Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
Oh you must have read my mind, I was thinking of the chutney just today.
Here it is: 4 apples of choice, peeled, cored & chopped in qtrs.; 1 1/2 cup cider vinegar; 1 1/2 cup light brown sugar; 1 large onion chopped; 2 tsp. fine chopped ginger; 1/2 tsp. red chili pepper flakes; 2 cloves; 2 bay leaves; 2 tb. spns. lemon juice; 1 cup raisins. Simmer on low, all together for about an hour. Wow, this sounds delicious, I think I'll have to get some apples this week. Bon appetite! Margeaux
What I had written some posts ago about the sleeping arrangement, is totally off the charts! Well my sister did end up letting that caregiver go, (the one who wouldn't sleep w/mother). My sister was also saying that since mom is sleeping a lot during the day, which she does on the couch in from of the tv, this caregiver was also not wanting to cooperate to do like light housekeeping and was basically just sitting there next to mother watching tv.
Well, this niece is a case! She's there as I said watching her sister's 8 mo. old baby at mom's house. So this weekend my sister mentioned about her what a wonderful job she's doing caring for her nephew. This girl apparently has taken some time off from going to college to do this. My sister also said, that my niece had said, "He's my baby." When my sister said this, I said, "Oh, Oh," as in she's also going overboard, and I wouldn't want my other niece (her sister) to get wind of this, because you know how this could cause jealousies. I think this kind of attachment by the niece to her nephew is rather unhealthy. But you see, she has my sister to thank for this attitude, they're possessive types.
O.K., Emjo please let me know if and when you make the chutney.
I hope things are calm for you. Thinking of you, Much Love! Margeaux
MARGEAUX: I know about sister's making you have bad judgements. Mine is a really dilly. And about the chutney recipe you gave Emjo. I really think it sounds delicious. Have never had chutney. gonna try it and let you know. I am trying to fall asleep. Gettin harder and harder. I bet you guys may be snoozing now. hope so. God bless you all and everyone. Good night.
I'm very sorry to hear about Gary's son.
He will definitely be in my thoughts! Much Love & Light to you & yours! Margeaux
My sister is too much at times. On the one hand she's very good at administration of the caregiving, since she's been in charge of mom for last almost 4 yrs. But she enjoys too much drama, and is a complete control freak, so this makes it hard when I go there to relieve her. She doesn't really know the meaning of working together as that would take away the controlling factor she so enjoys. Just curious, what's your "dilly," sister like?
Good, I'm glad you w/make the chutney. I've had this recipe in my collection,
but still have not made it. Well Thanksgiving is around the corner, so maybe it's time for chutney! Enjoy, Bon Appetite! Margeaux
In many families this responsibility does fall upon the women.
I don't want to generalize either because if you read other threads on this site,
there are men who come here and tell of their involvement as caregivers are concerned. In our family we are two daughters and two sons. The hands on caregiving has definitely fallen way more on the women than our brothers.
My sister lives w/our mom who has ALZ. I go there to relieve her. As Emjo has suggested to you, is there any help available to you other than your brothers so that you can have a break? Many factors can make this difficult, and if you're saying your family was never that close, well it's hard to imagine that the guys are going to step up to the plate at this point, but usually this unfortunately is the way it plays out. In our family, our brothers were somewhat looked up to, just because of their gender, so my sister and I learned early on, our pecking order in the family. We too are older than my brothers so we had to take care of them.
Anyway, we are with you on this, as been there done that, and please come back here to share your story, because it does help. Much Love & Light!
Margeaux
I find that comment about your mom being able to live her life her way, interesting and even self serving on the attorney's behalf. Sure, this is after all your MOM'S attorney. But I completely disagree on the level that, well now I'm probably going to sound philosophical. As we all come to learn, especially when it's about caring for elders.....THEY NEED OTHERS HELP! The sooner the one needing the help can sign onto this thought, the better hopefully their life w/be also. There's got to be more of a cooperative mentality when it comes to this, as I've discovered even in my situation w/my sister. Yes, mom even though I've described her as not being outwardly combative, nor difficult right now, before the ALZ, she had already put many things in order as far as her property, the selection of POA's and all of that. We too had to suffer as a result of this, and her sister's awful behavior while she was alive.
