Moved Mom (at her request) from our home to assisted living in January. She likes the idea of her own “place,” but there are issues:
1. It’s EXTREMELY expensive.
2. She has a little dog, and it’s a struggle to walk him repeated times a day. Prior to move in we were told “care costs” could include periodic help before bed for dog walk, but at lease signing suddenly NOPE.
3. She hates the food.
4. She struggles with her phones—landline & cell.
5. Cannot figure out her TVs (Even got her a Flipper, ck out—only allows up/down scrolling of fav channels, volume and power).
and the big one…
6. The place isn’t living up to their contract... biweekly showering help, weekly laundry, encouraging social interaction.
I've had meetings with staff, nurses & director. Minimal improvement, then right back to problems.
I’m there 3-5 days a week. It’s just not working, and for the cost I’m EXTREMELY disappointed. My husband and I have decided she needs to move back in with us. I know she will be upset, but I need to know she is safe, eating and having her basic hygiene tended to. We updated our home 2 years ago for a 1st floor bedroom and full bath with walk in shower. Added a deck and separate door for her to sit outside.
I feel it’s the right thing, but I’m upset it will make her sad.
Any encouraging words?
If any of these include double incontinence, falling, wandering, tantruming, if she has a big d diagnosis, I’d strongly consider a facility transfer rather than bringing in all these problems.
Boils down to technology struggle, cost vs return on investment. Moving to another facility won’t change issues, and the ALs in our area are not the level of quality I’d want. Our home will be the best scenario with plenty of room,etc. I don’t want her slowly diminishing her money and in 5-10 years requiring financial assistance. I’d prefer her money be available if her health or cognitive issues decline and she truly needs help in a respectable situation. We’ve made what we believe is the best decision, I’m looking for supportive, encouraging direction from anyone similarly situated.
I’ve done my due diligence working with the staff, it’s just not working.
~Costs are a known quantity BEFOREHAND, and something your mother should be paying for.
~Walking a dog in AL by the staff is something that generally costs more; get that in writing before the lease is signed. "Periodic" walking of the dog is way too vague & suggestive of double talk.
~Twice weekly showers is the norm; that should also be in the lease and not something that's open for debate.
~If your mother is having THAT many issues with her phone & TV remote, it is suggestive of dementia. At 89, has she been tested with a cognitive exam by her doctor? Know what you're dealing with at all times in terms of mom's health, both mental & physical. It's not the ALs fault that mom can't work her phone & remote.
~Everyone 'hates the food' in AL, it's the law. If the elders have nothing to complain about, they have nothing to TALK about together at all. I know from where I speak; my folks were in AL for 7 years. They'll have good meals and bad meals, but always always dwell on the bad ones. Meanwhile, very few elders lose weight while living in AL. You do the math on that one.
~Stump the pavement & find a facility that has good reviews online; preferably one that's NOT corporate owned (if possible). Speak to the residents about how THEY like living there, and how long they have. Indicative of quality of life.
~AL provides autonomy for the elder and the possibility of a longer life. I have NO doubt my mother lived to 95 precisely b/c of the quality of care she received in AL and then in Memory Care AL.
~Find an Al that adheres to the policy that the social director comes to the resident's apartment to get them to come and join in on the activities every day; that was the policy at mom's AL. They discouraged hiding out alone in one's room.
~Don't force mom to move in with you b/c YOU think it's the better idea; allow mom to make her own decision. Get her a very simple remote for the TV and a very simple phone, too. If dementia is at play, find out so you'll know; with dementia comes the inability to work any and all mechanical devices at a certain point. In the meantime, write down instructions on a large index card for mom to refer to, which is what we did for mom with her DVD player; that worked well for a number of years before her dementia got bad. Same thing with retrieving voice mails and how to use the remote control. Having her push the button/pull the cord for HELP at the AL is another option when she has trouble with her devices.
~You being there 3-5 days a week defeats the purpose of her being in AL to begin with. She has to learn to adjust w/o your continuous help, and you have to accept that things won't be perfect no matter WHERE she resides outside of your home (which won't be perfect either).
~Let the new AL know that you expect the services that are included with the rent to BE PROVIDED to your mom. My mom's AL had a schedule on the back of her door showing her shower dates and times, and laundry day as well. That's the least you should expect, along with care conferences on a regular basis.
Wishing you the best of luck getting mom set up in a new place as she would like to have happen.
If so, this is not something I would do. Complaints are normal. It's basically what they DO in ALF from my own and my bro's experience, including institutional food and etc.
Were Mom to wish to come home, and monetarily this is how her funds can last, and YOU and your husband want this, then I am for it. But if one of those three deciding factors is missing I wouldn't do it.
Nothing is ideal. Not your home. And not the ALF.
Only you know all the facts. Only you three together can decide on this. You might decide to "give this a try" and let the facility know if it doesn't work out for any of you then Mom will be back. But again, only you can make the decision. I can only wish you good luck, and hope you'll update us as you go.
Perhaps "Visiting Angels" can refer someone who will bathe her daily and cook the food she likes.
Could she FaceTime a friend or two in the Assisted Living center?
If she only has a problem running tech devices, why does she need help with showering, walking her dog, etc?
You need to be honest with yourself about what her condition really is.
What she wants and what she can pay for should get the most consideration, not you or your husbands desires.
Maybe she likes having other seniors to hang out with, have you considered how that need will be fulfilled if you force her back to your house?
Have you looked at other Assisted Living communities or even Group Home or Shared Home?
