My Mother is currently in a nursing facility which will probably be long term because of her age a dementia. I am with her practically every day after work assist with dinner - while I was there yesterday I nearly triped on the floor because it was cleaned up of crumbs - I had to ask for someone to sweep the floor and it got so that I said give me the broom I'll do it - I cannot complain about all of the aides as they are wonderful but a few I noticed will do only so much and that is it. I love to say something to my Mother's social worker about this and a few other matters but I'm afraid if I do there will be repucissions. Has anyone had this kind of a problem - if so I need some advice on how to go about speaking up and not stirring the pot!!
Be sure to compliment the good aides and if you can bring yourself to do it, find something good to say about the less than good aides
Sometime in my career I attended a brief seminar with someone who taught the "How to win friends and influence people" course. We had to meet a stranger, ask questions about him or her, then report to the group all the good things we discovered about this person.
It was a bit daunting at first - it takes a while to get to know someone well enough to comment on their personality, but with "say good things" as our mission, that was our focus. I actually found it a lot easier to do than I expected.
So, make finding good things to say about the unenthusiastic aids your mission. Ask about them personally - that alone is probably something that doesn't happen often. They're not well paid, expected to be available on demand for multiple patients, and have jobs that a lot of people wouldn't want to do.
Get to know them as people as well, then make a point to ask about their families, their interests, etc.
This part of your caregiver role is the Diplmatic one. Your role for your parent is just as important as the roles Hillary and now Kerry play. Take the approach that it's not "if" you can get through to the unenthusiastic aides, but HOW to get through. Turn it into a mental and personal challenge.
My father had a very good aide at the rehab facility when he broke his hip. I detected a Russian accent, did a little bit of research and then greeted her in Russian the next time she came in. I also thanked her in Russina. She was elated! She taught me a few more words, remembered Dad the second time I brought him there, and was a really top performer.
Bring food. Pretend that you want one of the less than enthusiastic aides to have it; he/she will probably tell you they can't accept any kind of gifts, so suggest it be put in the staff kitchen. That's what we did. Believe me, they remember patients whose families bring food!
There might be some staff who just can't be reached, but if you try your best, at least you've made the effort.
If after all is said and done there are still problems, you might try asking the aides if there's anything you can do to help, after sharing that you've observed how busy they are and how hard they work. Maybe it will work, maybe not.
I would be careful about complaining though, remembering that these aren't easy to fill jobs, have no career path, and are very difficult emotionally and physically.
If you do feel you have to complaint, forget the SW and go to the DON or other high ranking administrative person. You could approach it as that you've noticed such and such, don't want to make a complaint and wonder if there's anything you can do to help this person without it affecting his/her employment records. That approach might work more than just complaining.
Good luck.
So if anyone has an interest in hiring an aide you can contact your local hospice and ask if they maintain such a list. Senior day care and other agencies and often churches can put you in touch with people who like to do this work. it is of course up to you to do interviews and background checks but you will probably find people who do this work for the love of it not because they are desperate. Often retired nurses may do this during the summer and go south for the winter. Also if you find a good caregiver they can often reccomend others. If you have a good aide in a NH and need help at home they will often be willing to pick up a few extra hours.
I have made it a practice never to be silent when conditions in hospitals and nursing homes are not up to par,. So far, there have never been any repercussions.
Let them know you are observant and caring and that you will not tolerate second best for the care of your parent.
Always make your complaint to the highest level of personnel you can find. Knock on the door of the director of nursing; tell the visiting physician; tell the facility administrator. Do not be afraid.
Where cleanliness is the issue, and it often is, then have the chief of the facility visit the room with you and ask whether they would tolerate such conditions if it was their parent.
In practice, the higher up the tree you go, the more positive action will ensue.
My wife has been in three SNFs over the past three years, for post-surgical rehab.
I took her out of two: one because she had hit all her milestones set by her orthopaedic surgeon, and the second because it was filthy and uncaring.
