Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
I wish to be primary caretaker for my Mother who has first to second stages of Alz. Battling with siblings who wish to have her sell home and be placed in either assisted living, or nursing home.
She has repeatedly stated she wishes to stay in her home. I am POAHC while other sibling is in charge of finances.
WHO ultimately has the final word?
Depending onthe sibling who has financial control- does she have the control NOW or when mom is diagnosed as "Unfit"? If sibling has control now, he/she - if spiteful - can refuse to dish out the cash for your mom's maintenance/cost of living. They can say - "since you refuse to put mom in Asst.Living/NH, then YOU are responsible for all of mom's cost." I will only touch the money for mom if you do it MY Way. (I read this from one or two posters here!!)
Your mom, at the moment, has ultimate say on her life.
How about you and your immediate family have that very personal dinner the night before xmas? Or order take outs and bring it into your hotel room and exchange Personal gifts and talk, catch up with each other? Then you and the family will celebrate again as the clan celebration ON xmas day?
Mom has repeatedly expressed her desire to stay in her home. She may have her POAHC implemented, yet is not so confused as to be able to obviously express her desires. Which, hopefully, WILL be considered for her living arrangements. I certainly would hope my wishes were considered when/if this time comes and not be thrown into an institution despite my wishes.
There is no place like HOME!
you too - cmag it should not be a marathon. I love your idea -sounds wonderful. I remember one Christmas after I separated from ex and things were going to be different, thinking that the real gift is Jesus, and the others don't matter that much.
austin - from Canada you are very welcome - glad we could help. Hope you have stress free hols too
luv mom - welcome - It may be very expensive to keep your mum in her home as her disease progresses, and I can see that the person with financial POA has to be involved with the decision, to make the best use of the resources. You may want to look into what will be needed. At some point your mum would need some one there 24/7. Does she have the resources for everything? There are people who have done it, so it is possible, but usually the person is cared for in their own home by a spouse or other family member, as far as I can see. It certainly would be good to keep mum in her home as long as you can.
closetotheedge - how are you doing?
I have found over the years that traditions are made and sometimes left behind, and new ones made, as people and circumstances change. Hope everyone has the holidays they want.
My dad has decided to split my inheritance between me and our boys. That's interesting.
She has an eye test appointment in the am and on Wed. is to go into pre-op for her upcoming knee surgery on December 6th. Then, to top it all of, we are to go to see relatives for Thanksgiving on Thursday. I'm not sure we have any business making that trip.
How are you and yours? This is great that you and Toonie can hybernate.
It must be cold your way.
Well I still have yet to resolve some problems with my email, have not been able to read them. Overall I've been doing o.k. The reason I had posted that I was not looking forward to the Thanksgiving, is because prior to the recent birthday party my sister helped her daughter plan for the grandson, there was of course the drama. Oddly enough, it involved the very same cousin who rode w/me a couple mos. ago, to the family gathering. My cousin D, was invited to this party and there was an rsvp. First thing was that D rsvp'd. Then she called me to see whether she could ride to the party w/me and my husband. To be quite honest, I felt a bit cornered by D's request to pick her up. She lives a bit out of our way enroute to where they had the party. But I said yes to that. Then a week later, I received a call from my sister saying that D had canceled out on the rsvp, stating that D's excuse was that she was going to her own grand kid's birthday party.
Well this didn't go over too well w/my sister. Actually, I thought this was rather rude on my cousin's behalf. She could have been way more general w/her excuse. Anyway, by way of these events, of course I started to feel in between my sister and D. They used to get along better. Recently though there's some rumbling going on between them. D's daughter, our younger cousin is currently dating a widower, who used to be married to our older cousin. Of course, this kind of news would tend to raise eyebrows I'm sure in many families. But apparently D, had shared info. w/my sister about her daughter and the widower.
He's a very nice man, is still included w/in the family even though his wife has been deceased about 13 yrs., now. I wish I could say the same, for the cousin he's dating; she's quite the user. D told my sister that he'd bought her daughter a leather coat, and that he was taking her on a cruise. Anyway, my feeling when the birthday party drama was happening, that my sister beneath it all is jealous of this dating-cousin, and of course it's put some kind of wedge between my sister and my cousin D, mom of the dater. Anyway, I did what I had to do to circumvent becoming the baloney between two pieces of bread. Now, as a result of that, I haven't been minimally in touch w/my sister. I'm trying to create a safe distance between us. But we will all gather at mom's on Thanksgiving. Since I'll be there the least I can do is, hopefully arrive there free of mind games, and just enjoy the day! Well, I'll manage, and thank you for asking about me, Emjo. Much Love, Margeaux
I read about your plans for Thanksgiving. Isn't it crazy, how we put ourselves through so much stress for these holidays? This must be a tough spot for you, especially the way you've described your MIL, the narcissist. Then I am aware of your wife's health issues right now. I know, it's as if we feel obligated to say yes to people in the family, yikes! Well no matter what, take some deep breadths, and if you do decide to go try visualizing a lot of hearts and your MIL's image before you go. Much Love & Light! Margeaux
It is quite stressful to do the running from family to family during Thanksgiving.
Yes, and once people have kids, I really think it makes it very tough on the parents and the children. I know my brother and his family used to show up every Thanksgiving, after they'd been to the wife's side of family. My sister in law would say, the kids were tired at some point, and wanted to have their own turkey for once at home. Their drive is rather far from both grandparents home.
Sharynmarie, don't be so hard on yourself. I don't have kids, but my husband and me have never made our own turkey either because we are always invited to mom's, and yes it's the "it may be mom's last." But I wish also, at times to make our own turkey, and invite some of my other friends over.
Oh boy, so you did this fifteen years, and your in laws were saying you kept your kids away from them? Please don't feel guilty about that. One would think that people might learn to behave in much more gracious ways, so that we may continue to want to go to their homes for the holidays. But I'm sure they never gave that a thought.
Well I'm hoping that you can continue to get the life insurance policy for your mom continued. Much Love & Light! Margeaux
PS Still can't talk/see my mom. I'm at my wits ends. I guess I just have to let things go and know that while I had her live with me then helped care for her while she was with her BF, I did an absolutely wonderful job in caring for her.
WOW!! I failed to read the post where you said your wife had injured her foot on the boat. I totally agree with Sharynmarie, maybe you might want to talk to your wife about making a trip as such. This could put a lot of stress on her body, riding so many hours in a vehicle, no matter how comfortable it is. You're in my thoughts, Much Love & LIght! Margeaux