I live with my mother and help take care of her. I have been doing this full-time since 2005 (14 years now) with little to no help from my older siblings who live across the country. The oldest sibling lives in Washington DC and she actually has done a lot more to help me and our mother. When I needed a vacation, she came to Ohio and stayed with my mom. That gave me peace of mind to be able to relax on my vacation. The main issue is, I make next to nothing and I am always financially struggling. My sister makes probably three times what I do. But the one that bothers me the most is my brother. He is rather financially comfortable, even though he constantly says he is not. He just bought a place in California that is 1.2 million dollars. This month, I am paying rent LATE for the first time ever. I am under so much stress and my brother does nothing to help our mom. On her birthday in August, he got her ... nothing. On Christmas... nothing. I scraped by to get her a few very small gifts to make Christmas something to enjoy. But the icing on the cake is that whenever he does call, it is like he is Jesus Christ. My brother is the golden child and does absolutely nothing for her. I get the doom and gloom from mom and her severe depression and he calls and she perks up and is happy as can be. I just feel so cheated. My sister is mad at him to, for the exact same reasons.
I know I probably need to let this all go, but I want to scream sometimes because I am single, I have NO social life or any chances of meeting anyone because I am also a gay man living in rural Ohio. I gave up ever thinking I could have someone. I battle depression daily because of all of this. I have had my stress levels skyrocket because of this.
So, I am planning another vacation later this year IF I can get caught up financially and that might not happen. But I think it is my brother's turn to take care of mom while I am gone. Issue is, he will not do it. I know my sister probably would but how can I get my brother to step up and do something to help her?
Open to any and all advice...
Want or expect sibling help or assistance - don't hold your breath. Also, try not to harbor the anger/resentment. You have to learn to accept reality as it is. Asking, begging, pleading, getting angry, wishing that they will come around and help is a waste of time/energy. Focus that time/energy on helping yourself and your mom.
Some families have wonderful members who step up and do what they can. Others, not so much... Even worse are those who not only don't help, financial or hands-on, and never/rarely visit/call, but also have the audacity to criticize and/or question what you do!
I have the bulk of responsibility - partly because I stepped up when I saw mom starting down the dementia path and partly because the brothers have no clue how to deal with it. It was painful trying to get help from them and it didn't entail mom care - we did have initial moments of working together to find a good place for mom (one younger, working, mom would be alone all day, the other not local. Mom said NO to moving anywhere, and physically I can't take care of her.) Funniest was after the first place we checked, sticker shock hit! They both said for that much money they would take her in!!! AHAHAHAHAHA. Our parents and aunts took turns caring for grandma, but THAT was a different case. I told them sure, if that's what you want, but you NEED to understand what this entails. It will NOT be like grandma. She did not have dementia. Younger brother also didn't understand AL vs MC and was insisting on AL. No. Once we finally got her moved, I asked for help getting her condo cleared out and fixed up to rent or sell. I was handling all the paperwork and financials, a lot for me to work on, plus arranging/going/working there, 1.5 hr trip ea way. It was like birthing elephants even getting a reply sometimes! Over a year and a half before the condo was done and sold, but guess who had the biggest piece of that pie??
We also have a "golden boy", the non-local one. When she was okay/living by herself, I would always hear how he called EVERY Sunday (emphasis was hers.) Every few years or so he'd come to visit, but otherwise provided no help. During his last trip here to help with the condo, he went with me to visit - she saw me first, and I got the usual "where'd you come from" and "what are you doing here?" Then she saw him. It was like the second coming of Christ!! Hugging, fawning over him, enough to make your stomach churn! I never had a touchy feely lovey relationship with her, so it doesn't bother me. It just galls when you see someone get all this and they do nothing to deserve it! After that visit, he refused to go back while here, as he "didn't know what to do with her." Oh, and you wanted to take her in??? The other used to help her if she needed something at the condo done. Now? Most of the time I get no response to requests for information/help. I did recently get him to take her to one appointment which is a hike (no local care for the issue, needed 4x/year.) Everything else (financials, appts, questions/paperwork, supplies not provided by MC, working with staff/medical care, etc.) is ALL mine. I can't waste my time and energy wishing, hoping, cajoling, getting angry, etc for anything to change. It isn't worth it. I was much more at peace when I let this go. I do not get paid to take care of anything, and being retired myself, I am on a "fixed" income, which from time to time results in money crunches, but I have so far gotten by.
