How do you continue to be a caregiver when your parent has always had some form of mental illness...in my case Narcissitic Personality Disorder. My mother has always suffered from this and now trying to be a more closely caretaker is bringing me down. No one is realizing I cannot take care of her by myself. She is crafty and her aging just makes is all much worse. More and more calls from neighbors to the police or paramedics with her stunts. They say she cannot be alone but I cannot tolerate to be around her. She refuses to go to a nursing home, so now trying to find someone who will at least come and check on her a couple times a day at least to give her her psych meds. There is no one to help me. I have been of work for almost a month on FMLA and it seems to be a waste of my time, since she can do many things by herself...(she just tore apart the patio cleaning it ...an 85 year old pushing and pulling couches and vacumns...) mental illness in an aging parent..HELP!!!!!!!!!!!!!!!!!!!!!!!!!
For all you've been through, I commend you. You are definitely one of the hero, angel Caregivers. May your rewards be many. I pray for your comfort and healing during this difficult time. And I pray this is just the relief you and your husband need to see him through his difficulties as well. While it's often dark in the valley, we do not have to walk alone. Take care, hero!
I'm not trying to take anything of hers but that's what she keeps telling people. I've got somebody living in my old house and they are good renters. I don't want to make them move. If mom is able to come back she needs someone to take care of her. She needs someone to take care of her yards and her property as far as mowing the yard. Also there are no neighbors that are close enough to see her houses and property. We've had several things stolen since we've lived here ( riding lawn mower, push mowers, air tank,etc). I'm sure if we moved they would break into her old house and take all her stuff. Dad and brother both had lots of tools and farm stuff that are still sitting there. My husband is certainly in no shape to move now. What is really funny is that my brother lived with her til his death (except for a year or two when he was married) and he didn't pay rent or help with the bills. He had a couple that sometimes helped him living in mom's other house and they didn't pay rent. Not that there was anything wrong with that. She wanted him there I'm sure. I just don't understand why she makes me out to be this bad, terrible person. I was living on my own making house payments and paying my bills for several years. It's funny cause when i was growing up and my dad was building this house he told everyone it was for me to live in when I got older. of course when I grew up I wanted to live on my own and did from 1984 til 2001. I didn't get married even til 2000. I did not foresee us having to put her in AL back when I moved over here in 2001. She was doing fine on her meds then. She seems to think it was all just a big plan to take her property from her.
The deal at church really upset me, sis. I burst out crying and ran out the door. That room full of accusing eyes just got to me.
I had already tried to talk to mom's SS teacher about this. I was kind of fearing she was making those kind of accusations. The SS teacher just brushed me off and said everything was fine. Then a couple months or so later I get called into the SS room. I talked to the pastor later that day and he said he didn't know mom was mentally ill (he's a new pastor), or that I had already discussed the matter with the SS teacher, or that she was going to bring me in front of the class. He apologized. The SS teacher sort of apologized.
I feel for you with the Sunday School incident. How did you handle it? After all that, I'm surprised you kept her in your home. (Except, I know, she's your mom.)
It will be interesting to hear how things go for your mom today. What do they suggest to you if she refuses to go?
Speaking of the "enablers". That brought back some memories. My mother was using her Sunday School class for that. She would tell them awful stories of abuse by my husband and that I was trying to take her land and all her money. I kept getting a cool reaction by some of the ladies in church. I was kind of suspicious that sort of thing was going on. It all came out one Sunday when I got called into mom's SS class and ambushed about my husband "beating her".
My mom is a different story. Talk about struggling with mental illness! We're just wondering what to expect next. So far, she is lucid enough, and convincing enough to sidestep my efforts to change things. She is trying to convince "friends" (enablers) that I am lying about her, and saying I'm "abusing" her. Wow! She refused to let me escort her into the Psychiatrist's office the other day. This is becoming a living nightmare. (I'm sure I don't have to say more about that to you.)
