Thanks in advance to everyone. I am at my wits end dealing with my 71 year old mom’s problems.
Mom and my two brothers live in northern Illinois. I live in Florida. Mom lives independently with her husband who has moderate dementia. She is his primary caregiver. She has diabetes, high blood pressure, etc., managed with a lot of medication.
Last summer mom fell and broke her ankle. She eventually had surgery on it, after which I flew in from FL and stayed to care for and husband for a week. My younger bro stayed with them the following week. Things seemed ok.
Crisis! Mom then became quite ill but refused to call the doc. Things got so bad that she had to go to ER. Severe kidney infection. I worked and worked to set up home health for her. She hated it. I coordinated it all because she refused to answer the phone. It got so bad that she told us she thought she was dying. I was able to get a tech to come to the house and do blood work. Tests came back clear. Likely a reaction to antibiotics. I was exhausted from dealing with all of the scheduling and being her go between, but I wanted to help.
Crisis. Mom goes for a follow up for the ankle. It isn’t healing properly. Sees specialist who had to redo the surgery. There is a possibility of needing to fuse the ankle or even amputate. surgery goes pretty well. mom wants to go home where she has no support, we somehow convince her to go to a rehab facility. This all happens over Christmas and New Year,
Crisis. Mom hates rehab. Falls at rehab (she denies falling—says she tripped because they had a bunch of stuff in her room). Since it’s the holiday, we can’t get her released until the first week of the year.
Crisis. No one can pick her up—I convince her to talk to my uncle (her brother) and get him to take her home. Meanwhile, her husband has been taken to stay w another daughter out of state. Mom comes home to an empty house, but actually does ok. Goes to follow up for the ankle and things look great. This was last weekend. I stupidly feel optimistic.
Crisis. She now has extreme chest and back pain. Back to the ER. Admitted. Days of tests. As of today they think it’s a compression fracture in a vertebrae, likely from a previous fall. throughout all of this I am talking to the home health company, care coordinators at the hospital and nurses, keeping the family up to date. Difficult because I also have a job and demands of my own life, but since I cannot physically be there, I figure I should take on the responsibility.
Tonight, I am talking with my bro’s about what we can do when mom is released. She likely will have a procedure to help stabilize the fracture and assuming they get her pain under control, send her home. It’s likely she will need someone to stay with her. Older bro says his work schedule is too unpredictable and he cannot stay with her. He lives about 20 minutes away, but even stopping by at the end of the day to check on her is a challenge for him. Younger bro lives two hours away, but he is a pet sitter and if he is away from his area for long, he essentially cannot make money.
Which leaves me. Again.
I understand that everyone has lives and issues, but I am quickly seeing a pattern that I am the default to deal with things. I am really trying, but nothing I do seems to help, and I don’t know how much more I can give. I am worried about traveling in the height of a pandemic. This is causing stress in my relationship. The week I spent at their home in Nov left me feeling drained. I thought I could work remotely from their home, but neither parent would leave me alone long enough to do any work or take a call.
I feel trapped. I feel like with each crisis, more is being pushed on me, and it’s like a hole I cannot get out of. I have built a life that I love here in FL. I do not want to give it up. I am trying to help, but it never seems to be enough. I don’t know what to do and I hate living like this.
You are not trapped. Nothing is being or can be pushed on you. You are not in any sort of hole. Stop volunteering! These are your mother's crises and your mother's responsibilities (e.g. your stepfather's care) and it is for your consenting adult mother to find her own solutions to them.
She will likely need someone to stay with her when she is discharged from rehab? Very probable. So before that happens, she needs to take advice from rehab about where she can find these services. But SHE needs to, not you.
It's like this. You scurry around from pillar to post desperately trying to make things work in some way that will make her happy and grateful. But she isn't *going* to be happy and grateful. She is going to grouse and whine, because her body hurts and she's tired and fed up, and she would much rather not need to have someone in her house getting in her way and telling her what to do. Wouldn't we all? Wouldn't you?
Suppose you stop. Suppose you give her a list of services and contact numbers and your very best wishes and let her get on with it. You're afraid, are you, that she will do nothing and go home hoping for the best and have another fall? Mm-hm, possibly so - and whose fault will that be? Not yours. Not your brothers'. That leaves her.
If she were fifteen years older or demented or dim, it might be different. But she barely counts as elderly. Let her handle this.
i really appreciate your answer. although it’s directed at treecrout, i’m learning a lot from your answer. hug!!
bundle of joy
I'm trying to fathom if Mom CAN'T make her own plans for her future or WON'T. What do you think?