The third SNF was a wonderful,caring place where she was treated like a queen. I told them before agreeing to have her stay there that I had taken her out of two others and explained why. I was told, "Give us a chance. If you feel we aren't caring for her properly, then at least talk things over with us before you whisk her away."
It was a very positive experience for her. If you are in Arizona, I can provide the name of the SNF. I recommend it without hesitation.
Please do not be cowed into silence. Let them know you care and they will also care.
Good luck.
My dad was in two difference nursing homes while he was recovering from surgery that went very wrong and he needed care beyond a hospital stay and beyond what I could provide at home. One nursing home was filthy, the poor people were kept lined up along the walls all day, my dad was bedridden and on a drip 24/7, he wanted to be there because it was closest to his home, I would show up every day at different times to check on him, he'd be soaking wet almost every time and I'd have to find someone to change him, I moved him to a better facility within two weeks. The second nursing home was much better but not great, they got him up in a wheelchair so he could wheel around, but they put everybody to bed at 7, not the end of the world but it was obvious it was their routine to make their work easier, keep everybody in bed, as a result dad ended up with a huge ulcer and gangrene on his foot from pushing himself around in bed, this was not treated properly and he ended up very sick from it. Active seniors don't want to be in bed for 14 hours.
His health has improved greatly, he's living with me now, so then we have the home health aides. First the companies have a hard time finding good people and it seems to be a back up career when there is no other work for some. We've had four in my home for my dad in the last six months. I've talked to others in my area who've had just as many for their parent or grandparent and no one can find anybody truly professional at the field. I've hired a health aide through a reputable company to work in my home for my dad while I go to work which is part time. Per the contract with the service they work for, they're suppose to bathe, clean his living space, do his laundry, cook his breakfast and lunch, give him his meds, transfer him when necessary. By contract even if we only need them for an hour, the aide has to be here for four at least, since we pay for four hours, I have the health aide do these chores for dad. Four hours is a long time. So one aide asked me how to change my dad's diaper and a week later dropped him on the floor when transferring, she didn't know how to do anything, and made a mess of his living area, she's gone. A second aide knew how to do everything and did a good job, but wouldn't unless you stood there and told her what to do as it needed to be done, as soon as I'd leave for work she did nothing. The third one did work and help dad, but she smelled like an ash tray and beer and dad said she cussed all the time after I left which he did not like. The forth one who still works for us, does a great job in comparison to the other three, she does her work very quickly to get it done and then spends two to three hours sitting on my couch watching tv. She goes through paperwork in my kitchen, bills, shopping lists things like that and has outright asked me questions about my private paperwork at my desk. She's great at keeping everything organized, but believe me it seems there's an added price to be paid when you have someone in your house who seems too good to be true. This woman tries to finagle anything she can out of us to get more than her hourly wage the company pays her. It seems the thought is if you or your parent can afford to hire a health aide or you have insurance to cover it, then you must have money. She's spent hours working on my dad playing on his sympathy about how little she gets paid, and how she just can't make it on that pay, she tells him this with her new car parked on my driveway, my car is fifteen years old. She's told us over and over "my other family I work for gives me things and lets me leave as soon as my work is done, they just go ahead and pay for all the extra hours I don't work". She tried to get dad's house from him, and tried to get him to finance it, did not discuss it with me at all until she wanted to see the house. I was beyond angry, but found it hysterical because my dad's house is actually going to be condemned, so I said sure, you want to see the house, let's go. She backed off. After this my kids set up a baby monitor in dad's living area so they can keep tabs on things while I'm at work, and the health aide knows it too. So now she's pressing more on getting her work done really fast so she can leave and get paid the extra hours anyway. I don't mean any offense to any nurses or health aides, hired caregivers who do good honest work, this is just our experience, so just saying and venting.
It is also important to remember that staff in healthcare facilities are often highly unionized so one had better not be seen doing another's job. Those crumbs for example fell under the care of "housekeeping" Think of it the way things are managed in a hotel. If room service brings you something and you need another cup of coffee he will jump to your request but if you tell him the light bulb is not working he won't get you another he"ll call up maintainance. That's just the way it works. if your request is not ultimately taken care of of course talk to a supervisor but try the nice way first then work your way up.
