My DH had recently developed severe tremor, stutter stepping, frequent falls, inability to feed himself. These issues became increasingly debilitating. I hired home care help 2Xweek, 4 hrs a day; started PT and OT, made appt with Elder Law Atty, and started looking at facilities. It had become more than I could handle. On Friday, when the Social Worker was here, he stood up and waltzed around the house, had no tremor, and declared he did not believe he had Parkinson’s and I was just trying to get rid of him. I’m humiliated and frustrated. How does he go from requiring constant help to needing no help?
It reads as though your husband is a difficult man who certainly is capable both of showtiming and also of acting helpless. For your own sake, think about what is best for YOU, as well as for your husband. Perhaps the best thing for both of you is to go ahead with placement.
https://lewywarriors.wordpress.com/2016/02/22/its-showtime/
I don't mean to offend but rather think that this is either a true miracle or he's grown quite comfortable being catered to at home.
How are your finances? How much longer can you continue to pay for help for your husband that he doesn't seem to need?
It is nothing I have ever seen with someone with advanced Parkinsons.
As to the Social Worker, he/she will have access to PT/OT/MD notes. So that will hopefully help.'
You are POA, aren't you P. Do you have your diagnostic papers from the MD incidicating hubby should be in care?
I am so sorry. This is very disconcerting, I know.
Our regular MD seems to be hesitant to document my DH’s disease though the neurologist diagnosed Parkinson’s and put him on medication. Our GP calls his issues “failure to thrive, slight tremor, and altered gait”. I had to ask several times for him to send a social worker to do an assessment so I could get services from Medicare.
The service we have now does recognize the neurologist diagnosis so they treat him as a Parkinson’s disease patient. Thank goodness they believe me.