Is it denial, actual lack of insight or does she already have her plan (that YOU will ride in on your white horse to save her day? ie move in with her).
I suspect my folks still believe in this white horse fantasy 🦄🦄🦄. Maybe I'll write book for seniors titled 'My Daughter will do it all & other Magical Myths'.
First, I want to point out something. Could your feeling of being trapped come from your thinking that YOU have to be responsible for fixing whatever is wrong with your mom and her health?
Reading your post, I don't get the sense that your brothers feel the same responsibility you're feeling. One brother decides that his work schedule is more important than helping his mom. The other brother decides that his livelihood is more important than helping his mom. So, why is it that you have to decide your work/life/relationship is not important enough?
And most importantly, what is mom doing to help herself?
I think you have to be HONEST with mom and brothers and tell them plainly and clearly that you can't help anymore. There has to be other plans that don't require you giving up your life. Your brothers say no, and it's their right. You should do the same. Then, from this point, mom has to accept some other plan.
Time to tell mom "I can't do this anymore. Your lack of flexibility and planning do not make this MY emergrncy".
I had the "I can't do this anymore" convo with my mom when she was 88. She understood, because while she had the beginnings of cognitive impairment, she trusted us and knew we would do the right thing by her.
Mom needs a Geriatric Care Manager, someone who can be boots on the ground to manage this increasingly complex situation. It is STEPFATHER who is the elephant in the room.
It is likely HIS difficulty with having in home caregivers and commotion that is driving her intransigence
I think it’s time for mom to be in a good assisted living facility. She is young but it looks like there’s no end to her health problems.
I did the long distance care thing for years all by myself for two parents. It just about killed me. Finally got them in assisted living in their hometown.
Here’s the thing about assited living. I still was on the phone a lot dealing with issues but they were clothed, fed, and looked after. I still made lots of long drives to check on them but I had No falling down house to worry about, or mom falling and not being found, dad with dementia couldn’t tell if she was sleeping or in a diabetic coma and driving around getting lost. The staff and the medical folks who came by took care of all meds and medical treatment. No more trying to get them to 6 different doctors. ER trips were managed by the staff.
Maybe for you mom she would get healthy at some point and could go home with some in home care. This is big money. I have no idea what her finances are.
As for step dad, I would politely let his family know that he’s their responsibility now.
Take going to IL off the table...at least until the pandemic is over. And next time you do visit it is only for a week or two and you stay with your brother.
The first person that needs to change is you. Stop riding in on your white horse.
I used this line all the time about my father. The more I helped him, the more helpless he acted/became. Think about it.
hug! :)
you wrote:
“The more I helped him, the more helpless he acted/became. Think about it.”
actually i noticed a similar thing. i suppose it’s simply handy to give the work to your adult child.
i’m now taking a step back.
let’s start 2021 well!
with good solutions/ways forward.
:)
bundleofjoy
Is it time for a “Come To Jesus” conversation with one of her many specialists? Sounds like it might be.
If SHE can’t or won’t involve herself in her future, her children CANNOT plan it FOR HER. The three of you have each done YOUR BEST, but has MOM DONE HERS?
See if you can get one of the therapists to navigate a family conference, and have mom clarify what she wants and how SHE will work towards achieving what she needs.
You really can’t fairly expect yourself to do more if Mom isn’t doing much herself.
And ask yourself- why are you willing to pull more than your fair share of the load?
Examine your own reasons for your reactions to mom. She is aging before she should. It is obvious that she will never be able to care for dad again. What will happen when brother says no more?
You are dealing with plenty right now. Do you have POA's for both? Have those important documents been prepared?
The situation needs to be brought under control. You cannot do it alone. Until the folks have a plan in place, many times adult children will have to wait for an emergency. Mom obviously cannot care for herself, much less dad too.
Love you.
The end.
These are your mother's crises, not yours. You feel responsible for her, but you aren't. She is responsible for herself. You are there to offer her love and support, but not to care for her physically....thats not possible given your job and responsibilities in Florida. Would that I could, mom. But I cannot.
Good luck, my friend.
seriously, that comment has made me laugh more than once this week and I appreciate it. 😊
"Sunrise to Sunset*
I take care of myself
I live on my own
Except when I can't
So be by the phone
I eat my meals
I sleep in my bed
Just do my shopping & keep me fed
Do my shopping & cleaning & gardening & bills
Take me out when I'm bored
Stay here when I'm ill
I just need a little help, now & then
From sunrise to sunset then sunrise again
One day there will be the call,
I'm afraid she's had a bad fall,
She took quite a trip,
Has broken her hip,
Need a nursing home after all.