So I have felt this playing out, especially now that she can no longer be in charge of herself. This factor definitely hasn't made it smooth sailing many times. So I understand the frustration you must have felt that day talking to her attorney.
This is the frustration I experience w/my sister...I'm trying to help at whatever level, but for the controls she in her mind must have, oh well possibly I could be of more willing help over there. But I know my sister has inherited the divide and conquer attitude also.
Well you will see, I feel it won't be long before you'll be writing in a different vein, because whether the elders realize it or not, things do change. I hope the selection process about the insurance goes well.
Is this the Calaveras out by Yosemite? If it is, this is beautiful country, I've been there many years ago. Much Love, Margeaux
How are you? Please first and foremost of all do take care of yourself.
You have obviously gone through more than your share.
Is there some way you can start to look for some kind of help, not from your family? A 24/7 situation with your mom is quite a lot for you to handle, even if you didn't have the health challenges you are currently facing yourself. Maybe your could look into organizations such as Department of Social Services in your area, for starters. You have come to the right place to share, and come back anytime! Much Love & Light!
Margeaux
Every year Wells Fargo sends out new insurance packets for the retired employees to choose an insurance for the next year. I am hoping that the insurance she currently has is still an option. Mom's co-worker, N, said she would talk with mom about the choices since mom still thinks my sis and I are 6 years old and can't help her with it, Lol!! I don't like to impose on N in this way because she has her hands full babysitting a ggson with autism. My mom has declined a lot in the last 4 months, and I suspect she will be incompetent within 6 months. At that time, we will probably have to call APS, and if they decide she can't live alone, even with home healthcare, we will have no choice but to place her. This not want mom wants in reality, but because of how things are set up with her attorney, it is most likely what will happen. Maybe I am dreaming, but I believe we have a great relationship with our daughter and will be able to trust her to act in our best interest with our finances. My mom's attorney also made it clear that when the time comes that mom is incompetent and my sis is handling her finances, he will be watching very closely to make sure there is no mismanagement of her money.
Yes, Calaveras Big Trees is in the Sierra's. It is very beautiful there. The dogwoods were so pretty with yellow, pink, crimson leaf colors. A ranger told us that they are not as vivid this year as Oct. has been unseasonably warm this year. We went at a good time cuz its been raining in this part of Cali since Sunday evening with snow in the mountains.
Well I have said enough about the situation with my mom, and we can only take it day by day and learn as we go along. I have to keep my emotions under control and out of the situation. Have a great week, wishing you well, and sending hugs!!
It was a freak accident, Sharyn. He has the best of medical care (his brother is a physician) but I wonder if there isn't another way to administer pain meds than taking pills that ruin your gut. It seems to me that injections would be preferable - or a pump, but what do I know? His options are getting more limited. I know the lawyer is just doing things by the book, but it is very frustrating when your mum needs help and you can't get it for her. Many children look after their parents finances with integrity.
angel -what sharyn has said makes sense to me. It sounds like there needs to be some intervention. Is there reliable documentation of the abuse? I know it is more difficult when she denies it. Has she had an evaluation for her mental state? I would think that is important, and may help you to get the right things done, even if mum defends them, if she is suffering from dementia for example you may be able to proceed on her behalf. APS should be able to advise you. Good luck and let us know how you make out.
Thanks for the prayers everyone. I haven't heard any more, but will update when I do.
Joan~The attny. is going by the book and I respect him for that, we just didn't care for the way he treated us, his attitude was more like we were a fly flitting around his head, Lol!! I would not want to be in my sis's shoes when she takes over the finances!! I am glad Gary's son has the best medical team helping him. I know nothing on how pain meds work or how they affect the internal organs, other than vicodin causing liver damage. I know you are hurting right along side of Gary. Hugs to you!!!
I will look this up, because really when this happened last Sat., it also occurred to me what if I had a medical emergency w/mom while I'm there alone, and I don't have her medical info., e.g., insurance. Come to think of it, my sister has never really left any of this info., for me.
It appears from my sister's stories about mother's behavior since our aunt died, that she's become at least more vocal in terms of what, and when she wants to eat. She also shows more of her stubborn side. I'm sure this is so since when my aunt was alive, she was so controlling, that mom just gave her power over to her sister. Oh, and I do remember how my aunt was constantly ordering the caregivers around to do for her and mom. My aunt was so bad, that whenever mom fell asleep during the day on the couch she would wake mom up and tell her that she shouldn't be sleeping so much, if you can imagine.
