Am going to focus on the plight of the unpaid family caregiver, compassion fatigue and respite! I have an appt to meet with our local chapter of the ALZ ASSN to discuss my needs as the soul 24/7 caregiver for my mother, unpaid and overworked is all that is on my mind...besides respite...I don't really care abuot disease research at this time as it is not going to help me in my immediate situation....what would you ask about if you could? I need some idea's!
Thanks for your confirmation of what i felt, appreciate the feedback....i have three goals to support: Plight of unpaid family caregiver, burnout/respite resources, and death with dignity act!!!
Since i am in Oregon i am proud we have that but dementia i am learning may prevent that option, still researching that!!!
response..."let me see what I can do to help" nope.it was "well let us know if you change you mind, we want you there: you want my $$ there that is it..
so last week in an emergency..... I needed 1 simple question answered and it took 3 days and me losing my temper so bad I threatened to have the media there to figure out where there dang money goes, as you have never lifted a finger for me... to get the freaking answer that was "here is the link you are looking for" that place is an inefficient joke and now I won in principle I have no desire to share a dang thing with them but to move forward on my own!