Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
How are you doing? I had posted something for you yesterday, and I didn't find it.
Anyway, I was reading what you posted re: feelings about grief. I think grief is very particular for each and every one of us. I cannot imagine the grief a mother must feel, but I am aware this is a very difficult position for a parent to be in, no matter how many years may have passed. Believe me I do know that feeling of having many people around at the very initial period when one has first lost their loved one.
I remember going through this, when I lost my dad. Everyone was there at the funeral, and I had a good girlfriend call me a few weeks after. But then say a few mos. later when I could have used that same attention by some people, they'd all disappeared. This good girlfriend in particular had become too busy with a new boyfriend. It's too bad then, some of us here have strange relationships within our own families, so we can't count on them either.
So maybe given the fact if this is re-triggering some feelings for you, I'm sure you'll go with your gut instinct, as to attend the funeral. But this is where it's going to be much more important for both of you, down the road. Now the two of you have experienced something very difficult. These are the times she's going to need someone to talk to. Who knows, it will probably be really healing just as well for you.
I say that there is no time limit for grief. O.K., Emjo, you're in my thoughts!
Big, can I say Bear Hugs?? Much Love & LIght! Margeaux
I just wanted to say that I've been reading all of your posts about humor.
I think it's necessary for all of us to laugh, in the most trying of circumstances of which I know many of us face here. Humor is something that really gets us through the difficult times, and really it takes our minds to another level, and hopefully past emotions such as anger, fear, resentment. It is a coping skill.
It's one thing to feel empathy and all of that for someone who can no longer do the things one is accustomed to in their daily lives. But let us not get accustomed to lack of humor and laughter in our lives! Much Laughter & Humor to all,
even if others don't think it's funny! Much Love, Margeaux
austin - Bear hugs from a person - of course. :)
Mother is on the rampage criticizing me and the health care system, saying that Fort Mc gets all the best doctors - (what IS she talking about - not true at all) , that if the hospital told me there was nothing wrong with her, and I believe them then I better stay out of her life. I am about ready to take her up on that - maybe this is the time for her to find someone else for POA. She has had enough of false accusations, (what???), that it was the nurses in the ALF that sent her to hospital, she didn't send herself, yada yada yada. All that says to me is that she is feeling better since she has the energy to get so mad about nothing. Well, not nothing, but that I haven't jumped and asked how high on the way up, I haven't offered to play servant, and I haven't given her a lot of attention. I have made no accusations. When she is not feeling well, she is quieter. She also said something about not being able to phone her doctor - doesn't make sense.I am fighting a sore throat right now, and lack of sleep (I have insomnia), and need to look after me. I will call her doctor for her, once any test results are in. Not that she can't do it, but I would like to know the results, and she doesn't understand then as well as she did.. Test results aren't available overnight. She expects instant everything, Oh well - life as usual. She has been pretty quiet for a while, for which I am thankful.
I will count to 20, discuss it with Gary, and sent her a brief, but accurate email. Wish me luck. This is the most paranoid she has been with me for a long time.
Cmagmum, you r so right about how strong n weak a marriage with all this caregiving involved.
Sharyn, can they take me away with you please too? Let's just say today was a terrible day between the mnl n I. I am really not sure if I will be able to handle this hard-headed, negative woman as she progress into later stages from mild AD. Lord, give me strength!
JessieBelle, You are so sweet with your kind words even when someone is have a hard time. You know how to say the right things. I do agree with you about Emjo to re-visit n she may find some peace in order to heal.
Emjo, maybe after you also see the counselor that you will be able to heal n get some rest. I hope getting out with good ole Mother Nature n with the horses that it will be very therapeutical for you as well for a mind n peaceful rest.
I'm very tired so going to try get some sleep myself n start tomorrow a whole new positive n bright new day. zzzzz
Indeed what I so often see here in terms of a marriage's strength or weakness is how enmeshed, codependent or not the caregiver is with their mother or father. Sometimes when these family of origin issues are still buried, this leads to one spouse feeling taken advantage of or a spouse feeling like the person being cared for is driving a wedge between them and their spouse. Other times when these family of origin issues are out in the open to be dealt with, the couple works together like a team. I hope this is clear.
Lildeb~I'm coming to take you away, haha, heehee, hoho to the happy place!!, Lol! You are always welcome for however long it takes to laugh, joke, rest, and regroup! As I said, "the more the merrier!!
Cmag~I learned just how strong my marriage was about 12 years when I lost my job of many years and my husband refinanced our house (it was already paid off at the time) to pay off bills be got behind on because of my loss of income. Part of the reason I lost the job was my fault (I was still dealing with a lot of baggage from my childhood then that was affecting me at work, bad decisions on my part) but he stood by me...it was a big wake up call for both of us.
