I've been lurking here awhile, finding great solace in the things I read all of you inspirational people say. But I've cried twice today so maybe it'll help to stop lurking and start talking? I feel like I should apologize before I start...
I live with my parents. My father is 71. This doesn't seem old to me at all. But my father has an extensive medical history (heart attack, bladder cancer, left side weakness, mobility issues). He was forced to retire, for medical reasons, in 2018. He fell down the stairs in early March of this year and the ER sent him home after diagnosing a C7 vertebral fracture that they said would heal on it's own. Then he had serious mobility issues later in March and was admitted first to the hospital for four days of observation and then into the skilled nursing rehab associated with the hospital. He was there for just over three weeks.
The diagnosis ended up being a sacral fracture and fused vertebrae in his neck, from a previous broken neck. There were no signs of stroke or Parkinson's or anything... the neurologist said physical therapy was what would help more than anything at all.
He did so well in rehab. They called him the star pupil and said he'd be in PT all day if they let him.
My mother and I were so hopeful.
Then he came home.
They sent a PT and and OT, for about two weeks, and gave him pages of exercises to do. The OT told him about how if he takes a day off, he loses three days of strength... and it takes 30 days to get it back. She told him that the choice to exercise and to do the work was his, and his alone. She told us about how her father let her sister and brother-in-law do more and more for him until he couldn't do anything for himself and he started falling and his organs started failing.
Maybe she pegged him as someone who would choose not to do the work.
And she was right. I knew that before he went in, after he blew off PT after hand surgery and basically lost use of his hand, even if I didn't want to admit it to myself.
But I hoped it would be different because he worked so hard in rehab.
And then he mostly stopped doing the exercises and stopped working for anything, just like he did between when he retired and was hospitalized. He changed the exercises to be easier, but did them less often. He picked about five that were easiest and calls that done. We sat with him and did the exercises with him, and he claimed we wanted him to exercise 24/7 and be in 'perpetual motion'.
But he constantly lists the things my mother and I don't do for him, even though he doesn't do anything for himself and he will choose sitting and staring at the television every time rather than working to be better. He won't talk to us. He won't be a part of things. But he complains that we leave him out of things, that he's not a part of things. And I've heard my mother beg him to talk to her, about her or about him or about me or about my sister... and he won't.
I ask him why he isn't working harder, why he hasn't found something worth fighting for (even my sister's kids, his grandkids). He tells me I ask loaded questions, don't give him credit for trying, make unfair demands...
And I just want my father to not give up, to not color his choices by claiming he had no choice because my mother and I wouldn't let him exercise, to not turn away when I beg him to work to be a part of my life for as long as possible.
Am I wrong? Did I do something wrong? Because he makes me feel like I did, and I end up thinking awful things about him sometimes - and sometimes I say them, and sometimes he says awful things to me.
He apologizes for that a lot, and so do I, and then he promises to be better, to talk to me more. And then he doesn't.
I couldn't even tell a doctor what's going on, because he doesn't talk. That's what my mother and I told the ER and rehab staffs. We don't know, he doesn't say.
Thanks for listening to me. And thanks for all the words you've already said.
Read the book “Being Mortal, Medicine and What Matters in the End” by Atul Gawande.
Study the ADLs and the IADLs. You can find them easily online. Track what he’s able to do and not do on a regular basis. This might help at the doctor appointments.
Recognize that your dad could live many years as an invalid. I hope he decides he’s not ready for that yet.
I encourage you to live your own life instead of focusing on your dad’s decline. Your mother seems to have the right idea about not enabling him. Catch him doing something right and ignore the negatives.
Don’t feed into his wanting to blame you and your mother. That’s not good for any of you.
You need to think about how much of your own health and life you are going to sacrifice because he doesn’t want to take care of himself.
The Zoloft may not be the AD for him. There are many more to try. I take that as a good sign that he asked for it.
Give your mom a hug. She must also be discouraged.
A lot of people do well in rehab, they want out. When they get home, PT goes out the door.
You cannot make Dad do. And keeping at him hurts u more than him. You need to tell him u love him and want him around for years. But as long as he keeps playing the invalid that is not going to happen. You are done pushing him. Its his life, so u will back off. But, you refuse to wait on him.
I did always wonder if he was bothered that his Medicare supplemental plan was willing to pay for such a long time in rehab. So maybe he did work to get out. And they had told him if he didn't do the work there, do the work to be able to go home safely, he'd have to go do more work at a nursing home. So maybe he was working to avoid that.
Now if he'd just work to live a good life. But I am going to try and stop pushing so much. I try and remind myself that it's his choice. But his choices affect me so it's hard. Is that selfish?
So sorry to hear he is going through all this pain and despair. When you speak to him encourage him to express what he FEELS instead of pushing and pushing because if you push at this point he is going to turn his face to the wall. Ask him "What is the worst of this for you Dad, " and then listen to him. You will learn so much. Good luck
As for the PT - I bet the percentage of people who continue to "do the work" for an extended period of time is not very high, to back up my belief all you need to do is look at the number of people whose new year's resolution to get fit is abandoned by the end of February. If it is worth it to you to try I suggest looking for activities that will get him active and motivated that are not "pages of exercises" - hiking, biking, golf, bowling, dancing, rec league old timer's baseball... I'm just throwing out random stuff here. Another advantage to that is it can help him fill his days and to feel less adrift.
And you're right... it has been incredibly stressful this past year to wait for him to 'turn his ship around'... and I'm scared that he won't.