Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
Matthew 23:27; Luke 13:32; John 2:15
Doesn't read like Jesus all meek and mild to me?
End result -- I didn't cut the grass. If I had done it once, I would have had to keep doing it. Fortunately, the yardman called and let us know he would be by later in the week, so the war going on at home ended.
Now, don't ask me why an 88-yo woman feels like she has the right to bully her 63-yo daughter like she's a willful teenager. To tell the truth, if someone was doing for me what I do for her I would be very humble with gratitude.
Could that affect me, though, if she has trouble? I'm not in charge of her. I have a very weak power of attorney that does not good -- she still has to give permission to the doctor to talk to me, etc., and my mom even wanted that revoked.
I have to agree with JessieBelle. I go through those same feelings. I sometimes feel like dirt, and wonder why anyone should like or love me. I realized that some of it at least stems from my mom. If she didn't like my mood -- if I was quiet, for example -- and she wanted someone to make her laugh or laugh at her comments -- she'd start in on me for being nasty or bitter or mean. I think that took its toll in a lot of ways, making me second-guess myself.
PS... Didn't mention that while I'm in the same boat you are... My brother's don't 'engage' in the care of my mother at all... Nor, do they care about their (only) sister... Seemingly, they don't have this 'infliction' of the heart that some of us siblings carry.
But then a little later I am again wondering if it is me who is the problem. Am I being too difficult and mule-headed?...
A couple times she, when she was new to her apartment and back in Michigan, she wanted to go to a cookout some club had. She had this vision she'd be famous the moment she'd walked into the place. While there she drank a ton of beer and ate some dinner. Seemed like she had a good time. Now, this was about four or five years ago.
Want to guess what I've heard ever since? "That place was too expensive." (The whole meal was included and it wasn't that bad, plus there was live music and it was in a pretty park.) "They didn't have much food." (They roasted a whole pig, and she was too busy drinking beer after beer to get food until about 10 minutes before the dinner ended.) "The people were stuckup." (Um, mom, you sat there guzzling beer after beer, and just looking at guys and thinking they want to leave their wives for you isn't a good social situation!) She still gripes about how awful it was. And actually I thought it was a nice event. Nice drive in the countryside. The setting was pretty. The food was good. It was nice to hear music and enjoy a beer outside under the stars. But nope, it sucked!
On a side note, she called a couple weeks ago and said she hadn't done her taxes yet, because she was waiting on some detail - she thinks she's going to sue the hospital and get a big payout and this somehow was distracting her from doing taxes.
My husband thinks we should check on her and make sure she gets them done on time. In a way I agree, but then again ... I kind of think, if she hasn't had them done yet it's a good red flag. Because she needs help and not in the way she thinks she does. Her doctor won't cooperate. (But I do think she probably had them done ... she knows when they're due just like she knows when the electric bill should arrive in the mail.)
I guess my take is mean or tough love, and my husband is more concerned. I think it's a case of it needing to hit rock bottom.
I am very glad she is doing some things, but I did tell them to warn me when she goes out, I do not want to run in to her...geez! I would have never in my wildest dreams have ever thought I would have to worry about running in to her out since all she ever wants to do is stay in the bed--maybe she wants me to think she is so miserable so I will get her out of there, but now her choice is to jump in whether she likes it or not.
Also, she has been telling them at AL that she cannot understand why I won't move her in with me.--REALLY!?! are you kidding me?!? Bring her to my house and her treat me this way. No way!! She is worried about her money so she thinks if she moves in with me free of charge, then she can save her money up. She is obsessed over her money. Well, she can have it. There is not enough money in the world that would allow me to bring her here. ((cringe))
Also, they have stopped playing her pity games now too. The director had to tell her she cannot talk mean and hateful to her staff.--that they are there to help her and it is not okay to act that way to them.. YAY!! others are starting to take away her control. She quoted the bible today to the staff saying that the bible says that children are not to forsake their parents. Please someone show me where it says that?!? The director told her that I didn't forsake her or she wouldn't be here today that she would be dead. That I (her daughter) did everything to save her life and make it comfortable for her.--of course she didn't like that. They are just taking up for me in her eyes. I am still amazed at how someone who has pretended to be so sick is yet so capable.--she has really played on me. shm!!
Okay, just needed to tell someone my story. Thanks for reading.