Years ago, dealing with someone outside the family, I realized I cannot change who they are and how they behave. I had to change my expectations, which resolved my anger at this person's behavior. It took a bit longer to apply that to this current situation, but as noted above, it was worth it.
So, let this go. Be grateful for your sister's help (and let her know!) Research to see if there is any assistance out there you/she can qualify for, either monetary or personal assistance.
As a caregiver, I can see the strain & the toll, caring for a parent takes on the family.
Unfortunately, you can't control, what your siblings do or don't do.
Dude, 14 yr is A LONG TIME to be the sole caregiver. Kudos to you! You are rare & special, to be doing this.
I am 7 of 10 children, my Mom passed away of cancer 4 years ago (God rest her soul) leaving behind my Dad (married 65 years) broken. We are all amazed, he is still alive.
I am fortunate to have most of my siblings, all pitching in. My Dad lives in a wonderful Adult Family Home. He planned well, for his future. So far, we have not had to dip into any of his funds, as he signed up for a LTC plan years ago.
I would research, anything you can, to get you outside help. Your lack of sibling help, is not only hurting you caregiver wise but eating away at you.
I wish you the best, in finding help.
Tina
P.S. Can you get paid, for caring for her? Does she have the funds. That would help you, with your financial struggles.
What your going through, well...it's all a part of being a caregiver. Be at peace with the fact that you are able to care for your aging mother. You will have the greatest memories no one else will have and those are PRICELESS! And, getting any vacation at all is amazing! I have been a caregiver for my mother for over a decade, I have been blessed with one vacation about 10 years ago...
Bitterness and anger only hurt your own heart and will steer any possible loving, kind and generous mate far away from you. Take this time to be yourself, get to know who you and your mother are as individuals that way when you are around others and have a social life, you will stand firm in who you are and know you did the RIGHT thing! Far too many individuals are far too self absorbed to truly care for the elderly and I for one am very proud of you and what your doing. I really hope some financial "miracle" comes along to help you because, well your job is not easy.
In the end, I would leave the 'brother', who is acting like a 'stranger', out of this situation. Your better off not having that added stress.
Good luck.
Gale 🙏🏻
First post to cover email and researching assistance.
"I wrote this about a week ago at the same time I was putting an email together to both siblings. I have NOT sent that email as I typically like to write something, sit on it for a while and revisit it later when maybe my emotions are not the same. "
I have done this many times over the years - sometimes editing multiple times, but in the end they were never sent. I currently have two emails in my "draft" folder, one for each brother regarding what I felt was unnecessary behavior, lack of concern/help or just outright wrong. More than likely I will never send them. It WAS cathartic just writing them! It somehow gets the emotions of the moment out, and later you can revise it to tone it down or just leave it there, unsent.
Hopefully the SW or some other co-workers can provide some ideas or point you to resources that can help you. Was your dad ever in the service? There are some VA benefits that some people are eligible for (Aid and attendance.) The application is a bear, and the are restrictions/requirements, along with some places, including the VA, who can help with the application. Sometimes utilities have programs for seniors/low income to help with costs. Have you explored Medicaid? Sometimes they provide caregiver funds, both outside hired help and paying family members. It is dependent on need, income/assets and can vary from one state to another.
See the following for more detail:
www.aplaceformom.com/blog/11-05-15-medicaid-sponsored-home-care/
I will tell you, especially since we are both in OH, that every area has a local Area Agency on Aging, and I'm hoping that yours has something to offer for caregivers such as you. I just signed up for ours. YOU MUST check and see, tomorrow! Google Area Agency on Aging with your zip code or city and see if it comes up. This program in our area perturbs me in the way it was set up, but in our case, it is set up to help YOU as the caregiver so someone else can take over and you can get away. YOU will not have to pay, but will have to set up. It is a dollar amount that can (in our area) be used only for a 3 month period of time. But it should be an amount hopefully that will allow adequate coverage for you to get away.
As for the golden child and your sister, nothing much is going to change from what I've experienced and what I've heard via my support group of adult children caring for those with dementia. We're the good kids...the ones who stayed, and cared. The ones who do the scut work. It will just agitate to and cause stress as you know if you dwell on it, but I know also how hard it is to stop. I envy her coming home with no obligations to anyone while I come home, rush to make dinner, do the dishes/clean up and THEN I can sit down to a tepid meal unless I zap it first.