We thought she had some dementia, but never realized it was more. A diagnosis of PD rocked my thinking, and mom is definitely rocking my world. Looking back, I connect the past with remembrances of how she always did (unless placated). So, this is an ongoing journey for us, as well.
Staff says they adjust in time, and I've seen that. Each person adapts to the AL or NH environment differently, so you never know how things will turn out for your mom. EMTs are trained to deal with these types of behaviors, and do better than we could at getting someone to comply with them. This has got to be an anxious time for you, but your mom is probably in very reliable hands, and things will probably turn out OK. Your job will be to convince your mother of your concern for her welfare, and the wonderful love you have for her. She will most likely settle in to a routine with her new facility, and receive the support and routine she needs. As long as she knows you love her and will visit from time to time, that should help. You can talk to her Social Worker for suggestions to ease her transition, maybe even calling ahead, to get some ideas of what to expect.
We took picture frames of happy times for my Dad's walls and tables. We sent loving cards and messages, flowers and balloons, even musical greeting cards, and ones with recordable messages of our voices. We tried to surround him with a few of his favorite things: his Bible, favorite books and magazines, etc. (Just some thoughts...)
Ease your mind, and let the professionals take things from here. You can relax in knowing this is common, and many are very good at what they do. Your mom, like many others, may adjust better than you can imagine. Time will tell. I know it's a difficult process to go through, and we'll still processing. But you and your mom will be OK. Will be praying for her move. Is it today? Praying for you, and your husband, as well.
I'm curious; what type of AL facility will she be going to? Do they make allowances for people with her condition? What types of support are there for her and for you? Will she continue to see a counselor while in AL?
Thanks for letting us know where things stand. We will continue to keep you and your husband and mom in prayer. Hoping you all have your needs met, and that surgery goes well for your husband. Take care of you, as well.
AS FOR SMOKING I THOUGHT I LET GOD ME IN CONTROL BUT GUESS I WAS FOOLING MYSELF NOW HAVE TO START OVER AND I DON'T WaANT TO I WANT THAT CIGARETTE. YES I'M A SURVIVOR AND EVERYTIME I SAY SOMETHING TO MY SISTER JUST A LITTLE SOMETHING I CAN TELL SHE DON'T WANT TO HEAR IT SHE ALWAYS SAYS WELL SHE'S GETTING OLDER I KNOW LOTS OF PEOPLE OLDER THAN MY MOTHER WHO ARE AS SHARP AS A TACK AND SO IS SHE WHEN IT SUITS HER. I JUST REFUSE TO BE TREATED LIKE A MAID SOMETHING HAS TO BE SAID IF I TAKE A DAY OFF SO FROM NOW ON I JUST KEEP IT TO MYSELF THEREFORE WE WON'T HAVE ANYTHING TO TALK ABOUT EITHER. I GUESS WITH OUR CHILDHOOD WE REALLY CAN'T HAVE A SISTER RELATIONSHIP BECAUSE THE DAMAGE HAS BEEN DONE OR MY IDEA OF CLOSENESS IS DIFFERENT THAN MY SISTERS. WHO THE HECK KNOWS
Hope all is well. Keep us posted. We are praying for you.
Linda
We want them to be happy, or at least content. I hope this will help you both.
So Sis, I think you are trying too hard...it seems when you do that everything flies back in your face, seems that happens to me too. Who cares what that nurse said, what a snotass! She's not the one who is going to diagnose your mom the Dr. is. Hopefully he WILL PRESCRIBE MEDS. Seems like they want a nation of mentals disturbing the peace doesn't it.