Happy ZZZZZZZZZZ tonight for everyone!!!
cmag - hope you are getting more sleep -I haven't found any meds that helps, or even that exercise earlier in the day does consistently. It is a bummer. You have all these hours, and not enough energy to do anything productive.So important for a couple to work as a team.
sharyn - yes, my week or longer. She is very angry - one of the hallmarks of the Borderline. She has been angry all her life. Thankfully the sore throat is pretty well gone, and the grief has subsided for now - it comes and goes. The stress from mother does not help, but I am much moire detached than I was. She is mad because they didn't make a fuss of her perceived health issues. I am not saying she may not have something wrong, though it is not life threatening, and it is nothing that her doctor, or the hospital can identify/treat. So where does that leave us? When the hospital sends her home within 24 hrs, and without a diagnosis of anything, I prefer to believe them. I haven't told her that because she would erupt at me again. I sent her a short email saying I would call the doctors office for her test results if she wanted me to, and hoped she was feeling better. I also gave her some accurate information about doctors in this city - certainly the good doctors from her city do NOT come here - and told her that since I was not feeling great, and have trouble sleeping, middle of the night phone calls do not help. Her answer was that she didn't want to see me (well that is mutual!) and that from his attitude someone has contacted her doctor because she thinks he wants to be rid of her. It absolutely amazes me that she has no connection between her behaviour, and how people respond to her. And as far as I can tell, all her doctor said was that she can call him instead of coming in. He may be tired of her coming in with nothing really wrong. He has told her her stomach is getting old - at 100 that is to be expected - but she won't accept it. I would be delighted if my doctor told me I could call. I suspect she thinks I have contacted her doctor and said something to him about her, but that is not true.This sort of thing has happened before, and resulted in her taking me out of her will - whatever! You really cannot stop the flood of paranois - at least I have not found how to. The best I have found is to gently speak the truth, as she calms down. I will wait a bit, and then email her that I have not contacted her doctor, but that I will about her test results if she wants me to. She says he doesn't explain things well, but more likely she gets the wrong end of the stick when she hears him. I think, perhaps, when he told her that she didn't have to come to see him, it triggered feelings of abandonment in her. BPD's get them more easily that the rest of us. Then the excessive reaction happens - emotional dysregulation is a good description - and you have another storm in a tea cup, which is very destructive to relationships. Blame and fault get thrown around - you know the routine.
austin - you know it too - and it is not your fault. Your mother has a serious problem. I can let it slide off my back much better than I used to, as I have accepted that is how she is, and that I didn't make the problem and I can't fix it. Mother is always right too, and gets very upset if you don't agree with her. I try to side step it, as I don't want to lie if I do not agree with her, which I don't often, or I just don't answer.
Hope everyone has a good day. I may take my new camera out for the first time - it does panoramic shots. :) The river in the autumn would make a great subject! Do something good for you today! Love and hugs Joan
But she did send me an email saying that remember I'd wrote about mother and that fiasco about she not being able to walk at the cemetery that day of funeral, and my sister not getting out her portable wheel chair, which was in the trunk of her car. So now my sister writes saying that she and our golden boy brother took her to a mall on Sunday, but the wheel chair was in tow. My sister says that my mom didn't give her usual squabble at getting into that chair. Sister also indicated that mom hates walking. This concerns me. You see, since my aunt died my sister claimed throughout an 8 month period, she and mother were going here and there. I knew much of it had to do with walking in stores and malls. Mind you, my mom hadn't been doing any kind of regular exercise for about a year and a half after her sister really became homebound. But it's too bad, there wasn't a way mom could have remained a bit more consistently mobile, because now she's really on the decline in this aspect. Then my sister doesn't know how important it is to insist w/mom to use the walker when they do go out. I notice that my sister has made too much light at times at mom's protests about using the walker, too.
Another thing apparently going on with mom, is my sister claims she looks as if she's really going into a deeper stage of the ALZ. She claims mom isn't emotionally connecting much anymore with anyone. Anyway, I'll be going there if not during the week, this weekend. Margeaux
Great that you didn't answer the phone!! Yes, I'm being vigilant with the boundaries! The narcissistic aunt cried wolf too, so much so, that probably when things that were happening and really true, all the people who could have paid attention were drained by then.
My aunt also apparently had a million complaints with the doctor. They told her she had borderline diabetes. I think hers was full blown, because she was getting those infections they get on their feet, etc. But, my aunt was haywire when it came to her eating habits, too, especially with her health problems. Anyway, I remember one time when she'd gone to the doctor for something or other, and she was complaining to him. It sounds like my aunt, kept insisting with the doctor to see if her medication could be changed, blah di blah. In essence she was doing her usual endless complaining. Apparently, all that could have been done for her had already been done. When my aunt further pressed him, the doctor told my aunt, "you're 92 yrs. old." We heard this from the caregiver, who went to that appt. w/our aunt. My sister and me laughed at this. But yes, I know that these kinds of elders-WHOAH!!
