Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
My dad had a 3 hour psychological evaluation last week and is sure that he failed it, but will not hear the results for two weeks. He is now using a walker out of fear of falling and he told me tonight that his wife's mind is declining quickly plus she does not have much longer to live with her pulmonary fibrosis.
My mother remains the same and just might outlive us all as my dad claims, but who knows.
While I listen, I don't think I respond as much like I did at one time for either someone has already made a great response or I don't have the energy for it or it hits so close to home that I just might say something very blunt which is not my usual style. I'm glad to have started this thread back in January of this year and see how many people it has helped! I'm glad for this whole site which I think joined back in 2010, left and then came back again.
Love, prayers, and hugs for all.
I had talk with my dad about things going on here and he tells me to get rid of the liquor ...like i was being accused of being wasted every night..totally false which is why I made the speech I did on the other thread. It hurt me to think that even my other friend made such statement. I grew up with 2 abusive fathers with verbal attacks and physical punishment ...guess what they both drank while my mother as much as i have forgiven her for the past just let the abuse happen to her and us kids. The only person that never experienced what we went thru was my half sister who I barely know except that she is somewhere in california. I apologize to my twin not to long ago..i found out her fourth has aspergers and she is on bedrest with her 5th pregnancy at her age given she has a heart murmur and everything else. I now see how i develop my anxiety disorder and back pain is not helping much..tonight i got to get hubby cleaned up soon he has appt on dec 6th to see the cardiologist. I haven't change but with all that I am dealing with is unbelieveable..I been dealing with CPS ...claiming that i am neglecting my kids...personally it's all bogus but now they want me to do this or that ..or they will remove our kids...I have done nothing wrong and they are going based on a report from indpls that is over 5 yrs old and harassing me so i am in the process of fighting them with my own wits and complaints. I do anything and will die for my kids to protect them...they do not know that i would take a bullet or worse for them because that is the way I am.
Me & Hubby did the Happy Dance Tonight!!!! Woo Hoo. Plus my Cowboys won so I'm looking forward to a great week. Thank You all for listening & for all your advise & encouragement getting me to this point.
Sharyn, I see you have those days like me sometimes. At least you get to leave. Next time mom calls ya, maybe consider giving her time to look for the stuff that she loss so you won't waste any of your time n gas. Looks like you had to go back anyway to balance the checkbook. It was funny about the dog n her in the seat. gotta luv it.
Everyone take care of yourself.
Cmag, saying a prayer for you n sorry your wife n dad r not doing as well. I can see why u have the 'man-cave.' I kinda of wish I had one but a woman-cave. Today was horrible with the mnl. ah!!! trying to get her to take a bath for its been a wk n one day since last one. Plus, she hasn't washed that hair over a month. She is capable of doing it herself n walks just fine too. It is just the arguing with her to get it done. You can only use that leave - in shampoo for so many times before that nasty ass scalp needs washing. Maybe I should consider shaving her head bald then she won't have to wash the nasty crap! Just joking everyone, for I never would do that to her. But it was funny for the moment.
KEEP THIS IN MIND WHEN THOSE 'REALLY IMPORTANT' PHONE CALLS COME IN!!
Warning From Shell Oil Company
Please send this information to ALL your family & friends, especially those who have kids in the car with them while pumping gas. If this were to happen, they may not be able to get the children out in time.
MUST READ, EVEN IF YOU DON'T OWN A CAR.
Safety Alert!
Here are some reasons why we don't allow cell phones in operating areas, propylene oxide handling and storage area, propane, gas and diesel refueling areas.
The Shell Oil Company recently issued a warning after three incidents in which mobile phones (cell phones) ignited fumes during fueling operations
In the first case, the phone was placed on the car's trunk lid during fueling; it rang and the ensuing fire destroyed the car and the gasoline pump.
In the second, an individual suffered severe burns to their face when fumes ignited as they answered a call while refueling their car!
And in the third, an individual suffered burns to the thigh and groin as fumes ignited when the phone, which was in their pocket, rang while they were fueling their car.
You should know that: Mobile Phones can ignite fuel or fumes
Mobile phones that light up when switched on or when they ring release enough energy to provide a spark for ignition
Mobile phones should not be used in filling stations, or when fueling lawn mowers, boat, etc.
Mobile phones should not be used, or should be turned off, around other materials that generate flammable or explosive fumes or dust, (I.e., solvents, chemicals, gases, grain dust, etc...)
TO sum it up, here are the Four Rules for Safe Refueling:
1) Turn off engine
2) Don't smoke
3) Don't use your cell phone - leave it inside the vehicle or turn it off
4) Don't re-enter your vehicle during fueling.
Bob Renkes of Petroleum Equipment Institute is working on a campaign to try and make people aware of fires as a resul t of 'static electricity' at gas pumps. His company has researched 150 cases of these fires.
