Most of the time I’m posting in regard to my mom, this is about my 81 year old mother-in-law, still lives alone in her home. She has severe COPD ( doesn’t need oxygen yet), and very bad anxiety. She still hangs her laundry out to dry as breathing permits, very much mobile, tries to be active. We’ve only been involved with her medical issues/decisions Since June 2018 when my FIL died.
Last month her house almost caught fire in middle of night, smoke detectors woke her up. Electrical cord was shorting out, sparks flying, lots of smoke. She jerked the cord out of wall & sparks stopped. She called 911, fire dept & emt’s came out, took her to hospital. The scare gave her a mild heart attack (which she never realized & still doesn’t) no heart damage, no blockages in her heart. She was in ICU for two days while they checked EVERYTHING out. Her anxiety was setting off her COPD (which my husband & I knew) which made them do more tests, which set off more anxiety. Now to the issue at hand which is gross!
Sorry for this, just thought someone here could give us advice. Her ICU nurse came to me & asked me how long her bladder had been hanging outside her body. Shock....my MIL had never complained about this. Turned out the Dr. told her 5 years ago she had a small prolapse & it could be fixed in his office! She never went back and is now at the point she has to squeeze her bladder to urinate! So Ob/gyn was called to hospital. Couldn’t do anything then because her anxiety/breathing issues were out of control. After office visit last Friday he wants to do surgery. It will require an overnight stay. Mother in law says she wants to know what we think. She is not used to deciding anything on her own!!!
My husband is an only child so he values & relies on my help/opinion with her. We’re not against the surgery, but a big concern is her anxiety which always sets off a long chain of events. Anxiety aside, how hard is general anesthesia on someone with severe COPD? I’m thinking we should get her anxiety med (Buspar) increased for upcoming surgery. She’s on a low dose because her primary care Dr. only likes low doses of anxiety drugs. Physically she will never be stronger than she is now & her COPD will only get worse. But are there any little old ladies in the nursing home with this issue...how is it dealt with there? This is a very sweet, kind lady, a wonderful MIL. I could live with her if I had to, but NO Way, NO How would I squeeze her bladder if for some reason she couldn’t do it herself!!!! So if she were to get temporarily sick & couldn’t do it herself, what would happen if this doesn’t get fixed now?
My apologies for the grossness & length of this post.
First, there’s no need to apologize for trying to do your best for a loved one!
I am a Health Care Advisor, also known as a Patient or Health Advocate. I am an ABD-Ph.D. in medical sociology and gerontology. My first piece of advice is to get a proper psychiatrist to treat your MIL’s anxiety. Buspar is a very old drug and not as effective as some newer ones. (The newer ones, can be habit forming so patients must be monitored - but are generally safe and more effective.) If her anxiety is as bad as you indicate it is, her PCP shouldn’t be prescribing her psycho active medication. In my opinion, PCPs, in general, should not prescribe psycho active drugs.
Once her anxiety (and COPD) is under control, you’ll be in a better position to make a decision regarding the surgery. Getting an appointment with a psychiatrist can take a long time. When you call, be sure to tell the office the circumstances (that surgery needs to be done ASAP). If you are a new patient you may get in sooner.
If you’d like to have a Health Advocate or Patient Advocate to work with you, Please Google “health care advocate”. There you will find a lot of useful information about medical advocacy.
I’d be happy to take your case myself, free of charge. Pjsardella56@gmail.com
Honestly, going to the Dr. for that, that often would probably send her into panic attacks. Which makes her unable to breath. At this point, I’m wondering if it should just be left completely alone. She hasn’t said another word to us about wanting the surgery.
I don't advocate for a "general" since she would have a more difficult time and might end up on a ventilator for awhile.
She might be able to have a "spinal" and she wouldn't feel anything during the procedure. She could receive meds to help her relax. It would be a bit more difficult given her anxiety, but "do-able".
She would need to be cleared for surgery from her usual physician and her breathing doctor. If there is a question of heart damage, she would need to be cleared by a cardiologist as well.
Best of luck.
If MIL’s pulmonologist, OB and PC are recommending this surgery there is probably a significant benefit and the timing as OP says is likely never going to be better. It’s her anxiety that does and will pose the most significant threat, aside from the normal risk of any surgery and I think addressing this clearly and proactively both for possible surgery and to minimize COPD symptoms/issues on going. The decision to do this surgery or not should absolutely include knowing the risks as well as the benefits and weighing them out but sure seems to me there is a huge benefit now and in the future of not having to “express” one’s bladder whether it be self assisted or caretaker assisted. I’m with you Mollymouse, ewwww!