Well, I'm sorry to hear that your mom went to the hospital, but happy to hear she's out and how you're dealing with it. You are doing really well Emjo, especially at this time. Hang in there! Much Love & LIght! Margeaux
It is funny that the stress of these things gets to you even if you hardly realise it. I am ready for the funny farm. I decided to whip up some non-dairy topping as I was going to make a dessert. I haven't done this in years. The directions said to use a deep narrow bowl. I thought I had. That was my first mistake. I turned on the mixer, and suddenly gobs of white stuff were flying all around the kitchen, and I was wearing quite a lot of it. I turned it down to salvage what was left, and started cleaning up - me, the cupboards, the countertops, the stove top, and I have to launder the rugs on the floor. Then I made my second mistake. I had to taste it to see if the consistency was right. . By the time I finished cleaning, and tasting, I was in fatty-food overload. Haven't been there is a long time. I ate some celery to slow down the absorption, I hope. Don't think I want to look that stuff, or any food in the face for the rest of the day! Tell the lads in the white coats to come and get me!
Thanks Sharyn n love the song lyrics. ; ) Today was an okay day with mnl. Of course, I decided to have a healthy salad for lunch n withing an hour n half, I was running to toliet bowl with tore up stomach. Let's just say that I am probable the one with the most squeaky clean intestines. Going try n get me some rest n hope everyone else will be able as well.
Tomorrow I am taking my mother to DMV so she can turn in her drivers license and get a Ca. ID. It's not necessary that she turn in her license but by doing so because of a medical condition, she will be able to a Ca. ID for no charge. She still has moments where this is tearing her up but in time she will adjust to it. She needs to take her hearing aids in for repair, some grocery shopping...we will do all that tomorrow. She is worried about getting her dog (a toy poodle) in for clipping next week. I told her I will be in Idaho so she can wait for the week after, but she isn't willing to do that and will see if one of her friends from church will take her. This is what will create a problem because she wants everything right now. I suggested that we can work things out if she is willing to plan with my days off work, but she isn't willing to do that right now. My mother is very rigid when it comes to a schedule. Good Lord, I have an average of 3-4 days off each week, how hard is that!! Oh well, she will have to adjust because even the people at church have a life. I don't intend to sound hard hearted, however, adjusted is needed on her end. She is too fearful to use any type of paid transportation which I am relieved of that since she may become confused or get lost in the process. She is not advanced enough to get her an ID bracelet for Alz patients since she is in denial.
The "rubber room" is a place I will be spending much time in from here on out, Lol!
Happy ZZZZZZZZZZZZ to everyone...Cmag, 8 hours sleep is wonderful even if it is not the traditional 8 hours, snore on everyone!!!
As for my dad, he kept calling their doctor. Now, they no longer have a primary doctor. The doctor called and spoke to my sis. I need to bring both parents to the clinic to get a New primary doctor. Uhm…2 bedridden parents to the clinic? Mom on oxygen and constant suctioning which can fill up the canister in 1 hr? Really? So, now I have to figure out when to take her, make an appointment for private ambulance transportation and then go to the clinic for who knows how long. I have to do it soon since the meals-on-wheels called asking for mom’s stomach tube nutrient meal prescription and we need to replace her throat trache (discolored and appears to be close to cracking). So…I just really wished oldest sis can do all these. She’s not working. My 19yr old niece is not working so she can come over and babysit my father. But, my father told oldest sis that she has no authority over them – only me. Whatever!!
Sharyn – my acid reflux is acting up. And I’m the culprit. For the past couple of weeks I’ve been craving picked food and yogurt. Every time I eat the pickled food with the main meal, I have my reflux. With the yogurt, I just have really bad case of burping. I really had this under control until the cravings hit.
What is this with all of us caregivers? Everyone seems to be having insomnia. Remember how I tell you all that when my head hits the pillow, I’m knocked out? Ever since I drank that green tea 2 nights – I now struggle to sleep at night. I even wake up when my mom coughs. Well, it’s 829pm. Time to go. Later! And I hope you all had a good night’s sleep!
Book~Knowing that I shouldn't do it, but I did anyway, I ordered the tacos from Jack yesterday and I am paying for it today. Woke up sick to my stomach, too much acid, plus I drank a coke which is a no no too. I have only been drinking water today no food, I will have a light dinner. It's a hit and miss situation, sometimes I can eat something like the fried tacos with no problem, then other times I pay for it. Book, really...pickles and yogurt!! Reminds me of pickles and ice cream that a pregnant woman craves, LOL!!
