How to deal with Mom begging to come home?
So 10 days ago we took Mom to the ER and she was evaluated for assisted living or skilled care. Moms been diagnosed with vascular dementia as well as several co- morbidities. She is now in a secure dementias unit as she tends to wander and was always wanting to call police to investigate who we were and where she was. She hallucinates and has delusions all day every day. We know none of us can care for her on our home or her apartment. Medicare paid for 7 days which run out tomorrow and then we're self pay. Moms resources will run out in a few short months do we're gong through the Medicaid application process. How do you deal with the guilt of knowing you can't bring her home? My heart breaks every time I see her. Now she's taken to asking the nursing staff to call me so she can beg me to take her home. She doesn't really know where home is. The staff tells us she can be redirected and generally settles down after a while. I guess I'm interested in some coping mechanisms for dealing with the guilt. Never in my life did I imagine we would be dealing with this. I do believe Mom is getting good care but my heart breaks every day.
If you still can't come to terms with it, try envisioning what daily life for you would be if you had her in your home around the clock. Also, coming to this site is helpful. I think it helps to learn what others have gone through and to share your pain.
Apparently, a lot of people feel guilty about placing loved ones in Memory Care, even when there is no real other option. I'd also explore if you really feel guilty or is it frustration, anger, and exhaustion.
I was so relieved when I placed my cousin, that I cried tears of relief. I knew that I did the right thing and was very proud of that fact. The constant worry over her safety was eliminated. I'd try to cope by looking at the positives.
She told me I'm not carrying out her wishes or doing what she wants me to do. It breaks my heart and I'm not sure how to cope. My head believes she's in the right place yet my heart aches. I HATE this disease.
I can only hope and pray she doesn't remember these episodes. They tell me it's harder on me than on her but I have a hard time believing that.
I thought Mom was adjusting well but when I got that call last night it was like a ninety foot drop. Others have also said it will take time. Its just al very new to me and my sibs.
It sounds as though she is in a good place. This phase of wanting to come home may pass. Or not. She may need meds for agitation at some point. Or not. But try not to beat yourself up, and if you are having trouble letting go of the guilt, please seek some professional therapy or counseling.
And please let us know how you and yiur mom are doing. We all learn from each other's experiences here. Take care.
Since most of us cannot function long-term with our hearts breaking every day we do adjust to the reality. It never stops hurting, but we learn to cope. Give yourself time. Be patient with you.
Your mother is where she needs to be. This fact is Not Your Fault. It would be selfish of you to insist she be somewhere that could not provide adequate 24-hour care.
The begging to go home will probably subside as your mom adjusts to where she is. This can take a while -- remember that her brain is damaged. Be glad that the nursing staff can redirect her. That technique may work for you, too.
As you settle in for the long haul, focus on the things your mother can still do, and the things that give her pleasure. The losses are heartbreaking, but focus on what is still there.