Why did mom want to move out? Is it that she wanted her own "space" or were there other things going on?
At least one of the issues that you mentioned, help with showering and possibly other ADL's may be a State Violation that could be reported to the Ombudsman. (Did you look at reviews of this place on the Medicare Website for violations?)
Everyone complains about "institution" food. I bet you did when you were in school.
If she is having a problem with phones in the facility she will have the same problems at home.
If she can not operate a remote in the facility she may have the same problems in your home, in her "space".
No facility can "force" a resident to join in for activities. They can remind them, ask them to join but it is up to the resident to join. Particularly in Assisted Living, in Memory Care they are a bit more "encouraging" but still can not make a person join in.
As far as laundry, if you (mom) is paying to have it done and it is no then I would ask that the fee be removed from the bill. (small think but it may bring home a point if this is supposed to be "fee for service")
Is mom on a first floor? Does she have a door that goes right out? If so a leash on the dog and she can stay in her apartment and let the dog out. Or (and some may frown on this) there are training pads or even litter boxes that dogs can be trained to use. That might be an option.
no she’s not on first floor
here with us I’m easily able to take her shopping, out to lunch, to the park, the library. We also can provide meals daily she enjoys (hubs is a great cook) and I can assist her safely to make meals she like to prepare.
It's a shame that licensing and regulatory services do not review staffing for each facility --- an average over a period of time ---- and hold facilities accountable by limiting the number of patients you can have and enforce leaving beds empty until staffing consistently equals what a facility advertises. If they say they have 4 people assigned to a 10 bed wing at all times, then they have to produce wage related records that show they have had 4 people hired/paid at all times during, say, a 3 mo period of time. If they can't produce wage and employee records, then bed capacity is limited for them.
Facilities have gotten away with this for years. You take a tour and told X number of people will be on duty to take care of your loved one - some day and night visits will tell you exactly if that is true. Make sure this patient to employee ratio is written in the contract. This is one business that should not be allowed to put the almighty dollar over all else.
Legally facilities can not hold people against their will, even psych facilities can't without a court order.
Make sure you understand what your wife's rights are and make sure her needs can be safely met at home and then fight like h3ll to protect her autonomy.
Losing our rights in the USA is a real concern, we all need to protect ourselves and our loved ones from strong arm, lying corporations.
And now you are dealing with the rage that such a thing could be allowed in the richest country on earth. As well as long lasting grief of loosing your husband.
I know well your pain.
i hope you can perhaps engage with a nearby senior center, or a church you like, or some type of charity. Humans are not designed to function alone. We are meant to be part of a group.
I am really surprised walking her dog was part of the deal. (Was it only verbal or is it actually written into the contract?)
Even if you could hold their feet to the fire about what is WRITTEN in the contract, it will not fix all the problems: a remote she cannot figure out, her phone, taste/quality of the food, walking the dog as much as it needs. They can document they asked her to go to a social activity, but they can't make her go. More than likely the only things you will ever remedy with complaints is the showering schedule and the laundry.
I suggest YOU telling her that YOU miss her and have her come stay with you overnight for a few days.
Give her as much space / privacy / alone time as possible.
if she has favorite hobbies, recipes to cook, tv shows - slowly ask her to participate with you on one of these activities.
Keep reinforcing how much you have missed her at your home.
*I understand Alf are wonderful in many cases, but I worked in a high end facility that the top executives cared only for the money they received - it made me emotionally ill to see the disrespect of our elderly.
if the Alf is not doing what they promised they would, I highly doubt things will change. Staffing issues due to poor pay is often an issue.
our elderly deserve our respect, love and compassion. it is an honor to be entrusted with a loved one.
You can hire a lot of help for way less than monthly cost of assisted living.
Hiring help through an agency is very expensive. We had good luck hiring through NextDoor and Craig’s list. You have to do background checks yourself, but there are good people out there.
It helps my husband to have something to keep his mind occupied. We got the biggest TV that would fit in room as eyesight not so good. Then multiple streaming services that can focus in on shows and series he likes. Additionally got Audible and headphones so he can listen to books on topics he likes.
Dog walkers can be hired. Dogs are an enormous comfort to seniors..
Hope the very best for your family. It is hard.
Hopefully you will be able to convince your mom that it is.
I take my 94 year old mom to a senior center twice per week and she loves it.
She will be safer and healthier with you.
Ask her what she wants to do.
If you bring her back, hire help and find good day programs for socializing.
Just a heads up. Don’t take it personally if she doesn't appreciate all you do. Things are difficult for her.
She eventually might need memory care down the road.
Big hug
The place is not living up to their contract – I can relate to that. My parents (90+) are moving back to their own home and will have in-home personal care after 16 months at a beautiful, resort like (and pricey) ALF. Their needs exceed the services that are provided – there is an adequate care plan in place (on paper) but due to their short staff, it is not being followed and we have had to provide the additional care givers (out of pocket) to keep them safe. I was prepared for increasing costs with the increasing levels of care needed as they age (I am reasonable), but not willing to pay for increasing levels of care without increasing service. I have observed that there is a lot of additional care givers at this facility, I understand this is common practice in Northern Virginia. Pendent alerts go unanswered for far longer than what is the facility publishes as their standard. Some of the staff are not aware of the level of care assigned, care plans so there is communication issues between staff and supervisory.
On food, I have them places sauces on the side and that helps a lot, I also request ½ portions and add snacks through the day because a generous plate of just overwhelms them when they think they have to eat all of it (which they don’t).