I saw on line where you can get baby lullybys that is rock music, Hotel California by the Eagles, Iron Man by Black Sabbath, and I Want To Hold Your Hand by the Beatles...us baby boomers might want to get these lullyby versions to help us sleep, Lol!!
Bookworm, I didn't think about those pickle beets in my salad. Pickles, caffeen, fatty fried food, red sauce, penut butter n banana of course any citrus fruit or juices r my enemies. Active yogurt wasn't working for me so I switch to Yoplait yogurt n it has been pretty good to my tummy. ( I better go knock on some wood.)
Well, the mnl has went off to bed, Bookworm, I have my door lock please don't forget to lock yours as well. I got to go check my b/s n take my pm shot n I hope I sleep like a baby tonight. Here are some zzzzzzzzzzzzzzzz for everyone to have a good nite. ; )
Now let's see. My marriage broke up and I left everything I owned in TX, because there was no room in her house for my things. I went from having friends to living in a house with hermits who don't even want to socialize with me. I can leave for a couple of hours at a time before I have to get back to do everything that needs doing -- medicine, meals, necessary house chores. And I do all this with no pay and have to cover my bills from what I sell online. (My bills are more than hers.)
Okay, I was ticked. She pushed that button. I told her that she had always had someone taking care of her -- her parents, my father, now me -- so not to go acting like she had lived this hard life. She was quite capable of cleaning the floors herself and it would be good for her to actually get up and do something.
Then I went back to normal. THAT drove her crazy. I think that often people grow old without first growing up. These are the people that send us to the rubber room. Sometimes I actually do bump my head on the wall. It doesn't help.
…..I hate that song Hotel California. Have you really listened to the words? You can check in but you can never check out. Awful place! I used to love that song until I really listened to it.
Lildeb – what you mentioned also upsets mine except for the coffee (caffeine) and peanut butter. Ha! I was wondering about the bananas! So, that too is a no-no, huh? What also affects me is Bell peppers or green pepper and garlic, pizza and lasagna. As for pizza and lasagna, I just pop Gas-X before I eat it. I think it’s the tomatoes in it that’s not good for acid reflux.
What on earth?? Lamb chops, pickled herring? After gallbladder surgery?
Yikes!! Yes, my dad did the same thing. He had colon cancer. He did have the gall bladder removed at some point. I used to try to encourage my mom to make him lighter, healthier foods. He also had high BP. But they insisted on eating pork, and other high fat food, which is a complete no, no especially for them! I wonder why my dad's BP, was apparently skyrocketing towards the end of his life. Even though he had the colon cancer, he had a stroke!
Well, I'm glad to hear that her emails have calmed down.
Your story about the whipped topping was too funny! Something like this happened to me when I was making a sauce. O.K., this is a good way to relieve stress also, cooking. Of course that's if you like to cook. I do!
Yes, I'm maintaining a safe distance from my sister. Two days ago, she started to ask me about our cousin (the one she lined up for possible babysitting of mom). She was asking me whether I'd spoken to my cousin, I said, "no." Then she went on to repeat the request to my cousin that she watch mom. But now my sister is saying, "I don't know whether I'll call her; I think she is too busy right now watching her grandkids." So you see, this is the 360 degree turn my sister loves to do! She says one thing, then concludes something else. Good thing the conversation was short.
Yes, I have to try not to allow this kind of thing to discourage me from going and checking up on mom.
O.K., have a wonderful day!
Much Love! Margeaux
Margeaux, you can only suggest to your mom n dad to eat a bit healthy but like u saw they chose to eat what they wanted. You did try to help them with healthy suggestions n I am Sorry u lost your dad due to a stroke. Your dear sister needs to be jaw flapping with the cousin instead of bothering you about it. I just cut her short n let her know u have something that has to be done n you talk to her later, bye. : ) Later wouldn't come unless you call her.
My less than involved sister lives 2000 miles away, in my Mother's house, and won't come help and won't let mom go home so I can have a break.
I'm not doing well at all.
Last thing I remember, I was
Running for the door
I had to find the passage back
To the place I was before
"Relax, " said the night man,
"We are programmed to receive.
You can check-out any time you like,
But you can never leave! "
It is a dark song that I always thought was about maddness. I prefer "Take It Easy" and other songs by them.
Eyem~You've come to the right place to get support and just to vent! I hope the group therapy helps you. You will get lots of support and ideas from them. Keep us posted on how things are going for you.
I know I'll feel better in the future. I'm strong, but maybe this time, my body is really talking to me and things will be different. I hope so. I have to set some boundaries and I am not looking forward to it.