I've read lots of the posts in this forum, and I see many more that reflect anger, frustration and resentment than I do that reflect the satisfaction of taking care of others. For those who've been caregivers for a while - if you could go back in time, had the financial ability to put your loved one(s) in an appropriate facility, and live your life without the burden of caregiving, would you do it? Complicated question, I know, but thank you.
...i also (please understand i'm not talking about all cases, just some) feel that some of our LOs should have planned better for old age.
old age has been going on forever.
it is not a surprise - not something that suddenly happens and they had no idea.
i feel some of our elderly LOs should have planned better, instead of putting us (adult children) in difficult situations.
The setting I have chosen was a wonderful home during my mother’s 5 1/2 final years, and also served two of her younger sisters and her brother in law.
If ANYONE thinks that good care in a residential care setting means “without the burden of caregiving”, they will either be in for a rude awakening or will be abandoning their “LO” to the “easy out”.
I was at the nursing home every day, twice every Sunday, while my mother lived there, and was working 35 hours a week myself.
My mother THRIVED there. Except that Covid ruined lives for everyone who experienced it first hand, her baby sister, my current LO in residential care, would have continued to be comfortable until her own passing.
Nothing about caring for an elderly human being who is fully incontinent, non-verbal in dementia, unable to do the most simple independent human actions, nothing, is joyful or pleasant or fulfilling as a full time life style.
Out of love and respect and admiration, some adults successfully CHOOSE to care for elderly or otherwise severely disabled family members. That type of CHOICE can work.
If the “choice” is made by anyone other than the caregiver in that sort of situation, family should expect “anger, frustration and resentment”.
COVID-19 tore through long-term care facilities across the country, accounting for a third of coronavirus deaths during the first year of the pandemic. Tragic tales of deaths due to problems with testing, personal protective equipment and infection control emerged at state veterans’ homes in Massachusetts, New Jersey, and Texas.
The inspector general’s report on the VA Illiana Health Care System in Danville is the first to publicly detail extensive breakdowns at a facility operated by the U.S. Department of Veterans Affairs. The agency runs a system of 134 nursing homes that serve roughly 9,000 veterans a day across 46 states, the District of C
An examination by the Government Accountability Office in June found there were 3,944 cases and 327 deaths among residents of VA nursing homes from March 2020 through mid-February. The cumulative case rate among residents was 17% and the death rate was 1%.
Those numbers are miniscule compared to nursing homes nationwide, where researchers estimate there were 592,629 cases and 118,335 deaths last year. The death rate among long-term care residents as of March was 8%, according to the COVID Tracking Project
Instead, she remained in her home too long. By the time of her death the roof leaked, the electric was shot, plumbers were called in regularly. At the same time, Mom was having difficulty getting around even with a walker and an electric scooter, suffering falls, confused about her medications, and getting sick from food she had improperly prepared or stored. The 4 of us struggled to try to find repairmen for her old mobile home, ran out of luck and patience trying to hire housekeepers, and got very tired of calling the ambulance for her falls. We are now in our 70's and getting her 185 pounds off the floor was something we simply could no longer do as she became less able to do any help.
On the other hand, if she had gone into one of the fine AL facilities near her home, we would have visited her just as much, I would have taken her out to lunch just as often, the sister who lived further away would have still called her everyday. We would have enjoyed her long life much more if there had been staff to attend to the physical issues. In either of the facilities she might have chosen the transition to nursing care would have been a seamless change when it was required.
Another important point is that we would have gone through cleaning out her home and storage units years earlier when we were physically much more able to do so. The months we spent cleaning out her things after her death were filled with a lot of stress and physical strain that we were no longer able to deal with. Five years earlier would have made a huge difference.
Most of all, I think Mom would have been much happier to be in a facility with friends and activities. Our visits might have been greeted with much more joy if each visit did not begin with "I don't understand, but this is not working. Could you fix it?" Even during the lockdown, I think she might have been happier in a place where she would have at least seen staff members. We would have visited through the windows (both facilities are single story; neither facility had problems with COVID), just as we did at her home. She was lonely at her home after she quit driving and we simply could not provide her with all the companionship she had formerly had with her friends. I am certain she would have been happier if she had gone into AL with them.
So looking back, I feel that I did everything OK, but I could not change her mind. And even now, she has this idea that she doesn’t want anyone in the house. So bringing in a caregiver is really really hard, we can’t do it until she becomes even less cognitively aware than she is right now.
At least from this experience, I have changed my own mind about my own future, and I intend to not live alone after I’m widowed, and to allow my adult children to help make those types of decisions for me. I definitely used to be one of those people that said, I will never put my parents in a facility. I don’t say that anymore. And I don’t want to be attached to the idea of living in my own home all my life. For me, it’s important that I give up that sense of ownership and trust that my adult daughters will make the best decisions they can when that time comes.
and i hope now you can give all that love/kindness to yourself :) :).
i wish you well! :)
i hope you find good solutions. :)
this is just my opinion:
i believe promises should be kept --- but not all promises.
if it turns out a promise was a bad idea (morally bad for you for example; destroying your life), then bad promises shouldn't be kept.
there is a promise that trumps that promise.
some sort of promise by the universe that trumps bad promises: namely to be kind to others AND yourself.
a loving mother doesn't want to destroy, eat up your life.
you weren't born for that purpose.
just incredible all the love you gave, give.
hugs!!
i wish for you to be happy. i hope now you can pour all that love into you.