Well this episode my sister had about the ice cream, while I do understand anyone trying to get an elder to eat food, before they would eat desert. I think this was really in part that my sister still has a lot of resentment towards mom, not only on account of some of mom's past narcissism, but also mom's sister's. I admit, I have some of this also towards mother. But I have decided that now I need to let some of this go. Mom at this point isn't going to understand any kind of other behavior w/ALZ. She's like a child now. It is what it is. Thanks to people like my dad and grandmother who taught us that we should care, I have chosen to look at it this way. Move forward, instead of getting too stuck in the past.
Thank you, and I agree that if one can make it any easier for an elder to cooperate, that makes way more sense to me, instead of creating combative situations, for what? This serves no purpose. While our aunt was alive that's all that ever happened over there at mom's house.
It must have been difficult for you to eat meat with braces.
Yes, we only take it one day at a time as you've decided to do with the attorney.
Good approach, Sharynmarie. Much Love, and Hugs! Margeaux
Take care Margeaux, and get all those #'s you need by bypassing your sister on it.
Hugs to you!!
Well you've figured it out! How great when one can not take things personally.
This is one of my sister's biggest pitfalls. Yes, I realize she lives there, but she's not w/mother 24/7, there's quite a bit of help. I have given my sister credit too, because I know she's done a lot, and is good at administering for the caregiving, something I feel she's way better at, than I. But she takes too many things personally, instead of looking at things the way you have chosen which is much more emotionally efficient. I'm about someone has to behave like the adult, and it sure isn't going to be mom.
My mom still can feed herself. She moves around much slower than she did about a year and a half ago, but w/assistance of a walker now. Finally she's realized that she can keep her balance by using it consistently. She still dresses, undresses, and can use the bathroom on her own for now. So in many ways she still is mobile w/in certain limits, but pretty good for a 91 yr. old, I must say. Her appetite is pretty good also.
Even the other night while I decided not to go through making her go to bed at say 8:30, or 9:00 because of the noise, I thought, oh well so she goes to sleep later.
But she sleeps a lot during the day. Sure I lost sleep that night, but it was o.k., I don't live there. It's good to remind ourselves not to make everything a federal case, or we stress ourselves out even more unnecessarily.
Hopefully your mom won't go losing more items. One day I was there and she and her sister had these small bean bag style neck cushions so one can lean their head up against the couch. My mom had her's and her sister's around her neck, so she had two. It was quite comical. Anyway, these are things that amuse me,
'her too, so she's participating even at that level.
I'm probably going to meet our newly appointed woman police chief in our city tonight w/my lovely neighbor at a town hall style meeting. After that I'll have some dinner ready for us to eat. She's a beautiful neighbor I have taken under my wing; her daughter ignores her. Have a great evening! Much Love, Margeaux
His injury is due to a window blowing out of a building in New York, and falling on his head. The law suit has been dragged out. There was to be a disposition on New York over the accident today. There are 14 claims outstanding. Apparently he has been able to keep up with some studies at the college in Calgary, but this will set him back of course. Gary’s boss and coworkers are very supportive, thankfully. The next few days will see which way this will go. I feel so badly for them all, and am thankful that Gordie did not go through this pain. Again I so muc appreciate your prayes and support. (((((hugs))))) Joan
Not nice for the lawyer to be so suspicious of you and your sis. I think you are doing well with your mum -sounds like there are cointinual adjustments to make as she declines. It is great to see some humour in her losing things - reduces the stress.
margeaux - it is good your mum can do so much for herself, and that you can see the positives in what your sis is doing, even if she is a control freak, Hope you had a good time meeting the new police chief with your neighbour, and a good meal after. How nice of you to take her under your wing!!! :)
hope everyone is having a good day ((((((((hugs))))))))
How are you doing?
I listen to many health programs. Many talk about how medications really wreak havoc on the stomach. I'm just wondering after all of these pain meds if this has possibly contributed to this. I did a big chant for all of you today, and w/continue to do so.