Vacations are so wonderful if only to have something to look forward to. So, I would say 1. Be more direct about what YOU want and need for relieving the others of their obligation to mom (not that they realize that necessarily) and 2. Remember that this is temporary. Know that you are not the only one in this predicament. Maybe your sister can impact your brother, but heck, if she doesn't mind, than let her. Have you read/seen George Hodgman's book Bettyville? You might enjoy it. Good luck and know so many of us here will no doubt be holding a good thought for you. BTW, if mom is competent enough, could you be brave and take a staycation...i.e. stay at a hotel not too far away? I took a day trip on my birthday, took my pup and went to Wegman's, about 1.5 hours away. And last summer I went to a hotel 45 minutes away for a few days. Life went on.
Hope you let us know how it goes...
You can’t help the way your mother feels about your brother; neither can he. But it’s human nature to value what’s scarce. In his way he’s helping her when he calls, so you might get him to call more often if you can’t get anything else out of him.
But YOU still need a break. You also NEED a social life. Is there a reputable home healthcare aide that could care for your mother on your much-needed day off? Maybe your mother would enjoy someone new now and then, and it might help with her depression to have a new, but still sympathetic, person to pay attention to her for a few hours. My mom passed last year, and although my sister was there taking care of her often, she had a home healthcare aide there a few days a week and become very fond of her.
my parents, NOT my brothers, and it has been hard to forgive them. Times are changing but I’d stress 2 things: ALL siblings should contribute and, above all- for the sake of your mental & emotional health - NEVER let yourself be the
ONLY one doing all the caregiving. And make sure you’re paid if you are; but this burden should never be borne by one person alone.
The days of thinking women are only good for reproduction and taking care of everyone else’s needs ARE OVER!
My mom had written in her Trust that I could live in her house when she died. My brother paying hslf the mortgage and me half. My brother signed the Trust in June and his own half million dollar mortgage 2 months later. He now refuses to honor the Trust, wont pay his share, and the house--my mom's only asset and worth 800K, is nearing foreclosure. He makes over $300k a year and used my moms credit cards to the tune of over 400,000 dollars, doing nothing for her. She died with no money for a funeral because hed used up all of it.
I have a masters degree, am a paraiegal, wrote 11 books, hosted a tv show and raised two great kids. I was dirt to my mom and to her golden child. I wish I had walked away from them both years before.
My point after all this is that you need to not say another word but ACT.
If your mom hasnt already created a Trust and POA, do it now. If she wants your brother to be in charge of these things tell her you will be walking away. Even if she has no assets (house, money, etc) she owes you the respect of making you her legal caregiver. From there we can figure out getting you paid, getting you some time off, etc. Sorry so long but trust me, I know what Im talking about. It going to get a lot worse and you need to take measures now to make sure you are legally in charge. Sorry I wrote a really long post that didnt save, but I think you get the jist. You are exactly like me and my heart is half breaking and half really pissed off for you. Im so very sorry.
Story first...your situation is familiar to me because I'm a bit like your California brother (and appropriately ashamed to admit that). Or at least I was. Till a few weeks ago, my sister, mother and I all lived within 3 miles of each other. All my adult life, my sister (middle child) was much closer personally to Mom than I was. Mom has always been a difficult, challenging person to deal with. Sis could either deal with it better than I or didn't mind her quirks. Plus, I could see that Mom was dealing with issues of mental illness. Because I have my own (depression, anxiety), it was just easier to let Sis deal with it. Occasionally she would call and say Mom wants to see you. So I'd make a cursory attempt and then fall by the wayside. Again. It occurred me to me Mom and Sis had a co-dependent relationship and I wanted to stay out of it. Plus Sis is a bit controlling so I felt like if I didn't do things a certain way, I'd get fussed at. Better to leave well enough alone - out of sight, out of mind. I did my part at holidays, though. We have an older brother who lives 2 hrs away but he has a terminally ill wife so he pretty much gets a pass on dealing with this (though this is a fairly recent condition; he checked out in dealing with Mom a while back). However, Mom has conferred Golden Child status to him even though Sis has done anything and everything with Mom for years.
Anyway, fast forward to a couple years ago when Mom broke a hip. She came out of the anesthesia basically damaged. It kicked Alz into high gear. I felt like I got dragged kicking and screaming into now "helping out." But I'm about as fully immersed now as I can be.
Sis still deals with the lion's share of Mom's business affairs; she had been dealing with it and that's a tough thing to parcel out for others to help with. Plus she's good at it and organized. Me, not so much. But I am now fully on board and very (sadly) happy that all 3 of us siblings are in full communication, now working very well together to do what's best for Mom. Even bro, with his ill wife, has recently truly stepped up to the plate and done what he can.
