Before I began taking care of my mother (mild stroke, mild vasuclar dementia, severe arthritis, multiple falls) my health was near perfect - one cold ever five or six years and that's about it. I'd run half marathons, practice yoga, strength train at the gym, but this year as caregiving has intensified they have all gone by the wayside. No time, no energy, and also depression because this could go on for another ten years or more and there is no good end. (I am already thinking about how my daughter will never be allowed to be a caregiver).
I have a sitter for mom when I'm at work and one afternoon a week a sitter so I could go to the gym, but usually I need the time for chores or errands. Placing her is not an option because she hates it (she was in a nursing home for rehab and I'll admit it was a nice break for me) and it would bankrupt us (I'm trying to get my daughter to school with no debt) and here we can at least reverse mortgage the house when the time comes.
So specifically about my health - last year my blood pressure was perfect. Now I am on two medications. In the past year I've injured my shoulder trying to lift her (now I tell her that if she fall, she stays on the floor until the firemen arrive). In the past six moths I've had two colds, thrush, strep throat, an ear infection. I think my immune system is shot from caregiver stress.
I use to be a gym rat prior to the caregiving, and now to look at me one would never believe it. All that hard work down the drain. During the 7 years of helping my parent I developed breast cancer, no markers, so the doctor said it was stress related, that in itself was a terrifying ordeal. Not long ago I fell and broke my shoulder, was out of commission for months, as we ourselves age we don't heal as quickly.
The stress of everything caused me to have a few break downs. I was an only child with no grown children... no one to pass the baton unto. Eventually I took the advice of my primary doctor and got help for myself. I am doing better.
I should get in touch with an elder law attorney who can arrange placement for her if I go first. Because I am not going to allow my daughter to become a caregiver, I actually hope I get cancer, and I will not treat it, except for pain relief - I'll let it progress and then move to Oregon. As a caregiver, I have given up on happiness, and only hope for some peace. Sorry for venting. Others have it so much worse.
I was as a point of a nervous breakdown nearly two years ago but have vowed to take a step back and look after myself. I arrange for my parents to have meals prepared and keep track of the many medical visits and accompany them to the doctors. I mentioned in another post that my out of town sibling came to stay with my parents over the holidays and it was a real eye opener to her. She got a little taste of what I live with.
But if you are doing this without getting help you are doomed. Always connect with your local Area Agency on Aging. A good case manager can be a lifesaver.
I was 24/7 caregiver. I'm still her primary caregiver while is is at the asst living.
I never got compensation, with the exception we shared the cost of rent and basic needs when she lived with me.
Theses were my challenges which got worse:
1) I did not have good night sleep. still persists to this day.
2) my blood pressure went to high I got a minor stroke 4 months ago. I am still recuperating.
3) I do not have motivation to look for day job to supplement my SS . I am 71.
4) I feel depressed almost every day.
5) I lost social skills and friends who were not patient with "my always tired".
6) I stay home 75% of the time.
7) my family (2 adult daughters and 2 brothers) always ignore my requests for help while my mom lived with me and still ignore about my wellbeing. They never come to visit me or call me. All on the same state not more that 70 miles distance.
I do not know what is my purpose in this world .
You have mentioned several times that you will not allow your daughter to be a caregiver for you. Then why don't you want the same for yourself? I admire what you are doing and I understand. I took care of my mom (long distance for several years) and she lived with me for 2. She now resides in a memory care facility and is receiving hospice care for bladder cancer.
I also was one of those fit people; work out fanatic, eat healthy etc. When caring for my mom, I was stressed all the time. I got shingles, had back surgery, and now have nerve damage on my left side. I was told that I wasn't healing properly due to stress. Stress and the nervous system are all related. That was a wake up call for me. We are delicate - we try to be strong, but humans are really delicate. Sometimes the ailments we get are a warning sign that we need to change our life.
I also tell my daughters that I will never do this to them. But, I came to realize that my mother's lack of planning (which I tried to get her to do for 20 years) is not my fault. You have to ask yourself, how long do you want to do this? My husband and I agreed to 2 years. My mom is 93; my mother in-law is 95. You never know how long someone will live. I never thought mom would live this long; she has outlived everyone she knows.
There are other options than a nursing home. Have you looked into assisted living facilities? There are also group homes for the elderly that could be a possibility. Call a Place for Mom - see what your options are. You may find a better solution than a nursing home.
Look at all your options, you may be surprised that they are better ones out there.
You don't have to pay for your mother's care - check Medicaid laws in your State. You are lucky you have the option, you should be spending time with your daughter and living your own life. You can still be part of hers, she will get used to her new home. Do you really want to end up resenting her for taking your life?
Believe me I don't mean to be so mean. I was living in your exact situation with my 96 year old Aunt. She was living with me and the stress and strain of it was taking it's tole. I had gain quite a bit of weight (emotional eater), I had to increase my medication for a rapid heart beat, I had to begin taking a medication for anxiety, I now have diabetes, etc. Last fall I was sick 3 straight months and took 5 rounds of antibiotics to get rid of "a cold". Not a cold, of course, but it never progressed to full-blown flu. I ran low-grade fever, ears were stopped up, chest was stopped up, everything had color (if you know what I mean). THREE MONTHS. I went into the doctor for a full CBC work up to see what was going on and my immune system was shot. My body had nothing to fight with. My doc told me that day that I might start thinking about moving my aunt to a NH. I just didn't want to do it. She was so scared. The time or two she had been in rehab she also hated it there. The wednesday before Thanksgiving she fell. ER, hospital stay, then to rehab. I had already done some checking and found just the facility if the need arose, so I was prepared to tell them which rehab to send her to. After she got there, she got worse. When a Medicaid bed came open I agreed to transfer her over to the NH. It was one of the hardest things I have ever done. Fast forward to today and she has adjusted, she feels safe and well cared for. The first month was rocky and full of late night calls about emergencies. My point is, when she asked about coming home I told her it was up to the doctors. They would not let her come because she couldn't walk, which was essentially the truth. She has settled in. So will your Mom. Please don't martyr yourself and leave your daughter without you because you don't have the courage to stand up to your Mom. Good luck and God Bless.
