My dad is on hospice and also has a Medicaid aide at home during the daytime. His hospice care manager called me to say that he has to go to a hospice facility because he is near death and it would be a "disaster" if he stayed at home. Not sure about that because my mom, in the same situation, died at home and it was fine. No disaster. Also, doesn't Medicaid have a 5 year lookback if he stays in a hospice facility beyond the "respite" period of 5 to 7 days? The Hospice care manager said she thought it was simply transitioned to long term care without a lookback, but I don't think so. We cannot do that because of some things my dad did with his money two years ago. But since my dad is mentally capable, I have no say in this, so that is potentially another problem. If he wants to go there, I can't stop it. And he seems to want to. But I think it will be quite disruptive, since he will have to return home. But the main question I want answered is about whether the Medicaid 5 year lookback would happen in the hospice facility.
The hospice was covered by medicare and once she went in, she was inpatient until she died.
My bil just went on hospice and they took him for a respite while our other two men were sick in the hospital. That is different from inpatient hospice.
Important to know is that all hospice units are not the same.
If you have a choice, ask around and also talk to several hospice houses.
Also know that some hospice houses do not have inpatient facilities at all….. in our town.
OP's question: "But the main question I want answered is about whether the Medicaid 5 year lookback would happen in the hospice facility."
OP is not asking if her father would be qualified... only if there would be a look back.
If I were in the same situation I would want that info too so I could help my father make the best decision. I'd hate to find out after the fact, oh by the way you are disqualified for Medicaid and have to leave.
You may want to look for another care manager if she can not provide the answers. It is frustrating dealing with someone who is supposed to be experienced and uses the words "thought, thinks, possibly, etc." without offering to find the information for you from someone who KNOWS. This is not a time you should have to look for the answers on your own and risking the wrong answer.
You may also have her define her word "disaster" since you have already gone through it one time. Of course no two experiences will be exactly the same.
You also have the right to use any Hospice company you desire and change as many times as it takes to find one that is a comfortable fit. That said, as long as your dad is mentally capable you are limited by his desires which makes it harder for you to advocate for him. Hoping you can get a better understanding soon.
I believe you are thinking that if he were still alive after 5-7 days in a facility, he might have to return home for financial reasons? I agree that that would be very disruptive. However, while nothing's certain, if he is definitely "near death", it is probably unlikely that he would live that long. In the situations with which I'm familiar, people who moved to a hospice facility near death died within a very few days. I realize that is not a certainty, though.
I do not know whether the 5-year lookback would apply if he needed to transition to long-term care after 7 days. However, pragmatically it doesn't make sense to me, because completing the lookback could not usually be done in the amount of time available before the patient dies. I don't know how difficult it is to contact Medicaid, but my first thought would be to contact Medicaid directly via phone to be certain you have an answer. As someone else suggested, if he has a Medicaid caseworker, he/she should know also.
If it’s an LTACH, I’m pretty certain it is considered a “hospitalization” and so it’s covered benefits under Medicare Part A. And hospice itself is a Medicare Part A benefit, so between the 2 that stay is covered except maybe for some medications as sometimes meds fall into Part D of Medicare. There would be no LTC Medicaid involved as it is NOT custodial care that is happening but hospital care.
LTACH for admissions are run totally different than a hospital as a hospital will have an ER / ED and takes in folks “off the street”.
LTACH tends to quietly exist next to a big teaching hospital and connected by a enclosed bridge OR are a free standing hospital located within a big Health Science center OR are their own floor or wing within a hospital that they “rent” as an LTACH with their own nursing staff and it has limited access for entry. What you have in your area will be imho kinda interdependent on how big your city is. For admissions, LTACH it is done by a referral only with specialized continuity of care type of paperwork submitted to insurance.
I have had 2 direct experiences with LTACHs:
- for my Aunt in her 90’s she fell in her IL apt & found unconscious at the tiered facility (IL, AL, NH on one campus) and went via EMS to hospital where she was stabilized and it was determined little could be done by an admission so she instead went to the LTACH that was a free standing building that was pretty much all elderly hospice in last stages of life but needed more involved care & meds that could be done at home by hospice coming by even in a SNF. It was run by VITAS. In its past life the building had previously been a Women’s and Children’s Hospital.
My Aunt as she was living in IL & had Medicare and a secondary supplemental health insurance (I think it was Humana) was not faced with anything LTC Medicaid program or Medicaid as health insurance.
- my MiL in her 80’s was in a NH, got pneumonia and hospitalized for it. It was her second go round on this happening. Few days in she started to get septic and obvious she was never getting better. & MiL returning to the NH wasn’t going to happen as her care was way involved. She got moved to the LTACH next door which was connected by a bridge btw them. She was on serious black box drugs, had bad sepsis and was doing cascading organ failure. This LTACH was different than my Aunts as most there were way waaaaay younger and there dealing with end stage cancer care. MIL had filed for LTC Medicaid to pay for her custodial care costs for her NH stay (which was still not approved at the time of her death which is a whole other drama) but was on Original Medicare and low income Medicaid at the tie so she had those 2 for health insurance. This LTACH is now a Kindred Hospital; and Kindred is the big national chain that does LTACH type of health care, & it tends to be end stage cancer care.
But for both it was a hospital stay as far as health insurance was concerned for billing. An hospital stay is a MediCARE Part A benefit which if you kept Original Medicare covers hospital costs. And both had affiliation with a hospice group which still came by to see them at the LTACH but way less than an In-Home hospice or at the Nh hospice visit would. And hospice too is a Medicare Part A benefit.
If yiur dad is on Medicare Advantage Plan those will be a crapshoot as to the LtACH being “in network”, so good luck on that.
I will say the nursing staff for both was stellar; it’s not easy or simple working with end stage patients and dealing with their families. They were very much “the Pros from Dover”.
As to what is covered, usually Hospice care is covered by MediCARE , not Medicaid, and it isn't clear what this person saying he must move is talking about.
Hospice has access to Social Workers.
Use them first to track down the details given you information about what dad "did" with his finances.
If necessary then, try an elder law attorney with your details in hand.
My mom just died on home hospice, and I really wanted her to go to a hospice facility at the end. Not only could I not find one nearby or affiliated with my agency, the couple that I DID find, many miles away (or in another state) were inaccessible or unresponsive.
Also, my hospice agency was against mom moving. She died at home, alone with me. I found an end of life kit with medications that I didn’t even know what they were for, and other supplies, like mouth swabs, that we ended up buying ourselves, after she died. Hospice sent that stuff over 6 months ago, never said anything about it and I set it aside and forgot about it.
I hope you have a better experience.