My sis is also on this board and may read this response, but I think I can safely say she still (rightly) has anger issues with my lack of help for years, and bro's, and I have guilt about not doing anything earlier. Water under the bridge. Over Christmas, Mom broke her knee and one horrible month later, she is now in her "forever" home, which is a memory care group home. She has enough cognition to think there's nothing wrong with her, so this is really difficult. We three kids worked very well together to set up her new place as much like home as we could. We are fortunate that Mom had the assets to let us do this for her.
Now the advice: look up whatever trade associations (such as Alz.org) there are for the illnesses she has. With enough digging, you might find local options for help of various kinds (respite care, money, support groups). Try your area's office on aging for resources. And though it may cost (maybe your sibs can help with $ if nothing else), see if you can find an "elder advocate." Much less $$ than an elder atty and can offer a lot of the same help. Get references.
It's unfortunate your mother may not realize who the real Golden Child is she raised. You sound like a darn good son. I wish you all the best. Take a vacation to Orlando/Central Florida. We have a very Prideful community down here to welcome you with open arms.
After sometime and many anguishing moments, we came to the conclusion that there was nothing we could do to get them to help out. We then put our head down did what we had to do fo for my mother in law. Until she passed away here at home
I personally think that some people don’t know how to take care of someone that has medical issues. I think it scares them. Seeing someone sick can be a scary thing for people.
It sounds like your brother is a person that keeps too himself and very stingy. Have you asked him for help? Have ask him why he doesn’t send gifts to your mom? It sounds like he has money if he just bought a very expensive house. That said he is thousands of miles away. Maybe on purpose who knows. So I can tell you your probably not going to get him to come into take care of your mom. Sounds like he’s really into himself. I have a sibling like this and it makes me crazy. I think you need to speak your mind. If anything you will feel better. That’s what I did. Nothing came of it but they needed hear how into themselves they are not helping when needed. Maybe your brother will listen to you.
Maybe you need to talk to both of your siblings and ask them for money to help take care of your mom. It should NOT all fall on you. Try starting out talking nicely then bring up the situation. If it doesn’t work at least you tried. Sounds like you at least have your sister.
On the fact that you are struggling have you tried get help from outside entities? There’s so much help out there. You just need to find it.
I know how hard this is. However you have take care of yourself. You need to get get out some. Even if it’s a little bit. Being couped up inside all the time is not good for anyone. You need to social life. You need a friend you can talk to. Try getting out some. It does a body( mind) good to do something for yourself.
I really do get what you are going through. I am still going through it now. It’s so frustrating when you have no help. I honestly don’t think your going to get anything from your brother but try talking to him. It can’t hurt. Just be thankful for the fact that you do have your sister who is willing to help you when you need a break. Btw have you spoke to your sister about your financial situation? If you haven’t maybe you can ask her to help support your mom.
I wish you well. Taking care of family is the hardest thing too do. However know that you doing the right thing (at least to me you are) Keep your head up your mind strong and try to keep peace in your heart.
I got that off my chest. So, they won't help you. Don't expect it. If they're married with kids, they have their own issues. Be ready to get the blame for everything and the left over praise for what they attempt to do.
I wish there were a better answer, but there isn't.
Make sure they have a nice seat for the funeral.
Makes me glad im an only child.
1. Yes, write to your brother and state that you're planning to be away from __ thru ___ and Mom would greatly benefit if he would please arrange his calendar to be with Mom during that time. Put the emphasis on your mother rather than on you.
2. Yes, please look into respite care where your mother can not only be cared for in whatever way she needs medically and physically, but it can also provide a more social situation than one gets living at home.
3. You don't mention this, but I wonder if your mother attends any day programs, as that could also give you some breaks as well.
4. Check with your church, synogogue, community centers, senior centers and neighbors who could come and "visit" with mom a couple of evenings each week or on weekends to give you regular breaks so you can go out socially and not feel trapped at home and isolated. Many people like to help, but they need to be asked.
5. IF your mother needs more help than a neighbor or volunteer could provide, then asking your siblings to pay for an aide to be with mom 1 night/ week (this would be a fairly nominal cost) and you could have your night out and this would help you recharge your batteries...
It's important that you stay focused on what it is you want rather than on the emotional turmoil your siblings (brother in particular) cause because that just creates more turmoil in your head and heart...
Be clear, be direct and be focused... you will get what you need and want, it just may happen in ways you haven't yet expected... and we breathe...
Have you given any thought to an Assisted Living Community for your mom? I don't know how it works in Ohio but you may be able to get financial assistance for her .
