I have the ability and freedom to do anything, except stop being the full time caregiver of two elderly parents. I can jump in the car and sit on the beach for a couple of hours, but it doesn't help me out of this funky feeling, nor does doing anything else help. I just want to hide under the covers and eat potato chips until I can have my old lifestyle back, without being a Caregiver. The more I don't do what needs to be done, such as paperwork and phone calls, the more I get overwhelmed. I'm scheduled for respite starting middle July, for a month. I don't think my sanity will make it to July.
I see from your profile you moved across country to be with your parents, away from your hubby and the cats. It's terrible when we find ourselves enabling our parents so that they can continue to live their lifestyle while we have to make major changes to our own lifestyle..... it's not fair.
Ask your self, what if you weren't around, what would your parents do? I asked my parents [mid to late 90's] and they said "we would manage".... good grief, they couldn't manage with me living down the street from them. Mom refused caregivers. Refused cleaning crews. Refused to take a taxi. Refused to use a walker.
If only I could re-wind the past 7 years, I would do things so much differently. I would have not enabled my parents to keep living in that house with all those stairs. Someone was always falling. My parents were in denial they needed help. They never took care of their parents so they had no idea how much stress they were putting me thought. It was totally overwhelming. I can't image what you are going through being under the same roof.
Time to let Mom and Dad know you need to go home to your own family. Mom should understand this if her memory is still ok. Time to look around for caregivers to come in, if your folks can afford it. Or it is cheaper to move into Assisted Living. If not look into Medicaid, they would pay for continuing care facility. I know, not easy putting a love one into a "nursing home", it's either them or you will wind up in one, or your parents will outlive you.
I am your #1 fan.
You write like I think. I write like I don´t think........haha.... just a little humor here.
That "feeling", ltb calls it a "funky feeling" is what I have all day and night.
For the past 5 yrs., since mom came to live here with us, I have had NO life, but for a very very very few times of respite, like once per year, 2 days, when M_ _ _ A came to stay with her. Other than that..............it is the guilt trip to the "N" power.
You guys, you won´t believe THIS, here I sit in the office typing, and SHE CAME TO KNOCK ON THE DOOR.....................THIS IS A FIRST.....................AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA
NOT A HAPPY CAMPER........................I WILL GO SEE WHAT SHE COULD NEED SINCE 10 MINUTES AGO WHEN I LAST SAW HER......................
I LOVE HER.
I HATE THE CONTROLLING POWER OVER ME.
M88
Can they help you with the paperwork then? If the only or major problem is no driving for them, can they do some of the stuff? Like............making manila folders, and compiling same type of paperwork together for you?
How able are they?
THere are all kinds of levels.................Mom was awesome back when, but now, even separating clothes hangers PLASTIC from WIRE is such a huge confusing endless complicated chore for her.
Use the abilities your parents do have still to your advantage, and they will feel useful! believe me.
NINE MONTHS....................................well, like you said, you promised.
However, you promised in marriage to your hubby to STICK to him thru thick and thin, correct?
He has priority, I have to say. The government and agencies, etc., see about the welfare of the aged.
The sooner you snap out of this rut you fell into, the sooner you can go home.
Parents will be cared for, by YOU, but YOU are going to do it REMOTELY...........from your house with your hubby at your side. Not a good idea to leave your mate for too too too long a time.
What do you think?
M 8 8
Once something happens, I'm a tornado in action. But most of the time, I have to fight my inertia and my desire to just sit and metaphorically wait.
Itb, I wondered if your parents are still independent, could you direct them how to cleanup their own paperwork. Could they write and cancel all the bug contracts? Or is it easier for you to do it? When I have this type thing to do, I make myself do it first so I can put it behind me. Then I don't have to worry about it anymore. I have a feeling that if you don't get it done before your respite that you'll worry the entire time you're gone. In your shoes, I would enjoy the weekend ahead, then get busy on the paperwork Monday. You should be able to get it all done pretty quickly and not have to worry anymore.
To me, being a bit more "serious" here. It's taking one day at a time & doing whatever you're able to accomplish within it. Yes, things pile up, as they can do within our lives. Believe me, I live it daily. However, we do the best we can, with what the Good Lord's given us. Maybe, suggestion here. Start small & work your way up to the "bigger projects" that aren't completed yet. When you go to the park, to enjoy some free time, take 1 thing with you, nothing too major, that you can accomplish while enjoying the day. Maybe, just set aside "x" amount of time, to get what you know you need to do. That way, each day, you're "knock out" whatever you know has to be done, filed, or what not. The pile will disappear, after "x" amount of time & you accomplish what you wanted to.
We all need to take time for ourselves, we just have to make sure we're also getting things accomplish in the meanwhile. :)
I did not have more than a day away in 8 years and now that mom is in memory care I can barely get to work for being so tired and worried all the time and cannot afford the private caregivers that are with her for 12 hours a day knowing that she will be at risk without them - there is no good solution
Frustrated, I will try your suggestion, I understand it's okay to do just a little at a time and the pile will reduce in time. I just need to "start"...is the key!
Sorry for not going into detail about my parents, I didn't want to share a novel. LOL! Yes, they are independent, BUT they can't be left alone too long.
My parents are not competent enough to do the paperwork on their own. I stopped doing their paperwork about 3 months ago, the pile is now 3ft tall (no exaggeration). The bills are paid by auto pay, but sometimes issues arise. For example, we had an underground water leak of 400 gals per day loss. We didn't learn about it until we received the water bill...yikes! It has recently been fixed.
