My mom is only 68 and and over the course of two weeks, shes' gone from being completely independent and maintaining her own affairs/doctor's appointments/medicine, to being completely delusional, confused and unable to care for her basic functions. The first day (July 4th) she had an issue, she had some type of manic episode where she was up all night and hallucinating and having paranoia, and this lasted a couple of days after which I took her to the ER and they said she had a UTI. After being admitted for 2 days, they released her, but the confusion and behavior changes continued, so when we came back to the ER, they said it was due to the antibiotic she was give upon release (Levaquin). Couple of days later, the confusion and behavior is still out of character so we come back to the hospital and they keep her for further testing, now all the doctors are saying she possibly has dementia. HOW could dementia come on this quickly?? Real talk, she went from being 100% fully independent and functional to a shell of herself. So far she's had a battery of blood tests, CT scan, MRI, and is having an LP today, but at every point the docs are saying they can't find anything to indicate an external issue like infection, stroke or other injury. Has anyone had a loved one have dementia come on this quickly? She actually lives with me so I've seen/interacted with her everyday for several years just about, and the only changes I've seen in her behavior have been age related general changes (couldn't find keys, lost grocery list, forgot a name temporarily).
I am so sorry to hear this. And you are positively doing EVERYTHING you can--and still no answers. That has to be frustrating. At first, I thought maybe you didn't see her frequently and the dementia had caught you off guard--but, no, you live together.
I know my sibs are 3/5 MIA and so when I refer to something mother has said or done (just letting them know she's getting worse, dementia wise) they blow me off and say "she's FINE, stop fussing". Well, they see her once or twice a year for 15 minutes. Few to no phone calls, and she doesn't answer the phone when she feels "off" in fact, she forgets how to use it!
At least you aren't dealing with people who are telling you YOU'RE crazy for thinking mom is slipping.
I hope more tests and some time will heal whatever is going on. Mother just has age-related decline, and I know nothing about LBD.
And yes, there are medicines and techniques to help "slow" the process, to a point.
Mother still only sees her GP. He's almost as old as she is, and is retiring soon. I look forward to a fresh pair of eyes looking at her.
Good Luck to you!
All those issues aside, I have seen small improvements in her behavior/cognition. Day by day, I feel she has a little less confusion, but she's still is not all there. More like 1.5 steps forward, 1 step back. She’s a worrier by nature, so she’s always asking how am I paying for the lady to stay with her (she’s referring to the patient in the semi-private room with her) and she’s always concerned about what she’s supposed to do, even when it’s just her normal bathroom routine or eating dinner. The day before she was discharged, she was clear as a whistle all day long. We sat, talked about business, family, what's been going on with this health crisis, and most of all her personality and disposition were much like they usually are, despite the hospital setting. However, the next day, she had slipped back to much of the confusion. She’s very aware that there’s an “issue” because she also keeps saying things like “Why am I thinking like this”, “Why do I keep doing xyz over and over”, “Is this all a dream?” “I just can’t out think them (referring to me & nursing staff)”.
I’m just so frustrated because I can’t get a single doctor to take her case and help us with the next steps. Regardless of what the true diagnosis is, I feel like there are medicines or techniques that can be done to help make her more comfortable, that aren't being done because we can’t get into any doctors. At this point I’m just trying to help her stay comfortable and engaged, as I guess only time will tell what our final outcome will be.
Gahhhhh64:I'm sorry to hear that about your dad. I pray that we can find a good neurologist that can help us figure this out.
SunnyGirl1: No, she's had no changes like you've described. Good hygiene, all bills being paid (SN: in fact, during one of her lucid moments last week, she gave me a list of bills to make sure were paid, which was completely correct w/dates & amounts.), Appetite the same. As far as tests, they did the CT and MRI, and just simply said "There was nothing remarkable" and didn't indicate any type of stroke or brain bleed, past or present.
freqflyer: The only falls she's had were about 10 months ago, she tripped on a carpet that was in her room and fell and broke her shoulder/upper arm. In her defense, the carpet was badly placed and I tripped on it a number of times myself. While that was a struggle helping her during that period, she never had any confusion or disturbances with her routines, etc. As far as other falls (there have been 3x at home during this last two weeks), she has bad knees and so anytime she's fallen, she's not been able to get up without help, so I'm pretty sure she hasn't fallen and I didn't know about it.
jeannegibbs: Yes, like you mentioned, the internist adv that we might want to talk with both the behavioral neurologist and geriatric psychiatrist. The only problem is we would have to get consult in an outpatient setting and I'm worried about both getting to that point and her at home, because she has completely lost touch with her daily routines such as eating, hygiene and medication taking, and it's only me to assist her. As far as sleep, she's generally a lighter sleeper, but nothing like it is now, she's barely sleeping 1h at a time.
I'm the only child of a single parent that was an only child :'( , so these two weeks have been the most difficult I've ever faced. Luckily my job/manager are very accommodating, so I've been able to work remote and take off at a moment's notice, without even needing to use FMLA/PTO yet. I appreciate all the info any little bit helps to try and get a grip on all of this.
When I started reading your post I thought "UTI" -- and that was what you found out. But behavior usually returns to normal once the infection is cleared up.
As Sunnygirl experienced, once I had a diagnosis for my husband some of the minor things that seemed at the time to have been aging looked in retrospect to be warning signs. And then in a cleaning binge I found past-due notices under the couch cushions. So while there was definitely a major meltdown on June 3, 2003, the symptoms really did start before that.
Could your mother have dementia? Definitely consult with a behavioral neurologist and/or a geriatric psychiatrist, if you haven't already.
Just out of curiosity, has your mother had sleep disturbances before these symptoms appeared? Has she lost her sense of smell?
Two weeks later another fall but this time with a more serious head trauma. Much to my surprise, my Mom accelerated into the final stage of dementia. She was unable to take care of her self. The head scan showed my Mom had a brain bleed which they attribute to her now confusion.
Eventually my Dad admitted that Mom had been falling hitting her head, and the both of them had fallen down the stairs on numerous occasions. My gosh, any time there is a fall, that pushes the dementia further down the rabbit role :(
I know it must be frustrating. My LO had some early signs that weren't clearly indicative of dementia, but, her major symptoms did hit pretty quick (In a matter of months). She had suffered strokes and had Vascular Dementia. Since you know her well, maybe, the symptoms, along with the tests results can help the right neurologist find a diagnosis.
Did your mother have any other symptoms besides forgetting? In retrospect, I realized that my LO did, but, I just didn't realize what they were. It included being disagreeable for no real reason, letting hygiene go, becoming afraid to go out, obsessing over small matters, and losing her appetite.