Please take care of yourself (easier said than done!). You deserve a life.
Does your mom have assets? If so, go see an elder lawyer about a trust and a caregiver agreement so you can get PAID.
What's the scoop on your mom? What's going on with her health-wise?
If she has no assets, write your brother a letter. I find people can listen better in a letter explaining your position and if you're comfortable, ask for funds, if that's the only thing he *might* be able to offer, ever.
I have a sister who does nothing....here's the short version:
We spoke truthfully about it. She admitted she can't do it (for her reasons). I was in a lot of pain around it initially, yet having spoke my truth really helped to liberate myself.
Eventually, I realized I can't make her care or love (!), that's who she is....so I let go....and came to a full acceptance of the "what is" instead of "how I would like it to go".
Driving myself crazy wasn't serving me...at all. And I'm in a better place having done my own inner work.
It creeps up sometimes yet then I remind myself that I will not have any regrets about caring for my parents. This is what my heart speaks!
It sounds like your other sister is helpful. Perhaps if you feel it's appropriate, ask her to chime in as well, reinforcing what you are expressing as well. Maybe, just maybe, he'll feel to share some money with you (if a trust can't be set up). Perhaps she can offer a little money, too?
If you CAN get a trust, I would write a letter to him anyway expressing everything you feel...he needs to know how he's affecting you. You will be feel a little better having done so.
Sincerely, all the best!
When you write your email try to keep emotion under control and do not use blame language. People tend to ignore or write off emails that blame or are overly emotional.
Good luck.
It is possible - you may alas think likely - that he will brush this off, laugh it off, make excuses or even take offence at being asked. In which case, all you can really do is pack as much restrained contempt into your voice as seems appropriate. You can't force him to lift a finger.
It is, I know, almost impossible not to pick away at the issue of why some adult children do these things. Perhaps it often is the favourite child: my brother loathed my mother's adoration and writhed whenever he came into contact with her, so it's not always just a case of spoiled entitled brat. Why not acknowledge her birthday, send her a Christmas card, make a habit of calling her every third Sunday or whatever? How hard can it be? Well! - too hard, apparently.
But one thing you can be sure of: if you don't put a straightforward proposal to your brother, he definitely can't agree to it. Give him a fair chance. He might surprise you.
When he doesn't, we'll have to think of something else...
By the way. If you are the only gay man in rural Ohio I will eat my hat. I realise it's not exactly the centre of the Pride universe, of course, but just think through the statistics.
We assume they know all we know, and they DO NOT.
My OS would happily write a check for any amount if it meant she didn't have to actually lay hands on mother or "do" anything. Perhaps this is the situation with your family. My younger brother is the same way. His wife does not want him "helping out" but she isn't the one working and if he opts to throw a couple hundred bucks a month at mom, he should be able to do it! SIL will get something from the $1 store for mom for birthdays, and frankly it's just offensive.
You may have to swallow your pride and simply ASK. Worst thing they can say is no.
She's not just a mom to "YOU" she is the mother of all of you, and there;s no reason why they can't pitch in monthly.
If you had a few extra bucks maybe you could get out and meet some new friends....it's a lonely life, caregiving.
BTW, I think all families have the "Golden Boy". Mom's first one died a few years ago, but the 2nd place just stepped up. He is rich beyond measure and travels and plays to a fare thee well. It bothers me to no end that he doesn't go see mom. His wife has allergies, mother has cats..he isn't allowed to go without her...but he could certainly mail a check.
Mother lives with YB who is barely getting by. I'll kick in for groceries or do gift cards, etc., but brother should be recompensed some. With cash.
Try the email approach, lay it out there--add that you're struggling to make rent and maybe that will touch their hearts.
I think my brother has taken some of our family's issues and over-magnified those to make us look terrible. I seriously think EVERY family has issues, and this is his excuse, to push us aside and forget us. I have a lot of friends who have a lot more drama in their own families. But he uses that to justify keeping his distance. To me, that is offensive to who we REALLY are, but hey, if that helps him get up every day and look himself in the mirror, go for it.
You also start getting things in order so you can apply for Medicaid.
Would your mom be eligible for Senior housing? Good possibility that you could also reside there if you are a caregiver.
There are resources available that can help out, there is help with gas bills, electric bills and resources for food.
Is your mom eligible for Hospice? If so they can help with supplies, equipment as well as volunteers that can come in and help you and your mom.And you would have a Social Worker that could find more resources for you.
Thanks for your insightful reply, much appreciated.