THEN:
I used to laugh. I was able to see humour in everyday life. When others were unhappy, ungrateful, angry or mad; I was always able to bring some relief and bring a smile. My outlook on life was good. I was a happy person.
NOW:
That person is gone. I cry almost everyday and I cannot see any happiness in my future. I live under a mountain of stress, debt and hurt because of my narcissistic mother who has dementia. I had to take a line of credit to pay HER bills for her & for her couple of rental properties. I had to pay the house & car insurance & monthly bills which are included in tenant rent - .. hydro, insurance, heat, snow removal, yard care, etc. etc. I pay the bills... she gets the rents! She complains that she has no money to live on. I don't know if she really thinks that or it is just her 'regular' lies & manipulation that have gone into overdrive from the dementia.
I cannot access any funds to pay her bills because the doctor won't give a definite diagnosis as my mother (who has some clear & lucid times during the day) constantly threatens a lawsuit. A few weeks back: a health care worker came to her house for a test of her mental capacity - Mom failed miserably. It doesn't matter. In Ontario, Canada - a minimum of 2 tests need to be done and mom won't allow anyone else into her home. She knows what is happening but she doesn't. It makes no sense to me!
I don't think I will/can ever get back to happy. Where is happy? I am stressed out to the max. I tried to walk away- only to have my doctor (we have the same family doc) tell me to go back to my mother as she fell and needed me!!!
I miss being able to smile. I miss being able to see that my life might matter. I am so tired of the abuse. I feel hated, I feel terrible. I feel like giving up!! I don't think I will ever smile again.
I have her P.O.A.'s but I cannot enact them until the doc signs off _ so that is not going to happen.
Therefore, I cannot call anyone or act on her behalf because she does have (and should have … if she is in her right mind) the right to refuse.
Since, her neighbours now get her groceries for her and I had already arranged for her meds to be delivered: things "appear" as if I did the right thing. Yet, there are so many, serious underlying things that are bubbling under the surface.
I have tried to step back and not live there attending to her every whim: but things have gotten even worse.
She doesn't feed her cats if I am not there. I cannot even call animal care as they cannot enter or really do anything about my calls because there is no proof.
She seems unsure about when and what meds to take. So, the drugstore (with her permission) bubble packed her meds. When they delivered them: she gave the poor delivery guy hell! - because she felt that that it was dangerous to any small children that might be in the home (there are none!!!).
I get it! This is the nature of dementia. I am faced with is her constantly calling and degrading me and a lot of people call me : (people that she has spoken to) and God only knows what she has said about me - calling me and disgustedly asking why I am not taking better care of my mother, etc. etc.
It goes on and on.
I just want a little bit of happy back. I really don't think I will ever be allowed to be happy again. I suffer from numerous immune diseases and none of that matters. It is always all about her.
I am sorry to have went on and on. I just don't know what to do anymore.
If you absolutely have to get out of this situation, can't you hospitalize her? Or at least get her a psych evaluation and when it comes to discharge REFUSE to take her back? That would force the "system" to put her in a home. It is not mandatory for you to care for her. It really isn't.
My mom had 15 years of Alzheimer's disease and her care meant she 100% depended on me for her health and life. I was her life support. But at no time was she ever mean or abusive to me. My mom and I were very close--I never moved away from her; I never separated from her until she died. Mom was my entire life and universe. From the moment I woke up to the point of going to sleep, I had to care for her. So you really have to be close to cope with this level of care. When mom died I was left feeling destroyed because the center of my life died. It took quite a long time to get used to this level of change. After 1 and 1/2 years I'm still recovering from the loss of mom, but I'm employed now and trying to get my Master's degree. With insulin-dependent diabetes, she managed to live to age 90. Doctors told me I really took good care of her, especially to last that long with her multiple medical conditions and her brain was completely eaten up with Alzheimer's disease. Ironically Alzheimer's did not kill her. It was the complications of insulin-dependent diabetes and 10 years of Stage 3 kidney disease due to being a diabetic even with very well-controlled sugars.
So I cannot imagine caring for someone in your situation. You have to really want to be a caregiver to do it. If your mom is abusive--you seriously need to get out of it. You are NOT obligated to pay HER bills as long as your name is not on it.
YOU know what you are doing and have done. I try to imagine what celebrities do when they see lies about themselves all over the place. We have to do whatever they do - ignore it as best we can. The hard part is we will lose family and friends who will believe her over us. So be it. You need to have people in your life that like you, love you, care about you, appreciate what you do and what you have done.
I'm still not at the happy stage yet two years later (housing situation gone so no place of my own to live now and I still have to deal with my mother on occasion), but it is a hell of a lot better than when I was in the same house as her and my immune system troubles are less. Yours could be too. We could predecease our mothers, you know. Tell yourself that you deserve your final time of life to be ok. (and yes, it's a daily reminder to myself which is why I come on here for support to remember - try it maybe)
And like the other advise here, maybe find an online support group. I found the narc mother ones and C-PTSD group is more helpful than Alzheimer's because many in Alzheimer's had loving parents which is hard to hear if you had abusive parents.
Second I find with my husband, everyone can dish out advice but nobody is willing to help.
I would think POA gave you the right to use her funds for her bills.
If at all possible speak with an eldercare lawyer who can at least point you in the right direction. You will need to get a power of attorney, become her healthcare proxy, and thus be able to have some directives (things may be slightly different in Canada than in New York, but I'm willing to bet it's similar).
As for doling out her meds and feeding the cats. That's going to fall into your lap for now. It may be that you can begin with daily visits to at least feed the animals. You can sort through her meds at least weekly and check to see that she is taking them.