Long distance caregiving is not an option. My parents live in a rural area, with no public transportation. As well as, Dad has Parkinsons in his legs (not arms), so he is unstable. However, Dad still walks a treadmill for 10 min daily, while hanging onto the arm bars. I insist he carry his cell phone, because he has fallen in the yard twice and needed help getting up. He has called me to help in up once.
Mom has PPA and early Dementia. She has lost 80% ability to speak words due to PPA, Primary Progressive Aphasia. She has unpredictable temper tantrums; which causes Dad and I to walk on eggshells around Mom. 2 weeks ago she hit me, out of frustration, while she was trying to find the words to express herself about giving Dad a warmed cup of prune juice. Mom often yells at Dad and I saying, "I not stupid!" Mom has hearing aids, but doesn't use them. Often my mother has a misunderstanding, because she doesn't hear well and her brain actually puts in wrong words, which I saw during a computerized hearing test. My mother doesn’t like anything technical, so no computer or tablet use to help her speak.
Also, my Dad is showing more signs of short term memory loss, which was confirmed last month by his Parkinsons doc. A couple of months ago, while I took my Mom food shopping, my Dad let a stranger into the house and told her all about our family. She said she was a financial advisor and was in the neighborhood visiting anyone home. When I got home I immediately called her and asked her to never stop at our house again.
My Dad spends his day in the yard, scraping moss off tree branches. My Mom spends her day doing puzzles or Sudoku or reading. My Mom swears like a truck driver when she is frustrated, for example when struggling to open a jar. Dad gets upset when he hears her say S..t and asks that she stop, but she replies with..."OK I (will) say F..k." Needless to say, there used to be a lot of verbal confrontation. It has slowed down after my move home, due to me advising Dad to just let it go...it's Mom's PPA and Dementia. He has learned to stop confronting her.
As a way to keep my mother involved with daily life's responsibility, we have her make breakfast and lunch for the two of them. It's not the greatest and sometimes it's burnt or she leaves the burner on. My Dad and I feel it's okay and we keep an eye on the burners.
So...they don't need 24 hr care and yet they can't be on their own. I know there are many caregivers out in the world that have a very hard life. I'm grateful for how things are right now and understand it will get harder. By the way, my husband understands and is supportive of what I'm doing, since he has lost both parents and miss them a lot. He sometimes forgets I need him as my sounding board, especially when I'm in tears...
Thank you everyone for your support. I'm feeling "a little" motivated and will try to spending at least 1 hour working on paperwork tomorrow.
The med's have not changed my circumstance, fixed my life or help me drop the weight I've gained but dred and helplesdness don't f*ck with me all day. Sure I'm very sad for myself and my mom and not only is there so much to do, there's all the stuff I didnt do ( some of it is looking at me now) ☺
I wish you clarity, peace and happiness. You can do this girl!!!!
The other thing that i think you need to thing about, long term, is when do you decide that one caregiver isnt enough for your parents. You say they don't need 24/7 oversight, but the burners, dad's memory loss....
During respite, is one person coming to be with them?
Are you researching what options exist for when things take a turn for the worse? Do you know what facilities are available near you and near their current location? Any thought to selling the other houses?
I would also get that cough checked out sooner than 5 weeks from now.
It is so easy to promise home care when we can't visualize our parents becoming elders, and have zero idea what is involved.
My parents never asked me to promise them they could stay in their home. I never visualized my parents being very elderly.... they were still walking 2 miles a day in their late 80's and early 90's. Dad was still fixing everything around the house, Mom still doing all the housework even at 97.
You need to do what is best for your parents and what is best for you. I bet years ago your parents never thought about you leaving your husband across the country to take care of them..... oh never in the million years... now look.
You have been doing this for around 9 months... imagine doing this for the next 5 years. I know it has ruined my health, thus no fun retirement in my plans... that bucket list was crumbled up and thrown away. Yet my parents had a wonderful 25+ year retirement traveling everywhere.
The 3-ring binders became a huge help. I bought more. Each one holds a certain subject matter.... one for Medicare... another for Supplement insurance... one for the stock broker statements.... one for the senior living facility... another for credit cards.... another for misc bills A-Z... another for bank statements, etc. Made my life much easier. The binders are different colors... thus all the medical ones are black.... all the stock are navy blue.... the banks are lime green [for money], etc. New binders are easier to deal with then old ones that are hard to open.
I, too, had to gather up all the bank accounts and put them into accounts at one bank only. It was a nightmare because some old accounts had auto payments, and auto deposits, That meant I had to create on-line accounts to make changes. Now all the bills/statements come directly to my house.
May I ask why some of the houses are sitting empty? Is that to use for tax loses? Or are these summer/winter homes for your parents? Does the homeowner insurance know about this? Some insurance carriers will not renew the homeowner's insurance if the house is empty as it is now high risk. And if something happens to the empty house, and the insurance agents notices the house had been sitting empty for some time, they might not pay out. Oops.
I wish I could afford a PA for myself. Would that be cool or what?
or WHAT! HAHA!!! Retired PA for hire..........put it in the classifieds. *just kidding*.
To the one that wants to run away...............want/need a driver? I'm game!
To the one with the potato chip thing, I ATE A WHOLE bag of NEW flavor "Pico de Gallo" Lay's..........oh man, they are hot & spicy, and I am not into salty stuff. I much rather hit the Haggen Daaz Ice Cream, and .................. I'm going to get a bowl, any takers?
M 8 8
11.02 pm where I live, and the grocery stores are CLOSED........GGGGRRRRRR!!!
I will find that flavor and report back to you ASAP,!
Nitey nite, good people, good morning to you in UK,!
M 8 8