Everishlass paints a different picture and of course she is entirely correct but even then try and see both sides of the picture. Many of the aides work this very low paying job out of necessity not for the love of nursing. they may be older and just plain tired and have health problems but as long as they can drag their aching bodies to work there is no hope of disability and at the other end of the spectrum there are the young single Moms who go home after the night shift get the kids ready for school,snatch a couple of hours sleep then work a few hours at another job then back to the NH for another night. Be friendly get to know your aides and don't sit there like a statue when they are struggling alone with your loved one. offer to hold her arm still while they struggle to get a B/P when she won't co-operate. So it takes Mom an hour to eat the aide does not have an hour but you do. The aides have minimal nursing training so you can not expect the same level of expertise an RN would provide. By all means be warm and fuzzy but be watchful and pick your battles.
Most of the aides are doing a good job you say -- celebrate that! Thank them. Be nice. :)
Crumbs on the floor? Probably a battle not worth fighting (unless it is a symptom of overall neglect of cleanliness). Be friendly about your offer. "I'd be glad to sweep up this mess before sometimes slips on it, if you'll tell me where the broom is." That would normally get turned down and inspire the aide to see that it gets swept immediately. But if it is one of those days when they are swamped, do it yourself cheerfully. Lots of people volunteer to make the days brighter for residents. Consider it your little bit of volunteering.
Save your complaining for things that directly impact your mother's health, and be sure you are on solid ground. Note dates and times. If Mom says "I rang the call bell an hour ago and no one has come to help me" realize that 10 minutes can seem like an hour if you are waiting for help. Mom isn't lying but her perceptions might not be accurate.
If possible, vary the time of day you go there. Once in a while go in at lunch time, or before work in the morning. It is good to get a broader picture of care going on.
My 3 sisters and I each visit Mom in NH 2 to 3 times a week. She has visitors every shift throughout the week.. (I've even stayed over night a few times when she was having sleeping issues.) Among us, we know all the regular nurses and aides, and even the building maintenance guy. We compare notes. We agree that the staff does an extraordinary job. We are all pleasant with the staff, thank them, and I've brought treats in for each shift. When problems do arise, it is easier to resolve them together.
For example, Mom pulled out her catheter more than once. When I saw Mom in bed with no bottoms on I did not yell, "You idiots! Why are you giving her easy access to the catheter tube?!" Instead I said, "Hmm. Do you suppose she would not grab her catheter tube so much if it were covered up?" The young aide thought I was brilliant. She got out the pajama bottoms and put them on mom, and then wrote a big note about it and put it on Mom's bulletin board. Problem solved. Mom always had bottoms on and never took out her catheter after that. Yes, we could complain about that shameful lack of common sense, but all we wanted is the problem solved. And it was, with warm fuzzy feelings all around.
Pick your battles. And if possible, fight them with good will and humor.
You have to pick your battles very carefully. Find someone in management (like the Director of Nursing) you can talk to but decide first if that person is someone who is going to be discreet and professional before you get into anything.
If your mom tells you things that the aides are doing to her you can't take her at her word because of the dementia. A lot of "neglect" goes on in nursing homes but it's become standard practice. Sitting someone on the toilet for example. An aide will sit a resident on the toilet and leave them there while they go and care for someone else. Also, a resident may sit around in sopping wet pants for hours before they are changed. Our parents can't advocate for themselves so this is what happens. If a resident is in bed and would like to get up the aide may forbid it (I've seen this happen). Especially if the resident is a difficult transfer. Aides don't want to get people up and down all day long so if someone wants to get up and it's not close to a mealtime the aide may refuse.
Tread carefully. Be extra-special nice to the aides. Choose your battles carefully. It's a shame it has to be like this but this is the way it is. I'm sure there are some exceptions but being a nurse and having patients in nursing homes I've seen this over and over.