I am in the midst of all the rules, regulations, paperwork and headaches of getting my 89-year-old mom into nursing care. She never could have navigated this process! Mom had a little bit of money, so I sought out an elder care attorney to help me through the process. I will ask his opinion as well, but wanted to hear others opinion on how to plan for this for myself if I should ever get to the point where I can't take care of myself. I am divorced with no children and have no close relatives who will be able to help me. I am 63 years old. I am by no means rich, but I do have assets. What happens to someone like me when I get old? Who does all this paperwork and running around? What happens to my assets? I do have a will and POA, leaving things to a relative, but will they get any of that if I need nursing home care?
You'll probably want to save and invest all you can, and then make certain none of it goes for your mother's care; she'll need to go on Medicaid. With health care becoming what it is in this country (my last physical was almost like "yeah, your blood work looks okay and you walked in here under your own power" so they assume I won't drop dead before getting out of the building!), I'm thinking of becoming a "medical tourist" or even moving overseas.
At the same time, I sort of envy you for having a mother who 1) saved enough for her own long term care needs (I assume it's her "private pay" and not your money) and 2) even thinks about the fact that you have a future to prepare for after she's gone. My mother hasn't saved a dime and is totally oblivious to the fact that I will have nobody to take care of me like I take care of her. I have mentioned this to her once or twice and her response it "Oh, right!" She is so self-centered that my future needs never even cross her radar!
She also asks where I'm going to be buried, etc. and such questions make me uncomfortable but not because of a fear of my mortality but because I'm not really "wedded" to anywhere in particular (and plan to move when she's gone) so any plan I made now might be irrelevant a few years from now, as I could be living on the other side of the world by then.
I miss the old days when you could hire the neighborhood kid to cut the grass. Now the neighborhood kid is too good for that. They are driving around in new cars as soon as they turn 16 -- not really good for the kid, but it promotes the image around here in Birmingham. Makes me want to be back in south TX where image is not so important.
I really think the country needs to look to see if it is willing to throw old people to the curb so the rich can become richer. If they are, then it's not the USA anymore. All people can't be equal if only a small proportion of them matter.
Invisible, I see your point, and when my mother says she wants to die I feel terrible, and would never want someone I love to end it so I wouldn't be burdened. But I still plan on ending my life when all the joy is gone, when I cannot do what I enjoy, when every day is longing for the pain to end, if I can barely think and feel the lights going out, one by one, and know they never will come back on. I hope my daughter will understand. It won't be just to avoid inflicting caregiving on her, but to spare myself all that pain and suffering and regression. Hopefully I'll get cancer and then everyone will understand when I move to Oregon...
Priority "1, getting documents in order etc etc.......
~~living life to the fullest
smiling at people you meet
hoping for a euthanasia pill (that's ok for me but not sure about my loved ones taking one!?!?!?!) that would be sad...very debatable~~
But, dropping dead in my garden is what I'm asking God for 🌷🌹🌺🐓🐿🐾🌻🍄or mushrooming in the woods with ticks on me would be great also
😉
Love you all, thank your for being here for me!!!
As far as housing, there is a website for co housing. You could share a home, or neighborhood with others in similar situations.
Here is the site (if they will let me put it in) :http://www.cohousing.org/directory
Mom has a hundred health problems (except cancer other than small skin cancers) and has had a gazillion medications and procedures. She had a knee replacement when she was 77, and even then I argued against it, because her mobility was so poor that I felt it would compromise her ability to recover from surgery, which involves getting up and walking on the operated leg. (I was right and my siblings and I ended up having to fork over $4000 in charges for her rehab stay). Yesterday I was taking her to the doc for yet another procedure, and she mentioned casually that she is going to have to have "something done" for the knee that was not operated in 2008. I'm thinking "Mom, let it go, you're almost 86!" because I don't want to have to support her through another surgery and rehab. What I said was "What about pain patches?" She is going to bring this up with her doctor at the next visit and I'm praying the doc does not suggest anything involving surgery or more office procedures, because I'm already running Mom around to more of those than I would like. I know it's selfish, but I'm trying to have a life here. Trying to keep a job and have some vacation in the summer. It's not me or my siblings putting Mom through endless treatments. It's her own doing, supported by her doctors, who are always saying "Come back in a week." "Come back every three months." "Try this other procedure." Mom has basically nothing else to do with her life, but the schedule of medical needs is running me a little ragged!
