Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
I've heard the "cause" of everything bad, too. Is it realistic, though? How did you "cause" it? I know my mom always blamed the whole family and my aunt once said "you know, we loved your mother, but we never knew what to make of her." I thought that was telling. We all knew there were problems, we just (back then) didn't know that we could call them that or label them as mental illness necessarily.
I have had a couple friends in the past week lose their moms. These are both male friends and their moms meant the world to them and their moms were so good to them. They are heartbroken. I feel so sorry for them knowing that they will miss their moms and be lost without them. Then there is my mom sitting at AL being hateful, complaining, negative and hating life as she knows it. (I do understand that life isn't as she would like it, but it never has been in her eyes even when life was good) I know I am not supposed to question, but I do wonder how some can live a short happy life and some have to live a long miserable life. My mom is soon to be 70 and that is so young but I will tell you that she will live like her mom, grandmother and great grandmother--they all lived to 90-101. Her dad died of cancer at 67, but the rest of the family lives a very long time. Which is great, but my mom will live a long, miserable life.--so sad.
I have spent the day preparing for Easter and have enjoyed the day, but then I have those instant thoughts about her and how she will not hear from again this Sunday. I am very proud of myself for taking a stand, but then the little girl in me feels like I am disobeying my mommy.
I set it up for her after her fall because I thought it'd be good for her to get some variety and a regular hot meal, which has to be nice when you tire easily or live alone. It's free in the area, with a suggested donation. I hoped she'd see it as a nice service in the area. She saw the suggested donation part and called it a money grab.
I explained and said she could give what she could afford. She tried to cancel it, saying she couldn't afford it. Again, I had to explain it, and then she started ranting about how the food was "for poor people" and it was insulting or it wasn't always her preferred meat and potatoes (my god! They delivered spaghetti! The horror!), and again, they just were seeking money.
I told her for some people that's their only contact with another person and sometimes it's the only good meal they get each day. She still insisted it was disgusting food for poor people.
My husband and I just shrugged at it. Free, charity, kindness ... it's none of that for her. It's just an inconvenience to her because it's not exactly what she wants. It was just another step in me giving up. I'll help her if I can, but I'm not breaking my back to try and make her happy, since nothing ever will.
One of the things I've been involved in for the past 2 weeks is coordinating and confirming the arrangements for her to go to her synagogue's Passover dinner, which is tonight. I had to call her yesterday for another matter (her caregiver called in sick, couldn't get hold of her on her phone, so I made sure the phone was working by calling her and she answered this time). I mentioned the dinner in order to keep it fresh in her memory, and she commented that she thought it was to be that evening (yesterday evening). I said, "No, it's tomorrow-Friday night." As usual, she dismissed what I said, and instead said something about how she'll know for sure if no one shows up that evening -- that she'll know that "they forgot about me."
She just has this poor, forsaken, victim mentality. She's had it all her life, and now with dementia, it'll never be shaken loose. I didn't bother trying to make her understand, I just let it go completely. I haven't called this morning to try again to remind her either. I'm tired of working harder on her social life than on my own, for nothing.
For a number of years, especially after divorcing my dad, I think she drank to self-medicate. Fortunately she doesn't drink anymore, because she would drink to the point of falling over, and instead of it being sad, she always said she was being "eccentric."
Anything unacceptable (dating a married guy, getting too drunk, stealing a waitress' tip, stealing a boyfriend, accusing her boss of sexual harassment to get unemployment after quitting her job, or lying to friends and neighbors or making up a fiance or husband for me before I met my husband, it was "eccentric." If I got upset, I was the bad person with no sense of humor; it never registered to her how weird it was when I visited her with my then-fiance and neighbors thought we were married and he was an airline pilot when we weren't and he wasn't, or we betrayed her somehow to exposing her lie.)
I think she blossomed into a pretty woman at around age 14 or 15 and it got her attention and she's rode on that her entire life. It got her negative attention from the family, and I think she milked it to get attention -- other people noticing her (value, honesty, etc. were worthless, it was all for attention).
It didn't matter if it was true or if it hurt anyone else, so long as she got attention it meant she was something, even though now she's a 77-year-old woman with no contacts to family except for a very damaged relationship with her daughter and no friendships that are more than 2 years old. I think she still acts up purely to get attention, but the problem is most people have figured out there's nothing genuine there or there is no empathy or any real give-and-take. And if she doesn't get what she wants, everyone else is the bad guy in the equation and she's the victim, even if it's something as simple as no one being willing or able to go fetch her her cigarettes at that exact moment.
