I have a lot support and still feel very alone!! I love my husband very much and know his illness isn't his fault. Our sons, their families and our church family are very supportive but I am feeling like my whole life is consumed with his illness. Trying to pray, lean on God and others but it's just so hard....not sure anyone understands how I feel.
Whether we are running between several people or concentrating on one, we never get a break. It's easy to say take time for yourself, but very hard to do. There is no easy answer for any of us but there is support right here on agingcare.
Carol
I hope you have some friends to lean on . . . to unload on . . . to go to dinner with, etc. You are entitled to as much life as you can squeeze in. If you allow it, his illness will consume YOU.
Keep reaching out. Plan shopping trips. Go to a movie with friends. Dinner. Have them over to your house if you have the energy. Keep your husband as involved as you possibly can; but when/if he can't? You must take care of you.
People talk about classes - well, I have no time or opportunity to take classes. My husband say NOW, that all I do it run. The reality of it is: I get our groceries - one bag at a time - and I try to keep my fitness in check. The remainder of running is to the doctor (for him) and very occasionally a trip to one of our two son's. That's becoming nearly impossible as he never wants to go - doesn't want to go anywhere.
Yes, I do understand your situation and your frustration. I'm afraid to ask God for patience, for in the past it has made things worse. (Just kidding). I do ask that I could be a kinder person, but, believe me, there are those times when I feel less than a Christian.
May God bless you and my hugs to you as well!
Campy
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