My mother is a full-time caregiver to my grandmother, who is in poor health but is not completely infirm-she can still bathe herself and all of that, although she is starting to need more help as well.
Grandma has been living with my parents for about 5 years now, but her condition has only recently deteriorated. I have started to notice changes in my mother's emotional health and demeanor recently, and it has made me very worried for her. I know my grandma can be demanding and I know that it has taken a toll on my mom. Some other recent life events have also been stressful for my mom.
My question is how to approach my mom about what I have been seeing? She used to be so happy all the time and full of life and fun. Now she is snappy and often upset. My mother and I have always been very close and I really miss my old mom and want her back so much. Any suggestions are welcome.
Although I have two siblings and one lives in the same house, they work outside the home while my job has become caring for Mom alone. I never realized when I took this job on that it would become so difficult nor that it would go on for so long, but being a good daughter and loving my mother, I took it on. When you are dealing with dementia or Alzheimer's you are not only caring for an aged person but a person with a mental disorder that makes your job a thousand times more difficult. They themselves are difficult, they do not like what is happening to them and they take it out on the caregiver and the rest of the family feels it as well.
I have asked for help from my sisters on numerous occasions and they have known what I was going through but they never offered the assistance I needed or to just give me time off. Trying to take a summer vacation has become a chore because the one sister who could watch Mom, doesn't want to be left in charge of her, it is too difficult....yes I know it is, I do it every day!
Have you stepped in and offered to help your Mom? If you haven't I would ask you to please be an angel and do it. I even offered to pay my daughter for her help to no avail. My daughter has been adversely affected by living with my Mom and experiencing this disease, and I am sure my entire attention being focused on Mom and her care has left my daughter wondering....."What happened to MY mother?" Let me assure you that we love you but despite what articles and TV programs tell you, "You can not do it all alone." We NEED your help, your love, your support. If it can be afforded, we need a caregiver assistant, if you cannot help us.
I have benefited greatly by having a therapist that comes to my home once a week so I can talk/vent about how I am doing and feeling. Your Mom could probably use the same. Talking to an outside third party is better than speaking to a family member.
You need to ask your Mom to sit down and talk with you in a very gentle and quiet moment or see if you can take her to lunch, tell her your concerns, tell her you admire her for what she is doing, tell her you love her and you miss her and the way things use to be. At the same time however offer her solutions, offer her help, show her you care enough about her that you are willing to be there for her. If your grandmother gets bad enough, help her find a facility where maybe grandma can go to live or even a day care so Mom can get a break. If you are old enough to find this site and ask this question, then you are old enough to help Mom find some alternatives, to help her regain her life and light.
As caregivers we lose ourselves because we do not have time to think about ourselves anymore, we have a sick parent, a husband who needs us, children who need us and we can only be stretched in so many directions until we snap. This is why I think when you speak to her, you not only need to tell her you miss HER but at the same time you present a solution in saying what if I came and sat with grandma so you and Dad could go to dinner every week? If you don't present a solution, you are only giving your mother another problem to deal with...your hurt feelings over her not being happy, so make sure you come up with a solution to help her to remove some of the burden from her shoulders. If you have relatives or other siblings, you all need to pitch in and help, your Mom is carrying a very heavy load on her shoulders.
They say "It takes a village to raise a child" but it also "takes a village to care for an ill/aged parent."
By the way, if your Mom says, "No, it's okay, I can handle it," don't listen. Many times we as women will say one thing when we really mean another....Your Mom needs help no matter what she says!
This is a new article on this site. I thought it was VERY good. As care givers - we concentrate of being patient with our loved one, looking after THEIR needs, being kind to them, etc. But do we treat ourselves this way?
No, we just keep giving, giving, doing, doing, working, working, putting off our own self care until we crash and burn. It is typical. All too common. :0(
Often we just don't realize we need to CARE and LOVE ourselves or HOW to do it. We are too busy, too tired - until it is TOO LATE. :0(
We need to know that is it ok to say 'I have done my best' and 'I may not be able to continue.' It doesn't mean we have 'failed.' We are all different and our care giving circumstances are all different. Just because our loved one is not bed ridden or does not have dementia does not mean that our care giving is LESS of an emotional drain than someone elses situation.
I know I have a tendency to think - I shouldn't feel this exhausted, impatient, tired - after all, others have it a lot harder than I do. But we have to allow for our own emotional state. We are not all created equal. And yes, some do have much greater stamina than others. I did real well for during the 3-4 hardest years (multiple surgeries, infections, more surgeries, rehabilitation, etc.) only to crash when things calmed down. I had not realized the TOLL those 3-4 years took. How hard it was for me to 'remain the optimistic one' - to spend to much of my time and give so much of myself to my MIL trying to make HER LIFE BETTER/HAPPIER only to find that I couldn't give her happiness. Her losses were too great. And then only to find that I had lost MY happiness along the way as well. I was no longer the wife/mom I used to be. My own spirit was broken.
I am coming back slowly - but we must realize that WE are just as important as our loved one. That we have just as much right to LIVE and be HAPPY and if we are not finding some sort of satisfaction in our life - it will trickle down........
It may be time for a change for your mom. Does she get regular respite? Does she ever get a true vacation? Is she caring for her own physical and emotional health? We tend to put ourselves last. It is common. Keep us posted on how it goes for your mom and grandma.