Anyway, cut yourself some slack from her visits. Many people would be grateful to have the care she is able to receive but does not appreciate
I know somedays it doesn't feel like it, but you've come such a long way.
My mom always showed up when invited when she thought my dad might have a chance to come, she always said yes first. Now, every time she is invited somewhere the answer is always NO! I am glad, but then she accuses me of never asking her to do anything.
If someone looks at my mom she takes it wrong. Someone is always being rude to her and giving her a "look".--her words. Your mom and my mom have the same ideal life. She would love for me to give up my kids, my husband and my life and move in with her; do what she says and do it how she wants it.--I still don't think it would be right because I did it.
They know there's no other family because I took my mom's side in her feuds 20 years ago before I realized my mom was the problem, so I think they invite her for my sake and for her sake, too. And still, she puts everyone down.
One time she thought my father-in-law was falling in love with her and my mother-in-law sensed it and was resentful of my mom because my MIL "refused" to give my mom a piece of cake -- basically I think 8 people were talking over each other at a holiday gathering and my mom took a "no" answer to a question from across the room as an insult even though it wasn't directed at her. She brought up this imagined slight for years!
My mom has tried to take over for holidays that my husband and I have hosted, too, throwing her plans and opinions into everything.
One time she decided to take over Father's Day for my father-in-law (my dad is dead) and tried to get everyone on my husband's side of the family to go to a Chinese buffet restaurant, saying she'd treat everyone (which would be about 15 people). My father-in-law doesn't even like those $6 buffet places and thought it was odd for her to host anyways. Of course she was already complaining about what it would cost her, and then was insulted when they declined and refused to go to the family gathering at my in-laws' house.
Maybe an even stranger example of how my mom tried to steer my life: She told me I should dump my husband (when I was engaged) and "go after" his brother because she thought he made more money. Now his brother is a nice guy, but I love my husband! Then when my brother-in-law married, my mom said his wife was exactly what she pictured, this "used-up slut," which I didn't get at all. She's a sweetheart, always is polished and cheerful, and always fun to be around!
Most of the time now, if we are going to my in-laws my mom always agrees to go and then cancels last minute due always "having the runs" or something similar, or she slept badly due to anxiety and simply can't go. If we host, one of us has to pick her up and it's always on her schedule, never ours.
Finally last Christmas, we invited her to the big gathering and she as usual cancelled an hour before we left (which is a running joke now, not if she'll cancel, but when), so we just ignored her. I used to feel bad, but as my husband pointed out, she's been invited by us and his family, and a neighbor always invited her to her Christmas dinner, and she turned both down. It's not like she didn't have options.
I think my mom's ideal family would be me getting her what she wants when she wants it, and a bobble-head that just nods its agreement while she natters on.
Linda: I agree with you 100%, why would we want to go and spend more time when the time is spent in misery. My mom too lets me know what wonderful children the other residents have.--Hello? Am I invisible here? She told my aunt the other day that she is lucky to have kids that care about her. Ugh! Really? My aunt tried to tell her that she is the lucky one, because her kids only call her when they want something, but my mom seemed not to hear her...HA! She only hears what she wants and believes what she believes. I too cannot fathom the thoughts of being hateful to my kids. Mine still live at home so I know they think my rules are mean, but you know what I mean? (my daughter in college and my son in high school). I cannot imagine putting that much guilt on a child. I struggle through being a Christian and I have read the Bible over and over trying to find that it is okay to walk away from all this. The Bible does say to honor our parents, but it also states n Ephesians 6:4, Paul writes, “Fathers, do not provoke your children to anger, but bring them up in the discipline and instruction of the Lord.”--To “provoke . . . to anger” suggests a repeated, ongoing pattern of treatment that gradually builds up a deep–seated anger and resentment that boils over in outward hostility.
My mom truly believes, like your mom, that it is acceptable and okay to say the things they say and treat us with such disrespect. It is NOT ok!!
When my aunt tried to talk to my mom and tell her that a mother has a responsibility to her daughter as does a daughter to her mother, my mom said--verbatim: "Well, we must have different views on how to raise children and what children should do"... apparently my mom thinks that I am only responsible for her--the narcissistic mother.
