I am the guardian for my step-dad. My mom died very suddenly last year from encephalitis caused by the shingles virus. She was 77 and healthy.
She leaves behind her 92 yo, legally blind husband of 30 years who was diagnosed with dementia approx 5 years ago. We were blown away when step-dad became the surviving spouse!
My mom was a nurse and legal advocate. She had planned everything out expecting the demise of her husband and handled every tiny detail of his life to care for him when his dementia became more debilitating.
The last year has been insane dealing with step-dad. He has always been stubborn and opinionated. Dementia has magnified that to the extreme. His daily life changed so dramatically in an instant. He was placed in memory care facility in January 2020.
Since then he wants nothing more than to go home. It’s relentless and obsessive. He’s a scrappy, agile, surprisingly strong 92 yo! We are concerned he will hurt himself or an innocent bystander when he goes into his rages.
He is currently on his 3rd hospitalization at the Psych Hospital. He landed there after tossing his room, dragging his mattress and recliner out into the hall. He then pushed through an exterior door (which emits a siren) got on his walker to try and hoist himself over the 8-9 foot high gate. All drug therapies have been tried and failed.
So, onto my initial question...his psychiatrist has suggested trying ECT “Shock Therapy”. It involves being anesthetized for a few minutes and then a seizure is induced.
I’ve had two days to process this and have to say I am on the fence. I will be talking more to the doctor tomorrow to learn more. Considering anesthesia and shock to a 92 year old seems insane to me but so does the way we are living now. He emits so much rage and hatred, I can’t imagine what it’s like in his head for him. If we are at the end of being able to have any sort of control through behavioral and medical means, is trying ECT too much?
Does anyone have firsthand knowledge of this?
I am feeling great pressure to decide something. The facility he has been living at has determined he can’t live there unless his rage is controlled. They are recommending a locked skilled nursing facility.
My only experience with ECT is with a good friend whose mild and well controlled depression suddenly spiraled out of control when she was in her early 60s. She was hospitalized and after several meds were trialed and failed, they started her on ECT. Great results! She is still gainfully employed and doing well.
I'd go for it!
They tried everything and like your dad, nothing worked. Her mom was much younger than your stepdad. She was in her 70’s when she was admitted to a mental hospital for depression. Her mom was once a very happy and involved person in the community. She became lethargic and was like a zombie.
The doctors wanted to do ECT. It was successful for her. Do you want to get a second opinion from another medical professional? That may be helpful.
My friend said the newer methods of ETC are different than they were years ago.
Best wishes to you and your family.
One of our last conversations, she told me she had been praying to St Jude because she felt hopeless and she was
beginning to feel better, like her prayers were being answered somehow. His behavior wasn’t changing but a weight had been lifted off her shoulders somehow. She died two weeks later from encephalitis caused by the shingles virus. An answer to her prayers???
Mom began her career as a pediatric nurse and ended it working for the County as a victim/witness advocate. If anyone could compel a person to do the right thing, either by sweet-talking or arm-bending, it was her. It breaks my heart knowing some of her last lucid moments where of knowing that dementia was defeating her and it would then become my cross to bear.
ECT DOES cause BRAIN DAMAGE regardless of the video they make you watch that makes it seem harmless. Also the doctor will probably tell you that there is no danger and that it is now humane. You wake up feeling like you have a headache and a stroke. The longer the seizure the more brain damage.........
Won’t his doctor try some medications that sedate a bit? Seroquel is a good one once your body gets used to it. In the beginning all you want to do is sleep. The doctor has to dose is a little at a time until the patient is feeling fine with that dose. Good luck with your decision . I don’t know if you pray or not but if it was me, in my humble opinion, I would ask about some medications that will calm you down first before I let the doctors pass electricity through a loved ones brain that induces a grand mal seizure and brain damage.
Sincerely,
Ms. April Day
Further, if you think medications are safe, think again. Medications--especially in combinations--can be VERY dangerous for the elderly, including severe side effects, heart damage, and falls.
https://www.mcleanhospital.org/news/ect-shouldnt-be-last-resort-treatment
I think at this point you have nothing to loose by trying the treatment.
If all other therapies have been tried and have failed this might be your last best option.
I hope it goes well. Please keep us posted
And I am sorry about your mom...
She is a nervous, scared wreck for about 4 to 6 weeks leading up to the "treatment" and then she is a shell for 4 to 6 weeks from the trauma of it all.
She does it because her son won't have anything to do with her otherwise. She get about 2 weeks of halfway decent quality of life between treatments.
I don't think I would put anyone through this. Especially someone that is already suffering from a brain deteriorating disease, but that is just me. I think that the end result could be tragic.
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