(Just like they let that child sex offender back on the streets in California just so he could nab that little 11 year old 18 years ago...just think if they would just put away those that cannot never be cured...she would have had a normal life. ( Newstory hot in the news right now.) It's too bad the government did away with the Mental Institutions like they did in the old days..now I know they were horrid back then, but if they brought them up to speed (no unnecessary cruelty and experiments) and really accepted the mentally incapable it would help a lot in society! )
I've been thinking about the "less is more" theme. I've been trying to share my observations for almost two years, with varying results. So thankful that a couple listened. I do need more help, though. This is a very rough road. I figure if things don't go well on Monday, I'll go back to the clinic, and ask for a second opinion. They had someone else in mind, and if we don't find the help necessary, I will seek a different approach. It's a tenuous place to be, when they listen to a abusing adult, whose children suffered untold misery, then go on to protect the "poor little elder" who is still playing the "poor old me" card. When it's my word against mom's, many are willing to believe her, because she can be very convincing. She knows how to play on the sympathy of others, and lie through her teeth to protect her image. I just want the truth told, once and for all. If only I have that opportunity, and they'd believe.
I talked to the nurse at the psychiatrist's office today, and she said something about what's in the best interest of the patient, and that this may be a court issue, for them to decide. Since when does a doctor turn things over to a court? Why are they so ready to protect someone they haven't even met, when I'm trying to get help for her, and they are willing to have me removed as guardian before I even talk to them? This is getting ridiculous!!! She also said they would value my input. I'll guess that remains to be seen. Mom won't, that's for sure! She'll lie her way out of anything I try to say. That's why I was trying to get my sister's back up. And my husband has seen some things, too. When will the professionals stop and listen to BOTH sides, and let the truth come out? I've never seen so much tap dancing in my life, except for the egg shells we grew up with. I sure could use some prayer through this.
Thanks for responding, and for listening. I am sure you understand, and believe me. Just wish you could help me with my mom! Thanks for being here, and thanks for your prayers.
Oh well, let's keep in mind when we all get a better handle on this to maybe do something about it.
Well when I took my mom to her first psych meeting. The doctor asked her one question what was the date...she didn't respond, so he turned around and I blurted out everything in a quick snapshot, she was grumbling under her breath...they hate the truth, they bury it in their psyche and make themselves righteous on the outside. YUCK...not fooling me NO MORE, not since I discovered NPD several months ago. So I am taking it day by day....it's all you can do.
When I had many concerns about my mom's health, I wrote a letter with each concern listed with the little bullet dots so that the DR. could not miss them. Then I faxed it to him one week before her appointment. When he came into the room, he had read it, knew my concerns and had gotten me the answers so that we didn't spend time going over each explanation of every point. It was so helpful. Having it ahead of time gave him the time to prepare, and I didn't forget anything that I wanted to discuss with him since it was all written down. Hope this helps. Good luck. We are all here for you.
Linda
When i find myself coming to this site at work than i know i need to back off and give it a rest for awhile.
i count you all as a blessing and i know you will be here for me
whenever i check in.
I know you all will be here when I need ya, and I will check in a bit when I feel you may need me. You all will be in my daily thoughts anyway. (as will all of those kids crying on the back porch wondering how to fix what's wrong. I pray for them.) I just thought it was my family, my fault. now it could be any family, anywhere. any kid, any face.
but, laundry. bathrooms.dust...eech.
I have emailed my sister, asking for the same. She slipped and slid all over the place, and sent back such a jello response, I almost cried.
But then she wrote some of her observations. I'll copy them for use if needed. What a strange world with mental illness. I cry for my past, and for the defensive position this has put me in. Why do I need to defend me? My goodness, can't they see?
They see more than we will ever know.
Let them know what duties you have taken over.
She will howl, they'll go,'Um-hmm"
Don't label her. let them do that.
Let them know what you think may need to be done for her better interest and her safety.
She will howl, they will go,"mmm-hum."
Let them know WHAT YOU NEED for your mental safety, health and well being.
she will wail, and howl, and fuss, and fume and they will know everything you have gone through with out you having to say a word.
All of this is new to us, but they have been studying this and have been exposed to this their entire working lives.
...and I am hoping that is good advice, because that is how I plan on handling it.
