My mother, who has Vascular Dementia, lives in an assisted living facility in their the memory care unit. Last week I took her to the Dr. to get her wrist rechecked (she had broken it recently in a fall), and a couple of other places she wanted to go. When we got to the last place, (the vet, to get some cat food), I told her she could just stay in the car if she wanted. I thought it would be easier on her and it would only take me a couple of minutes. Immediately I could tell something was wrong because she was glaring at me. I asked her what was the matter and she said she had wanted to go in. Fine, great, come inside with me. “No, you don’t want me to!” Long story short, she remained mad at me and we didn’t go out to lunch as we had planned because she decided she didn’t want to be around me when I was treating her so badly. When we got back into the AL building, she saw someone she knew in the reception area and was SO SWEET to that person. My brother says it’s due to the dementia. She doesn’t pull this kind of crap on him, by the way. And she does it quite often to me, the one person in the family that takes her for outings. If she can be selective enough to be sweet to one person, but sour to me, is that the dementia?
It is not the logical and reasonable part of her brain that is behaving this way. It is definitely the dementia.
Stay strong and try not to let it wear on you.
It's the dementia.
The brain functions can depend on external stimuli and medicines - kind of like some days I wake up 'chipper' and some days 'just stay out of my way' - these are not by choice but if my sugar goes up, I am not the same person as when it is controlled.
Fortunately I can tell when my sugar is up and I can warn my DH that it will not be a good day for me. This way although it bothers him, he won't take it personally if I "snap" more for little things. I have no control over this and I explain it to him every time I have a day like this.
I say I don't have control - but to be perfectly honest, it comes the day after a sugar-binge.
I keep telling people that she is now being true to herself since her filters have been erased by the vascular dementia. I get the physically tired aspect and general crankiness and acknowledge she (as I, too) have it. She is still able to be kind to everyone but me and I just thought it was the nature of my relationship with someone with a mild narcissistic personality. She is moderate to late stage for physical (urinary, gate, unsteadiness) but early to moderate with communication and expression without reasoning processing (time telling, reading, or organizational skills).
Thanks for this post, Peggy6. It is good for me to see since I have always never felt good enough for my adoptive mom.
I have worked hard to curb my tendencies toward impatience. Is this more patient person I've become just an impostor, covering up the "real" me? Or does it reflect the "real" me because it is something I choose, and not just instinct?
In your situation, I think there is more going on that "just" the dementia. You say you have never felt good enough for your adoptive mom. There are some relationships like that. This is not likely to improve with the dementia. The dementia behavior tends to look like more evidence that mother doesn't think you are good enough. The whole dynamic of the relationship over your lifetime is involved here.
I largely agree with what you were told at the seminar, Kingsbridge. Nice people tend to stay nice and mean people stay mean. I was so very fortunate that my husband and my mother were fundamentally nice people!
I'm not sure that is 100% true, though. As least as they tell it, members of my support group had loved ones who seemed to change. They were "nice" all their lives, and suddenly they are mean. Perhaps it depends on exactly what areas of the brain are damaged.
God help me! I need it. So I know how you feel. The other day someone there told me how much my mother appreciated me and loves me which made me feel good. But I can't seem to get help. Went to a Medicaid DSS office I they did not know what to do? ! I told them I need help with getting her on Medicaid she needs briefs, pull ups, pads, , help on medicines and the Medicaid would help for insurance costs that I spend. and if she needs to eventually go in a Nursing Home which I do not like but I am not able to do a lot. She needs Medicaid for these extra things monthly.
My husband is having a hard time with this, perhaps more than I. From my standpoint my hardest job is trying to stay on an even keel and evaluate my behavior. He says my mood swings are hard to handle. I don't see unprovoked reactions on my part, but it is hard to dwell in this bubble seeing my world from looking inside out, and trying to honestly evaluate what others determine from their point of view looking from outside in. Do I know the difference and can I fix it? With regard to us, the resulting hurt on both sides is harmful to us both.
Chances are your mother, if she were mentally able, would be distressed by her behavior, but as it stands now, could she fix it?
My husband and I have been seeing a cognitive psychologist which I have found helpful. He, however, now refuses to go in spite of finding it increasingly hard to be "trapped" by my situation which has changed our lives, and not for the better.
The best I can suggest regarding your situation with your mother is to not judge yourself unkindly, and to be wary of letting your reactions be based on what was. You cannot help yearning for that more loving time and perhaps in some corner of her brain there is the same yearning, but she has not the power to make it happen.
I do believe in the "filters" concept. My grandmother used to say that as we age we become "more like ourselves" and I think the "filter concept" speaks to that. Even without dementia, aging seems to loosen the ability to adjust our behavior to what is considered appropriate. That can be hard to handle for all parties involved. You feel the situation as loss of her love for you. Try to remember her love for you has not died, but her ability to translate that emotion into action is being sabotaged by her mental condition. The loss of that part of cognition that makes us able to submerge what we want right now in favor of someone else's benefit gets lost as the dementia progresses. Translated, that means we want what we want, and want it NOW but are dependent on someone else to fulfill that. In the best of circumstances, we filter that into civil behavior and caring about the welfare of others, but dementia takes away that ability. Gratitude becomes a lost emotion and the "filter" instilled in us in childhood is no longer in control. Recognizing that danger in my own behavior and trying to keep the caring has become a focus. That's hard to do. Fear of losing the mental capacity to translate love into loving behavior, and knowing I probably will not even recognize the transition haunts me.
In the future you will value and even be proud of doing your best in spite of hurt, fatigue and your justifiable anger. And don't beat yourself up for wishing this would all end. It will.
When mom & I were out together and she would snap-or say something hurtful-that alerted me that either she was worn out OR hungry. If she was tired, we'd go straight home. Even though it IS the dementia, it doesn't hurt any less. Hugs to you (()).
I'm hoping once mom moves out of my house and into memory care, maybe she will even out. At least I won't have to deal with walking on eggshells and constantly having to switch how I react to her.