I find myself feeling very guilty when I feel the anger and hurt rise in me when my husband needs my help in yet another simple task. He was having difficulty understanding the new schedule of meds. for him, and asked me numerous times what the sheet he had meant. What was he to take and not take etc. I know it is a minor thing in the face of what many of you are dealing with, but I see what is coming and I think it scares me...
The short answer is, "Yes. Definitely."
I don't like those feelings, but I do get frustrated and even though I repeat over and over, "It is the disease...It is the disease..." I still have the feelings. I have never acted on those feelings other than perhaps a patronizing tone in my voice, but I recently contacted the Alz.org Helpline and now, that's who I turn to when I need someone to talk me down off the ceiling. And here, of course.
Just know that it is normal and you are among friends here. You'll be in my thoughts. Thank you for sharing so that we all know how normal these feelings are.
Both of them wanted to continue managing their meds (something they can continue to control) but invariably they would forget to take them or take the wrong day because they couldn't keep track of time or day. Worse, they thought they had not taken them and took a double dose.
Each had a sheet of paper and a timer to remind them of the established schedule. Unfortunately, dementia is a degenerative disease that affects the executive function of the brain - the decision making area. It is not that they do not want to do this correctly but they cannot remember how to.
Not sure what meds are being taken but it may be you have to step up and perform this task. If you work outside the home, maybe the doctor can prescribe dosages that can be given when you are home.
As far as what is to come, I recommend attending an Alzheimer's Support Group and learn everything you can about dementia. This site also has many people who have blazed the caregiver path successfully. They provide insight to the future and steps to handle it. You are not alone!
It sounds like your husband may be having difficulty in remembering sequences of instruction. I wrote down steps for my late father on how to use the remote, the radio, and other electronics. They were helpful (if he could remember where they were !)
Hang in there and continually pray for strength, wisdom, and patience. This is territory none of us have experienced before!
Onlygirl13