I feel suspended right now, waiting for mom's upcoming psychiatric visit on Monday. Just talked to them, and they are willing to hear my input. Where do I start? What do I say? What's in our best interests? I'm in turmoil, and mom will not like to hear ANY of what I'd like to share. What a mess! I have the weekend to put some things together and fax them to the Doctor. Lord, give me clarity of thought and strength to get through this. Any suggestions?
I also worry that if I expose too much, then someone will recognise me and hell will break loose...but I could be any one of you. And the more I read on other sites, yipe.
I keep thinking,"you have a good handle on this, now you need to walk away and not nurse this thing."
Then, I think, maybe I just think I have a good handle and when the money finally gets taken away...will I be able to handle the fury? When mom's car is taken away? (The doctor has already agreed to be the bad guy and have her license revoked, but not yet... I am so NOT looking forward to her losing her means of independence.) If the earth starts to change rotation on it's axis, you'll know the deed was done. Don't bother checking in for the news reports, you'll know.
Also, I have become attached to you all, and worry for you. I also was thinking that mitzipink should be here on this thread as well, I worry for her too. This thread is like a validation of sanity. We can all use that. Some days more than others.
I have two black eyes this morning. I look like either some drug addict, or an abused spouse. If any of you have a cure for sinus infections, I would love to hear them. I do saline rinse, and it's helping, but is is three weeks today and I am getting weary of it.
Doctor is out, no money. Business is dead. I am better than I was, but I am ready to be well now.
Linda
Just got back from mom's. She wasn't frothing at the mouth. She was even nice to my big and little guys. Now I'm thinking BiPolar, cuz she was a different creature yesterday. Glad it's over.
This is the house I get to inherit full of mess and falling into dis-repair. Over the past couple of months I have gotten a lot of stuff squared away. My father would never help me get my own house, he said what do you need a house for, you have a house. I said yeah but that is much later. I guess he never wanted me to have anything better than him. Even when I was 38 and needed a new car they mentioned getting a used one..I SAID WHAT?..no way I am finally capable of getting my own and a new one at that. Then when he knew I could pay for my own car, then he offered, yeah nice gesture - a little late. I remember them bringing over a used car one day and I said you can take it back. I remember them bringing me a big easy chair again from the thrift shop...I guess I was never good for new stuff. When I was a kid I always got their hand me downs. I see so many kids these days with the best of everything...and I think to myself...boy those kids have it so good. And then think back to what I got. I am surprised they bought me a new stereo system when I was in my mid teens.
My mother also keeps all kinds of paper, stuff you usually toss, business cards they stick on your door, ads, I found a million note pads from reality people. I got rid of so much junk. I bought a new shredder to shred stuff. I don't think she liked that..but oh well. I found that she had ripped open two bags of shredded stuff I guess to check what I had done. It looked like a racoon ripped it open..I thought how animalistic. I also found a ton of note pads with the same name and phone numbers written over and over and over and over and over and over and over and over and over and over..(yes I am not exaggerating). I am still finding those (she still is making them) and toss them when I find them. Not just one phone book with concise info. But my mother could never keep a neat phone book EVER! She cleaned house immacuately when I was growing up but other things 'oh my gosh'. I remember when I was a kid I had a pencil sharpener on the end of my dad's work bench in the garage, that crazy cow would take her eyebrow pencils (she would shave off her eyebrows and pencil them in badly - emphasis on badly) out there to try to sharpen them, and would gum it up. And I would clean all the treads out and get it going again. No sooner she would try it again. Oy vey! Both parents would get into my desk because I would have everything I needed so they tapped it alot. My mother could never get tape going correctly and would take a paring knife to the tape and then really mess it up by the tape roll now rolling out 6 layers thick of tape. That used to drive me crazy. Now I find tons of tape over there, but not clear tape, masking tape, duct tape, electrical tape. It's like they never knew where they put stuff so they re-bought over and over. Oh I got stories...like we all have. The thrift shop guy said he can use the tape. I said I will round up some and bring you some. LOL