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My mother was diagnosed with parkinsons some years ago. She has been on sinemet for quite some time now with other medications as well. Dementia is now advanced and we will never know if its caused by the long term mix of her medications or the parkinsons progression. We found out with our own research. Not sure why doctors ask about all your medications and forget to tell you long term effects!
She was halucinating come to find out that can be due to mix of meds or longterm side effect from sinemet. Sadly my mother took meds to help her shakes and now she is a different person needing alot
Of care. Ive read medicinal marijuana can be effective for some but my motheres doctors pushed the paper away as we tried showing him our research. Ive lost all hope for doctors. While my father was at a care givers meeting he learned that a man in his class was diagnosed with dementia and prescribed meds come to find out it was a B 12 deficiency and thedoc had never even did blood work before diagnosing or prescribing. All is well with him now and he is only taking B 12. After all our family has been through... We have done more to help my mother than any doctor. Good luck and God bless you and yours!!
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My husband's neurologist explained and I researched about the affects of sinemet and dementia...the doctor recommended weaning him off it and that helped tremendously. Turns out LBD has Parkinson's-like symptoms, thus the confusion. You need a REALLY good neurologist and neuro-psychologist to get an reliable diagnosis plus a lot of bloodwork, brain scans, etc. Before this neurologist would make a final diagnosis, we went through so many tests, but they were necessary to find out the real problem. The other 2 neurologists we went to did NOTHING like that...thus the original misdiagnosis and mismanaged treatment. I was so thankful to our family doctor who recommended the neurologist that treated my husband until his death. We had a few better months before his final, rapid, heartbreaking decline. God give your strength and courage to keep working to find the right doctor and the right treatment.
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