I really like the idea of the demo!! I wish I could get her out of my head. If I could stop thinking about it day in and day out, I know I could get on with my life and be a bit happier.
But longer visits, like this Easter, will give her so much time to get in all the talking points and lay on about all the marvelous daughters of relatives and other residents. I love the time with the family, precious as the kids are adults and get togethers are less frequent. But my force field will be up all day, waiting for the next salvo.
It truly saddens me that there are so many daughters out there, dealing with moms who go thru life "scorching the earth." I have two daughters and cannot for the life of me fathom ever saying or doing to my girls what my mom has found quite acceptable.
We need to keep reminding ourselves that we are darn good daughters, in many cases doing far more for our moms than they did for their own mothers. That we have a healthy sense of balance, knowing that we need to care for our spouses and kids, not making Mama #1 for our whole lives. We need to remember that nothing we do will make them happy so we need to let that go. We need to remember that we aren't going to have their love/approval so let that go to.
We need to do a demo project and eliminate the apartment that our mothers occupy in our heads.
I usually feel torn up about it. I wonder, if she falls, who will help her. If she feels sick or dizzy or weak or whatever, I know I would hope someone who loves me is keeping an eye out. But she makes it difficult. I've devoted a lot of time to helping her and I'm still the villain because she wants it all her way, which is utter devotion and a heaping side of guilt. I don't expect a statue put up in my name, but it would be nice just to not be treated like the bad guy. If she wants help and charity she needs to accept that it's a kindness and not bad service!
I would also stress out about how to handle major holidays and birthdays and whatnot. Just give yourself time to figure things out, and know that you're never going to "win." Just do what's best for you. It might backfire, but you may surprised to see how little it matters. I send cards, flowers, and gifts. But no more visits. I am relieved that we seem to be civil toward each other when I do have to see her in person, but I don't risk it by staying any longer than necessary.
When I last saw her about a month ago for her doctor's appt., I could "observe" what was taking place without getting sucked in. I could see her mood start to go downhill as I was driving her home, I could sense her trying to provoke a bit, and was grateful like always, that the day's mission was almost accomplished. It will always be exhausting though, because she's always been an emotionally draining person. But that feeling of torture? It WILL fade, I promise!
I hadn't spoken to her in two months after repeated fights.
I called about a couple mundane details and spoke maybe 10 minutes, updated her on some details, like my father-in-law's heart attack and a promotion I got at work.
In those 10 minutes she told me "It's been nice not to hear people talking nasty to me," (meaning me, of course); about my father-in-law, who's recovering slowly but doing well, "well, no one lives forever"; and about the promotion, she wanted to know how much money I was getting.
My approach was to ignore the dig, say "well, he's slowed down some but doing much better" about my FIL'; and "I'm happy about the promotion." It honestly felt like talking to a stranger, and I swear she didn't really give a crap that I'd called.
I almost think she wanted me to get angry or to shame me into thinking poorly of myself.
I will say a couple years ago, when my mom thought she was dying, she did ask me for forgiveness. I always thought she didn't really know what she was doing, but she does. Now that she didn't "die" she has gone back to herself. In my eyes she has retracted the asking of forgiveness. Have I forgiven her? Sure I have, a very long time ago. I do believe that is what gets me through--knowing I do not hold a grudge against her. I am a forgiving person, and I do realize though that forgiveness means that I have let go of what has happened, but I do not have to be around it anymore. I am very glad I can let go of the past, unfortunately my mom holds on to everything that has ever happened to her and continues to build on that mountain everyday. So sad. When she is gone, I will cry for her sadness, not mine.
BUT - it is not too late for you! Glad you are getting counseling, because your mom's bad life decisions should not take you down with her. You have sen to it she has decent care, and if the whole world does not realize when there are people whose children or grandchildren seem distant and neglectful, sometimes there is a reason for that that lies within the person who is complaining, well, anyone who has been on here or has been through it themselves certainly knows. And it is hard to believe that she has succeeded in making you feel you have done nothing, and yet hard for you to simply believe in your heart as well as your head that her point of view is simply not valid.
Let Mom live her own life where she is as she chooses now - there may be people at the facility who will keep an eye on her and update you, and they will probably tell you she is happier than she puts on for you at least at times. Make sure you let them know you want updates despite going to no direct communication at Mom's request. It is her story, not yours, after all. Yours is still in the making, and you will make it a better one by far.