His results were very surprising:
1) Out of 150 cases, almost all of them were women.
2) Almost all cases involved the person getting back in their vehicle while the nozzle was still pumping gas. When finished, they went back to pull the nozzle out and the fire started, as a result of static.
3) Most had on rubber-soled shoes.
4) Most men never get back in their vehicle until completely finished. This is why they are seldom involved in these types of fires.
5) Don't ever use cell phones when pumping gas
6) It is the vapors that come out of the gas that cause the fire, when connected with static charges.
7) There were 29 fires where the vehicle was re-entered and the nozzle was touched during refueling from a variety of makes and models. Some resulted in extensive damage to the vehicle, to the station, and to the customer.
8) Seventeen fires occurred before, during or immediately after the gas cap was removed and before fueling began.
Mr. Renkes stresses to NEVER get back into your vehicle while filling it with gas.
If you absolutely HAVE to get in your vehicle while the gas is pumping, make sure you get out, close the door TOUCHING THE METAL, before you ever pull the nozzle out. This way the static from your body will be discharged before you ever remove the nozzle.
As I mentioned earlier, The Petroleum Equipment Institute, along with several other companies now, are really trying to make the public aware of this danger.
I ask you to please send this information to ALL your family and friends, especially those who have kids in the car with them while pumping gas. If this were to happen to them, they may not be able to get the children out in time. Thanks for passing this along.
I am greatly concerned about whether my mother's 'after 5' behavior is purely from the alcohol or God-forbid, dementia [this is the very first time for me to 'say' this out loud so-to-speak]. I am noticing increasing memory loss and am stressed beyond words. I have participated in Al-Anon for years & need to re-visit [it killed my father so I have seen how awful this addiction truly is—both parents for my entire life] and must add that am estranged from my siblings who are in denial & like to feel I am here taking advantage of my mother because it is so much more convenient for them in terms of NOT DEALING w/ THE ISSUES!!!! I am the handyman, honey-doer, lunch date, ceiling fan cleaner, chef to the stars, safety officer, crime watch captain etc…
Two nights ago my mother & I argued over an issue re: her forgetfulness and she was inebriated—I must add, it was more like me pleading for a lucid response which I know I cannot get from her in the evening but is the only time we have to talk since I work full time [w/handicapped adults]. I asked why she does not get her hearing checked [the tv is BLASTING] & she blurted/screamed that she is taking care of/worried about her eyes first [macular degeneration & retinol folding] which entails finances. I have asked her repeatedly to please let me know when she needs additional $$ for the Dr. appt's & rx's BUT SHE WILL NOT DISCUSS IT & chooses to drink it away every night making physical matter much worse than they already are. Please note that I do pay rent & for groceries & my finances are limited as well. I have approached my siblings MANY times but my mother makes me out to be 'dramatic' and again, polarizes my siblings, allowing them to remain [inactive] as they are as well as target me. I have tried EVERY approach I can think of & have even asked my mother to participate in mobile crisis counseling w/me which she vehemently refuses. I am interviewing for a second job next week but come home so exhausted from work that I often go to bed before 9 pm, also to avoid witnessing the drinking. I am perfectly miserable in this house & need to move on but am TERRIFIED that when I am not here to turn off burners or GAS that has been on all day or all night after I go to bed she will blow this place up and/or the neighbors—not to mention her falling inebriated in the nightly tub w/her glass container cocktail! To top things off, she told me the night we were having our 'heated' discussion—out of the blue—that if I lost 20 to 30 lbs. I would extend my life span—this was NOT a supportive remark, but rather hateful & biting. I have been very honest w/her about my deep upset & frustration about my [early] post-menopausal weight gain and just recently had my thyroid tested—next is hormones [hmm stress-related???]. It was so hateful & I am so very deeply hurt by this that we are not speaking [again]. She drove to her twin's home 50 miles away [just moved that FAR AWAY!!!] where she will spend the weekend & drink heavily w/her! My aunt also finds it most convenient to villainize me, as does her husband—sick, sick, sick dynamics & DENIAL. I must add that the binding force might well be that I am the ONLY family member that participates in Al-Anon which rattles them ALL to no end! Perfect alcoholic dysfunction!
So, do I hoard my $$ so that I can move out [while feeling horrifically guilty for not turning over all but what I use for my personal bills]? Do I rent a small apt. nearby for respite—again feeling guilty about not handing this $$ to her? I am @ my wit's end & the new 'hateful' behavior is more than I can put up with on top of everything else!
I am a very intelligent, well-educated individual but I also know that I suffer w/what I call Wonder Woman Syndrome. How do I prepare myself for 'that call' if/when I move out?