And Worriedspouse- if you cannot take care of someone, and object to placing them in a facility, exactly what DO you do with your LO?
I do know that my mom decided to quit driving about 4 years ago. That was a big relief. She was in an independent living apartment and her friends would switch off driving to happy hours. They would be back by 7:00 pm, and I always worried until I knew she back safe and sound.
I wish I would have kept her car. It was a nice old Acura Legend with low miles.
Best,
Thomas Y.
I'm a care giver-again, and will do the best I can for my loved one.
Judge not, lest ye be judged; for those who have not done care giving.
not everyone sweet compliant patient. My husband was very confused angry and aggressive.. doctors proved to be useless ‘try this Med.. try that … with some of them making his delusions hallucinations worse .. I was burning out quickly as the hired aids were not that useful and the whole house ‘on wheels’ morning and night. So I found best memory care home I could afford ..
they finally straightened out meds..
provided structured routines .. monitored care 24/7 , activities, lots people talk to .. not isolated in house. When he asked to go home I told him I couldn’t take good care of him at home and it was dangerous
situation at home ( it was .. can’t remember how many times ems called) my husband came to understand that was true and
trust the care he received. I was there everyday bringing favorite foods and treats … both he and I looked forward to visits … before pandemic we’d go outings every day
sadly he’s deceased now .. after only
2 and half years … in a way relieved he’s not suffering anymore … by the way it’s a mistake to think they don’t realize everything they’ve lost !!!
there are no good solutions to this illness everyone on their own with this .. but I am grateful I was able to care for my husband in a safe secure environment and be with him everyday … most of all we were able to continue to be husband and wife
with dignity !!!
To never have tried would not sit well with me - yeah, I have all that (and more), but it is mostly directed at myself as it often reveals more about me than I care to admit. Strangely enough, I am grateful for such illumination (once I can see things in the clear light of day).
yes. hug!
i wish your mother and you well!! :)
Nobody ever said you have to sacrifice your life and old age to ensure another lives into old age with round-the-clock care provided by YOU.
This is the quickest way into the descent of your own health as I am discovering now with my own.
There is a philosophical question you have to answer for yourself and that is this: do I value that person's life more than my own?
"do I value that person's life more than my own?"
i personally think someone and their babies/children till age 18, is different.
(different from how i personally view things with our elderly parents).
----
regarding our elderly parents, i think:
there is nothing noble in sacrificing your life for your elderly parents.
i'm not saying, don't help your parents.
i'm saying, don't sacrifice your life.
that adult life (your life) must be lived to the fullest too.
no one (especially women, generation after generation) was given life, just to be sacrificed later - just to have their life stolen later.
LIVE A FULL LIFE, and let your children in turn also live a full life.
I would have to go for a drive almost every day with him insisting on the drive. The tantrums like a child were getting worse.
Each person has their own story. I found it was best for me to put my husband in a Memory Care facility. It was also best for him since he would get the proper care I was unable to give him
I am in awe of people who can care for their elderly parent 24/7 at home no matter the level of medical, physical or psychological demands (or the behavior issues) of their parent(s)/loved one AND who can do this with or without outside assistance AND who can do this with grace, love, confidence, who do it well and who do not lose themselves or become resentful in the process. I am not one of those people, but I an confident and resolved with my decision to have placed my mom in a nursing home over a year ago.
Sending love and prayers to all navigating these issues and hope all can find resolution and confidence in the choices we each have to make for ourselves, our families and our parent(s)/loved ones.
huge hugs of courage from me, to everyone!!
If I had to do it all over again, Id enroll her in day program sooner but not a home. Facilities show a lot of neglect, unless you're paying for private care, your elder will not recive the attention they need.
Today she still knows who I am, with occasional wonder of the man in the room. But she still knows me. Yet she cannot name all of our 5 children. Sometimes she knows 2, 3, 1, or none of them from pictures. The progression is quick for Jan.
The issues of caregiving are arduous. Am I feeding, bathing and medicating, properly? While those questions are appropriate the more important is, “Am I showing her the love and care that I promised her I would on 12/1/90?” That love can be shown rather she lives at home with me or in a memory care facility. But for her current level of needed care, she can receive that at home.
Will I place her in a MC facility? Likely yes, at some point in time. But I’ll fight against that day as long as I can. Don’t get me wrong, there are days I question how much longer I can do this. In fact, I think that question happens in my mind many times everyday. But I breath, pray, and ask God, for patience and strength. I often fail in both.
If it wasn’t for a wonderful caregiving partner named Audra, I would likely had to place my bride months ago. But this wonderful lady, who I found through an agency has treated Jan with care, comfort and friendship. Her help allows me times to go out for the day and read, have, coffee, exercise, go to a movie. What ever I want to do. Without this the famous burnout would have happened months ago.
As I said, my preference is to keep my love at home as long as I can, but there is certainly nothing wrong with placement. Each scenario is different. No two cases are alike. Factors like:
Expenses - Can you afford in home or facility care?
Your age and heath - Are you physically capable of caring for your loved one at home?
Knowledge - Do you know how to handle his/her medical and personal hygiene needs?
Patience - Can you remain calm in those tough moments?
All these and many more questions play a part in the needed care for your loved one AND YOU.
I cry a lot, knowing that my bride doesn’t have the cognitive abilities she used to and that she may very well need more skilled care in the future. But I will do my best, for as long as I can, to keep her home. At the same time, there is certainly nothing wrong with making that placement today, if needed.
I hope this helps.