Yes, mother even given her age can still do quite a few things for herself.
I look at this as a blessing no matter what!! Yes regarding my sister I honestly try to put myself in her shoes. She does have more of a nurturing quality about herself. Her emotions run deep, she's a water sign. I'm an air sign, so do better intellectualizing things. But sometimes my sis's emotions really go a bit too deep.
Oh my little neighbor girlfriend. We became friends out of a weird circumstance.
A few years ago, our landlady from hell tried gave my then boyfriend who I was living with and our two doves a 3 day notice. Anyway I later married him, first and foremost because I love my guy. Then I could live here w/him. But our birds,-no.
So my husband asked our neighbor, who he'd been living next to for about 10 yrs., but hardly knew her. She has allowed us to keep our doves in her studio. So we go tend to them daily, and she and I have become really good friends. She is from Holland, but living here about 50 yrs. now. As I said, her daughter is one of these "educated," types. But when it comes to feeling, like really caring about her mom, who is a very cool woman, the daughter is out to lunch! My neighbor is in the ageline now where someone has to kind of watch out for her. She's such fun, that I love it. Right now her doctors are trying to load her up w/too many pills because she has high blood pressure, and now the bozo prescribed her water pills. So I invite her for walks, and dinner, and we have a glass of wine. It's all good.
Anyway, take care Emjo, thinking of you & yours! Much Love & Light, Margeaux
thanks for asking, margeaus. I am tired but OK.
here is the latest on Clay, and it is encouraging. I am copying and pasting from another thread as I am tired. Hope you will forgive me that. I will get back to posting more soon. Hopefully life will settle down a little.
Latest update on Clay: Things are as good as they can be, praise God. Clay is up walking around, and in good spirits. His doc is waiting on test results to see if they can start to get his digestive system working again. Right now he has tubes draining everything out, and is on iv hydration and nutrition. The emphysema was particularly extensive, but the gas will reabsorb in time. His lungs are not damaged as far as I know. He is not on disability, and I have suggested that Gary look into that. This family is so used to being self sufficient, and working for what they get. He should be eligible. I am now including in my prayers healing for the family due to the divorce, as well as healing of the pain. It is needed. They are pulllng together through this, praise God again, Thank you, Jesus.
And thank you all for bearing with me, and for your prayers and support. I gave faith that God is working in this to accomplish His purposes. Gary is touched by the concern others are showing,
Love you all - Joan
Thanks sharyn - the tests came out OK, and he was started on broth today. Looks like he is on the mend, other than the headaches. I will know more tomorrow. Clay was an athlete before this all happened,a few years ago, which will stand him in good stead re his recovery. The men in Gary's family are a tough bunch. Hopefully life will settle down for a while.
I haven't been in contact with mother but she found some old emails from me on her computer, and thinks I just sent them - good enough.. Sometimes if you just wait it out, it sorts itself out. I have needed a break from her and still do. I am tired from this all. Still working on getting Toonie back in shape - I have bought him some raw food to add to his diet, and hope that will help.
It snowed quite heavily here for a while. I am glad Gary will be back soon to do some snow removal! My car is covered. I am ready for spring now!!!
Hope everyone has had a good weekend, and are ready for the coming week,
Yogi, I'm really sorry about the situation with your mom and how spiteful and mean your family are. HUGs to you!!!
sharyn - I love the summers too. 70s is about right. Love flowers, like rain and fog in small doses. Today it is a black, grey, and white world out there. I like colour, and we have too many months of wearing winter clothing with dark colours, and no colour outside either. I am trying to figure out how to brighten up my winter wardrobe - to help brighten my mood. You wrote earlier about being more "daring" with colours. I am working on that with accessories, nail polish etc. Anything to add some colour!!! When I put my pic up again, you can see the ridiculously large dangly purple earrings -all part of the fun. How is the photography going. I miss your pics on fb,
During the night, woke up early again, I got in touch with a lot of anger. I am just plain mad about having all this stuff to deal with, and having had so much to deal with all my life. And that it doesn't look like it will end soon. I know I need to deal with the anger. Probably writing it out is a good idea. Seeing my counsellor today, and we will talk about it. I am ready - more than - to be rid of it.
Hope everyone is having a decent day. ((((((((((((hugs))))))))))))