I have responded to so very many topics and am so very resourceful. I guess the proximity, history & emotions involved render me ineffective when it comes to my own mother. I am so isolated, have zero social life nor the energy for one & feel like I am 'whining' and/or not 'something' enough [self esteem has taken a huge hit!]. I will be signing up for counseling this week w/o fail!
The amazing people involved in this forum have offered such loving, supportive input, so in anticipation—THANK YOU.
If my mother [siblings/family] would just say thank you, I'm sorry, nice job ONCE IN A WHILE…or once.
I haven't posted in a while, been sick with bronchitis/sinus infection. I did work yesterday but I called off today because I am still coughing a lot and that does not make good customer service in a bakery/deli, Lol!!
Cmag~I am happy to hear your wife is doing well after the surgery and walking, exercising. I hope you get some time for yourself as it has been a long haul for both of you. It sounds like you have awesome neighbors that are looking out for you. Take it easy and things will get better soon!
Thank you for the hug y más—I needed it far more than I realized & am now just bawling/releasing. You have so lovingly told me what I needed to hear [be reminded of…] re: detachment & boundaries. Re: finances, my mother is struggling significantly and will only share her [dire] needs after prolonged probing which complicates matters greatly. My brother [the doctor] literally makes millions & could make my mother perfectly comfortable BUT is TIGHT as the day is long. My [alcoholic] deceased father's estate could also be dispensed in my mother's favor [even though they were divorced] but the aforementioned 'tight' brother/executor refuses to do so—even after YEARS of requesting such. I strongly suspect his wife is also behind this [another discussion!]. What is so very, VERY sad here is that my mother sacrificed immensely when my parents divorced & DESERVES differently. When I asked my brother [super nicely] for a financial report of the estate [AFTER 18 YEARS w/NO REPORT WHICH IS ILLEGAL!!!!] in May, which also bears my name, I understand he was soooooooooo furious that he refused to allow me to see my nephews [that I've NOT SEEN SINCE!!!] or deliver his father's day gift—thus 'this' estrangement.
So, I am going to tap into my retirement & give my mother a chunk as soon as I possibly can…as well as move out, but probably not realistically until summer after a certification course I'm planning on taking next semester. OY!!!! I am going to send my résumé/cv to a local real estate agent in hopes of securing a guest house/garage appointment for respite or a cheap studio so I create some art & process this stuff! [I'm primarily a studio/fine artist and über sensitive to begin with!] but, I'm having a really difficult time spending the $$ that way—I need [expensive] dental work, a new [for me] car & must pay the estate attorney. I will contact a counselor w/o fail this week and/or find a new Al-Anon group. There MUST be light somewhere @ the end of this tunnel!
Thank you ALL for your support—I'm feelin' the love!
I read the post about you and your wife's update. Well I'm very happy for you things went well with the surgery. Ginger is very good for nausea. You can buy the fresh one, cut the skin off a small piece and wash it. One can chew on it. I've tried it, and it works for the queasy stomach feeling. If she doesn't like it that way, then you can do same,, only make in a tea. O.K., my man, do get some rest, man cave time! The two of you are in my thoughts, Much Love, Margeaux
How are you feeling? I suffer a lot from sinus problems.
I do nasal washes, you can look it up on internet how to do them, and believe me they help. What I do also is I make chicken soup w/fresh ginger, even the dried version works. There's something to this combination that decongests very effectively and it tastes great. I hope you feel better, and yes you probably didn't feel too presentable amidst the cookies and cakes.Oh, and sugar seems to exacerbate the sinus condition, probably also because it wrecks the immune system. O.K., feel better and let your mom lose whatever articles she's losing at the moment. if it really isn't major. Much Love, Margeaux
Just yesterday, I have Finally went through my Wall Post thanking every person who posted encouragements. Today, after work, I will backtrack to where I last left off here and catch up with everyone's current life. I'm not 100 percent back to normal and I don't think I ever will. But, atleast I'm back to free flowing writing - no more type, erase, type, erase (ugh!! It just drove me crazy doing that!!!)
This is what I found - Both is important to do:
1. Drink warm 8 oz of water with 2 TBS of apple cider vinegar and 1 TBS of honey.
= Just to let you know, I can't stand drinking water. This concoction tasted Good! I drank it in the evening, I can feel my sinus draining mostly from inside. I did have to blow my nose a few times. I made a new batch the next morning, put it in an empty bottled water container and took it to work to sip throughout the day. Works with the draining. This Drains Your Sinus.
2. Nasal Wash
= I can't find a neti pot here on island. I never did get around to ordering some online. This wash will Clean the Inside of your nasal. #1 drained it, #2 cleans it.
= Important - when using the home remedy wash (to cut back the expense), use Distilled Water! Seems some people did not and ended up with serious infections on the head or brain. I think 2 people died. Distilled Water, very important!!!
Oh, I still have my right side infection. Never finished the draining job with the flushing of it. You just reminded me to order the neti pot.