Full time (7 days/week) caregiver with NO family in area. I'm not new to this, been taking care of her for over 16 years. Dementia is increasing and phobias are WOW. Out of control. No mental health support - this area is so short staffed and those available have "no time" or "training".
Maybe sharing my experience and feelings (seeing the "written" words) will bring me someone else who is affected the same way and give a "shoulder" to weep on. I am tired of crying alone.
That feeling of being alone really gets to me bad!!!!!!!!!!!
Adult conversation would be good and much needed. Many changes since I joined AgingCare, so I will edit my profile and bring it up to date. Thanks in advance for sharing.
I want you to know that you most certainly are NOT alone. So many of us have an elderly "loved one" that we are doing for who makes out lives hell on earth. You are not alone.
This is a safe place to vent and everyone knows where you're coming from. You'll find lots of support from the people on this forum and very good advice to.
Maybe you can find an adult day care place to leave your family member so that you have some breathing space. I fly back take care of my parents every other month so I still have some breathing space. But I still hate it.
My father is coming home from rehab tomorrow. It’s been nice only having to deal with my mother’s issues. I felt like it was a vacation. God only knows how this is gonna go now.
Anyway, you need to take care of you. Find some help or services in your area.
Hang in, you are not alone. There are lots of us in the trenches as you will see from this blog.
I wish I had some answers for you or some suggestions but this is a tough one. Feeling alone is really pretty awful. You're not alone, the caring people on this forum are here but real-time conversations would be great too!
Be well :)
(If I do find any kind of chat, I'll come back and report on it!)
I was an only and the sole caregiver for my Mom with no other family in the area except for my husband who works long hours.
As things progress, unless there is a a quick unexpected end, it will be more than 1 caregiver can handle.
I decided to place my Mom in AL after rehab for 3 broken ribs from a fall in her home. She was losing her ability to remember and to be on her own. Both of us had expected me to be her sole caregiver in her home, but I could see that was not realistic. My thought was "what if something were to happen to me"? Who would take care of her? She would be alone and helpless! She later said to me after adjusting to her new AL apartment "I am where I need to be". Was it perfect? No. Nothing is at this stage of the game. She lived there for the last 4 years.
If you find a placement in a decent MC or skilled nursing or group home, you will not be alone in your caretaking. You can get to know the nursing staff and the caretakers and other residents and their families. There will be activities for her and you to participate in and you can be as involved in her care as you want to remain to be. I visited my Mom (post-covid lockdown) anywhere from 3 to 6 days per week and stayed with her almost 24/7 during the last 3 weeks of her life with hospice visits, private caregivers and AL staff all in attendance. I had continued to be closely involved in her care, being there for doctor visits almost always, and sometimes PT, OT visits, too. Kept up with her through and chatted with with the nurse, med aids etc... as well.
I brought her to my house for holidays, birthdays, or to the park when she was able. Her facility celebrated Halloween outdoors, Mother's Day brunch by the pool, family invites for Thanksgiving meals with the resident, etc... Support animals visited the facility. Residents were taken by van on outings to the beach, to get ice cream, to the local botanical garden where there were animals to visit with. Her eyesight wasn't great and her short term memory wasn't either. She described it to me as "we went to animal planet and I got to hold something green. It was soft. I think it might have had something like feathers." "Some man held a snake!". At the time, I didn't even know they had gone on an outing. I thought she had seen something on t.v. Lol! I found out later from the staff that she held a parrot!
I was still caregiving, but had help and other eyes on her besides just me! Watching her decline was still heartwrenching and stressful but I did not have to carry the whole load by myself and was able to get rest and take a vacation once in a while. Even then, my physical and mental health suffered as I am a fixer and a worrier and want to make everything all right. I have learned it is not possible to fix/prevent old age and death no matter how hard you try. Duh!
Please, please consider yourself and your own health in all this. Get some support in place-- neighbors, church, hobby group, geriatric care manager--anything. Call your Area Council on Aging. You have a life to live as well. I know that isolated alone feeling very well as do many others here. Some friends dropped away during the caretaking and covid years. Get mental health visits online if there is no one local.
I feel tears are a trickle (or river) carrying away the hurt, so cry away-but keep reaching out for support. Be persistent and it can get better. It can be harder for those of us who are introverts or who are taking care of an introvert to reach out.
You can private message me if you need someone to chat with.
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