I know many of us have been there. Yesterday I was talking with the hospice nurses as she was being admitted to hospice service.
Mom saw me in the room, rattled the knob and kicked the door before we could open it. She has a bruise on her face from a fall last week. When the hospice nurse asked her how she got that bruise she looked straight at me with an angry face and said "My daughter beats me up." She was perfectly serious and believable, probably would have passed a lie detector test.
All the times she hit me as I was growing up, I have never laid a hand on her; I would not dream of it. Her comment really stung me.
So my question is, what do you say to yourself to heal up from these cuts?
I agree with those who have told you to place her in a home. Also excellent advice I received from a counselor was to NEVER let her live with me, because I would be trapped and at her mercy, just like when I was a child and she would say mean and hateful things. I always remembered that, and thank God I did. As you can see, we have quite a history.
As her dementia seems to be getting worse, she changes the facts of stories. One of which is she tells everyone she's had a stroke, but brain scans say otherwise. Whether this is to elicit pity, or to try to explain to herself why she cannot do certain things any more, I have no idea. I just bite my tongue and let her fabricate whatever she wants, as disagreeing with her evokes rage.
Kind of in a bad place myself so my patience is low. My ability to cope is limited by my own situation....don't do well if I am tired, dealing with other issues, or feeling ill. Just have a cold, but feel crabby and irritable, so I will stay home for a few days until I'm in a place where I can cope.
The wish for our parents love and approval never seems to leave....at least for me. So when they call you names, or run you down, or try to embarrass you in front of others, it can hurt. Yes, for some it's the disease, it's the disease. But if you have lived with a disapproving and mean parent all your life, you may have to learn you don't NEED their approval or love. I've had to come to terms with it. I still wish I had it, but have accepted it will never come. God loves me, my kids love me, and mother doesn't love me because she doesn't love herself. Just the way it is.
GM is a diva...grandpa did everything for her before he died. After his passing, she was bored, lonely, would hardly participate in any activities at the assisted living center. She was in better shape than most seniors living there. However, she wanted 24/7 attention & did not care how she got it including making herself sick etc...which she still is today. She didn't like it if the doctor told her she was fine & come back in 3-6 months...sure enough, we would be back in doctor's office within 2 weeks for whatever reason....prior to moving in with us...she was in hospital every 6 months...
Her meds; Buspirone, Clonzapam were prescribed before her move to assisted living...how long she has been on them...we do not know.
Grandma complained alot before moving in with us...someone stealing, taking her jewelry, residents at the center where she lived...never happy about anything...always complaining, food etc...it was endless.
Since she has been living with us....which has been only 2 months...I have been accused of stealing her money, jewelry, hearing aids, keeping her a prisoner, etc...it goes on & on. My home is a revolving door with the visiting nurses, now I have a counselor on board. Next a neurologist appt at end of month...she has not been assessed yet for ALZ/Dimentia...however she has extreme paranoia, mood swings, sundowners, etc....& she is manipulative & controlling...
GM will tell visiting nurses we have done the above, however does not communicate to us directly her issues.
She is combative, trys to walk without her walker, hides/chipmonks her meds/spits them out. I know when she is taking her meds as opposed to not...now she is on a several more; Zanax, lexapro, Seraquill....the seraquill helps at night if I can get her to take it....she does not want to as she wants to stay awake at night & sleep through the day...I am now doubling the seraquill per doctor...she was creeping around house all night 5-6 bathroom trips in a 3 hour period...
We gave up our bedroom for her & we sleep in living room. My hubby put up curtains to block off dining room & she does not like it. We have no living room anymore & cannot allow her in our sleeping quarters as she will never go to bed!
She would creep the hallway all night & stand & listen to hear what we are doing/saying. We have no privacy, nor does she want us to have any including getting mad if hubby talks to me more than she. Hubby put up motion lights which decreased the nightly bathroom trips significantly. She told VNA we are recording her! lol...she is upset as she knows we know what she is doing...
I may add her daughter is 72 years of age & is bi-polar manic depressive, other grandson whom passed 2 years ago was schizophrenic manic depressive, his daughter has a slight case of something...not sure what...however we have no idea if GM was diagnosed with anything...she lived far away for last 30 years. Claims no one ever told her she had heart problems, low sodium etc...she does not want us to know her previous history....
We are limited as to family help...my hubby's parents are aged...GM has hardly any other family left...only 1 sister who lives 8 hours away & a sister-in-law who lives in another state. My hubby's mom (GM's daughter has the bi-polar) is physically & mentally incapable. My hubby's sister lives 3 hours away however useless as a 3 dollar bill. This leaves just me & my hubby.
At this point, we don't know what is going on with GM except all roads are leading to Dimentia. Counselor says she has it...told me to get into therapy.
GM says she hears people, someone knocking at her door at 4am, people coming in her room at night stealing, throwing her things in hallway & says they are not hers when it clearly has her name on it...etc...
Whats up with the creep laugh? She laughs at everything & snickers at me if my hubby says something off-handed to me or if I drop something.
This is what I am going through ....I have been reading the board for quite sometime now. Hi to everyone & thank you for sharing your story...it's very difficult to deal with someone who does not want to be on this earth & wants everyone to be miserable as she is....there is rationale there in the midst of the chaos....
OMG!!!! what a mess. I think everyone on this site can relate to everything your going through. Same here, I am the only one. My mother hides information from me too. She uses my brother as a threat, because she talks with him and his whole family everyday. Which most people would think that it was a nice, caring act on their part, but, they only started calling my mother after they found out my dad only had a year, or months to live.
They have told the rest of my family, that she can rotate with the rest of the siblings. WHAT! He didn't stay 20 minutes with her, when my dad died. His family stayed in a hotel for 4 days, before the funeral. Would run like heck when the sun went down, so they could go party or whatever. They left and broke more things than I can count, but as usual, I am the one fixing all of them.
Dad owns a lot of property, and he feels like HE is the patriarch of the family now and we should bow to his wishes. Needless, to say. We don't speak.
I feel so bad for you, having to live with that 24/7. What a nightmare. If it takes moving her to another state for AL with memory help, I would do it and FAST!!! This type of thing will cause so much anger and animosity between you and your husband. Neither one of you need this in your life. I know it sounds cruel and maybe to some "unchristian" but, it's the hard truth.
I wish you all the luck, prayers and hope you both deserve.
My mother has always been miserable and is worse even now, that she doesn't have my dad around to berate, scold, lie, with hold information from him, just to get him back for not listenening to her non stop his every waking moment. He was a saint, and you two are too, to put up with all of that. I don't include me, because, my heart is turning so cold towards her, it hurts. keep us updated. BE STRONG for each of you, "easier said than done" I know.......
Aleigha00 how are you going in your camp?? Any change on the homw front x