I am sorry this is happening. It's tough and it's going to get tougher, but you will get your life back eventually. It's just very difficult at the beginning to begin to sort out what is necessary.
“ clinging to the idea you still have a life of your own “ totally and completely cracked me up, I am still laughing!
Thanks, I needed a good laugh and you hit the nail on the head.
Obviously you are someone who has BEEN THERE!
2. Continue to take walks and take care of yourself.
3. Join the Alzheimer's Dementia Caregiver's FB Support Group. It is a place where you can vent without judgment and receive help and support.
4. Follow the advice of everyone who posted here. They have some really good suggestions.
I also have an autoimmune disease, they said 80% of those with it have a history of childhood abuse/neglect. That’s common when you have a narcissist parent.
I find my mother can have a “spell” at exactly the right moment to get out of trouble or escape accountability.
There is a great video on YouTube called, The Dying Process of a Narcissist where a nurse goes into great detail about aging narcissist.
Also there are really good articles on this site explaining difficult parents, manipulation and guilting.
I find those are very informative and calming.
Above all don’t destroy yourself saving another. Especially those that are self destructive by nature.
I hope this helps and you find some peace, autoimmune issues are about feeling safe and secure in the world
Clearly you are over-worked and over-stressed. Say NO to everything for a few days, then reconsider what you can realistically do for your mother without killing yourself in the process. I am unfamiliar with Canadian systems, but you can undoubtedly find a legal representative to represent YOU. If necessary, have yourself admitted to a mental health clinic for treatment of anxiety. I am guessing that your best tack might be to have an argument of your health needs vs. your mother's health needs.
You say you have immune diseases. Those most certainly DO matter to YOUR doctor. When you see your doctor do not try to maintain a calm, professional exterior as we were all trained in our younger years. Express your anxieties, talk about your sleep troubles and exhaustion. Do not play down anything. Do not say much about your mother, talk about your feelings and your physical deterioration. Try to get your doctor(s) to give you a prescription for rest and a respite from the care-giving that has deprived you of the essence of your being, your happiness.
First you should not have started paying Mum's bills. Now you have a debt that she did not agree to repay and you may never get your money back.
So what do you do?
A few things;
Report her for animal neglect. I know you said she will not allow anyone in, but you are creating a record of her actions.
Although others have suggested changing doctors, I know how hard that can be. So you need to make the doctor your advocate. There are advantages to having the same doctor, the doctor has a relationship with both of you and knows you are the level headed one.
Contact your local support groups. https://www.ontarioshores.ca/patients___families/family_and_caregiver_resources/for_caregivers_of_people_with_dementia
https://alzheimer.ca/en/help-support
Get a therapist who works with people caring for family members with dementia.
Find out about the public trustee in Ontario.
Give the doctor a copy of the report from the home assessment. Ask him why he is unwilling to act. Ask him what he would do if it was his mother acting this way. Tell him if he is not acting because of your mother's idle threats, you will be sure to sue him for his inaction if anything happens to her.
If the GP calls you again because Mum fell and needs help, have him put that in writing and also ask why 911 was not called, so she could be assessed in hospital. Now I know the situation in Ontario hospitals is dire, but a 911 call does not always mean a hospital visit.
Talk to the lawyer who prepared the POA, double check that it is springing and not durable.
Now to the people who are getting involved. I had this with my former MIL. I shut them down very quickly and told them no more calls. I do not give a fig what they think of me.
Stop paying Mum's expenses from your funds. I am sure you started because at that moment you had no idea what else to do, but you must stop. Mum has assets and income, she is the only one responsible for her expenses. If she stops paying her bills, it might just get some of the attention you need on her situation.
If Mum will not let you pay her bills from her money, the bills will go unpaid. Not your problem. Tell her she will have to sell one of her properties if she is short on cash.
I I do know what you mean I've been taking care of my dad for 4 years in the last year I've never been so miserable in my life I picked up a couple more clients to take care of that live two doors down from him but he's my number one priority his stubbornness and forgetfulness and falling down all the time has depressed me immensely I do all aspects of his life and he doesn't give any effort just enough gumption to get in his electric wheelchair and go down and get a drink downtown then he comes back usually falls getting into his bed can't walk can't do nothing. I get paid from the state thank goodness have no other relatives but yes the happiness drains out of you with everyday being consumed with them. My dad doesn't even know how to use remote control . He's gotten stupid and stupider hasn't been diagnosed with dementia but he had a benign tumor where he had brain surgery year and a half ago and I swear they took the brain with it. But he sure can remember all the stories from the past!
With covid I feel I never have anything to look forward to .tired of stupid masks & everything else.
So you're not alone I'm venting too and barely answered you and your problem. Never thought at 55 this would be my career it's not very rewarding watching someone diminish.
Just remember this: Jesus loves you. Jesus cares about you. Jesus is always there. There is not one thing you are going through that He has not experienced. He has been my anchor and still is dealing with a narcist mother and family in the past six years.
I am praying for you every morning precious sister.
If there is any hope...there is a way.
I have no support. As you say if the "Doc" don't see it ... It don't exist. Put up spy cameras...ethically I despise this thought... however safety is paramount....there is your proof.
SO best advice-- fight back-- don't be a wimpy daughter ! Get the cops on your side. People with dementia usually DO start fires-- it is common place. Fight with LOVE backing up all your efforts-- and do NOT tell her a darn thing. People with dementia basically cease being a parent and become your child--- so it is your duty to do the right things regardless of the demented person's wishes ! NOW GO GET the evil stuff trying to destroy you and destroy it.
DugganB ! wow! - you have made me laugh - I haven't felt like laughing for such a long time. So, her house burnt down. LOL! and thank you so much.