troublemakers. The thing is, Ladee, you cannot remain complacent. Because if those 2 can get the others to see you their way, then eventually daughter/son might wonder if they are right that you are a troublemaker.
Anyone here with work place experience on how Ladee can handle this situation? And NOT look like she's jealous or spiteful?