I am in a real pickle. My mom has been told by her doctor, and most recently by an emergency room doctor, that she needs to be living in a facility that provides some level of care or in a living situation that does not involve having to climb 2 flights of stairs. Since her hospitalization in June, Visiting Nurses has provided care in her home, and she has been considered homebound. In any case, my mom will NOT agree to do anything (set up care with someone else for when they leave) or make arrangements to have various things done (groceries, laundry, taking out trash, etc. Her nurse, her social worker, me ... we're all broken records and she won't listen. She hung up on me Monday because I was telling her something she didn't want to hear re: hiring help to get to one of her doctor's appointments or risk a fall (which could negatively impact her independence and land her in a nursing home--which she doesn't want).
The nurse told me today that they have never run into a situation like this where someone just absolutely refuses help or is this stubborn. My mom is of sound mind, but is making decisions (as I've pointed out to her) that don't support the independence she still wants. She keeps saying she won't go into a nursing home. I am an only child, not married, and there is no other family on her side to help. I'm it. And it is not an option for her to move in with me or near me. Her needs exceed my ability to meet them, and I know what my limits are. I am willing to help, provide information, facilitate care, etc. but I am unable and unwilling to take on full-time caregiving in this situation.
So my question is twofold:
1) How would you handle this situation? And if you have had to deal with it, did you have to do to get your stubborn parent to take the right action?
2) At what point would a situation be considered neglect (by an adult child) under the law if they are aware of the unsafe situation, but the senior refuses to do anything on their own behalf or spend their money to make needed changes.
I'm at my wit's end and at the end of my rope. I don't know what to do!!!!
will be moving to a new house soon. I do not plan to care for her if something should happen to her. She has no family. If she refuses care if something does happen and wishes to stay in the household, what can be done to have her leave and seek care somewhere else? Or if she does become ill and want her to leave, and she doesnt want too, how do we handle this type of situation?
She'll ask him leading questions to make sure that he answers the way she wants him to.
When she had a fall and was hospitalized for over a week, our sons and nephews helped us taking turns staying with him and getting him to do various activities, go to bed and get up at a reasonable hour - all of which Mom has repealed and gone back to allowing him to go to bed and get up when he wants and watch TV literally all day except when he's eating.
However, when dementia has been diagnosed - perhaps by more than one doctor - one would think that it would be easier to get them moved into safer care whether or not that is what they say they want. Trying to get guardianship is not only expensive, but it can be difficult even with a dementia diagnosis.
Some states may have more lax laws than others so you could check with your state's attorney's office and see if there is anything that you can do. I wish I could give you a better answer, but I can't. Maybe someone else has a suggestion.
Please update us when you can. We can commiserate with you if nothing else.
Take care,
Carol
Now Mom and L have been in a facility for five months. Memory care for mom, AL for L. The decline for both, especially in Mom, has been heart breaking and quite alarming. Mom's meds have had major changes twice now as her behaviors are very difficult to manage for everyone. Naturally she exhibited the behaviors at home as well, though not as frequent or extreme. She was doing fine at home, great in fact.
POA was responsible for choosing facility for Mom. Naturally, I expressed my concerns for behaviors that would occur with the move. Now POA has her hands full, call it overwhelmed. Mom has just been started on new meds, two weeks ago now, that do not seem to have the desired effect of making Mom more compliant.
This disease tears families apart. Why did sibs decide Mom needed to move? My best guess is guilt that they were not able or willing to provide time to assist with the care. They were in denial of how sick my Mom has become. All thought the transition would be easy. If they ever are, the people associated are very fortunate.
Today I got hit with another reality, that she's really starting to need someone to help her with dressing and grooming. Yet she's still with it enough that she would be terribly insulted if I explained that her judgment in these areas is not good - and you better believe me just "suggesting" she do something different is ignored. So what do I do? Let her go out in public looking like a bag lady? Try to stop her? And she sure won't allow me to arrange for a homecare assistant to help her with bathing and hygiene even if money weren't an issue.
Anyway SherylBeth, good luck to you I hope somehow you find solutions that help - wish I could offer you some!
There are a lot of people who find themselves faced with being the sole full-time caregiver not because it is necessary but because a parent wants it that way. I thik that often leads to a great deal of unhappiness and resentment, and the alternative is often not good either, just waiting for something bad to happen so they need to go into care like it or not - and of course they don't like it, but that does not make it right for them to ask us to do things we cannot or should not do.
Don't just give up and give in to trying a plan that is unsustainable, just because you get a big pile of "if you loved me you would" or "You don't love me!" There are ways to say no to the impossible while reassuring love and ongoing involvement at whatever level is actually possible. Not that they all work, or anything...but, find out about all kinds of resources, even ones you think Mom would "never" use, because her "never" may of necessity come to pass.
Thank you, finished. I am too!
If she is a danger to herself and not capable then APS could possibly step in, but they are reluctant to do so if there is any gray area at all. If you are not POA, even if the POA can be activated with incapacity letters, your hands may otherwise be tied. Your idea of selling the home and setting up a fund for her care is totally appropriate, and the reasons it is being vetoed are almost certainly selfish ones on the part of brother and probably Mom as well. I'm sorry Mom has decided to be like this; many people are, and they think they are only hurting themselves, but they hurt the hearts of everyone who cares about them too.