I'm hoping I get cancer, then I'll choose no treatment and only palliative care and hospice, and I'll move to a state where assisted suicide is legal. If I ever get a terrible diagnosis like Alzheimer's or dementia, in the early stages, when I am still rational, I am going to Dignitas. It's an organization in Switzerland for death with dignity, and there I will end my life. The criteria in states that offer assisted suicide here are written so that only those with six months or less to live are eligible, which leaves out dementia patients. I don't want my last years to be spent rotting in some miserable nursing home. I'll travel, say my goodbyes, and leave with dignity, sparing my daughter the anguish of taking care of me.
I don't consider this suicide but end of life managment. Face it, we put people through agonies before we let them go, but the last loving thing we do for our beloved pets is take them on that last trip to the vet.
The attorney liked OldBob's suggestion to spend down by enjoying life. He said he wouldn't do more than I already have at this stage of my life but when I get in my mid to late 70s I might want to reevaluate everything. Of course none of us are guaranteed tomorrow, but for those of us who like to plan, just keeping our finances in order and keeping good (and easily assessible) records is the best thing to do.
Many people don't know much about how to plan for a regular helper to go to someone's house. I really believe it works well to make changes by degrees, and don't ask the elder to agree, for many refuse change. But just have someone go regularly to do a specific task, like make a meal, or clean rooms. Then have them stop and have tea with the elder person, and listen. That's a good way to learn what's currently relevant, and figure out ideas for additional tasks.
DO have a month long evaluation time for a change, evaluate it all and change the caregiver if it's not adding reassurance and help to the elder. So what if it's a blanket rate to go through this process - better than hiring people for tasks only, and not learning what would help at changing stages of life. So many times people just use professionals, but they don't often plan the flexibility above. And also plan for a 2-3 times a week trip out - anywhere, but regular.
I knew a smart, active woman who gave up her business at 75, and became a twice a week volunteer serving meals at her town senior center. Stayed visible in her town. Senior men who drive vans for seniors. I'm trying to figure out where I could live, when my life interests are in several different areas.
Choose 2 very reliable people to be your POA and MEDICAL POA. and fill out a FIVE WISHES FORM. This details how you want things done financially, physically, emotionally.
Think about what type of care and where you would like to live. Assisted living? Independent living? Nursing care? Care at home?
An elder care/estate lawyer can help guide you.
Bad case scenario - a single friend designated her 'pal' to be her POA and Medical POA.
Several years later she suddenly got very sick at age 63. In 2 months, he emptied her house and her bank accounts to move her into an expensive 'adult community' where she died just a few months later all alone in a strange apartment.
An Elder care advocate told us later she had gone to visit this friend and the 'pal', before the pal sold her out, and advised them to keep her in her home of 30 years and have a part time daytime person come in to help her around the house, prepare meals and check on her meds, other than that she could continue to live independently in her home for many months or years to come, with her pets and plants and hobbies.
Instead, the pal using his POA signed papers for a senior community and sale of her home (she never agreed to, and dementia was NOT an issue, he just did it and told her it was 'fait accompli') she ended up enduring a harrowing move, loss of her pets, plants and most of her hobby supplies (he paid a company - with her money - to empty out her house and he claimed everything was thrown out or donated - except thousands of dollars in silver and antiques and other expensive items and musical instruments were all unaccounted for) and she was moved into a tiny apartment in a community of people she didn't know 45 minutes from her home of 30 years. Now there were no long time neighbors to drop in and visit her, no pets to comfort her, no hobbies to occupy her. When she got suddenly sick - she was in bed for 3 days alone.
If she had been in her own home an attendant would have found her, or a neighbor would have been dropping by. A horrible and sad situation in a person she trusted. (who financially did quite well out of the deal).
PS - by the time she was found after 3 days, she went to the hospital and died 2 days later, because the damage had been done by her being in bed for 3 days with no care, no medicine, no food, no water.
PS Erikson was the adult/senior community he moved her into - there was a $260K+ buy in & monthly rent over $4K a month plus extra charges for every single meal or amenity they offered. (like $10 fee to take your groceries to the elevator for you, and a tip to the employee is appreciated).
Even after giving cash 'gratuities' to assistants,
her first month there they hit her up for a check for an extra $200 gratuity to give to the employees.
But when she was missing for 3 days - they never noticed or checked on her.
The side benefit of working is that you get to meet some great people. You get a bit of a social life, which I desperately need as I am stuck in my mother's state of Florida until she dies and all my friends were up north.
Keep thinking and adapting and hopefully you'll find a good spot for yourself. Good luck!
Thanks again everyone!