I whole heartedly agree with the urging to get her legal stuff (POA, DPOA, Advanced Directives) in order though now whether she has sugary or not. I’m going to guess your husbands reluctance is at least partly mixed up in what happened to his father, I too would be terrified of the responsibility of making medical decisions after an experience like that as well as bringing anything up with Mom that might bring it all back. But as you obviously know MM not getting these legal documents in order could prove much more harmful, worse for everyone down the line. As unenviable as it is it sounds to me that you are in the position of needing to take charge (gently but firmly) and make these things happen. Since you say your MIL is likely to go along with it easily and the three of you have a great relationship hopefully she wont shy away from sharing medical info through doctors and having a DIL to ease the embarrassment of some of these issues (it can be harder To discUss with a son and harder for him to hear details) and maybe opening that avenue will encourage her to get more comfortable being open about things going on, new and old. Maybe you just need to get the forms in order and ready and then schedule a time for them to be signed, no should we do this just use the assumption close “I have one for (husband) and if you both decide having me as aback up is a good idea we can do that but I am also fine with simply listing me on HIPPA forms or giving me MPOA only so I am not constrained when it comes to helping with medical stuff.” Then once that is done if there isn’t a will or set good set up for the future over all you can suggest having an attorney go over it all and change things if a new set up makes more sense. Ease both of them into it but make it happen.
Good luck, MIL and your husband are so very lucky to have you in their corner but I know it isn’t easy.
I would think leaving things as is could cause bigger issues down the road. I think it would increase her risk for infections and that could also put her in the hospital. She may be able to manage it herself now, but what about later?
My dad has been put under several times since he was diagnosed with dementia and it hasn't phased him. It is not a given that there will be an adverse effect to anesthesia. If her pulmonologist says she is safe, I would do it. That has to be terribly uncomfortable and I think it is probably an infection risk. There is a reason we were created with things inside our bodies and not on the outside.
I would do it before she gets worse.
Great big hugs to that stoic woman. She is tougher than she knows.
No one has POA for her. I told my husband when his Dad died he needed to get that taken care of. He even took her to the attorneys office to probate the will & get her name added to the deed of her home and He WOULD NOT bring the issue up! She would name him & I both as POA’s without a fight, we all have a great relationship. She has no business/legal/medical sense at all, doesn’t know any of this needs to be taken care of and for whatever reason my husband drags his feet & won’t address things.
Side note: Queen Victoria, due to all the children she had, had quite the terrible prolapse all her latter years. Found on exam after her death, and apparently had been known to her doctors.
I googled & read that general anesthesia is very bad for COPD patients. I’d really like to know what’s the worst case scenario if she doesn’t have this surgery. We’re not on the HIPPA form at the dr’s office. If she absolutely should have surgery, we’d like it done now, before her lungs get even worse. Her husband died because of a “simple” hernia repair surgery, that turned into post-op big problems because he waited until he was 89 to get it repaired!
unfortunately for us women, especially those of us who have had children, our bladders and uterus tend to....”fall down” in our later years. If you are concerned about the risks of having surgery with her COPD.... Her lung doctor is a good person to discuss the risk of surgery with. I can tell you that my mom has had COPD for years and has been on oxygen for years and she was able to be put under for a lung biopsy 2-3 years ago. It went fine, no complications. If her lung doctor is the one who prescribes her anxiety meds, I would definitely ask about getting the dosage increased before the surgery. For anything having to do with her breathing, my mom always goes to her lung doctor not her PCP but your MIL may prefer her PCP so that’s something to consider.
If she chooses not to have the surgery then rest assured, nursing home staff are trained to deal with prolapsed bladders. If someone has to help her manually....express her bladder (I am sorry if that is offensive, I couldn’t think of another way to say it) then the CNAs or even a nurse will help with that. My cousins old girlfriend was a CNA and she had a patient that was paralyzed from the neck down and she had to manually give her a bowel movement.
That is a very good idea about getting the anxiety meds from her pulmonologist. He sees 1st hand how badly her anxiety affects her, and even said last time she was in the hospital that her anxiety was her biggest problem.
Love you!!!!