I read something the other night that made good sense too. It stated that a narcissistic person does get angrier and more unpleasant as they get older due to the fact they are losing their self image. They are loosing their looks and their cognitive ability to keep up the image and that makes them frustrated. Loosing control to them is NOT an option and therefore fires up the anger. As I have said before my mom is few months short of 70, and I cannot imagine it getting worse. How scary. These people also have a higher risk of becoming more demented as time goes on and even leads to Alzheimer's. That couldn't come soon enough--for her to forget everything. When she forgets everything, then I will go back around. Ha!
Jeweltone, I haven't seen my mom since Feb. 1, when she had a massive freakout, screaming at us, etc. I've talked a couple times, but kept it very short. She clearly still wants to fight, and I've just had enough.
I forget who said it exactly, and it's been around a while, but there's that quote about how you're responsible for your own happiness, and if you expect others to make you happy you'll be disappointed. I see my mom in that way: It's not my job to be a monkey doing her bidding and trying to please her. She has to make some effort for herself. She may not be able to get around much, but she could realize she's lucky to have people who will drive her around or be happy she has a good, reliable pension, that she could afford a hearing aid or a cab or to travel, and she chooses to be bitter and alone instead. She may have had a tough childhood, and it's sad, but that was 70 years ago. Yes, crap happened, and it was awful but instead of looking at the positive she chooses to be miserable.
Deb.. my mom did those exact things before she went to AL. I would offer food and she would say, I can't eat, how do you eat that? She would always make me take food back home and would freak out if I tried to cook something at her house. She got to where she would only eat ice cream cups and jello. She would get all worked up if I stepped out on the patio to take a break--she would come to the door and tell me to get back inside that I made her nervous being out there.--This is when hospice starting coming in because she lost so much weight and had quit eating. We thought she was getting worse and was not going to make it. After different medications, 24 hour care (even though I came over every day and night), but she needed someone there all the time. After that she started doing better, then went to AL. She still says she can't and don't eat, but believe me, she has gained all her weight back and will be around a very long time. She complains about the food at AL, but the staff tells me that she will ask for certain things they have.
I cannot believe it has been 36 days since I haven't talked to or seen my mom. I can only imagine how mad she is and what she has been conjuring up. I will tell you there is a storm brewing, it just hasn't come through yet. It does make me very anxious, but I am trying to stay strong. I finally went to the doctor for my eczema and he put me on some medication (prednisone) to help clear it up. I am feeling so much better and not scratching like my dog. Ha! Now, to clear up the inside like the outside.
Just remember it takes two to put on a show. I was over 40 when I finally figured out to stop attending my mother's shows. I would walk out, hang up, drive off, whatever it took to remove myself from the theatrics. Which made her all the more angry, but she had to deal with her anger on her own.
There's also Chronic Embitterment that goes along with this kind of personality disorder.
Last time my mom said she'd kill herself, I responded with "I'll throw you a nice funeral."
Once she threatened to run around the senior apartment building naked and pee on the floor. I just said "you wouldn't be the first".
I think my mom is miserable but I think she's the type who thrives on it. Like they're happy to be mad about something, you know? It'd never be satisfying to make scrapbooks or read biographies or visit the senior center because that could distract from being angry. If everyone is screwing her over then she can be the victim and I think that's what she wants, ultimately.
It's always been her old go-to line, "I've always had to fend for myself. I've always had to do everything alone." Far from it, but that's her deal. She tells people this and she long used those lines on me and then I was like, "I just ran to three pharmacies to pick up your medications at the right price for you, then went to the bank to get quarters for the laundry for you, went to the tobacco store you like to get your cigarettes for you ..." and she acts like it's an easy thing for me to drive to five different spots for her. Hey, even if everything is nearby it still takes time to do that.
I think it's her tactic, to use that line to get people to jump for her when she wants them to.
And as for crying -- someone above said mom wants them to cry over her, my mom has twisted that. It used to be she'd say my dad accused her of crying for attention, of faking it, and she hated it. A few times she's driven me to tears, and two or three times it was in front of my husband. Guess what she did? Said I "put on a show" to try and get pity from him -- never mind that most of the time when he sees me he sees me as a happy person. I found it mildly amusing that the person who considers herself a master manipulator goes and accuses others of the same thing. No emotion is honest with her; it's just a way to get things to go her way.
