I’ve heard people say that we, as caregivers can get paid - through the state I think - because we are full time 24/7 taking care of a spouse, parent, friend of the family, or what have you. I just don’t know where to start to look into this. It sure would be a big help to have that little extra income. My husband and I were separated before all this but now he’s had to move in with me and is nearly 100% bed bound. Taking care of him takes up my whole life. I’m hoping I could even find respite care for him when I need a break.
I also suggest that you contact a Hospice of your choice and let them determine if he is eligible. You will get the supplies you need. All the equipment that you need as well as a Nurse will come at least 1 time a week to check on him and a CNA will come 2 to 3 times a week to give him a bath or shower and order supplies.
With Hospice you can request a Volunteer that will come in and either sit with him or they will often do light housecleaning or run errands for you. They can not do "hands on care" so their time is limited to about 3 to 4 hours.
And one of the benefits of Hospice is Respite is covered by Medicare or Medicaid and that is about 1 week (a little less than a week) but it will give you a break.
https://www.agingcare.com/articles/how-to-get-paid-for-being-a-caregiver-135476.htm
If you do get paid by the state (through an Elder Waiver program that your husband applies for) it won't be for full time and it will be minimum wage most likely. Talk to social workers for your county. He may qualify for some in-home services, like light housekeeping, food prep and hygiene help.
You need to consider that at some point his care will completely overwhelm you (and it sounds like you're on your way there right now). Things like, his incontinence, mobility, turning him in bed, medical issues, etc. Please consider that he sounds like he'd qualify for LTC and therefore possibly Medicaid. If so, he can be transitioned into a facility near you. There he'd get all the medical help he needs and you won't be drained. Many a person starts out caregiving with good intentions but ends up burnt out (and sometimes even broke and bitter).
If you're going to be his caregiver he should assign you as his Medical and Financial PoA so that you can legally help him manage his affairs and medical care. He should create a Advance Healthcare Directive (so that he makes his EOL medical care known and you don't have to make those decisions for him), and a Last Will & Testament.
You wrote that, "Taking care of him takes up my whole life. I’m hoping I could even find respit care for him when I need a break." It will only get more so and you will need more than just a break -- you need to still have your own life right now, not later.