I do need to stand up to mom and tell her that we need to use her money to get her paid caretaker to come another afternoon so that I can have at least an afternoon off a week. She is such a fall risk that she cannot be left alone - she'll promise not to get up, and usually she won't, but sometimes she does.
Yes, I am planning on suicide if I don't get cancer so that my daughter can have her life. If it's cancer, I'll move to Oregon, otherwise when the time is right, i will go to Dignitas. When caregiving is over, then the grief, and by then, there probably won't be enough of me left. This is only partly depression - the reality is that people have to go through things that we would never put our pets through. Actually, I think rational suicide as end of life management is very different from despair suicide.
I can't put her in a facility for several reasons. One, my daughter would never forgive me. She is very close to her grandmother - and when she came home for semester break, mom was on her best behavior and not as demanding as usual, didn't cry and moan all the time, so she doesn't know all of what I go through, but she did see me helping mom get dressed, giving her a bath, helping her go potty all day long, putting her to bed.
Another reason is that I live in a state with a filial responsibility law.
And another is that when she was in rehab, she fell there. She can be sweet but she is also a domineering person and she is stubborn. Even in rehab she fell because she thought that she could get up and go potty herself. She said she had to go potty and had to wait for half an hour so she had to go herself. I told her she has to go in her Depends. It's been an uphill battle to get her to pee in her Depends at night - she had been waking me up two and three times. Finally I told her if she kept on that she would wear me out, I'd collapse, and then she would be in a nursing home.
Thanks for giving me the space to vent. At least day before yesterday I did some yoga and today went for a short run. Tomorrow if mom is difficult I'll lie and tell her I have a migraine so I can get a break from her until next time she has to go potty. I've also thought of putting her in a nursing home for a week of respite care so I can have a break. Sometimes mom says she feels bad that I have to do so much for her - maybe then I can tell her that the best thing she can do for me is to go in a nursing home for a week so I can have a break. I'll admit that sometimes I resent it when she says she can never repay me, but actually she could by actually paying me to be her caregiver since I'm struggling financially, and by going to a nursing home for just one week of respite. I do think I should see an elder law attorney and get everything in place in case I go first. It will have to be set up that if I die first or become incapacitated that mom goes to a facility - otherwise my daughter would have to drop out of school for caregiving. I have a friend who years ago actually had to drop out of medical school to take care of her parents. Her mother is now in a nursing home but she still has to visit every day.
As for falling, Mom will fall no matter where she lives, that is just what elders do. I know you enjoy talking to your daughter when she calls, cut the call short saying "it sounds like Mom has fallen again, I may need to call 911 this time". Maybe then your daughter might get a hint, or maybe not.
Keep us up-to-date on what is happening.
As for suicide, that may seem like an option, but in reality your daughter needs to know that you'll be around to love and care about her as long as possible, more than she needs to know she won't have to take care of you. (Also, hoping for cancer to magically "take you away" ignores the many realities of living with cancer, even for a short time, and the many kinds of cancer that occur. It's not like in the movies where one day you're given a diagnosis and the next you're laying peacefully in a coffin. There's a lot in between, and more often than not, it's years or even decades, not weeks.)
As it is, I am very concerned that you have done serious planning about suicide. I hope you will call a suicide hotline or the Alzheimer's Association hotline when you're feeling this way, talk through how caregiving is making you feel, and get some perspective. They have been tremendously helpful to me and to many others here.
As for assisted living or a nursing home, yes, she might "hate" it. (As one other wise caregiver has said, she'll mostly hate it when she assumes she has alternatives.) On the other hand, she might enjoy some aspects of it. (For one thing, being cared for by people who aren't depressed and resentful, and actually enjoy doing caregiving, makes a huge difference!) Beyond that, the routines and comforts of being cared for 24/7 in her own nice little apartment might hold some appeal once she settles in. My mom hated moving to assisted living, but it was absolutely necessary due to my dad's Alzheimer's, there was no way for them to continue living "independently" (with lots of help from me), partly because of my own breast cancer diagnosis. She cried and yelled at us for days. She doesn't "love" it now, except for the food, but she and my dad are well cared for and very comfortable, and I'm so grateful for that. So I would really urge you to give some more consideration to those options, and find out what supports are available in your community for caregivers. Even a week's respite would give you some breathing room.
More importantly, you'd have a life you value, and you wouldn't have to worry about her 24/7. It can be nearby enough that you can visit her every day twice a day, and still have your life back because someone else is doing the hands-on caregiving. If your mother doesn't have her own resources (money in the bank or a big life insurance policy), you could talk to your local Area Agency on Aging and find out which places nearby offer care on Medicaid.
Bottom line, you deserve a life that you can live. No one should feel like they're spent and life isn't worth living, and if you're feeling that way, it's time to make some dramatic changes before your health makes them for you.
There is a lot on your shoulder caring for your mom. It does take a toll. Us, women take on so much and we are trying to do the best we can. The last year caring for my dad I became so angry and resentful. Nothing seemed to be going right. I didn't know how to ask for help. I know finding the right balance is hard, but its a must. Try to find some time for yourself. Your health must be a priority. Sorry for this analogy, but I feel like I was a car running on empty and that didn't help my dad. He needed his daughter more than ever and she had nothing more to give.