If I get mad that she threatens suicide if she doesn't get her cigarettes in the next hour, and she thinks I'm unreasonable, and yet if I cry out of sheer frustration I'm a manipulative a**! Pot calling the kettle black?
but hey ho I knew I was never important or considered within the care package.
As long as someone is pitying her and crying for her, she is fine. She told my aunt not long ago that I don't even cry anymore. She wants me to cry for her. One of the girls that work at the AL plays on the pity for my mom--to help with the relationship between them. My mom will always say, I wish everyone was like "sue".... You can only feel sorry for someone to a certain point. Also, I had been over everything with my mom too, how much she got out of her 3rd house in one year, how much was in her checking, her savings. She says I didn't tell her then called the bank. Some things she cannot remember, but the things I wish she didn't remember, she does.--which becomes such a bigger strain on our relationship. I have always strived to be the perfect person she wanted and it has broken me. It was never good enough and now it is even worse. I am getting some things done at home that I have needed to attend. Slowly, I hope to get my house back in some order since 4 years has taken a toll, not only on me, but my house and my family.
My next dilemma will be Mother's Day. I would like to say that I will not and do not want to send her anything. I would once again feel guilty if I didn't. I do not want her to call me with a thank you--which she will be compelled to do since she always had perfect etiquette. Hearing from her will be the last thing I want. Her voice makes me anxious. Thinking what is behind it all.
Cher, I will be 78 when my mom is 100. I am 2 years shy of 50 now and I cannot imagine almost 30 years left of this. If I can stay away like I hope to, then I can make it through. I have also read that depressed people have a much shorter lifespan. I just think my mom is always the exception to any rule. Maybe because that's how she sees herself.--LIGHT BULB!! Wow, I just had an epiphany. LOL I have read studies that suggest a person that is severely depressed lives on an average of 71 years. My grandfather, her dad, was a very depressed man--but you would have not known it because he kept going regardless. He became ill with lung cancer and died at 67. My grandmother, her mother, was not a depressed lady and died at 90. I have a friend that her dad was very depressed and lay in the bed like my mom with little to no socialization and he died at 72. My mom on the other hand is very depressed and a lonely person, but yet this spiteful, revengeful person finds a way to keep pushing forward. She literally lives to find failure in everyone, including me. Most of us humans are goal driven, her goal keeps her up and moving. Until she moved in AL, though, she literally only had me and a couple of caregivers that she saw on a regular basis. She now is more social--not by her choice though. It is proven that social interactions of any kind can prolong your life. She doesn't live a good quality of life, but thinking about it, I don't either at this point of my life. Even though I am not miserable as she is, I am miserable in a different way now. I have always been a relatively happy, positive person. She has made me very unhappy and somewhat pessimistic (and I do not like it).
As each week moves on, I realize how much more mad she will become at me. It is kind of scary to think what she could do. She is always looking for a way to get revenge in some way. Thinking about her thinking I have cheated her, I often get worried that she will dig deeper. If she does, then she will only find out that I used the money for caregiving, hospital visits, doctor visits, groceries, and some "gifts" to myself that she encouraged--she will deny that fact to the bitter end. I am not worried about finding where the money went, because I know. It is her believing that I stole it. Oh and by the way, she cannot drive anymore so she told me to take her care and sell it and put it toward something for myself. I had a vehicle and didn't need another one. So what I did, I sold my vehicle to put toward my son's car (he is 16). I kept her car and I am driving it. Now, though she is saying how I am taking everything from her. Her furniture is in storage and she says I took that, a table that she wanted from my grandmother's estate is still at my grandmother's and she wouldn't let me take it to her apartment. She told someone that I took the table. This person took her to my grandmother's home and showed her the table was still there.--do you know that she said, "well, she brought it back so I wouldn't know"...uugh. Let me tell you, if I took $30,000, I wouldn't be needing new windows for my house, my back door wouldn't be rotting away, my landscaping would be finished, my driveway would be fixed and I wouldn't owe any medical bills myself.--the list could go on. She always has an answer for an explanation you could give her. She is one of those people than always has the last word--for real! HA!
If she could only take responsibility for her actions and her words and mean it. I can also see her devious self calling me and trying to be really nice then pouncing on me over the money. If she calls, my answering machine will be the one to get it.
Have a great weekend, peeps!